0 Votes
3 Answers
Preventing colds and infections

I'm just getting over a cold that had me home for a few days. (I think) I'm really observant about washing my hands, etc. but I seem to get a couple colds a year. What steps do you take to prevent colds and other resp infections?

Author: Kristen
0 Votes
2 Answers
Preventing Falls

Yesterday was Falls Prevention Awareness Day -- how do you prevent falls in your own life? You may be interested in this post on COPD and falls posted this week: https://www.copdfoundation.org/Praxis/Community/Bl...

Author: Kristen
0 Votes
1 Answers
What germs do you have?

I was wondering what germs many of you have, if you happen to know? I was reviewing my medical records in preparation for a visit to my pulmonologist next Tuesday and was reminded that the last time I was sputum tested, I had these three germs. I think …

Author: Tim Foster
0 Votes
3 Answers
What is your daily routine? Lifestyle issues.

This is my daily routine. What is yours? Upon waking.......... Coughing and expelling mucous/phlegm for 40 minutes (average) in order to clear my airway passages. On bad days I can go for 60 minutes and my wife will help me by doing persuasion treatments …

Author: Tim Foster
0 Votes
2 Answers
How do you find your edge and maintain a line with breathlessness while exercising?

There has been some chatter about energy level and exercise, as well as breathlessness either while exercising or it holding you back from doing so at all. Does anyone have tips about finding your edge and managing your breathlessness?

Author: Gretchen
0 Votes
2 Answers
Anyone on bedquilline?

Recently had to stop iv amikacin due to hearing loss. Still on rifampin and azythromycin. Waiting for bedaquilline which was approved by pharmaceutical co., Sirturo. Any side effects, efficacy of drug?

Author: Donna
0 Votes
3 Answers
What is the relationship between Bronchiectasis and NTM?

As a novice to these diseases, I am curious about the connection, if any, between Bronchiectasis and NTM. Does anyone have information on this?

Author: Gretchen
0 Votes
1 Answers
Welcome Every one. Be sure to check out the resources

If you click on What is Bronchiectasis, you will see our first educational material created for you! Next on the agenda is to develop a 1s, 2s and 3s of Bronchiectasis. This will be a booklet modeled after the 1s, 2s and 3s of COPD. It will be …

0 Votes
1 Answers
Share your Voice-What do you want to See Here?

What would you love to see more of on BronchandNTM360social? As far as resources, blog posts, information-are you more interested in Quality of Life information or medical knowledge? A blend of both? Let us know! This site is for you and we want it to be …

Author: Gretchen
0 Votes
4 Answers
Exercise beneficial to the improvement of breathing

Exercise is better for all of us weather a lung disease or not. Us with the lung disease need to keep moving for our lungs. Most can maintain the lung volume by keeping exercising and if you do get sick the length of being sick maybe shorter than usual …

Author: Gretchen
0 Votes
3 Answers
Best diet?

Is there a healthy eating plan one should maintain with Bronchiectasis? Does anyone have any food tips for preventing or getting rid of mucus?

Author: Bill Clark
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What message would you send to lawmakers?

On Thursday my colleague Kristen and I had the opportunity to speak with some legislative staff regarding access to health care services. We were there to represent the voice of the patient and family perspective. We discussed the importance of Durable …

Author: Gretchen
0 Votes
1 Answers
Memorial Day/Weekend

I'm looking forward to Memorial Day/Weekend. I recently spent some time on an Air Force base in Las Vegas and it was an excellent reminder of the holiday and the wonderful country we live in. So grateful for the men and women who have (and continue to) …

Author: Delia
0 Votes
2 Answers
Bronchoscopy

This is information for a bronchoscopy. http://www.healthline.com/health/bronchoscopy#Over...

Author: Kristen
0 Votes
1 Answers
Aspergillis (mold)

I have recently 3/2016 been diagnosed with a fungus in my lungs in addition to NTM ongoing infection. Do any of you have a diagnosis of Aspergillis flavus? I am attempting to gather some information or locate someone who has experience with this fungus.

Author: Susieq
0 Votes
2 Answers
Heat and Humidity

With summer around the corner, wondering what tips you have for dealing with increased humidity and heat?

Author: Janina K
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0 Votes
1 Answers
Seasonal activities?

Environmental factors play a big part in Bronchiectasis and NTM. How do your activities change with the seasons? What are some new activities/hobbies you are doing with more daylight and warmer weather?

Author: Kristen
0 Votes
1 Answers
Joining the Research Registry

I know a couple of patients interested in joining the Bronchiectasis and NTM Research Registry - How can they join?

Author: MeganW
0 Votes
1 Answers
Phage therapy

Has anyone heard of Phage therapy to cure bronchiectasis? I read that the do this in the Republic of Georgia Norma

Author: bunnyhop
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0 Votes
1 Answers
International Bronchiectasis programs

Are there international programs offered to those with Bronchiectasis? I'm definitely interested to know what other countries are doing in terms of research and patient support!

Author: MeganW
0 Votes
1 Answers
Bronchiectasis and NTM Research Registry

What is the Bronchiectasis and NTM Research Registry? Is it the same as this online community? Is it something I should be a part of?

Author: Laura
0 Votes
6 Answers
NTM and Bronchiectasis

I was diagnosed over 12 years ago with MAI and bronchiectasis. After having been to several doctors, I am going to one now that is treating me for asthma. I feel good using Symbicort but wonder if I should have more extensive testing to see if I still …

Author: Kathy M
0 Votes
2 Answers
Bronch medications & side effects?

I been wondering about these two you can neb gentomicin and tobramycin I am asking my pulmo when I see him in June. Was told that you have to prove a bacteria by sputum is that true do you know for sure? There is a study out now that they are working on …

Author: Kristen
0 Votes
2 Answers
# NTMs

I have had asthma most my life then in 97 I was termed copd. So its emphysema, chronic bronchitis, bronchiectasis and mild PH. I was diagnosed with bronchiectasis in 2015 by ct scan. I never coughed or had mucus unless infection till this happened. Last …

Author: Cathi
0 Votes
2 Answers
How common is bronchiectasis?

I am interested in knowing how common Bronchiectasis is. Does anyone have any statistics associated with Bronchiectasis?

Author: Bill Clark
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