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Welcome Every one. Be sure to check out the resources
If you click on What is Bronchiectasis, you will see our first educational material created for you! Next on the agenda is to develop a 1s, 2s and 3s of Bronchiectasis. This will be a booklet modeled after the 1s, 2s and 3s of COPD. It will be …
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Share your Voice-What do you want to See Here?
What would you love to see more of on BronchandNTM360social? As far as resources, blog posts, information-are you more interested in Quality of Life information or medical knowledge? A blend of both? Let us know! This site is for you and we want it to be …
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Exercise beneficial to the improvement of breathing
Exercise is better for all of us weather a lung disease or not. Us with the lung disease need to keep moving for our lungs. Most can maintain the lung volume by keeping exercising and if you do get sick the length of being sick maybe shorter than usual …
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Best diet?
Is there a healthy eating plan one should maintain with Bronchiectasis? Does anyone have any food tips for preventing or getting rid of mucus?
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What message would you send to lawmakers?
On Thursday my colleague Kristen and I had the opportunity to speak with some legislative staff regarding access to health care services. We were there to represent the voice of the patient and family perspective. We discussed the importance of Durable …
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Memorial Day/Weekend
I'm looking forward to Memorial Day/Weekend. I recently spent some time on an Air Force base in Las Vegas and it was an excellent reminder of the holiday and the wonderful country we live in. So grateful for the men and women who have (and continue to) …
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Bronchoscopy
This is information for a bronchoscopy. http://www.healthline.com/health/bronchoscopy#Over...
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Aspergillis (mold)
I have recently 3/2016 been diagnosed with a fungus in my lungs in addition to NTM ongoing infection. Do any of you have a diagnosis of Aspergillis flavus? I am attempting to gather some information or locate someone who has experience with this fungus.
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Heat and Humidity
With summer around the corner, wondering what tips you have for dealing with increased humidity and heat?
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Seasonal activities?
Environmental factors play a big part in Bronchiectasis and NTM. How do your activities change with the seasons? What are some new activities/hobbies you are doing with more daylight and warmer weather?
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Joining the Research Registry
I know a couple of patients interested in joining the Bronchiectasis and NTM Research Registry - How can they join?
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Phage therapy
Has anyone heard of Phage therapy to cure bronchiectasis? I read that the do this in the Republic of Georgia Norma
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International Bronchiectasis programs
Are there international programs offered to those with Bronchiectasis? I'm definitely interested to know what other countries are doing in terms of research and patient support!
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Bronchiectasis and NTM Research Registry
What is the Bronchiectasis and NTM Research Registry? Is it the same as this online community? Is it something I should be a part of?
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NTM and Bronchiectasis
I was diagnosed over 12 years ago with MAI and bronchiectasis. After having been to several doctors, I am going to one now that is treating me for asthma. I feel good using Symbicort but wonder if I should have more extensive testing to see if I still …
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Bronch medications & side effects?
I been wondering about these two you can neb gentomicin and tobramycin I am asking my pulmo when I see him in June. Was told that you have to prove a bacteria by sputum is that true do you know for sure? There is a study out now that they are working on …
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# NTMs
I have had asthma most my life then in 97 I was termed copd. So its emphysema, chronic bronchitis, bronchiectasis and mild PH. I was diagnosed with bronchiectasis in 2015 by ct scan. I never coughed or had mucus unless infection till this happened. Last …
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How common is bronchiectasis?
I am interested in knowing how common Bronchiectasis is. Does anyone have any statistics associated with Bronchiectasis?
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NTM Medications
What are the most common medications currently being used to treat NTM, and the side effects associated with each one.
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Nebulizer
Can anyone recommend a really good nebulizer for inhaling hypertonic saline solution? One that nebulizes pretty quickly, puts out a lot of "saline vapor," effective in getting the "gunk" out. Thanks Laura
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Difference between MAC and NTM
I've heard many people refer to the term "MAC" when they talk about NTM. What is MAC? What's the difference between MAC and NTM?
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Looking for a doctor in Dallas who specializes in bronchiectasis
Looking for a doctor in Dallas who specializes in bronchiectasis
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General information on Bronchiectasis?
Can someone direct me to very general information on Bronchiectasis that I can share with friends who have never heard of the disease, but want to learn more? Some of the descriptions out there on the web are lengthy and confusing - and I want to make …
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What is NTM and how would someone know if they have it?
NTM is short forNontuberculous Mycobacteria. NTM are naturally occurring environmental bacteriathat can cause lung disease. The bacteria are widely found in the environment.More information about NTM can be found in the “What is NTM?” section of this …
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How does bronchiectasis affect the lungs?
I have had bronchiectasis and NTM for several years, and I would like to know the effects specifically of bronchiectasis on the lungs.
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