0 Votes
11 Answers
Young age at diagnosis

On one of my asthma support groups a 2 yr old was diagnosed I never heard of one that young.

Author: Rachel
0 Votes
1 Answers
Any contraption or non-medical device that improves your quality of life?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Author: Gretchen
0 Votes
1 Answers
CEO Women with NTM

Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?

Author: C123456789
0 Votes
12 Answers
Are any of you taking the Big 3 medications now? Are you able to tolerate them? If not, what are the

Adverse effects of the 3 major NTM antibiotics.

Author: Gretchen
0 Votes
6 Answers
Event Alert: A Discussion About NTM Lung Disease

The COPD Foundation is excited to announce that we are hosting a discussion with Dr. Addrizzo-Harris, a pulmonologist and professor of medicine at NYU Langone Health, and Dariel, an NTM lung disease patient, to talk about living with NTM. Be sure to tune …

Author: Delia
0 Votes
7 Answers
How Do you clean your clearance equipment?

Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...

Author: Gretchen
0 Votes
10 Answers
Gerd and chronic NTM

How should GERD be diagnosed especially if it may be silent? And what kind of treatment is there? i.e. how aggressive should one be in persuing treatment in an effort to eradicate chronic NTM not eliminated by multiple courses of antibiotics

Author: Barb D
0 Votes
0 This question has no answers.
Market Research Opportunity

Hi all, Schlesinger and Associates is looking for individuals diagnosed with NTM lung disease (including MAC) to participate in a 60-minute telephone and web-based discussion about NTM. The goal of this research is to understand personal journeys with …

Author: Delia
0 Votes
3 Answers
False negative?

Has anyone had a negative culture for MAC in between 2 positive cultures. Makes me wonder if there are false negatives.

Author: KC
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0 Votes
4 Answers
Multiple ntm infections from single sample and bronchiectasis

I'm newly diagnosed with Bronchiectasis and as part of the follow up I was tested for TB/NTM, this has shown negative for TB but I've been found to have 3 different NTM infections which were all discovered from a single sputum afb smear/culture, is this …

Author: Annie70
0 Votes
2 Answers
Been to National Jewish in Denver

After being off treatment for MAC with bronchiectasis for 3 months my sputum cultures are positive once again. My doc is referring me to National Jewish in Denver for assessment and treatment plan. If you've been can you share your experience so I'll …

Author: KC
0 Votes
12 Answers
Saline Solution Therapy?

Does anyone have experience with Saline Solution Therapy? If so, how often do you do it? Is it on a daily basis? Have you had any positive or adverse effects?

Author: Gretchen
0 Votes
17 Answers
Is anyone on PPI for GERD problems?

After taking Nexium (PPI that blocks all acid) for over 3 years, due to problems with the antibiotics for NTM, I read that PPI's cause bacteria to go into the lungs. Don't need more of that! So now I am going cold turkey, with no Nexium for the past 3 …

Author: jancookz
0 Votes
8 Answers
NTM MAI and the bird connection

Hi - found out recently that there is a connection with NTM MAI and living with birds - has anyone been told this by a doctor, I saw a new pcp and he was stunned to learn that I was living in a house with a bird (amazon) - I was stunned that no one ever …

Author: bunnyhop
0 Votes
4 Answers
Do others have recurring flareups in the form of pleurisy?

My most frequent exacerbations show up as pleuritic pain, sometimes accompanied by extra lung congestion, sometimes accompanied by fever. Usually 1 or 2 days of extra tiredness. I generally rest, apply heat, take Advil, maybe extra Mucinex. But I just …

Author: Connie
0 Votes
0 This question has no answers.
NTMers: How often do you have lab / bloodwork done?

Every month I get a CBC, plus kidney and liver function checks, ordered by my infectious disease doc, and I assume you all do too. For those of you who have been treated for 2 or 3 or more years, did the monthly lab work continue throughout treatment?

Author: Merry
0 Votes
2 Answers
how long did your doctor keep you on ntm meds

my drs have differing options on how long to take the big 3 - i so want to stop the meds but am not sure who is giving me the best advice.....so i was wondering about everyone else and how long you took the meds before you were able to stop - norma

Author: bunnyhop
0 Votes
14 Answers
Where were you living at time of NTM diagnosis?

Good morning to all - I am very interested in learning about where people are living at time of diagnosis of MYCOBACTERIA infection and what type of NTM - This ? stems from trying to decide a possible better location to live - I myself live in Sebastian, …

Author: bunnyhop
0 Votes
3 Answers
What is the relationship between Bronchiectasis and NTM?

As a novice to these diseases, I am curious about the connection, if any, between Bronchiectasis and NTM. Does anyone have information on this?

Author: Gretchen
0 Votes
1 Answers
Joining the Research Registry

I know a couple of patients interested in joining the Bronchiectasis and NTM Research Registry - How can they join?

Author: MeganW
0 Votes
2 Answers
Difference between MAC and NTM

I've heard many people refer to the term "MAC" when they talk about NTM. What is MAC? What's the difference between MAC and NTM?

Author: Delia
0 Votes
1 Answers
Where to live - info needed from Dr after Diagnosis

Hi - found this site today and hope i can find a few answers - I have been on a quest to find the best place to live in the USA that is less likely to cause illness to people with bronchiectasis / NTM - also I would like to let the medical community …

Author: bunnyhop
0 Votes
1 Answers
What is NTM and how would someone know if they have it?

NTM is short forNontuberculous Mycobacteria. NTM are naturally occurring environmental bacteriathat can cause lung disease. The bacteria are widely found in the environment.More information about NTM can be found in the “What is NTM?” section of this …

Author: fabiana
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