Bronchiectasis and NTM Ambassadors
Bronchiectasis and nontuberculous mycobacterial (NTM) lung disease Ambassadors are volunteers who are living with bronchiectasis and/or NTM lung disease. They strive to engage other bronchiectasis and NTM community members while sharing resources and educational materials. Ambassadors hope to enhance community members’ knowledge and empower them to seek the best treatments and engage in overall wellness. Ambassadors provide their time and talents to the Bronchiectasis and NTM Initiative of the COPD Foundation and serve as representatives of the community.
How can the Ambassador Program help patients?
- Provide information and referrals for assistance. (No medical advice given)
- Provide information on being a part of research studies.
- Guide individuals on how to stand up for themselves (or family members) and their condition.
- Help support specific programs related to the community.
- Support patients in setting and reaching goals.
- Provide empathy and support.
Bronchiectasis and NTM Ambassadors will focus their efforts on a variety of topics that may include:
- Bronchiectasis and NTM lung disease and its relationship to COPD.
- How to contact elected officials and arrange meetings.
- How to advocate before elected officials.
- Policy issues related to the prevention, diagnosis, and treatment of bronchiectasis and NTM lung disease.
- Ways to educate, empower, and engage the community and know what is important to them.
The Ambassador program focuses on:
- understanding the issues facing the bronchiectasis and NTM community.
- the process of developing and accessing new treatments.
- how advocates can play a role in the creation of high quality, patient-driven health care services and other important community resources.
To learn more, please call us toll-free 1-833-411-LUNG (5864) or email us at: email@example.com