BronchAndNTM360social Community Guidelines

About BronchAndNTM360social:

Managed by the COPD Foundation, BronchAndNTM360social is an online social network where members are able to share thoughts and ideas, ask questions, start discussions, read and comment on articles and blogs and communicate with peers, thought leaders and community managers.

Our top priority is to foster an environment of respect and safety, and as such we ask that you follow the Community Guidelines outlined below. We aim to cultivate a space in which all of our members feel empowered to share their experiences and support one another in a positive manner.

Contribute:

BronchAndNTM360social is a community for all things COPD. The more you contribute to the community the more it will blossom and thrive. Share your thoughts, ideas and inspirations. Help others by posting and answering questions. We want to hear from you!

Respect:

Please respect all community members. The Community does not tolerate bullying or harassment. Members are encouraged to engage in dynamic conversation, but failure to communicate in a respectful manner will result in removal of posts and potential removal from the Community.

Language:

We want BronchAndNTM360social to be a site that is comfortable for all to visit. Please do not post offensive language or upload any offensive material to the site. Any offensive posts will be removed from the site.

Opinions:

BronchAndNTM360social is an online community that provides a platform for individuals to share their thoughts, ideas and views. Please note that content posted does not represent the official policies or views of the COPD Foundation.

Medical Advice:

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with Bronchiectasis and NTM, please consult a physician before making changes to your own care management plan.

Pictures

BronchAndNTM360social allows members to share photos with friends. Before posting any photos, please keep in mind:

  1. Once photos are posted on the web they are public it can be difficult, if not impossible to remove them. Make sure that the photos you post are ones that you are comfortable sharing.
  2. Please be sure you own or have the rights associated with the photos you are posting. We ask that you respect copyrights and trademarks as well as others’ intellectual property.
  3. Please reduce the size of the photos you are uploading to roughly 1000x1000. Images should be jpeg or png format and less than or equal to 2MB.
  4. Photos containing the following will not be allowed on the site: nudity or other sexually suggestive content, hate speech, credible threats or direct attacks on an individual or group, content that contains self-harm or excessive violence, pictures of any illegal activity, fake or impostor profiles or spam
  5. The COPD Foundation and managers of BronchAndNTM360social will not use your images without receiving approval from you first.

Display Names and Profile Photos

We encourage you to choose a non-identifiable display name as this is publicly available. If you choose to use a display name that may identify you, then certain information you choose to post may be identified as your data. This may also happen if you upload a photo, or likeness of yourself, as a profile picture. Prior to posting any photo or likeness of you, choosing a display name that may identify you, and/or post other information that may identify you, you should carefully consider if you wish to be identifiable on our Site and to the public and want to post information that may be capable of being linked to you. This information is indexable by search engines, thus publicly available.

Usernames and Passwords

In order to register on our website and become an account holder, you will be required to set a user name and password. Your username and password is required in order to log in to the site. You are entirely responsible for maintaining the confidentiality of your password and other account information.

Adverse Event or Adverse Drug Reaction Reporting:

BronchAndNTM360social is not a place to report an adverse event or adverse drug reaction. If you experience any difficulty with a medication or therapy, please report it immediately to your healthcare provider. He or she can help you determine if you should report the event to the Federal Drug Administration. Serious events can be reported by visiting: http://www.fda.gov/Safety/MedWatch/HowToReport/default.htm

Identity and Privacy:

Please remember that BronchAndNTM360social is an publicly available online community and therefore any personal information you post may be viewed by the general public. Only site members are allowed to comment on posts.

Promotion and Spam:

Contacting members in the Community for commercial or charitable purposes is prohibited. Please do not advertise, solicit or fundraise on the Community forum or to individual members. Sales of goods or items, whether medical or otherwise are prohibited. The Community does not endorse products, therapies, medications, devices, or interventions. Any content considered to be spam will be removed from the website and the user’s profile will be deleted.

Notice of Clinical Trials or Research Studies:

Any entity wishing to post notice of clinical trials or research studies including recruitment or resulting data from a study or trial or conducting any surveys, must obtain prior approval before posting will be permitted. Please contact the Community Manager, Gretchen McCreary at gmccreary@COPDFoundation.org and provide complete text of proposed submission to include a brief description of proposed study or trial and contact information for those wishing to obtain additional information.

Participation of commercial enterprises:

BronchAndNTM360social is designed to be a forum for individuals with Bronchiectasis and NTM, caregivers, and professionals in the respiratory field. Commercial enterprises may not register or participate on the site. However, if an individual in such an enterprise wishes to register as an individual that is permissible providing their participation does not constitute advertising products, their business or services they provide. Anyone violating this will be terminated from the site and will not be permitted to re-register.

Display or User Names and Email Addresses:

Display names, user names or email addresses using the name of products, businesses, profanity, illegal substances, inflammatory names, reference to a political name, platform, party or issue will not be permitted.

Posting Surveys or polls or contacting members to participate in surveys or polls

No business, individual or organization may post surveys, request individuals to participate in surveys either on the site or through private messages or poll individuals on the site to facilitate a survey without prior permission from the Community Manager, Gretchen McCreary at gmccreary@COPDFoundation.org. Violation of this guideline will result in immediate termination from the site and you will not be permitted to re-register.

Termination:

BronchAndNTM360social retains the right to suspend or terminate your account without prior notice.

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