Below is the link: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/ActionPlanEnglish.pdf The plan will assist you on your Bronchiectasis journey. Let us know if you have any specific questions.

What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?

We live off-grid. Does anyone know if NTM bacteria can be found in rainwater.

On one of my asthma support groups a 2 yr old was diagnosed I never heard of one that young.

Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …

The link below provides a calculator to determine the heat index. Please take action steps, in advance to keep cool, well hydrated and stocked up on any medications you may need. https://www.wpc.ncep.noaa.gov/html/heatindex.shtml

Using a pillbox lessens the chance of forgetting to take your medication or taking too much medication. Filling the pillbox on a weekly basis also allows you to see if you need to call for a medication refill in a timely manner. The link below reviews …

I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?

Please assist our BNTM community in increasing public awareness of Bronchiectasis. Sign up for our awareness toolkit . Help us raise awareness in your own network with our free toolkit. It's packed with social media posts, resources, and tips to help …

I occasionally get blood in the sputum. For severe cases my pulmonologist prescribes antibiotics, but this time it is not that severe, and seems to be getting better. Can this issue resolve on its own??

I started MAC treatment in March but I had to stop in June due to tachycardia. Now I'm waiting for my pulmonologist to come up w a new treatment plan. I've been off treatment for a week now. I'm worried about not being on treatment.

What treatment is available if the big 3 used for MAC causes tachycardia. Are there other options?

Happy New Year! I am curious if anyone else with Bronchiectasis/NTM washes their hair in the kitchen sink instead of the shower. After my first hospital experience 3+ years ago, I recall being told to avoid steam and the aerosols from the shower as much …

Many caregivers need to be reminded that they must take care of themselves as well as the person that they are caring for. Similar to the being a person on an airplane, it is important to be reminded that you must put the mask on yourself properly before …

Knowledge is power. The more you know about a particular disease and how it impacts an individual, the better you will be prepared as a caregiver. We host a monthly online BNTM Coffee Social support group on the 2nd Wednesday of each month at 3pm, EST. …

I’ve started treatment for PA mucoid variant. My pulmo chose Cipro monotherapy. I was inspired by those who commented about this as common and about treatments that worked to “eradicate” or at least minimize it as an issue for them. The literature about …

This tool assists individuals to manage their Bronchiectasis. The tool outlines steps for daily management and provides guidance on what to do if symptoms increase: https://www.bronchiectasisandntminitiative …

The information below is taken from a paper, Reducing Environmental Exposure to NTM, by Joseph Falkinham, PhD, May 3rd, 2021 Flush and Run W ater in Unused Lines to Reduce Water A ge. Water age refers to the time water stays in pipes in houses. …

It is recommended that you unscrew the showerhead and submerge it in undiluted bleach for 30 minutes. Remove it from the bleach and rinse before screwing it back on the shower tap. It is also recommended to replace the showerhead with one that produces …

The link below reviews the diagnostic tests used to determine whether or not a patient has an Aspergillosis infection: https://fightfungus.org/diagnostic-testing-aspergillosis/

I have intermittent asthma, resulting in an onset of wheezing, which often occurs with severe weather changes. The symptoms of asthma are often confused with a respiratory flare-up. The symptoms of asthma may lead one to be anxious, fearing that they are …

I have intermittent asthma, resulting with an onset of wheezing, and occurring severe weather changes . The symptoms of asthma are often confused with a respiratory flare up. The symptoms of asthma may lead one to be anxious, fearing that they are …

There are many causes of post nasal drip, including sinus infections and allergies. The link below reviews the basics of post nasal drip and the treatment options: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community …

Stress and strong emotions can present with respiratory symptoms, such as shortness of breath and rapid breathing, as the airway between the nose and the lungs constricts. For people without respiratory disease, this is generally not a problem as the …

This tool assists you to identify, track your symptoms so you are able to communicate more effectively with your health care provider. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf Please let us …