Hello I have been recommended Pall med filters for NTM-Xenopi control in home shower and taps. has anyone used these or got advise on which ones are best?

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...

Has anyone tried using Hypervolt instead of a vest to improve chest clearance. i discovered it through a physical therapist for back pain, but the 'banging' movement of the tool reminded my of the chest physical therapy i received a while back. …

I have hil rom mine i set on 14 for 20 min 2 times a day. Do not know if they have settings the same. I was told by a copd rep at the hospital in Sept for me to do levelalbuterol is generic xopenex then hypertonic 7% saline then do the vest. It does work …

I've been told that distilled water is best to use with NeilMed, which I do at home. But how do I manage that when traveling in Europe? What type of water do you use at home and when traveling?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Hope someone out there can help. I’ve been on heavy doses of 3 antibiotics since Jan of 2017 for MAC. Sputum still showing positive and showing on CT 3 weeks ago. My MAC doc prescribed Arikayce as an addition but the insurance company has denied coverage …

Hello, my first time on this blog! In 2017 I began the 3-drug regimen of azithromycin, ethambutol, and rifampin. After 12 months with no side effects, my platelet count suddenly began dropping, which was attributed to the rifampin and I was taken off it …

I found a you tube video by Dr. Robert Bastian. He talks about a type of cough that is exactly what I have. His presentation is called Coughing That Won't Go Away. Has anyone seen this Doctor (near Chicago) or tried the medications he suggests?

Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?

I am wondering if they took a sputum sample to check what bus she may have? I was diagnosed 2014 but have asthma and emphysema.I am sure my bronchiectasis was caised from many lung infections. Xopenex neb followed by 7% hypertonic saline then go to the …

The patients and physicians at the recent Bronchiectasis and NTM conference in Texas implored all patients to exercise-saying it is a Critical Necessity!! What do you do on a daily or weekly basis to move your body and help your condition?

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Good afternoon All! I havent seen mentioned lobe reduction surgery as a possible way to aggressively intervene to remove the BE area of the lung where fluids and bacteria accumulate and bring on exacerbations. Has anyone had this done and does it help? …

Recently diagnosed after ten years of “chronic bronchitis.” Prednisone and antibiotics knocked it out until last two years. My recent blood work shows compromised immune system, probably from me taking too much prednisone over last two years. Sputum …

I was diagnosed last week with bronchiectasis. I am a physical education middle school teacher and am 49. I used to work out fairly regularly until I had to have a parathyroidectomy/thyroidectomy in the summer of 2017. It took half the year to get my …

Tis the season of travel. Do you have any tips that have made traveling easier while dealing with a chronic lung condition? Please share!

Recently diagnosed with BE and live in Cincinnati and Phoenix areas. Looking for the right physician who specializes in BE treatment and can let me know how to fight and manage this disease. Your help is much appreciated! Thanks Greg

Hi, I am very newly diagnosed with Bronchiectatis, Mycobacterium Abscessus, and Aspergillus. I am feeling a little overwhelmed to say the least. I will be going to National Jewish Hospital in Denver for a second opinion sometime in the near future. My …

Because I have bronchiectasis I know I will always cough but this is tooooo much. I use nebulized 7% saline twice daily, use Symbicort twice a day and use albuterol inhaler several times a day. I take ranitidine twice daily for acid reflux. HELP, any …

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Newbie here. Diagnosed last month with Bronchiectasis and severe Obstructive Sleep Apnea. I want to learn and I think many of you have already walked where I’m likely headed. First night last night on my CPAP machine. My Bronchiectasis not riled up right …

I have had Bronchiectasis for about 2 years. I started a prescription of Lexofloxacin for 7 days. After three days feeling much better I quit coughing up mucous. My question is WHY? I am happy about it, but I can't keep taking an antibiotic to feel good. …

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

Hello Trusted Friends, My lungs are colonized with MAC Avium, HIB, m. Abscessus has shown up a couple times, a little Aspergillus, and now my most recent culture grew out a fungus called Mucor. I have m. abscessus in my sinuses, too. The ID doctor …