I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Poor air quality can really take a toll on respiratory patients, leading to increased inflammation, wheezing, shortness of breath in some individuals. The link below provides a guide for you to better understand the different air quality flags: …

What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?

Below is an excellent webinar, designed for respiratory therapists. You can listen and learn a lot from this video if you are not a respiratory therapist. Elevating Awareness of Bronchiectasis Watch on YouTube: https://www.youtube.com/watch?v=G0RBqnIu …

It is good to have a tool for guidance in the management of NTM Lung Disease. The link below provides information and the tool that you can print out and use regularly. https://www.bronchiectasisandntminitiative …

It has been extremely warm on the East Coast over the past week. Weather reports can be confusing for many people. Humidity numbers may not be too high but the dew points are high. The How to Geek link below differentiates the two terms, humidity and dew …

NTM questio

I was diagnosed,6 days with bronchitis.What type food can i avoid? 2.What type of exercise should I do? 3.When shall i visit my Doctor. Note: The medication really stopped the bleeding and mucus but I still have little cough.

I only have Bronchiectasis, not NTM

The NTM Lung Disease Management Tool can assist you on your NTM journey: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf

Below is the link: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/ActionPlanEnglish.pdf The plan will assist you on your Bronchiectasis journey. Let us know if you have any specific questions.

We live off-grid. Does anyone know if NTM bacteria can be found in rainwater.

On one of my asthma support groups a 2 yr old was diagnosed I never heard of one that young.

Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …

The link below provides a calculator to determine the heat index. Please take action steps, in advance to keep cool, well hydrated and stocked up on any medications you may need. https://www.wpc.ncep.noaa.gov/html/heatindex.shtml

Using a pillbox lessens the chance of forgetting to take your medication or taking too much medication. Filling the pillbox on a weekly basis also allows you to see if you need to call for a medication refill in a timely manner. The link below reviews …

I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?

Please assist our BNTM community in increasing public awareness of Bronchiectasis. Sign up for our awareness toolkit . Help us raise awareness in your own network with our free toolkit. It's packed with social media posts, resources, and tips to help …

I occasionally get blood in the sputum. For severe cases my pulmonologist prescribes antibiotics, but this time it is not that severe, and seems to be getting better. Can this issue resolve on its own??

I started MAC treatment in March but I had to stop in June due to tachycardia. Now I'm waiting for my pulmonologist to come up w a new treatment plan. I've been off treatment for a week now. I'm worried about not being on treatment.

What treatment is available if the big 3 used for MAC causes tachycardia. Are there other options?

Happy New Year! I am curious if anyone else with Bronchiectasis/NTM washes their hair in the kitchen sink instead of the shower. After my first hospital experience 3+ years ago, I recall being told to avoid steam and the aerosols from the shower as much …

Many caregivers need to be reminded that they must take care of themselves as well as the person that they are caring for. Similar to the being a person on an airplane, it is important to be reminded that you must put the mask on yourself properly before …

Knowledge is power. The more you know about a particular disease and how it impacts an individual, the better you will be prepared as a caregiver. We host a monthly online BNTM Coffee Social support group on the 2nd Wednesday of each month at 3pm, EST. …

I’ve started treatment for PA mucoid variant. My pulmo chose Cipro monotherapy. I was inspired by those who commented about this as common and about treatments that worked to “eradicate” or at least minimize it as an issue for them. The literature about …