We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

I was born in 1946. I was diagnosed with chronic bronchitis at age 4 after a few events of bronchitis and two of pneumonia - the first at three months. At six I was diagnosed with Bronchiectasis and my parents were told I would not make it through my …

I was diagnosed with Bronchiectasis in March 2019 just after I completed 5 months of chemotherapy for MCL (mantle cell lymphoma). During the treatment I had a couple of bouts of running fever so the doctors thought it might be pneumonia. After two bouts …

This whole disease is sooo frustrating. Different doctors recommend different things so it is hard to know what to do. I beat MAC after 10 years! I try to be careful but evidently not careful enough, because now I have M. massiliense. Same type of …

I'm being treated for MAC. My latest culture was negative for MAC so I will stop treatment in April. However it still show abscessus.....I still don't understand why this is not being treated. Is it possible for the abscessus to not be dominant and, …

Just just four I have bronchiectasis. Had a broncoscopy to culture for NTM. It was negative. The pulmonologist says that is the definitive test. The infectious disease doctor says it needs to be repeated because I was on antibiotics at the time and the …

I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...

I've also read (University of Texas) that rifabutin might be substituted for rifampin for those who can't tolerate the rifampin. Per Wikipedia, rifampin is the same as rifampicin. Check with your doctor. They are all part of the rifamycin family …

Hi, I am new to the forum, but have lived with bronchiectasis for several years I am fortunate because it is mild and I actively work hard to stay well. We sold our home and have opted to live in an apartment in a walkable area Laughable now since we …

Hi, my name is Elaine and I have the mildest form of Cylindrical Bronchiectasis. I am breathless every day on exursion (fine when doing nothing). Often wheezy. Lately I have been bringing mucus up only once a day or not at all instead of numerous times a …

Hi everyone. I found this question on an online bronchiectasis forum that I follow and I would like to know your experience about "when to start antibiotic". When do you start antibiotics? How do you know if you have exacerbation? What is the antibiotic …

Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …

Hello! I was wondering if anybody had ever tried Halotherapy (Dry Salt Therapy) for their Bronchiectasis? My Infectious Disease doctor suggested it as something to try. https://www.saltchamberinc.com/salt-therapy-halotherapy/ Thoughts?

Adding to my question I have been breathless for most of 2020. I have had asthma since I was 7 but it was never a problem. I use Ventolin before I go for a walk but still get breathless and have to keep on stopping to rest. I also take 1 puff of DuoResp …

Hello everyone I am Kandy from South Dakota. Been sick most my life asthmatic overlapping copd, chronic bronchitis every year. Found I had bronchiectasis in 2014. Many end of life predictions starting at 10 yrs old. 1997 very sick told to get my affairs …

I have taken singulair for years steroids of course and I get xolair shots every two weeks for allergic asthma since 2003. I don't have high eosinophilis.

My most frequent exacerbations show up as pleuritic pain, sometimes accompanied by extra lung congestion, sometimes accompanied by fever. Usually 1 or 2 days of extra tiredness. I generally rest, apply heat, take Advil, maybe extra Mucinex. But I just …

Hope someone out there can help. I’ve been on heavy doses of 3 antibiotics since Jan of 2017 for MAC. Sputum still showing positive and showing on CT 3 weeks ago. My MAC doc prescribed Arikayce as an addition but the insurance company has denied coverage …

Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and …

Hi, I am glad i found this board. I am a 30 yr old male in New York City. I was born with pectus excavatum (sunken chest) which never gave me too many problems. I had about 4 pneumonias in my 20's... After the last pneumonia a year ago, i was given a CT …

Are you ready to go out and about? Are you feeling anxiety about the masses? I live in Alexandria, VA and any store I go into has patrons wearing masks. I see images on the news where people are not social distancing and not wearing masks. How do you …

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …