0 Votes
10 Answers
Share Your Story - Mental Health

Maintaining a positive attitude when you have bronchiectasis and NTM can be challenging. What types of activities bring you joy or improve your mood?

Author: ChristinaH
0 Votes
2 Answers
Anyone used the Johns Hopkins & U. of Maryland Research Team mortality calculator?

I found this on my state's COVID information hub. It's meant for unvaccinated, uninfected individuals living in the 50 states to assess their risk given their medical/health conditions. If you know anyone with bronchiectasis (it's one of the conditions …

Author: RoseHI
0 Votes
5 Answers
Arikace

Hi cicimac! I believe that Arikayce offers an AriKares program. They company asks you to fill out this form with your physician. They market that they will help you to find the lowest cost. Download the form with the link I am providing to you and …

Author: cicimac
0 Votes
6 Answers
still breathless but told OK

My Bronchiectasis has improved and my lung specialist has told me my lungs are good but I don't understand why I still get breathless when walking up an incline, or doing chores. (he doesn't have an answer) I accept that I am very mild so why does this …

0 Votes
3 Answers
Share Your Story - Lung Surgery

Have you ever had surgery on your lungs? If so, what tips can you share to help others with preparation and recovery?

Author: ChristinaH
0 Votes
20 Answers
Covid Vaccine - Life After

For those of you that have received your Covid vaccine, have you been able to enjoy more “peace-of-mind”? What activities are you planning to do now that you are vaccinated?

Author: ChristinaH
0 Votes
13 Answers
Share Your Story - Airway Clearance

What airway clearance methods, techniques, or devices work best for clearing mucus from your airways?

Author: ChristinaH
0 Votes
1 Answers
Names of pulmos in Ga. and Fla.

We are currently living in Mass. We are looking at over 55 places in Georgia and Florida Can anyone recommend a good pulmonologist in Atlanta, Ga. or St. Petersburg, Fla ?

0 Votes
6 Answers
Bronchiectasis and NTM Information Podcast

Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …

Author: Delia
0 Votes
1 Answers
Tinnitus

Hello. I am new to this site, but wanted to see if anyone can offer any input about tinnitus. I started azithromycin 500 mg three times per week and after one month, developed tinnitus and have stopped it. Does anyone have any experience with this and …

Author: Carmel
0 Votes
5 Answers
Experience with Brensocatib

I read an article that this was a FDA breakthrough therapy. My doctor is unfamiliar with its effectiveness. Have anyone use the drug and been able to discern its effectivenss

Author: Rush
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0 Votes
3 Answers
Has anyone had experience with using ultrasound treatments to reduce lung inflammation:

I am at a more advanced stage of bronchiectasis, so I am always looking for ways to reduce inflammation/mucous. I am currently using a Healthy Wave PEMF mat (electromagnetic pulse treatment), which has been helpful in reducing mucous. I also just came …

Author: DAJ
0 Votes
2 Answers
What would you do: choose clofazamine or quality of life?

i am multi drug resistant with bronchiastasis. My doc wants to add clofazamine but i declined, choosing mainenance therapy and quality of life. Want to know if others have been faced with this decision.

Author: Anonymous
0 Votes
3 Answers
What kinds of medicines have you used in the nebulizer

I have altbuterol sulfate for my nebulizer. The problem is when I use it consistently I begin to have bad side effects. I get very shaky, can't stay asleep, headaches and generally fatigue. What has been found helpful for others. I do take a daily …

Author: Jean1
0 Votes
4 Answers
Share Your Story - Travel

What are some of the preparations that you do in order tomake traveling easier or safer? What challenges with travel have you faced inthe past?

Author: ChristinaH
0 Votes
2 Answers
pseudomonas pneumonia causing shortness of breath and difficulty wearing face masks.

Am undergoing IV Cefepime treatment with prednisone for pseudomonas pneumonia along with Amikacin nebulizer treatments (28 days on/ 28 days off). Having episodes of dyspnea from walking/talking making it almost impossible to my wear face mask. My nurse …

Author: Tricia810
0 Votes
12 Answers
Aspergillus fumigatus

My pulmo told me before I show antibodies for aspergillus some years ago but that he wouldn't treat it as we pick it up in the air. I guess its easy to do. Noticing on my ct scan of the end of April that is shows aspergillus on that too. So when I had …

Author: DAJ
0 Votes
16 Answers
Has anyone tried N-A-C or Quercetin (two different OTC supplement) to reduce mucus production?

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...

Author: JayNYC
0 Votes
12 Answers
Bronchiectasis Diagnosis and Education

Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how to cope with your condition? Did your physician provide you education on bronchiectasis or did you do much …

Author: ChristinaH
0 Votes
7 Answers
Share Your Story - Advice and Support

What is the best piece of advice that a health care provider has given you? Do you know anyone else who lives with the same condition? Where do you find support?

Author: ChristinaH
0 Votes
26 Answers
Interested in an Informal Conversation with other Participants?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Author: Gretchen
0 Votes
6 Answers
Share Your Story - Antibiotics and GI issues

When I started with a new pulmo 2014 after diagnosing me with bronchiectasis we talked about zpak weekly but due to hearing loss a side affect of that antibiotic he was hesitant on giving me this. So I had my hearing checked and I had already lost …

Author: ChristinaH
0 Votes
4 Answers
Re: Clofazamine

Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …

Author: KC
0 Votes
2 Answers
Colloidal Silver and lung infections

I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …

Author: DAJ
0 Votes
1 Answers
Reasons to avoid or stop exercising

I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …

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