0 Votes
2 Answers
St. Patrick's Day Recipes/Traditions

Hi all, thanks to those of you who joined our Coffee Break yesterday! With St. Patrick's Day in just a few weeks, I am posting some recipes that Ksmiles123 has shared (thank you, Ksmiles!). Do any of you have St. Patrick's Day recipes you're willing to …

Author: Delia
0 Votes
1 Answers
time to stop meds?

I've been told I will stop meds next month. I haven't talked to ID doctor yet but am curious. Do you stop cold turkey or wean off of them?

Author: Tracer
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Share Your Story - Sharing with Family and Friends

Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?

Author: ChristinaH
0 Votes
18 Answers
Share Your Story - Symptoms and Diagnosis

What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?

Author: ChristinaH
0 Votes
1 Answers
Biologics as a treatment for Bronchiectasis related to IBD

I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …

Author: lrapko
0 Votes
5 Answers
Any contraption or non-medical device that improves your quality of life?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Author: Gretchen
0 Votes
3 Answers
Do all people receive antibiotics for NTM?

My pulmonologist is choosing to not give me antibiotics. I think because my lung function is still normal and I don't have a lot of symptoms other than a couple coughing bouts per day. He did give me a nebulizer which I use every day and a flutter device …

Author: Janney
0 Votes
1 Answers
Puffers

On Tuesday I have an appointment with GP to ask if my puffers need to be changed but I'm not sure if I will make a fool of myself asking him because from what I gather it is normal to be breathless when active.

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Advanced Lung and Bronchial Support supplement by Dr. Sinatra, any experience/thoughts?

Hello everyone and Merry Christmas/Happy Holidays. It's been a while since I've been on, hope all is well... I have a quick question. Has anyone in the community ever tried Advanced Lung and Bronchial Support supplement by a Dr. Sinatra? If so, do you …

Author: Sumter
0 Votes
8 Answers
Do you practice airway clearance techniques?

Hello! This question is one that I have based on a discussion from the Coffee Break time we had earlier this week. Do you practice airway clearance techniques every day? If so, what works best for you? If not, would you share why you don't? This is a …

0 Votes
5 Answers
Puzzled. Am I normal

Hi, my name is Elaine and I have the mildest form of Cylindrical Bronchiectasis. I am breathless every day on exursion (fine when doing nothing). Often wheezy. Lately I have been bringing mucus up only once a day or not at all instead of numerous times a …

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0 Votes
2 Answers
NTM risk to others

My niece will soon be getting a bone marrow transplant. I realize that my NTM is not considered infectious to others, but are there any exceptions? I would like to help with her post-transplant care, but that is when she is most vulnerable to infection. …

Author: Kat P
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0 Votes
3 Answers
CEO Women with NTM

Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?

Author: C123456789
0 Votes
2 Answers
traveling for the holidays

Has anyone traveled recently (air travel) ? and if so, any complications?

Author: sunrise
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0 Votes
23 Answers
Getting to Know You...

Hello everyone I am Kandy from South Dakota. Been sick most my life asthmatic overlapping copd, chronic bronchitis every year. Found I had bronchiectasis in 2014. Many end of life predictions starting at 10 yrs old. 1997 very sick told to get my affairs …

Author: Gretchen
0 Votes
7 Answers
Halotherapy (Salt Room Therapy)

Hello! I was wondering if anybody had ever tried Halotherapy (Dry Salt Therapy) for their Bronchiectasis? My Infectious Disease doctor suggested it as something to try. https://www.saltchamberinc.com/salt-therapy-halotherapy/ Thoughts?

Author: Gumby
0 Votes
1 Answers
Is Bronchiectasis the same as COPD?

I am just beginning to learn about bronchiectasis and engage in the bronch and NTM community. Is Bronchiectasis the same as chronic obstructive pulmonary disease?

Author: Gretchen
0 Votes
9 Answers
When to start antibiotic?

Hi everyone. I found this question on an online bronchiectasis forum that I follow and I would like to know your experience about "when to start antibiotic". When do you start antibiotics? How do you know if you have exacerbation? What is the antibiotic …

0 Votes
5 Answers
Anyone else live 65 years after Bronchectasis Dx?

I was born in 1946. I was diagnosed with chronic bronchitis at age 4 after a few events of bronchitis and two of pneumonia - the first at three months. At six I was diagnosed with Bronchiectasis and my parents were told I would not make it through my …

Author: GaryL
0 Votes
5 Answers
How to manage coughing/ clearing mucus while working

Hi All, I have had bronciatais all my life and I am full time working, I am finding it difficult in work to clear my lungs so I am suppressing my cough cause it sounds horrendous. I am very self conscious of going into the toilet I ususlly wait until …

Author: Gembob
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0 Votes
15 Answers
Interested in an Informal Conversation with other Participants?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Author: Gretchen
0 Votes
11 Answers
Does BE partial or complete lobe reduction reduce exacerbations and improve quality of life?

Good afternoon All! I havent seen mentioned lobe reduction surgery as a possible way to aggressively intervene to remove the BE area of the lung where fluids and bacteria accumulate and bring on exacerbations. Has anyone had this done and does it help? …

Author: Greg
0 Votes
3 Answers
MAC, Bronchiectasis and CPAP

I just learned I have sleep apnea and am being fitted with a CPAP. What do I need to know about using CPAP as it relates to my MAC and bronchiectasis? It seems like disinfecting may be a problem. I don't think CPAP mask, tubing, etc can be boiled like my …

Author: sewcrazy64
0 Votes
5 Answers
Monitoring air quality inside

Hi, I am new to the forum, but have lived with bronchiectasis for several years I am fortunate because it is mild and I actively work hard to stay well. We sold our home and have opted to live in an apartment in a walkable area Laughable now since we …

Author: GG
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0 Votes
16 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
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