I think the drug called INS1007 to treat Bronchiectasis not linked to Cystic fibrosis, Love to know anyone heard or is participating in the test?

Hi, I am very newly diagnosed with Bronchiectatis, Mycobacterium Abscessus, and Aspergillus. I am feeling a little overwhelmed to say the least. I will be going to National Jewish Hospital in Denver for a second opinion sometime in the near future. My …

Hi. I'm posting my very first question on this blog. My family member has been just diagnosed with Mycobacterium "Abscessus" Complex by a pulmonologist. From what I've read, I understand that it is extremely important to find an experienced NTM expert …

Newbie here. Diagnosed last month with Bronchiectasis and severe Obstructive Sleep Apnea. I want to learn and I think many of you have already walked where I’m likely headed. First night last night on my CPAP machine. My Bronchiectasis not riled up right …

I just learned I have sleep apnea and am being fitted with a CPAP. What do I need to know about using CPAP as it relates to my MAC and bronchiectasis? It seems like disinfecting may be a problem. I don't think CPAP mask, tubing, etc can be boiled like my …

Hi - after treating MAI for a year with the big 3 (azithromycin, rifampin, ethambutol) with no improvement, we essentially doubled the dosage + used Amikacin via nebulizer (after a visit to National Jewish Health). Over a year later, the MAI was gone - …

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Hi all, BioTrak Research is seeking individuals diagnosed with bronchiectasis to participate in an in-person, 30-minute market research study session. During the study session, participants will be asked to perform a task for dose preparation of a new …

My first culture results came back from December bronchoscopy. M. Fortuitum is growing. It is one of the so-called "fast growing" NTMs. Anyone else diagnosed with this one? Were you treated for it? I'm searching my references and don't find much …

I'm 2 weeks out from a bronchoscopy and I know I have more weeks to wait until the NTM culture is done/read, but I think aspergillus doesn't take that long. I was thinking the last time I had it done it was about 2-3 weeks. Does anybody know? Thanks!

Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...

I nebulize 3% saline and use the Aerobika and huff cough twice a day. (I have also tried the Acapella.) I ride a stationary bike and walk on a treadmill for aerobic exercise. Even with all of this I’m not very successful with mucus clearing. My …

Adverse effects of the 3 major NTM antibiotics.

Hi, everyone -- Just joined today! I've read this thread HTTPS://WWW.BRONCHIECTASISANDNTMINITIATIVE.ORG/BRO... and would love to know how things are going with Kim. I would also love any input that members can offer for my situation. My lung cancer is …

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

We are seeking quotes to inspire and gather encouragement when life gets us down. Living with a chronic illness can bring dark days and loss of hope. Is there a saying or a famous quote, a pearl of wisdom that brings some positive light to your life when …

I'm supposed to fly from SC to Denver on 12/20 for a week. My ritual is to go to bed around 10PM. As soon as I lay down I cough up phlem for a few minutes and then I can sleep for a while-usually. Then up at 7 and do my inhalers Then yogurt and coffee. …

Anyone experiencing nail bed problems and losing fingernails. My experience is I started getting artificial nails in October or December of 2017. I've always had beautiful nails, but I got gel nails and the last lady that removed them, damaged my nails. …

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

Rplaset, Hello! I am so glad to read that you have a plan in place. Knowledge, knowing the steps needed to be taken lessen the angst when dealing with a new diagnosis. I am so glad that your wife was diagnosed early. In the interim, Please ask any …

Hello everyone I am Kandy from South Dakota. Been sick most my life asthmatic overlapping copd, chronic bronchitis every year. Found I had bronchiectasis in 2014. Many end of life predictions starting at 10 yrs old. 1997 very sick told to get my affairs …

I have Bronchiectasis and I am supposed to go to Denver for Christmas. I have not traveled on a plane since I came down with this. I'm wondering if going to Denver for a week is such a good idea. I cough a lot and after my inhalers I cough up Phlem. …

Is there anyone here that got NTM after having chemo/radiation for lung cancer? I am trying to make sense of what NTM is, why the treatment makes me so tired and what I can do to get past the tiredness. Any advice?

This is a question from participant Elaine. After having severe H1N1 swine flu in 2009, followed by another chest infection within 10 days - my health and lifestyle changed. My main continuing issues are - persistent throat clearing and occasional …

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?