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4
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Has your Pseudomonas infection cleared and then reoccurred?
I have had colonized Pseudomonas for 2 years. Recently I took a strong dose of Levaquin (after having no antibiotics for the past 2 years) for pneumonia and the last sputum culture indicated no presence of Pseudomonas. I fear a reoccurrence and am asking …
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3
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Has anyone who’s received treatment for pseudomonas know whether it was/is mucoid or nonmucoid?
I’ve started treatment for PA mucoid variant. My pulmo chose Cipro monotherapy. I was inspired by those who commented about this as common and about treatments that worked to “eradicate” or at least minimize it as an issue for them. The literature about …
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3
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Anyone with Alpha 1 antitrypsin deficiency and bronchiectasis
Hi Cjack I also have Alpha 1 and a some bronchiectasis.
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7
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Living w MAC without treatment
I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?
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1
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Are you doing airway clearance regularly?
As the cold weather begins to roll in, we must face the fact that flu season is around the corner. Doing airway clearance regularly may assist you in lessening the chances of respiratory infections. Hopefully, you were able to get the flu shot- whether …
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14
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Has anyone begun using Brensocatib?
My pulmonologist has recommended that I try Brensocatib which has just been released as a treatment for nonCF bronchiectasis.
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Are you using the Bronchiectasis Action Plan?
Cooler weather is around the corner. Tis the season for annual vaccinations and to closely follow your Bronchiectasis action plan. The plan is in the link below:, https://www.bronchiectasisandntminitiative …
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2
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Do you use an indoor wood burning stove?
If you have answered yes, please read the article below on the potential impact of wood burning stoves on your lung function: https://respiratory-therapy.com/public-health/healthcare-policy/environmental-news/indoor-wood-burning-linked-to-lung-function …
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Do you understand drug formulary booklets provided by insurance companies?
It is important to understand the basics of drug formularies, offered by different insurance companies. The formulary lists the drugs by tiers or levels, with tier 1 being the least expensive and the higher tiers being more expensive. Often, your health …
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Sleep apnea and treatment with CPAP
Interested in hearing the experience of others with sleep apnea and their treatment for it
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Is enrolling in a Medicare Plan overwhelming for you?
The you tube video below , featuring Jonnie Korinko, COPD Foundation and Emily Whicheloe, Director of Education, Medicare Rights Center presents a comprehensive overview of enrollment in a Medicare plan. https://m.youtube.com/watch?v=1zBMrG5ieoE This …
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Are you using telehealth for your healthcare? What cons to do see with telehealth?
Below is an article from Harvard Health on the advantages and disadvantages of telehealth: https://www.health.harvard.edu/staying-healthy/telehealth-the-advantages-and-disadvantages We would love to hear your comments on both the pros and cons of …
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Do you understand the terms hypoxia and hypoxemia?
Health care providers use these term frequently. The article below , from the Cleveland Clinic defines the terms, hypoxia, hypoxemia, their causes , symptoms and treatment options: https://my.clevelandclinic.org/health/diseases/17727-hypoxemia
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Are you planning on getting the RSV vaccine?
Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...
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4
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How much time does airway clearance take?
I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the …
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1
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Are you planning on getting the Fluzone vaccinationsoon?
Fluzone is the stronger flu vaccine recommended for people over the age of 65, those on long term immunosuppressants and transplant patients. I usually get my vaccination in mid October; it can take a few weeks to reach a higher level of effectiveness in …
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4
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NTM lung infection symptoms
Hi - I have had a history of bronchiectasis since 2005. The thing the doctors told me was to be careful if you catch a cold or flu as that can turn into pneumonia. Fast forward to fall of 2014, I had been having night sweats for years but now I felt …
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Do you know what diseases each vaccination protects us against?
A few vaccinations just have initials , not a completely spelt out name. The link below, from the CDC reviews vaccination recommendations throughout our lifeand the diseases that they protect us against. https://www.cdc.gov/vaccines/imz …
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22
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Has anyone ever been cured from Mycobacterium abscessus and chelanae?
I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.
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How is the air quality in your area today?
Poor air quality can really take a toll on respiratory patients, leading to increased inflammation, wheezing, shortness of breath in some individuals. The link below provides a guide for you to better understand the different air quality flags: …
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27
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Share Your Story - Symptoms and Diagnosis
What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?
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Did you miss an educational activity on World Bronchiectasis Day?
Below is an excellent webinar, designed for respiratory therapists. You can listen and learn a lot from this video if you are not a respiratory therapist. Elevating Awareness of Bronchiectasis Watch on YouTube: https://www.youtube.com/watch?v=G0RBqnIu …
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Are you currently using the NTM Disease Management Tool?
It is good to have a tool for guidance in the management of NTM Lung Disease. The link below provides information and the tool that you can print out and use regularly. https://www.bronchiectasisandntminitiative …
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Do you understand the differences in the humidity number and the dew point number?
It has been extremely warm on the East Coast over the past week. Weather reports can be confusing for many people. Humidity numbers may not be too high but the dew points are high. The How to Geek link below differentiates the two terms, humidity and dew …
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5
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Does the weight loss associated with NTM tend to stabilize with regular antibiotic treatment?
NTM questio
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