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Severe Long Term Bronchiectasis

I was diagnosed in the 80's, and have been in the hospital for flare ups, more times than I can count. I almost never feel well, but continue to carry on as tho I am . I think my question might be: How do others with this disease deal with the copious …

Author: MaryLyn
0 Votes
7 Answers
Has anyone had success applying for Social Security Disability?

I needed to quit my visual art high school teaching job of 33 years due to my Bronchiectasis. I would frequently have bronchospasm, coughing for several minutes with difficulty breathing, sweats while trying to teach 5 classes per day of 40 students per …

Author: Kel
0 Votes
6 Answers
What is the best way to get results from a nebulizer, using 7% hypertonic saline solution?

Bob I tried to get my pulmo to give me the Tobramycin but all he said its expensive and your insurance wont pay for it so he gave me zpak to take 3 times a week.

Author: jancookz
0 Votes
4 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
9 Answers
Opportunity to participate in market research

If you have a lung infection due to NTM (Nontuberculous Mycobacteria) such as MAC (Mycobacterium Avium Complex) – Ashfield Healthcare would like to speak to you! Ashfield Healthcare will be conducting 60-minute telephone interviews as part of an …

Author: Delia
0 Votes
2 Answers
Urgently Looking for an NTM Expert in Lexington (Kentucky)

Hi. I'm posting my very first question on this blog. My family member has been just diagnosed with Mycobacterium "Abscessus" Complex by a pulmonologist. From what I've read, I understand that it is extremely important to find an experienced NTM expert …

Author: NM
0 Votes
4 Answers
Use of Supplements and Essential Oils

Hi!!! First, Merry Christmas and Happy New year! Does anyone with bronchiectasis use supplements and/or essential oils? If so, why, how and when? I've used supplements for many years and have used essential oils sporadically, and am using EOs more now. I …

Author: oklawoman
0 Votes
8 Answers
Do you set goals for yourself?

How do you find it it easiest for you to set and make progress toward your goals? Do you write them down? Where do you post them to remind yourself? Would love to learn from your approaches.

Author: Kristen
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0 Votes
15 Answers
Is anyone on PPI for GERD problems?

After taking Nexium (PPI that blocks all acid) for over 3 years, due to problems with the antibiotics for NTM, I read that PPI's cause bacteria to go into the lungs. Don't need more of that! So now I am going cold turkey, with no Nexium for the past 3 …

Author: jancookz
0 Votes
10 Answers
Young age at diagnosis

I was diagnosed with bronchiectasis and NTM as a young teenager. I was just curious to see if anyone else was diagnosed at a young age.

Author: Rachel
0 Votes
1 Answers
Any Information on upcoming world conference

Does anyone have any information on the 2018 World Conference? Like location, dates, when registration will open up, and where we might go to register(website)? We really would like to attend but need details now so we can save up for the trip.

0 Votes
3 Answers
I'm new to this community...learning about ntm

My 30 year daughter has had a positive acid stain test. The culture is now growing to determine the species. She's had asthma since she was 2 years old. She's a newly graduated pharmacist and is so scared. I really don't know what to expect next ..?

Author: Debzb
0 Votes
5 Answers
Percusion chests

I am considering getting the Afflovest. Anyone using it and does it make any difference? It is not cheap. So far for me the most effective way to clear the mucus is the saline solution 7% and biking on a bike trainer indoors for 30/40 minutes.

Author: Adrian1
0 Votes
19 Answers
Cause(s) of Bronchiectasis

Does anyone know what causes Bronchiectasis? Also interested in hearing diagnosis experiences (i.e. did your doctor tell you how you got Bronchiectasis?) if anyone is willing to share. Thanks!

Author: Delia
0 Votes
2 Answers
What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Author: Sheila F
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0 Votes
4 Answers
Disability

Is itpossible to get Disability assistance through the government due toNTM and /or Bronchiectasis? Hasanyone gone through this process?

Author: Pamela
0 Votes
2 Answers
Daliresp, Pulmonary Rehabilitation

Hi, all-- Has anyone else experienced delayed side effects from Daliresp? After 4 months on Daliresp I experienced a new and most egregious side effect, and my doctor took me off the med. I had some side effects at the beginning, but they either subsided …

Author: oklawoman
0 Votes
2 Answers
Save the Date! Patients as Partners: Using the “My COPD Action Plan” for Effective COPD Management

Patients as Partners: Using the "My COPD Action Plan” for Effective COPD Management A webinar for health care professionals and those who have been diagnosed with COPD Free of charge Tuesday, November 7, 2017 4:00pm – 5:00pm EST The “My …

Author: Kristen
0 Votes
8 Answers
NTM MAI and the bird connection

Hi - found out recently that there is a connection with NTM MAI and living with birds - has anyone been told this by a doctor, I saw a new pcp and he was stunned to learn that I was living in a house with a bird (amazon) - I was stunned that no one ever …

Author: bunnyhop
0 Votes
9 Answers
Hair loss?

Has anyone experienced hair loss from meds? I have been on ethambutol, rifampin and azithromycin for 6 months now and my hair is getting very thin.

Author: KC
0 Votes
6 Answers
Has anyone with bronchiectasis been diagnosed with high eosinophil levels?

After being told I have bronchiectasis, my pulmonologist informed me that my eosinophil levels were extremely high, 179 was the count, and that it was the main cause of my asthma. Has anyone else experienced this?

Author: SusanL
0 Votes
3 Answers
Percussion vest with breast implants after mastectomy

Hi! Has anyone with a history of mastectomy with gel implant reconstruction been using a percussion vest, or know anything about the safety to the implants of such use? Any idea where to find case reports of problems or studies showing safety? Thank you! …

Author: Ru
0 Votes
2 Answers
What Nebulizer should I choose?

I'm newly diagnosed with Bronchiectasis and MAI. Apparently I have only two brands of nebulizers available in my area that my insurance will cover: Drive (compact or MedNeb I think) and Phillips Respironics Innospire Mini. Does anyone know which is the …

Author: sewcrazy64
0 Votes
5 Answers
Does your respiratory diagnosis create challenges in your daily tasks? Have you found helpful soluti

Does your respiratory diagnosis create challenges in your daily tasks? Have you found helpful solutions that you can share?

Author: kellis
0 Votes
1 Answers
Health Apps?

Do any of you use Health Apps to manage your disease? Here is an interesting article from the Wall Street Journal about how certain apps help in the connection between health care professionals and patients. Any thoughts on this? https://www.wsj …

Author: Gretchen
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