0 Votes
4 Answers
Share Your Story - Advice and Support

What is the best piece of advice that a health care provider has given you? Do you know anyone else who lives with the same condition? Where do you find support?

Author: ChristinaH
0 Votes
26 Answers
Interested in an Informal Conversation with other Participants?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Author: Gretchen
0 Votes
10 Answers
Aspergillus fumigatus

My pulmo told me before I show antibodies for aspergillus some years ago but that he wouldn't treat it as we pick it up in the air. I guess its easy to do. Noticing on my ct scan of the end of April that is shows aspergillus on that too. So when I had …

Author: DAJ
0 Votes
15 Answers
Has anyone tried N-A-C or Quercetin (two different OTC supplement) to reduce mucus production?

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...

Author: JayNYC
0 Votes
12 Answers
Bronchiectasis Diagnosis and Education

Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how to cope with your condition? Did your physician provide you education on bronchiectasis or did you do much …

Author: ChristinaH
0 Votes
4 Answers
Re: Clofazamine

Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …

Author: KC
0 Votes
2 Answers
Colloidal Silver and lung infections

I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …

Author: DAJ
0 Votes
10 Answers
Covid Vaccine - Life After

For those of you that have received your Covid vaccine, have you been able to enjoy more “peace-of-mind”? What activities are you planning to do now that you are vaccinated?

Author: ChristinaH
0 Votes
1 Answers
Reasons to avoid or stop exercising

I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …

0 Votes
6 Answers
Share Your Story - Antibiotics and GI issues

When I started with a new pulmo 2014 after diagnosing me with bronchiectasis we talked about zpak weekly but due to hearing loss a side affect of that antibiotic he was hesitant on giving me this. So I had my hearing checked and I had already lost …

Author: ChristinaH
0 Votes
5 Answers
United Healthcare refusing to treat certain conditions in the ER

Has anyone seen this article that states that United Healthcare is refusing certain non-emergency claims in the ER. If you have bronchiectasis, this is very concerning because, as you know, you can become seriously ill very fast with bronchitis, needing …

Author: DAJ
0 Votes
2 Answers
Can I sit around a campfire without becoming short of breath and having a gut wrenching cough?

I sat around a campfire last night for about three hours. It's the first time I've been around a campfire since I was diagnosed with bronchiectasis. I coughed a good bit during the evening, but I thought I would be fine. I came home, used my nebulizer …

Author: Franny
0 Votes
1 Answers
NTM/MAC in Kidney Transplant patient

Hello, my mom (71yrs) had a kidney transplant 7 years ago. She has recently been diagnosed with NTM and MAC. She has been doing breathing treatments for the last 3 months but the MAC is spreading and they want to start her on medications. Since she is on …

Author: JJ77
0 Votes
5 Answers
Share Your Story - Hobbies and Stress Relief

What hobby do you enjoy the most? Do you have any activities that you turn to for stress relief?

Author: ChristinaH
0 Votes
2 Answers
Video Chat Group for Bronchiectasis Patients

I am fairly new to this site, and I just saw the post about starting a video chat group for people dealing with bronchiectasis about 8 months ago. Was that ever done?

Author: DAJ
0 Votes
0 This question has no answers.
Advanced Lung and Bronchial Support supplement by Dr. Sinatra, any experience/thoughts?

Hello everyone and Merry Christmas/Happy Holidays. It's been a while since I've been on, hope all is well... I have a quick question. Has anyone in the community ever tried Advanced Lung and Bronchial Support supplement by a Dr. Sinatra? If so, do you …

Author: Sumter
0 Votes
5 Answers
Lung Disease Management

Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …

Author: ChristinaH
0 Votes
2 Answers
What diet is best for Bronchiectasis?

What diet is best for bronchiectasis

Author: Deppydo
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0 Votes
1 Answers
Tramadol (Ultram) for cough

I have Bronchiectasis and have had an uncontrollable cough for years. I nebulize saline and use albuterol and symbicort daily with minimal results. What really works for me is a low dose of Tramadol every six hours. I now have a cough I can live with.

Author: redhead
0 Votes
3 Answers
What is the best way to clean cpap equipment?

I was just diagnosed with sleep apnea. I need advice for cleaning the CPAP. I don't have the equipment yet but I wanted advice from people with Bronchiectasis.

Author: Franny
0 Votes
1 Answers
Share Your Story - Travel

What are some of the preparations that you do in order tomake traveling easier or safer? What challenges with travel have you faced inthe past?

Author: ChristinaH
0 Votes
2 Answers
False Negatives

Has anyone experienced numerous false negative sputum sample results before they found the right Doctor/Laboratory?

Author: TBear57
0 Votes
7 Answers
Has anyone used Acapella therapy?

If you have used Acapella therapy for bronchiectasis, have you found it useful? I understand they are not really able to be cleaned, so how often do you replace the unit?

Author: DAJ
0 Votes
6 Answers
Does a sputum sample have to be completed in the morning?

My cough is dry in the morning and gets better throughout the day.

Author: Franny
0 Votes
3 Answers
Share Your Story - Sharing with Family and Friends

Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?

Author: ChristinaH
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