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Advanced Lung and Bronchial Support supplement by Dr. Sinatra, any experience/thoughts?

Hello everyone and Merry Christmas/Happy Holidays. It's been a while since I've been on, hope all is well... I have a quick question. Has anyone in the community ever tried Advanced Lung and Bronchial Support supplement by a Dr. Sinatra? If so, do you …

Author: Sumter
0 Votes
4 Answers
Covid Vaccine - Life After

For those of you that have received your Covid vaccine, have you been able to enjoy more “peace-of-mind”? What activities are you planning to do now that you are vaccinated?

Author: ChristinaH
0 Votes
5 Answers
Lung Disease Management

Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …

Author: ChristinaH
0 Votes
2 Answers
What diet is best for Bronchiectasis?

What diet is best for bronchiectasis

Author: Deppydo
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0 Votes
1 Answers
Tramadol (Ultram) for cough

I have Bronchiectasis and have had an uncontrollable cough for years. I nebulize saline and use albuterol and symbicort daily with minimal results. What really works for me is a low dose of Tramadol every six hours. I now have a cough I can live with.

Author: redhead
0 Votes
3 Answers
What is the best way to clean cpap equipment?

I was just diagnosed with sleep apnea. I need advice for cleaning the CPAP. I don't have the equipment yet but I wanted advice from people with Bronchiectasis.

Author: Franny
0 Votes
1 Answers
Share Your Story - Travel

What are some of the preparations that you do in order tomake traveling easier or safer? What challenges with travel have you faced inthe past?

Author: ChristinaH
0 Votes
2 Answers
False Negatives

Has anyone experienced numerous false negative sputum sample results before they found the right Doctor/Laboratory?

Author: TBear57
0 Votes
7 Answers
Has anyone used Acapella therapy?

If you have used Acapella therapy for bronchiectasis, have you found it useful? I understand they are not really able to be cleaned, so how often do you replace the unit?

Author: DAJ
0 Votes
6 Answers
Does a sputum sample have to be completed in the morning?

My cough is dry in the morning and gets better throughout the day.

Author: Franny
0 Votes
3 Answers
Share Your Story - Sharing with Family and Friends

Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?

Author: ChristinaH
0 Votes
9 Answers
Has anyone seen ENT / voice center for cough?

I have been coughing constantly since last January. My pulmonologist is sending me to an ENT who is at a voice center. I'm wondering what to expect. I read about the center and found cough training listed but not much information.

Author: Franny
0 Votes
17 Answers
Interested in an Informal Conversation with other Participants?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Author: Gretchen
0 Votes
4 Answers
time to stop meds?

I've been told I will stop meds next month. I haven't talked to ID doctor yet but am curious. Do you stop cold turkey or wean off of them?

Author: Tracer
0 Votes
2 Answers
What is GERD?

More diet tips

Author: Gretchen
0 Votes
5 Answers
Rasamsonia Argillacea

I am new to this site. Does anyone have information on the mold Rasamsonia Argillacea? I have just had that mold show up on a sputum sample and haven't been able to find much information on it. I understand that it's a really difficult, year long …

Author: DAJ
0 Votes
4 Answers
Has anyone taken the COVID Vaccine and what's your experience? Any issues?

COVID vaccine

Author: Sumter
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0 Votes
19 Answers
Share Your Story - Symptoms and Diagnosis

What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?

Author: ChristinaH
0 Votes
2 Answers
St. Patrick's Day Recipes/Traditions

Hi all, thanks to those of you who joined our Coffee Break yesterday! With St. Patrick's Day in just a few weeks, I am posting some recipes that Ksmiles123 has shared (thank you, Ksmiles!). Do any of you have St. Patrick's Day recipes you're willing to …

Author: Delia
0 Votes
1 Answers
Biologics as a treatment for Bronchiectasis related to IBD

I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …

Author: lrapko
0 Votes
5 Answers
Any contraption or non-medical device that improves your quality of life?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Author: Gretchen
0 Votes
3 Answers
Do all people receive antibiotics for NTM?

My pulmonologist is choosing to not give me antibiotics. I think because my lung function is still normal and I don't have a lot of symptoms other than a couple coughing bouts per day. He did give me a nebulizer which I use every day and a flutter device …

Author: Janney
0 Votes
1 Answers
Puffers

On Tuesday I have an appointment with GP to ask if my puffers need to be changed but I'm not sure if I will make a fool of myself asking him because from what I gather it is normal to be breathless when active.

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0 Votes
8 Answers
Do you practice airway clearance techniques?

Hello! This question is one that I have based on a discussion from the Coffee Break time we had earlier this week. Do you practice airway clearance techniques every day? If so, what works best for you? If not, would you share why you don't? This is a …

0 Votes
5 Answers
Puzzled. Am I normal

Hi, my name is Elaine and I have the mildest form of Cylindrical Bronchiectasis. I am breathless every day on exursion (fine when doing nothing). Often wheezy. Lately I have been bringing mucus up only once a day or not at all instead of numerous times a …

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