0 Votes
5 Answers
Share Your Story - Lung Surgery

Have you ever had surgery on your lungs? If so, what tips can you share to help others with preparation and recovery?

Author: ChristinaH
0 Votes
5 Answers
Have you had a lung wedge resection?

Q. Have you had a lung wedge resection? A: Yes Q. Where did you have the surgery done? A: Saints Mary & Elizabeth Hospital in Louisville, Kentucky. Part of the middle right lobe was removed in April 1975. I think a sponge was left in there …

Author: Ksmiles123
0 Votes
4 Answers
Supplements

Have you ever experienced a hypersensitivity or allergic reaction to a supplement. The blog article below discusses possible reactions from some supplements: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1853/Are-your …

Author: Ksmiles123
0 Votes
3 Answers
Are you on Arikayce and interested in sharing your story?

Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and …

Author: Delia
0 Votes
10 Answers
Singing for lung health group?

Hi again! Does anyone have information or links to share on joining singing for lung health groups? Thank yo

0 Votes
2 Answers
Chair yoga

Have you ever taken a chair yoga class? Would you like to share your experience?

Author: Ksmiles123
0 Votes
6 Answers
Exercise

Are you able to get some exercise on a regular basis? The article below offers some good tips on an exercise plan: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Exercise

Author: Ksmiles123
0 Votes
8 Answers
Collage craft safety

When collaging a masterpiece what type of lung medium or glue do you recommend ? Elmers says non toxic and all the books on collage say to use acrylic gel medium. Any advise?

0 Votes
9 Answers
How Do you clean your clearance equipment?

Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...

Author: Gretchen
0 Votes
4 Answers
Dietary supplements

Are you taking dietary supplements? The article below reviews the basics on supplements. https://www.fda.gov/consumers/consumer-updates/fda-101-dietary-supplements

Author: Ksmiles123
0 Votes
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Differentiate between allergies, Covid and other respiratory issues

Do you know how to differentiate between allergies, Covid and other respiratory issues? The link below provides some helpful information on the subject: https://www.cnet.com/health/medical/how-to-know-if-its-allergies-covid-or-something-else/

Author: Ksmiles123
0 Votes
5 Answers
NTM-Xenopi

Hi. I can't seem to find much information on M-Xenopi. Can anyone direct me toward a good resource for it? Thanks.

Author: Hoosier60
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0 Votes
2 Answers
Can noxious chemicals from CPAP machines contribute to Bronchiectasis

A few weeks ago I slightly injured my upper ribs. No big deal (except coughing, sneezing, ouch!) and I knew it was going to go away. My doctor ordered x-rays as a precaution and although my ribs were fine, the radiologist noted the presence of …

0 Votes
1 Answers
Bronchiectasis

Hi, I got diagnosed with bronchiectasis in December after having problems with my breathing / coughing for years. I take 1 inhaler a day with a pill at night and complete airway clearances once a day. I’m 26 and do regular exercise biking 30 mins a day …

Author: Liam
0 Votes
5 Answers
On antibiotics for life

I orginally had MAC in 2008, was treated with azithromycin, refampin, and ethambutol. Cleared in 2010 by the ID doc to stop meds. Ten years later, I'm back with another MAC. He put me on Azithromycin and Ethambutol for life. Said I was too prone to …

Author: kimm
0 Votes
4 Answers
MAC

Just learned that I have tested positive for MAC again. I went through antibiotic treatment for 11 months in 2018. I have felt good until I had COVID in July of 2022. During COVID I developed a cough. Now MAC . My question for anyone who was treated for …

Author: DK
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0 Votes
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What type of cleaning products do you use?

The link below offers suggestions for better cleaning recipes which are less irritating to our respiratory system https://www.lung.org/getmedia/3030b2d9-02f0-4be4-ab86-d6bd86f88b88/ALA-Safe-cleaning-products-MHE-program-August-2022.pdf

Author: Ksmiles123
0 Votes
0 This question has no answers.
Sleep apnea

Have you had a sleep apnea test at home or in a hospital setting recently?

Author: Ksmiles123
0 Votes
5 Answers
Are you getting adequate sleep?

Sleep hygiene is of upmost importance when you are dealing with an infection and or a chronic condition. The link below offers some suggestions. The one that I disagree with is not to take a nap. It is okay to take a nap in the afternoon if you are not …

Author: Ksmiles123
0 Votes
4 Answers
Medicare Part B payment for 7% sodium chloride vials

I have been trying unsuccessfully for months to arrange a way for Medicare Part B to pay for the 7% sodium chloride in 4ml vials that I use twice daily through a prescribed nebulizer to treat Bronchiectasis. I have consulted with my pulmonologist, …

Author: MKB
0 Votes
1 Answers
Pulmonary rehab

Have you been in a pulmonary rehab program? If so, what were the greatest benefits for you? https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx

Author: Ksmiles123
0 Votes
1 Answers
Zinc

Do you understand the benefits of zinc https://www.healthline.com/nutrition/zinc#sources

Author: Ksmiles123
0 Votes
0 This question has no answers.
Registered Dietician , nutritionist

https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian

Author: Ksmiles123
0 Votes
0 This question has no answers.
Registered dietician vs. nutritionist

Do you understand the difference between a nutritionist and a registered dietician? https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian

Author: Ksmiles123
0 Votes
5 Answers
Vitamin D

How much vitamin D are you taking on a regular basis? Most of us have a low level to begin with. A level lower than 20 is considered to be deficient. 50,000 units of D2 is recommended once a week for 8-12 weeks, then levels are rechecked. Maintenance …

Author: Ksmiles123
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