0 Votes
4 Answers
Hi Everyone, My Mom was diagnosed with Bronchiectasis a year ago. I need some answers.

I am wondering if they took a sputum sample to check what bus she may have? I was diagnosed 2014 but have asthma and emphysema.I am sure my bronchiectasis was caised from many lung infections. Xopenex neb followed by 7% hypertonic saline then go to the …

Author: Kat67
0 Votes
2 Answers
Do you use tap water for NeilMed when traveling in Europe?

I've been told that distilled water is best to use with NeilMed, which I do at home. But how do I manage that when traveling in Europe? What type of water do you use at home and when traveling?

Author: CheriM
0 Votes
3 Answers
What exercise are you doing today?

The patients and physicians at the recent Bronchiectasis and NTM conference in Texas implored all patients to exercise-saying it is a Critical Necessity!! What do you do on a daily or weekly basis to move your body and help your condition?

Author: Gretchen
0 Votes
12 Answers
Cannabis for Bronchiectasis?

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Author: Jadew
0 Votes
1 Answers
Does BE partial or complete lobe reduction reduce exacerbations and improve quality of life?

Good afternoon All! I havent seen mentioned lobe reduction surgery as a possible way to aggressively intervene to remove the BE area of the lung where fluids and bacteria accumulate and bring on exacerbations. Has anyone had this done and does it help? …

Author: Greg
0 Votes
8 Answers
What suggestions do you have for managing my Bronchiectasis?

Recently diagnosed after ten years of “chronic bronchitis.” Prednisone and antibiotics knocked it out until last two years. My recent blood work shows compromised immune system, probably from me taking too much prednisone over last two years. Sputum …

Author: Greg
0 Votes
5 Answers
surgery and exercising

I was diagnosed last week with bronchiectasis. I am a physical education middle school teacher and am 49. I used to work out fairly regularly until I had to have a parathyroidectomy/thyroidectomy in the summer of 2017. It took half the year to get my …

Author: Sindy
0 Votes
5 Answers
Travel tips with a chronic condition?

Tis the season of travel. Do you have any tips that have made traveling easier while dealing with a chronic lung condition? Please share!

Author: Gretchen
0 Votes
3 Answers
Anyone know of Bronchiectasis doctor in Cincinnati or Phoenix area? Thanks much!

Recently diagnosed with BE and live in Cincinnati and Phoenix areas. Looking for the right physician who specializes in BE treatment and can let me know how to fight and manage this disease. Your help is much appreciated! Thanks Greg

Author: Greg
0 Votes
1 Answers
Settings for afflo vest (and a bit of grumbling)

After 5 months, I received the Afflovest yesterday..grumbling cuz Dr. Ordered it 5 months ago and I was source of freq reminders to dme company and dr office, alas it was delivered by an rt who had never seen one..ok..and had the inservice followed by …

Author: Gladys
0 Votes
14 Answers
New to this diagnosis and overwhelmed!

Hi, I am very newly diagnosed with Bronchiectatis, Mycobacterium Abscessus, and Aspergillus. I am feeling a little overwhelmed to say the least. I will be going to National Jewish Hospital in Denver for a second opinion sometime in the near future. My …

Author: kwg
0 Votes
1 Answers
Why can't I control my cough better.

Because I have bronchiectasis I know I will always cough but this is tooooo much. I use nebulized 7% saline twice daily, use Symbicort twice a day and use albuterol inhaler several times a day. I take ranitidine twice daily for acid reflux. HELP, any …

Author: redhead
0 Votes
17 Answers
What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Author: Sheila F
Tags:
0 Votes
4 Answers
Bronchiectasis coughing&daily CPAP

Newbie here. Diagnosed last month with Bronchiectasis and severe Obstructive Sleep Apnea. I want to learn and I think many of you have already walked where I’m likely headed. First night last night on my CPAP machine. My Bronchiectasis not riled up right …

Author: DianeJG
0 Votes
2 Answers
on third day of Lexoflaxacin Antibiotic and mucus stops. Why?

I have had Bronchiectasis for about 2 years. I started a prescription of Lexofloxacin for 7 days. After three days feeling much better I quit coughing up mucous. My question is WHY? I am happy about it, but I can't keep taking an antibiotic to feel good. …

Author: sut
0 Votes
0 This question has no answers.
Has anyone tried Buteyko?

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

Author: redhead
0 Votes
3 Answers
Anyone have a sputum sample that cultured Mucor?

Hello Trusted Friends, My lungs are colonized with MAC Avium, HIB, m. Abscessus has shown up a couple times, a little Aspergillus, and now my most recent culture grew out a fungus called Mucor. I have m. abscessus in my sinuses, too. The ID doctor …

Author: BRigby
Tags:
0 Votes
12 Answers
Are any of you taking the Big 3 medications now? Are you able to tolerate them? If not, what are the

Adverse effects of the 3 major NTM antibiotics.

Author: Gretchen
0 Votes
14 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
6 Answers
Event Alert: A Discussion About NTM Lung Disease

The COPD Foundation is excited to announce that we are hosting a discussion with Dr. Addrizzo-Harris, a pulmonologist and professor of medicine at NYU Langone Health, and Dariel, an NTM lung disease patient, to talk about living with NTM. Be sure to tune …

Author: Delia
0 Votes
4 Answers
I feel like Crap !

I'm supposed to fly from SC to Denver on 12/20 for a week. My ritual is to go to bed around 10PM. As soon as I lay down I cough up phlem for a few minutes and then I can sleep for a while-usually. Then up at 7 and do my inhalers Then yogurt and coffee. …

Author: sut
0 Votes
6 Answers
dealing with side effects of rifampin

I am going to be starting treatment for NTM and bronchiectasis very soon and I am very concerned about the side effects of the meds, particularly rifampin. Can anyone let me know how you dealt with the effects of discoloration of body fluids and how they …

0 Votes
1 Answers
Anyone knows or is participating Ismed investigational therapy for. Bronchiectasis?

I think the drug called INS1007 to treat Bronchiectasis not linked to Cystic fibrosis, Love to know anyone heard or is participating in the test?

Author: Yan
0 Votes
2 Answers
Urgently Looking for an NTM Expert in Lexington (Kentucky)

Hi. I'm posting my very first question on this blog. My family member has been just diagnosed with Mycobacterium "Abscessus" Complex by a pulmonologist. From what I've read, I understand that it is extremely important to find an experienced NTM expert …

Author: NM
0 Votes
2 Answers
MAC, Bronchiectasis and CPAP

I just learned I have sleep apnea and am being fitted with a CPAP. What do I need to know about using CPAP as it relates to my MAC and bronchiectasis? It seems like disinfecting may be a problem. I don't think CPAP mask, tubing, etc can be boiled like my …

Author: sewcrazy64
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