0 Votes
11 Answers
Are you taking Probiotics regularly?

The link below is the list of the top probiotics in 2023: https://www.healthline.com/nutrition/best-probiotic-supplement

Author: Ksmiles123
0 Votes
2 Answers
elevated platelet levels

I have experienced higher than normal platelet levels since I was diagnosed with bronchiectasis in 2015. Has anyone experienced the same?

Author: Dragonlady
0 Votes
2 Answers
Have you been to a pulmonary rehab program? If yes, what was the best part of the program?

The link below discusses the key components of a pulmonary rehab program: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Pulmonary-Rehab

Author: Ksmiles123
0 Votes
7 Answers
I am going to be going for a salt therapy session. Any comments. Does it work on bringing up mucus

Salt Therapy

Author: Sher
0 Votes
1 Answers
Check-In: Rare Disease Day is February 29th!

A disease is rare when it only affects a small portion of the population. Even though each disease may be rare on its own, living with a rare disease is, in fact, quite common. About 1 in 10 Americans are affected by a rare disease. Unfortunately, most …

0 Votes
1 Answers
Nebulized Tobramycin

Has anyone gone through the nebulized tobramycin treatment that is being suggested by my doctor. From what I can find on the web, the 28 days on, 28 days off, and then 28 days of treatment seem to be relatively safe, with possible ear and kidney …

Author: oasisman
0 Votes
1 Answers
Have you ever had an exercise stress test?

It is important to have a thorough cardiac workup as we age. Different medications can affect our heart health; it is good to have a baseline stress test. Below is information on the procedure: https://my.clevelandclinic.org/health/diagnostics/16984 …

Author: Ksmiles123
0 Votes
4 Answers
High cost of Hypersal 7% nebulizer solution

Has anyone been able to get a months supply for less than $50.00? I got quoted a $30.00 price for 3% solution at Costco, but I need to ask my pulmonologist if that is as effective. Thanks

Author: oasisman
0 Votes
3 Answers
Inhalers

Do inhalers work? I was given albuterol and bevespi. They were suppose to help with breathing but feel that they do not. I experience a rapid heart beat after taking the inhaler. I have bronchiectasis and they think possibly COPD. Not sure if they know …

Author: Sher
0 Votes
6 Answers
I believe blood should not be drawn from a PICC line?

When we have a PICC line and have NTM and or abscessus, can blood be drawn from the PICC line or should we insist on getting blood drawn from the other arm? And why is it considered dangerous? Infection?

Author: Suepink1
0 Votes
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Are you doing Airway Clearance regularly?

Airway clearance is important throughout the dry heat of the winter months and the peak flu/ RSV season. Below is a video on the subject with Dr.Pamela McShane: https://m.youtube.com/watch?v=L-EHohMe7II

Author: Ksmiles123
0 Votes
7 Answers
Establish care with pulmonologist?

Hello, I was diagnosed with MAC and bronchiectasis, and referred to an Infectious Disease doctor. But I do not have a pulmonologist, which seems like it would be appropriate for bronchiectasis. Is it typical to not have a pulmonologist? And if I should …

0 Votes
1 Answers
Have you received the pneumococcal vaccine?

Below is information on the pneumococcal vaccine from the CDC: https://www.cdc.gov/vaccines/vpd/pneumo/public/index.html

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you cleaning your nebulizer devices correctly?

Below are videos on the different types of nebulizers and the different ways to clean them: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Educational-Video-Series.aspx

Author: Ksmiles123
0 Votes
5 Answers
Experience with Lung Health Supplements

I have doing research on supplements to my neublizing solutions to help me manage my bronchiectasis. My sister-in-law saw an ad for Lung Clear so I did some research and found other supplements touted to help with infections and mucus issues. Does anyone …

Author: Rush
0 Votes
0 This question has no answers.
Have you received the RSV vaccination?

Below is a patient video interview about RSV: https://m.youtube.com/watch?v=QkQnbwodtf8

Author: Ksmiles123
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0 Votes
2 Answers
Have you had your vitamin D levels checked lately? Are you eating a well balanced diet?

The article below discusses the role of nutrition and an adequate Vitamin D level to assist the immune system of individuals with bronchiectasis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8116598/

Author: Ksmiles123
0 Votes
2 Answers
Are you experiencing post nasal drip?

The blog article below reviews post nasal drop, causes and treatment: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/167/Postnasal-Drip-in-the-Bronchiectasis-Patient

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you understand the different classifications of the most commonly used respiratory drugs?

The link below reviews the different types of commonly used respiratory drugs: https://respiratory-therapy.com/products-treatment/pharmaceuticals/us-pharmaceuticals/pharmacological-treatment-of-respiratory-disorders/

Author: Ksmiles123
0 Votes
0 This question has no answers.
Is the heat drying out your nasal passages?

Hello! We are advised not to use humidifiers. Dry heat can really dry out our nasal passages; I use nasal washes at this time of the year. Other suggestions are to leave a clean pot of water in your bedroom at night. Cracking a window is suggested as …

Author: Ksmiles123
0 Votes
3 Answers
Are your nasal passages extremely dry due to your heating system throughout the winter months?

I use a nasal wash at this time of the year to clean out my nasal passages. Otherwise, doctors have recommended to leave a pot of clean, recently boiled water ( 10 minutes) by your bedside or to open a window a crack if doable since humidifiers are not …

Author: Ksmiles123
0 Votes
2 Answers
Littel helpful hints

Does anyone else get relief in the following two ways: 1. When I get phlegm stuck in my throat, I can sometimes get it loose with the use of Ricola cough drops (the original, not the sugar free) 2. Prior to bedtime, I use Neilmed saline rinse, but not in …

Author: oasisman
0 Votes
4 Answers
Are you considering getting the RSV vaccination?

Below is basic information on the RSV vaccination: https://www.singlecare.com/blog/rsv-vaccine/?utm_source=braze-sc&utm_medium=email&utm_campaign=10.20_Newsletter&lid=o2f3jolfejv4

Author: Ksmiles123
0 Votes
17 Answers
Reduced lung function

So I’ve had Bronchiectasis for years with just some coughing. But this year in addition to 2 flares I get short of breath when I’m not flaring. My breathing is clear otherwise.. The shortness of breath has seemed to come on quickly. Has anyone else …

Author: Jeffrey
0 Votes
6 Answers
Medicare Part B payment for 7% sodium chloride vials

I have been trying unsuccessfully for months to arrange a way for Medicare Part B to pay for the 7% sodium chloride in 4ml vials that I use twice daily through a prescribed nebulizer to treat Bronchiectasis. I have consulted with my pulmonologist, …

Author: MKB
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