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Are you planning on getting the RSV vaccine?
Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...
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Are you planning on getting the RSV vaccine?
Late fall is the best time to get the RSV vaccine, before the winter months roll in. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...
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Have you planning on getting the RSV vaccine?
Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guidance/adults.html
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4
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How much time does airway clearance take?
I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the …
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1
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Are you planning on getting the Fluzone vaccinationsoon?
Fluzone is the stronger flu vaccine recommended for people over the age of 65, those on long term immunosuppressants and transplant patients. I usually get my vaccination in mid October; it can take a few weeks to reach a higher level of effectiveness in …
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4
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NTM lung infection symptoms
Hi - I have had a history of bronchiectasis since 2005. The thing the doctors told me was to be careful if you catch a cold or flu as that can turn into pneumonia. Fast forward to fall of 2014, I had been having night sweats for years but now I felt …
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Do you know what diseases each vaccination protects us against?
A few vaccinations just have initials , not a completely spelt out name. The link below, from the CDC reviews vaccination recommendations throughout our lifeand the diseases that they protect us against. https://www.cdc.gov/vaccines/imz …
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22
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Has anyone ever been cured from Mycobacterium abscessus and chelanae?
I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.
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How is the air quality in your area today?
Poor air quality can really take a toll on respiratory patients, leading to increased inflammation, wheezing, shortness of breath in some individuals. The link below provides a guide for you to better understand the different air quality flags: …
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27
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Share Your Story - Symptoms and Diagnosis
What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?
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Did you miss an educational activity on World Bronchiectasis Day?
Below is an excellent webinar, designed for respiratory therapists. You can listen and learn a lot from this video if you are not a respiratory therapist. Elevating Awareness of Bronchiectasis Watch on YouTube: https://www.youtube.com/watch?v=G0RBqnIu …
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Are you currently using the NTM Disease Management Tool?
It is good to have a tool for guidance in the management of NTM Lung Disease. The link below provides information and the tool that you can print out and use regularly. https://www.bronchiectasisandntminitiative …
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Do you understand the differences in the humidity number and the dew point number?
It has been extremely warm on the East Coast over the past week. Weather reports can be confusing for many people. Humidity numbers may not be too high but the dew points are high. The How to Geek link below differentiates the two terms, humidity and dew …
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5
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Does the weight loss associated with NTM tend to stabilize with regular antibiotic treatment?
NTM questio
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4
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Enquiry
I was diagnosed,6 days with bronchitis.What type food can i avoid? 2.What type of exercise should I do? 3.When shall i visit my Doctor. Note: The medication really stopped the bleeding and mucus but I still have little cough.
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2
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Do I need to avoid indoor swimming pools?
I only have Bronchiectasis, not NTM
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Have you been using the NTM Lung Disease Management Tool?
The NTM Lung Disease Management Tool can assist you on your NTM journey: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf
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Are you using the Bronchiectasis Action Plan?
Below is the link: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/ActionPlanEnglish.pdf The plan will assist you on your Bronchiectasis journey. Let us know if you have any specific questions.
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2
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NTM in rainwater
We live off-grid. Does anyone know if NTM bacteria can be found in rainwater.
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13
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Young age at diagnosis
On one of my asthma support groups a 2 yr old was diagnosed I never heard of one that young.
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5
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Lung Disease Management
Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …
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Are you getting prepared for the upcoming heat wave?
The link below provides a calculator to determine the heat index. Please take action steps, in advance to keep cool, well hydrated and stocked up on any medications you may need. https://www.wpc.ncep.noaa.gov/html/heatindex.shtml
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1
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Do you use a pillbox to organize and track your medications?
Using a pillbox lessens the chance of forgetting to take your medication or taking too much medication. Filling the pillbox on a weekly basis also allows you to see if you need to call for a medication refill in a timely manner. The link below reviews …
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5
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Living w MAC without treatment
I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?
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Have you signed up for the World Bronchiectasis Day toolkit?
Please assist our BNTM community in increasing public awareness of Bronchiectasis. Sign up for our awareness toolkit . Help us raise awareness in your own network with our free toolkit. It's packed with social media posts, resources, and tips to help …
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