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Aspergillis

Have you heard if the term “ aspergillosis” before? It is a mold that can affect the respiratory system https://www.mayoclinic.org/diseases-conditions/aspergillosis/symptoms-causes/syc-20369619

Author: Ksmiles123
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Nebulizers

Hello! Do you have any specific questions about nebulizers and or the type of medications you use in a nebulizer? The link below, Nebulizers 101 will provide you with some helpful information. Please let us know if you have any questions? https://www …

Author: Ksmiles123
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Sleep

Hello! Are you sleeping well throughout these winter months? Sleep is of upmost importance for our immune systems/ healing. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/150/Sleep-and-Healing-for …

Author: Ksmiles123
0 Votes
2 Answers
PFTs

A function I used to perform at a bronchiectasis support site was to run a contest every year called Top Lung . Members would submit their PFT results allowing them to compete. The member with the highest FEV1 would receive the coveted Silver Spittoon …

Author: Ksmiles123
0 Votes
4 Answers
6 minute walk

Have you taken the 6 minute walk test recently? How did you do? https://www.verywellhealth.com/6-minute-walk-test-914820

Author: Ksmiles123
0 Votes
2 Answers
Adherence to goals

Are you keeping your new years goals? It is not easy to always stay on track. The blog article below discusses staying on track. Small steps towards our goals will eventually get us to where we desire to be. https://www.bronchiectasisandntminitiative …

Author: Ksmiles123
0 Votes
2 Answers
What is the best portable mesh nebulizer? The Phillips innospire is back ordered every where!

BestPortable mesh nebulizer

Author: BunnyG
0 Votes
2 Answers
Wheezing

Are you currently experiencing more frequent wheezing? Do you understand the source of your wheezing? The article below reviews wheezing and it’s possible causes. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community …

Author: Ksmiles123
0 Votes
5 Answers
Drug cost

Hello, I am just starting the 3 drug regimen and wondering if anyone is aware of financial assistance for Rifabutin as of 2023 Pfizer discontinued the patient assistance program for Mycobutin most of the discount card resources come out about the same; …

Author: JMS
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2 Answers
Have you been recently diagnosed?

Have you recently been diagnosed with NTM, Bronchiectasis or both? Do you have a specific question?

Author: Ksmiles123
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Reflux

Are you a new patient dealing with acid reflux? The blog article below offers some tips: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/47/The-Basics-of-Acid-Reflux

Author: Ksmiles123
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0 Votes
2 Answers
Has anyone used the WABI steam sanitizer& dryer for Phillips Innospire Go mouth piece?

Wabi steam sanitizer & dryer. Has anyone used it for Phillips Innospire Go Mouthpiece? I use it on my Aerobika and other nebulizer pieces. I contacted Phillips and have not received an answer to date. Thanks for any info!

Author: BunnyG
0 Votes
3 Answers
Do you understand all of the medical terminology used at your doctors office?

Do you understand all of the terms used by your pulmonologist? The link below reviews the most common terms used: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Glossary

Author: Ksmiles123
0 Votes
13 Answers
Cannabis for Bronchiectasis?

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Author: Jadew
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Do you understand the diffusion capacity of your lungs?

https://www.verywellhealth.com/diffusing-capacity-of-the-lungs-2249024

Author: Ksmiles123
0 Votes
7 Answers
Bronchiectasis and NTM Information Podcast

Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …

Author: Delia
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Are flu rates high in your area?

Is the flu widely spreading in your area? https://symptoms.webmd.com/cold-flu-map/default.htm?ecd=wnl_spr_121922&ctr=wnl-spr-121922_lead_title&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3D

Author: Ksmiles123
0 Votes
2 Answers
Do you want to reduce exposure to NTM?

Do you want to learn more about reducing exposure to NTM? The video below offers some great recommendations: https://m.youtube.com/watch?v=bRyoYXthxH4

Author: Ksmiles123
0 Votes
4 Answers
winter weather

I have noticed that weather seems to affect how I feel. Does anyone have any tips on how to manage the coming winter?

0 Votes
1 Answers
Do you understand pulmonary function test and its interpretation?

https://bronchiectasis.com.au/bronchiectasis/diagnosis-2/lung-function

Author: Ksmiles123
0 Votes
5 Answers
Are you equipped to deal with the flu?

My chimney's immune system is weak due to smoking, and now it has the flue.

Author: Ksmiles123
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0 Votes
9 Answers
First message from a patient's husband in Australia

Hello from Australia. My wife has been to see her doctor, who has recommended a course of three antibiotics to treat her NTM. The doc says that the treatment might have to be for 6 months to a year or perhaps longer. She has been informed about possible …

Author: aussie
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0 Votes
15 Answers
How cautious must you be with water?

This whole disease is sooo frustrating. Different doctors recommend different things so it is hard to know what to do. I beat MAC after 10 years! I try to be careful but evidently not careful enough, because now I have M. massiliense. Same type of …

Author: Tracer
0 Votes
21 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
3 Answers
I just started inhaled colistin, using a nebulizer. Anyone else doing this?

Inhale colistin using a nebulizer

Author: wlpitcher
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