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5
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Share Your Story - Lung Surgery
Have you ever had surgery on your lungs? If so, what tips can you share to help others with preparation and recovery?
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5
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Have you had a lung wedge resection?
Q. Have you had a lung wedge resection? A: Yes Q. Where did you have the surgery done? A: Saints Mary & Elizabeth Hospital in Louisville, Kentucky. Part of the middle right lobe was removed in April 1975. I think a sponge was left in there …
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4
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Supplements
Have you ever experienced a hypersensitivity or allergic reaction to a supplement. The blog article below discusses possible reactions from some supplements: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1853/Are-your …
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3
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Are you on Arikayce and interested in sharing your story?
Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and …
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10
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Singing for lung health group?
Hi again! Does anyone have information or links to share on joining singing for lung health groups? Thank yo
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2
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Chair yoga
Have you ever taken a chair yoga class? Would you like to share your experience?
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6
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Exercise
Are you able to get some exercise on a regular basis? The article below offers some good tips on an exercise plan: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Exercise
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8
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Collage craft safety
When collaging a masterpiece what type of lung medium or glue do you recommend ? Elmers says non toxic and all the books on collage say to use acrylic gel medium. Any advise?
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9
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How Do you clean your clearance equipment?
Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...
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4
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Dietary supplements
Are you taking dietary supplements? The article below reviews the basics on supplements. https://www.fda.gov/consumers/consumer-updates/fda-101-dietary-supplements
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0
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Differentiate between allergies, Covid and other respiratory issues
Do you know how to differentiate between allergies, Covid and other respiratory issues? The link below provides some helpful information on the subject: https://www.cnet.com/health/medical/how-to-know-if-its-allergies-covid-or-something-else/
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5
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NTM-Xenopi
Hi. I can't seem to find much information on M-Xenopi. Can anyone direct me toward a good resource for it? Thanks.
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2
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Can noxious chemicals from CPAP machines contribute to Bronchiectasis
A few weeks ago I slightly injured my upper ribs. No big deal (except coughing, sneezing, ouch!) and I knew it was going to go away. My doctor ordered x-rays as a precaution and although my ribs were fine, the radiologist noted the presence of …
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Bronchiectasis
Hi, I got diagnosed with bronchiectasis in December after having problems with my breathing / coughing for years. I take 1 inhaler a day with a pill at night and complete airway clearances once a day. I’m 26 and do regular exercise biking 30 mins a day …
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5
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On antibiotics for life
I orginally had MAC in 2008, was treated with azithromycin, refampin, and ethambutol. Cleared in 2010 by the ID doc to stop meds. Ten years later, I'm back with another MAC. He put me on Azithromycin and Ethambutol for life. Said I was too prone to …
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4
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MAC
Just learned that I have tested positive for MAC again. I went through antibiotic treatment for 11 months in 2018. I have felt good until I had COVID in July of 2022. During COVID I developed a cough. Now MAC . My question for anyone who was treated for …
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What type of cleaning products do you use?
The link below offers suggestions for better cleaning recipes which are less irritating to our respiratory system https://www.lung.org/getmedia/3030b2d9-02f0-4be4-ab86-d6bd86f88b88/ALA-Safe-cleaning-products-MHE-program-August-2022.pdf
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0
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Sleep apnea
Have you had a sleep apnea test at home or in a hospital setting recently?
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5
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Are you getting adequate sleep?
Sleep hygiene is of upmost importance when you are dealing with an infection and or a chronic condition. The link below offers some suggestions. The one that I disagree with is not to take a nap. It is okay to take a nap in the afternoon if you are not …
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4
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Medicare Part B payment for 7% sodium chloride vials
I have been trying unsuccessfully for months to arrange a way for Medicare Part B to pay for the 7% sodium chloride in 4ml vials that I use twice daily through a prescribed nebulizer to treat Bronchiectasis. I have consulted with my pulmonologist, …
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1
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Pulmonary rehab
Have you been in a pulmonary rehab program? If so, what were the greatest benefits for you? https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
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1
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Zinc
Do you understand the benefits of zinc https://www.healthline.com/nutrition/zinc#sources
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0
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Registered Dietician , nutritionist
https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian
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0
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Registered dietician vs. nutritionist
Do you understand the difference between a nutritionist and a registered dietician? https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian
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5
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Vitamin D
How much vitamin D are you taking on a regular basis? Most of us have a low level to begin with. A level lower than 20 is considered to be deficient. 50,000 units of D2 is recommended once a week for 8-12 weeks, then levels are rechecked. Maintenance …
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