0 Votes
2 Answers
I feel like Crap !

I'm supposed to fly from SC to Denver on 12/20 for a week. My ritual is to go to bed around 10PM. As soon as I lay down I cough up phlem for a few minutes and then I can sleep for a while-usually. Then up at 7 and do my inhalers Then yogurt and coffee. …

Author: sut
0 Votes
9 Answers
Inspiring Words to Uplift a Mood?

We are seeking quotes to inspire and gather encouragement when life gets us down. Living with a chronic illness can bring dark days and loss of hope. Is there a saying or a famous quote, a pearl of wisdom that brings some positive light to your life when …

Author: Gretchen
0 Votes
3 Answers
Does anyone use an AffloVest?

I nebulize 3% saline and use the Aerobika and huff cough twice a day. (I have also tried the Acapella.) I ride a stationary bike and walk on a treadmill for aerobic exercise. Even with all of this I’m not very successful with mucus clearing. My …

Author: sewcrazy64
0 Votes
8 Answers
Are any of you taking the Big 3 medications now? Are you able to tolerate them? If not, what are the

Adverse effects of the 3 major NTM antibiotics.

Author: Gretchen
0 Votes
7 Answers
Bronchietasis and Nails

Anyone experiencing nail bed problems and losing fingernails. My experience is I started getting artificial nails in October or December of 2017. I've always had beautiful nails, but I got gel nails and the last lady that removed them, damaged my nails. …

Author: liyahslola
0 Votes
0 This question has no answers.
Has anyone tried Buteyko?

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

Author: redhead
0 Votes
22 Answers
Any positive stories/tips on successfully managing m. abscesses with bronchiectasis?

Rplaset, Hello! I am so glad to read that you have a plan in place. Knowledge, knowing the steps needed to be taken lessen the angst when dealing with a new diagnosis. I am so glad that your wife was diagnosed early. In the interim, Please ask any …

Author: rplaset
0 Votes
4 Answers
Cannabis for Bronchiectasis?

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Author: Jadew
0 Votes
21 Answers
Getting to Know You...

Hello everyone I am Kandy from South Dakota. Been sick most my life asthmatic overlapping copd, chronic bronchitis every year. Found I had bronchiectasis in 2014. Many end of life predictions starting at 10 yrs old. 1997 very sick told to get my affairs …

Author: Gretchen
0 Votes
5 Answers
Traveling

I have Bronchiectasis and I am supposed to go to Denver for Christmas. I have not traveled on a plane since I came down with this. I'm wondering if going to Denver for a week is such a good idea. I cough a lot and after my inhalers I cough up Phlem. …

Author: sut
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0 Votes
0 This question has no answers.
Market Research Opportunity

Hi all, BioTrak Research is seeking individuals diagnosed with bronchiectasis to participate in an in-person, 30-minute market research study session. During the study session, participants will be asked to perform a task for dose preparation of a new …

Author: Delia
0 Votes
17 Answers
NTM and lung cancer

Is there anyone here that got NTM after having chemo/radiation for lung cancer? I am trying to make sense of what NTM is, why the treatment makes me so tired and what I can do to get past the tiredness. Any advice?

Author: kfs52
0 Votes
3 Answers
Is there anyone in the world like me with ongoing symptoms post influenza?

This is a question from participant Elaine. After having severe H1N1 swine flu in 2009, followed by another chest infection within 10 days - my health and lifestyle changed. My main continuing issues are - persistent throat clearing and occasional …

Author: Gretchen
0 Votes
1 Answers
Any contraption or non-medical device that improves your quality of life?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Author: Gretchen
0 Votes
15 Answers
What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Author: Sheila F
Tags:
0 Votes
10 Answers
Gerd and chronic NTM

How should GERD be diagnosed especially if it may be silent? And what kind of treatment is there? i.e. how aggressive should one be in persuing treatment in an effort to eradicate chronic NTM not eliminated by multiple courses of antibiotics

Author: Barb D
0 Votes
1 Answers
Traveling with medical equipment

Good or bad. Give experience traveling with medical equipment. Nebulizer, VEST system, clearance system.....

Author: liyahslola
0 Votes
12 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
0 This question has no answers.
Market Research Opportunity

Hi all, Schlesinger and Associates is looking for individuals diagnosed with NTM lung disease (including MAC) to participate in a 60-minute telephone and web-based discussion about NTM. The goal of this research is to understand personal journeys with …

Author: Delia
0 Votes
5 Answers
Hi. I'm curious if anyone who has bronchiectasis is on calcium channel blockers?

I read that calcium channel blockers can cause silent GERD symptoms such as coughing and that this is correlated with respiratory diseases such as bronchiectasis (BE). My dad has been on calcium channel blockers and has had a severe cough and now …

Author: KarenC
0 Votes
2 Answers
Has anyone else found out that they have low levels of CD8 killer T-cells?

My immunologist discovered through blood tests that I have very low levels of CD8 killer T-cells. He says in about a decade they may be able to correct this genetic defect. This may be a piece of the puzzle why I have bronchiectasis and a history of …

0 Votes
3 Answers
False negative?

Has anyone had a negative culture for MAC in between 2 positive cultures. Makes me wonder if there are false negatives.

Author: KC
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0 Votes
4 Answers
Multiple ntm infections from single sample and bronchiectasis

I'm newly diagnosed with Bronchiectasis and as part of the follow up I was tested for TB/NTM, this has shown negative for TB but I've been found to have 3 different NTM infections which were all discovered from a single sputum afb smear/culture, is this …

Author: Annie70
0 Votes
4 Answers
How do others clean their nebulizer cups?

Medicare switched me to Lincare as my service provider for nebulizer equipment. When a new compressor and cups were delivered I was given directions for use. The provider told me that Lincare believes that washing the nebulizer cups with soap is to be …

Author: Margo
0 Votes
2 Answers
Steroid therapy for exacerbation of NTM

My physician orders high doses of Prednisone when I have an exacerbation Is this recommended?

Author: Barb W
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