Hi. My diagnosis is mild bronchiectasis. Typically I have to clear airways every 4 to 5 days. But it takes me up to 3 hours to clear airways start to finish. From what I read on this blog, I am slow! Currently steaming for 15 minutes, nebulizing with …

Currently undergoing allergy shots. Lately any exposure to outside air flares the bronchiectasis. Are these flares likely to increase the frequency of the need to clear lungs or will the frequency return to what it has been? When at maintenance with …

I have had colonized Pseudomonas for 2 years. Recently I took a strong dose of Levaquin (after having no antibiotics for the past 2 years) for pneumonia and the last sputum culture indicated no presence of Pseudomonas. I fear a reoccurrence and am asking …

If anyone is on Brinsupri, I would love to hear your expeience

Nasal washes are solutions used to rinse out your nasal passages and sinuses using a saline(saltwater) mix. I find using these washes beneficial, especially throughout the winter months when we are dealing with dry heat in our homes. These washes …

I've been through all processing for the Airtivity clinical trial, and all good so far. Now the stumbling block for me is to produce a good sputum sample. Apparently I won't get on the trial if I cannot produce two good samples. I am not allowed to use …

I am just beginning to learn about bronchiectasis and engage in the bronch and NTM community. Is Bronchiectasis the same as chronic obstructive pulmonary disease?

What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?

I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the …

As the cold weather begins to roll in, we must face the fact that flu season is around the corner. Doing airway clearance regularly may assist you in lessening the chances of respiratory infections. Hopefully, you were able to get the flu shot- whether …

Hi Cjack. Dr Sandhaus attended one of the monthly Coffee Breaks and spoke specifically about the overlap of Alpha 1 and bronchiectasis. Check out the recording linked below.

Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...

I’ve started treatment for PA mucoid variant. My pulmo chose Cipro monotherapy. I was inspired by those who commented about this as common and about treatments that worked to “eradicate” or at least minimize it as an issue for them. The literature about …

I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?

My pulmonologist has recommended that I try Brensocatib which has just been released as a treatment for nonCF bronchiectasis.

Cooler weather is around the corner. Tis the season for annual vaccinations and to closely follow your Bronchiectasis action plan. The plan is in the link below:, https://www.bronchiectasisandntminitiative …

If you have answered yes, please read the article below on the potential impact of wood burning stoves on your lung function: https://respiratory-therapy.com/public-health/healthcare-policy/environmental-news/indoor-wood-burning-linked-to-lung-function …

It is important to understand the basics of drug formularies, offered by different insurance companies. The formulary lists the drugs by tiers or levels, with tier 1 being the least expensive and the higher tiers being more expensive. Often, your health …

Interested in hearing the experience of others with sleep apnea and their treatment for it

The you tube video below , featuring Jonnie Korinko, COPD Foundation and Emily Whicheloe, Director of Education, Medicare Rights Center presents a comprehensive overview of enrollment in a Medicare plan. https://m.youtube.com/watch?v=1zBMrG5ieoE This …

Below is an article from Harvard Health on the advantages and disadvantages of telehealth: https://www.health.harvard.edu/staying-healthy/telehealth-the-advantages-and-disadvantages We would love to hear your comments on both the pros and cons of …

Health care providers use these term frequently. The article below , from the Cleveland Clinic defines the terms, hypoxia, hypoxemia, their causes , symptoms and treatment options: https://my.clevelandclinic.org/health/diseases/17727-hypoxemia

Fluzone is the stronger flu vaccine recommended for people over the age of 65, those on long term immunosuppressants and transplant patients. I usually get my vaccination in mid October; it can take a few weeks to reach a higher level of effectiveness in …

Hi - I have had a history of bronchiectasis since 2005. The thing the doctors told me was to be careful if you catch a cold or flu as that can turn into pneumonia. Fast forward to fall of 2014, I had been having night sweats for years but now I felt …

A few vaccinations just have initials , not a completely spelt out name. The link below, from the CDC reviews vaccination recommendations throughout our lifeand the diseases that they protect us against. https://www.cdc.gov/vaccines/imz …