0 Votes
4 Answers
Are you using long acting bronchodilators?

Long-acting Bronchodilators: these medications are inhaled into the lungs through inhalers and nebulizers and relax the muscles in your lungs. Long-acting bronchodilators do not work quickly. They are often used once or twice a day every day to help …

Author: Ksmiles123
0 Votes
6 Answers
Are you taking a short term bronchodilator?

Short-acting Bronchodilators: These meds work quickly to relax the muscles around your bronchial tubes, helping to relieve shortness of breath. These meds are inhaled into the lungs from an inhaler or nebulizer. You often begin to feel relief within a …

Author: Ksmiles123
0 Votes
5 Answers
Do you use inhaled corticosteroids?

Inhaled Corticosteroids: These medications reduce the inflammation in your lungs via an inhaler or nebulizer . These meds do not work instantly and can take a few weeks of continuous use before you experience results. A few common inhaled corticosteroids …

Author: Ksmiles123
0 Votes
1 Answers
Silicone toxicity

Hi, has anyone else on here had silicone implant ruptures causing lung damage? If so how and what has helped ? TIA

Author: ~b
0 Votes
0 This question has no answers.
Do you know that there are 3 different types of inhalers?

Inhalers, or “puffers,” deliver reliable and consistent doses of inhaled medicines.There are three types of inhalers: metered-dose, dry powder, and soft mist. A metered-dose inhaler (MDI) is a small, pressurized canister that fits inside a plastic, boot …

Author: Ksmiles123
0 Votes
2 Answers
Coloring our hair

Hi, Has anyone with bronchiectasis had exascerbations or lung symptoms from coloring your hair? Thank you

0 Votes
0 This question has no answers.
Do you know the “ red flags 🚩 “ of an exacerbation?

The link below provides information on exacerbations and the red flags associated with exacerbations: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Author: Ksmiles123
0 Votes
4 Answers
Do you carry a medication management wallet card?

Below is the link to the medication management wallet card. This may be helpful for you keep in your wallet in case you need it and to show the staff when you visit different specialists. You will not have to write the same lists over and over again. …

Author: Ksmiles123
0 Votes
1 Answers
Do you use and inhaler and or a nebulizer?

The link below reviews the different types of inhalers and the basics on nebulizers. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Inhaled-Medicines

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you carry a medication management wallet card?

Below is the link to the wallet card. This may be helpful for you keep in your w to show when you visit different specialists: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/WalletalletCard_Bronch_NTM_Web.pdf

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you understand the difference between humidity numbers and dew point numbers?

The article below describes the difference in the two numbers: https://www.foxweather.com/learn/dew-point-best-way-classify-how-much-humidity-in-air

Author: Ksmiles123
0 Votes
3 Answers
Does anyone know if hiking or camping are activities that are ok to do?

I was wondering, with environmental exposure to NTMs, aspergillus, etc., has anyone heard anything from doctors or other experts on whether hiking or camping are ok to do? Trying to get an idea if these activities are ok or not, if they should be avoided …

Author: BrenB
0 Votes
1 Answers
Advocacy in America: Reflecting on IMPACT 2024

This Independence Day, I want to honor our amazing team of IMPACT 2024 lung health advocates that I worked with in Washington, D.C., where we asked our lawmakers to take action to support lung health! On March 5, individuals with chronic lung disease, …

0 Votes
7 Answers
Has anyone had nerve damage from Ethambutol?

I started NTM treatment with the "big 3" but had to stop the Ethambutol in the first month because my hands and feet started getting numb. I understand the damage is often temporary, but after 30+ days off the Ethambutol, they haven't gotten better. It's …

Author: Merry
0 Votes
2 Answers
Anyone have input on afflovest vs Hill Rom?

My pulmonologist asked me which one I wanted, like I have a clue. Doing research & could use some feedback from anyone willing to chime in. I’m 64”106# & would like to be mobile with it.

Author: Chrism
0 Votes
0 This question has no answers.
Is the humidity / dew point increasing in your area?

The blog article blow reviews how weather changes, especially increasing humidity and dew point can impact respiratory patients: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/54/Why-Weather-can …

Author: Ksmiles123
0 Votes
0 This question has no answers.
Want to go to Scotland for the World Bronchiectasis Conference??

Do you know there is a World Bronchiectasis Conference? This year the conference takes place in Dundee, Scotland! Association and Patient Village have made it possible for you to attend for FREE. Visit https://bronchiectasis-patient.org/ to get all the …

0 Votes
7 Answers
Does anyone have a top (or top 3) recommendation(s) for getting a second opinion or consult?

I was diagnosed 11/22 with NTM. In 2019, my PCP missed a bronchiectasis diagnosis from a coronary calcium CT scan. I went 3-1/2 years untreated & without airway clearance practices, no sputum til 2022. I had a bilobectomy in 5/23 and in 9/23 started …

Author: Chrism
0 Votes
0 This question has no answers.
How are you dealing with the heat wave?

The link below provides information on dealing with heat waves. Please read the paragraph about nighttime temperatures. https://weather.com/safety/heat/news/2024-06-18-heat-wave-what-to-know-safety

Author: Ksmiles123
0 Votes
2 Answers
​Check-In: World Bronchiectasis Day is July 1st!

World Bronchiectasis Day is celebrated on July 1 st every year to raise awareness about this lung condition. This year, the focus is on research and how it impacts the bronchiectasis community. Take a look at the details below and join us on July 1 st to …

0 Votes
0 This question has no answers.
Are you planning on traveling 🧳 this summer?

The link below offers some great suggestions on making traveling more pleasant: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you know the red flags 🚩 of an exacerbation?

Below is information on the red flags, preventative measures and treatment options: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you keeping up with your airway clearance?

The link below provides the basics on airway clearance: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/Quick_guide_to_airway_clearance_Web.pdf Please let us know if you have any questions.

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you concerned about sitting in the sun while taking medications?

Most of us enjoy being outdoors, sitting in the sunshine throughout the summer months. However, we must be cautious while taking certain medications. Tge article below reviews the categories of medications that are most “ sun sensitive “,: https://www …

Author: Ksmiles123
0 Votes
3 Answers
2024 NTM & Bronchiectasis Patient Conference

Hi! Not sure how to post this, so hopefully it works. I did not know if anyone was aware that there is a conference in San Diego this week - the 2024 NTM & Bronchiectasis Patient Conference. It is May 16-17, & they are still accepting registration for …

Author: BrenB
Votes
0 This question has no answers. Answers

Author:
Tags:
No questions or answers were found
    No questions or answers were found
    More Questions
    Tags
    No tags found