0 Votes
10 Answers
Share Your Story - Antibiotics and GI issues

When I started with a new pulmo 2014 after diagnosing me with bronchiectasis we talked about zpak weekly but due to hearing loss a side affect of that antibiotic he was hesitant on giving me this. So I had my hearing checked and I had already lost …

Author: ChristinaH
0 Votes
5 Answers
Mucous Thinning

Has anyone tried the nebulized form of n-acetyl cysteine to help thin mucous?? I have discussed this with my doctor, and she has sent the prescription to several drug stores, and they have not been able to attain this drug. I live in New Jersey. Thanks

Author: oasisman
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Are you familiar with the term Rhinoviruses?

This is one term that is not frequently spoken about. Below is information on rhinoviruses from the CDC: https://www.cdc.gov/rhinoviruses/about/index.html

Author: Ksmiles123
0 Votes
5 Answers
Clear ct scans with bronchiectasis

Does anyone that has bronchiectasis find that with an effective lung clearance technique that they have been able to achive a clean CT scan? Should that be the goal of therapy and is it possible? I'm going to have a bronchoscopy to suction some out and …

Author: PWW
0 Votes
1 Answers
Are you getting out to exercise during this beautiful fall weather?

We may not always be up to exercising but exercise is highly recommended for better lung health. We can allow ourselves to take some off when we are not feeling well but we must try to push ourselves to do some type of exercise on the other days. The …

Author: Ksmiles123
0 Votes
3 Answers
Are you prepared for the cold and flu season?

Preparation of cold and flu toolboxes are strongly recommended. You do not want to sick and realize that you are out of the basic supplies. Going to the drug store when you are sick and fatigued is not good for you nor the other people in the store. The …

Author: Ksmiles123
0 Votes
2 Answers
Do you currently use oxygen?

I'm currently on oxygen therapy and considering changing my user name to oxygen4evr.

Author: Ksmiles123
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0 Votes
7 Answers
Do you own a pulse oximeter?

Pulse oximeters are a small piece of plastic equipment that you place on your finger to check your oxygen levels. They are a noninvasive, reasonably priced and easy to use tool to use. The article below reviews the top rated pulse oximeters with the …

Author: Ksmiles123
0 Votes
12 Answers
Are any of you taking the Big 3 medications now? Are you able to tolerate them? If not, what are the

Adverse effects of the 3 major NTM antibiotics.

Author: Gretchen
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Have you read about the updated Medicare Part D coverage for 2025?

Good news! The max out of pocket limit has been reduced to $2, 000. The link below answered frequently asked questions about the updates in the Part D plan: https://www.medicarefaq.com/original-medicare/medicare-parts/medicare-part-d/medicare-part-d …

Author: Ksmiles123
0 Votes
2 Answers
Do you have any questions about Medicare Part D?

Hi Katie! We're having a webinar on Thursday at 1:30 PM EST that will cover the changes in part D coverage in 2025. Here is the restistration link: https://copdf.co/medicareenrollment

Author: Ksmiles123
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Hello! Do you understand Medicare Part C- the Medicare Advantage Plans?

The link below is a lengthy review of Medicare Advantage plans vs. the traditional Medicare plans: https://www.medicare.gov/publications/12026-Understanding-Medicare-Advantage-Plans.pdf

Author: Ksmiles123
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Do you understand what Medicare Part B covers?

Medicare Part B covers two types of services. The link below reviews the details of what is covered by Medicare Part B: https://www.medicare.gov/providers-services/original-medicare/part-b

Author: Ksmiles123
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Do you use oxygen?

5 hours ago YouAndOxygenTherapy.com , created in collaboration with the American Thoracic Society, provides interviews/videos with both clinicians and oxygen therapy users. The above link provides very useful information on oxygen therapy to share with …

Author: Ksmiles123
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Do you currently use oxygen?

YouAndOxygenTherapy.com , created in collaboration with the American Thoracic Society , provides interviews / videos with both clinicians and oxygen therapy users. The above link provides great, useful information on oxygen therapy for you to share with …

Author: Ksmiles123
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Did you miss the recent webinar on “ How the Lab Works?”

Knowledge is power. Understanding how the lab works can lessen some frustrations on the BNTM journey. The you tube video reviews the basics of labs used for BNTM individuals: https://m.youtube.com/watch?v=gLieUFmA0q0

Author: Ksmiles123
0 Votes
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Are you familiar with the term “Palliative Care “?

Most people are not familiar with this term. Individuals with chronic conditions may be covered by insurance plans for these services.The link below reviews the services offered and th program in detail. https://my.clevelandclinic …

Author: Ksmiles123
0 Votes
3 Answers
Has anyone tried hydrogen inhalation therapy or hydrogenated water?

I have done some reading on hydrogen inhalation therapy. There are references to it being helpful with lung problems and covid, but not specifically to NTM. I have been trying inhaled hydrogen and drinking hydrogenated water for a few weeks and I think …

Author: KarenU
0 Votes
0 This question has no answers.
Did you miss the recent webinar on How the Lab Works?

Understanding how the lab works for BNTM patients is valuable information for the patient journey. Below is the video for the webinar. https://m.youtube.com/watch?v=gLieUFmA0q0

Author: Ksmiles123
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Hello! Do you have any questions on Oxygen Therapy?

The comprehensive guide below reviews the basics on oxygen therapy. https://www.copdfoundation.org/Downloads/The_Supplemental_Oxygen_Guide_COPD-March-2020.pdf Please let us know if you have any specific questions.

Author: Ksmiles123
0 Votes
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Who is the person you lean on for support on hard days?

Definition Caregiver or Support person A caregiver or support person can be defined as someone who helps with activities of daily living, picks up groceries, helps clean, provides transportation, accompanies you to the doctor and/ provides emotional …

0 Votes
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Which coping skills work best for you when you are feeling stressed?

The article below lists 71 different coping strategies to deal with stress and anxiety. https://www.happierhuman.com/coping-skills/

Author: Ksmiles123
0 Votes
2 Answers
Have you heard about Acceptance and Commitment Therapy?

Acceptance and Commitment therapy assist individuals to accept where they are on their health journey. Once acceptance is achieved, one can become more committed to take action steps to go forward in their lives to take action steps. The goal is to …

Author: Ksmiles123
0 Votes
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Have you ever used a journal to vent your feelings about living with a chronic lung disease?

The link below provides a tool, entitled, Chronic Disease Management Through Therapeutic Writing- A Self-Care Tool https://healingworksfoundation.org/wp-content/uploads/2022/04/Chronic-Disease-Management-Writing-Prompts-1.pdf

Author: Ksmiles123
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Are you interested in finding a therapist to discuss your health challenges??

The link below reviews the different types of counselors, and questions to ask the counselor before you make an appointment. Finding and Working with a Therapist – Healing Works Foundation

Author: Ksmiles123
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