0 Votes
5 Answers
Percusion chests

I am considering getting the Afflovest. Anyone using it and does it make any difference? It is not cheap. So far for me the most effective way to clear the mucus is the saline solution 7% and biking on a bike trainer indoors for 30/40 minutes.

Author: Adrian1
0 Votes
19 Answers
Cause(s) of Bronchiectasis

Does anyone know what causes Bronchiectasis? Also interested in hearing diagnosis experiences (i.e. did your doctor tell you how you got Bronchiectasis?) if anyone is willing to share. Thanks!

Author: Delia
0 Votes
2 Answers
What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Author: Sheila F
Tags:
0 Votes
4 Answers
Disability

Is itpossible to get Disability assistance through the government due toNTM and /or Bronchiectasis? Hasanyone gone through this process?

Author: Pamela
0 Votes
2 Answers
Daliresp, Pulmonary Rehabilitation

Hi, all-- Has anyone else experienced delayed side effects from Daliresp? After 4 months on Daliresp I experienced a new and most egregious side effect, and my doctor took me off the med. I had some side effects at the beginning, but they either subsided …

Author: oklawoman
0 Votes
2 Answers
Save the Date! Patients as Partners: Using the “My COPD Action Plan” for Effective COPD Management

Patients as Partners: Using the "My COPD Action Plan” for Effective COPD Management A webinar for health care professionals and those who have been diagnosed with COPD Free of charge Tuesday, November 7, 2017 4:00pm – 5:00pm EST The “My …

Author: Kristen
0 Votes
4 Answers
What is the best way to get results from a nebulizer, using 7% hypertonic saline solution?

I have been using a nebulizer, with 7% hypertonic saline for almost a year now. I don't cough, so this is supposed to help the bronchiectasis and also the NTM. Is there a method anyone uses for making the mucous come out? I don't have much mucous to …

Author: jancookz
0 Votes
8 Answers
NTM MAI and the bird connection

Hi - found out recently that there is a connection with NTM MAI and living with birds - has anyone been told this by a doctor, I saw a new pcp and he was stunned to learn that I was living in a house with a bird (amazon) - I was stunned that no one ever …

Author: bunnyhop
0 Votes
9 Answers
Hair loss?

Has anyone experienced hair loss from meds? I have been on ethambutol, rifampin and azithromycin for 6 months now and my hair is getting very thin.

Author: KC
0 Votes
4 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
6 Answers
Has anyone with bronchiectasis been diagnosed with high eosinophil levels?

After being told I have bronchiectasis, my pulmonologist informed me that my eosinophil levels were extremely high, 179 was the count, and that it was the main cause of my asthma. Has anyone else experienced this?

Author: SusanL
0 Votes
3 Answers
Percussion vest with breast implants after mastectomy

Hi! Has anyone with a history of mastectomy with gel implant reconstruction been using a percussion vest, or know anything about the safety to the implants of such use? Any idea where to find case reports of problems or studies showing safety? Thank you! …

Author: Ru
0 Votes
2 Answers
What Nebulizer should I choose?

I'm newly diagnosed with Bronchiectasis and MAI. Apparently I have only two brands of nebulizers available in my area that my insurance will cover: Drive (compact or MedNeb I think) and Phillips Respironics Innospire Mini. Does anyone know which is the …

Author: sewcrazy64
0 Votes
6 Answers
Has anyone had success applying for Social Security Disability?

I needed to quit my visual art high school teaching job of 33 years due to my Bronchiectasis. I would frequently have bronchospasm, coughing for several minutes with difficulty breathing, sweats while trying to teach 5 classes per day of 40 students per …

Author: Kel
0 Votes
5 Answers
Does your respiratory diagnosis create challenges in your daily tasks? Have you found helpful soluti

Does your respiratory diagnosis create challenges in your daily tasks? Have you found helpful solutions that you can share?

Author: kellis
0 Votes
1 Answers
Health Apps?

Do any of you use Health Apps to manage your disease? Here is an interesting article from the Wall Street Journal about how certain apps help in the connection between health care professionals and patients. Any thoughts on this? https://www.wsj …

Author: Gretchen
0 Votes
16 Answers
What foods bother your condition? Have you noticed any that have positive or negative effects?

Wonder what foods may or may not affect my condition. Others with experience? Thanks for your responses.

Author: Red1
Tags:
0 Votes
3 Answers
Micobacterium abscessus cure?

I was diagnosed with this NTM in 2014, and recently my pulmonary doctor has told me he sees progression of growth in my CT's of suspect new activity of the disease. I thought we had beat it back. Now do I start all over? Doing the three tests AFB again. …

Author: LornaLee
0 Votes
1 Answers
Travel masks?

Hi everyone, Has anyone tried using masks when they travel to minimize risk of exposure to illness? What have you tried -- and have they worked for you? Thanks!

Author: Kristen
0 Votes
9 Answers
Social Issues and Bronchiectasis/NTM

Yes, so many with chronic disorders face these challenges. I feel that you learn over time how to face saying "no" when you are truly unable to function and attend an event. True friends, family will get better insight of what you are dealing with over …

Author: oklawoman
0 Votes
2 Answers
Is there anyone else Mucinex does NOT help? If so, what do you use instead?

I do hypertonic saline 7% and it sure has helped me. Also NAC a supplement pulmo do recommend be sure to ask your dr first. My pulmo told me to double my dose I was doing 600 mg for the antitoxin affect till I got bronchiectasis. http://www.webmd …

Author: oklawoman
0 Votes
6 Answers
I sent samples of the biofilm in my showerhead to the university study conducted a couple of years

I sent samples of the bio film in my showerhead to the university study conducted a couple of years ago. Did anyone here participate? Did you get your results? I've never heard back and now cannot even remember who did the study to follow up. Any …

Author: mimi
0 Votes
8 Answers
Is anyone on PPI for GERD problems?

After taking Nexium (PPI that blocks all acid) for over 3 years, due to problems with the antibiotics for NTM, I read that PPI's cause bacteria to go into the lungs. Don't need more of that! So now I am going cold turkey, with no Nexium for the past 3 …

Author: jancookz
0 Votes
5 Answers
Ignorant people putting limitations on my baby

As most of you know our now almost 19 month old has non-cf cystic Bronchiectasis. We have been trying to allow her to experience as many "Normal" activities as possible. One of these being swimming. See, we live in Texas and basically to survive a summer …

0 Votes
12 Answers
Communication with family and friends

Hi all -- how do you approach expressing your needs re: your illness with friends and family? For example, if you need them to stay home when they have a cold so you can avoid infection or you would prefer to stay inside rather than engage in an outdoor …

Author: Kristen
Tags:
Votes
0 This question has no answers. Answers

Author:
Tags:
No questions or answers were found
No questions or answers were found
More Questions
Ask a question
Sign In to Participate
Or register to become a member
Tags
No tags found