0 Votes
4 Answers
support groups

Can someone tell me about the local support groups that I have seen on this site.

0 Votes
7 Answers
Rasamsonia Argillacea

I am new to this site. Does anyone have information on the mold Rasamsonia Argillacea? I have just had that mold show up on a sputum sample and haven't been able to find much information on it. I understand that it's a really difficult, year long …

Author: DAJ
0 Votes
21 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
3 Answers
Airway clearance & sputum

I do airway clearance every day using 3% (just started using 7%) hypertonic saline….once in the morning and once late afternoon. I also use the Aerobika after I nebulize the saline. I also take the Big 3 antibiotics 3 days a week even though my last …

Author: ReRe
0 Votes
5 Answers
Bronchoscopy-Who amongst the bloggers has had a Bronchoscopy?

Who amongst the bloggers has had a Bronchoscopy and what did the results gain for you?

Author: Wolf
0 Votes
3 Answers
If my bronchiectasis is under control, why do I need a Bronchoscopy?

I am 74. What would a bronschoscopy gain for me?

Author: Wolf
0 Votes
4 Answers
CPAP and humidification

Hi All. This question was placed in the activity feed by a community member, and I didn't want it to get missed. :) What affect does the moisture settings on CPAP device have on bronchiectasis? Does anyone use a certain type of water to fill their CPAP …

Author: ChristinaH
0 Votes
1 Answers
How can a Bronchoscopy help me?

The reason I had one a few years ago as kept getting sick so they decided to do one see what bugs where in my lungs. Came up as normal flora. They only grew the sample in the lab 3 days I wonder if that was long enough.

Author: Wolf
0 Votes
7 Answers
ARICAYCE side effects

I have only been on this drug for 7 days but have noticed after each treatment my oxygen goes down and my heart rate goes up. My physician said at this time he is not concerned. Has anyone else had these side effects this early in treatment?

Author: JEG
0 Votes
24 Answers
Share Your Story - Hope for the future

What do you feel would be the greatest contribution to those diagnosed with bronchiectasis and/or NTM lung disease?

Author: ChristinaH
0 Votes
3 Answers
Best time to nebulize sodium chloride?

When is the best time to nebulize with sodium chloride? I have been using 3% saline twice a day....usually before meals. I plan on going out to dinner over the long holiday weekend and I am not sure if I should nebulize before or after dinner. Does …

Author: ReRe
0 Votes
2 Answers
What to do about coughing up blood?

I have been taking Arikcase for 4 months. Today I am coughing up small amounts of blood. should I suspend my use of Arikcase?

Author: smcbenner
0 Votes
4 Answers
When to stop taking the Big 3

I saw my Infectious Disease doctor yesterday following up on my most recent sputum culture done in early April and it was negative for Mycobacterium. I have been on the Big 3 for over a year. When I asked if I could stop taking the antibiotics, he said …

Author: ReRe
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0 Votes
2 Answers
Substitute for Performs

I received a letter from Humana Friday that Medicare has denied coverage for Performist even though I have been taking it for over a year. My doctor's nurse said that they refused to cover a generic that is now available. Does anyone have a suggestion on …

Author: Rush
0 Votes
2 Answers
Hyperbaric Oxygen Therapy

I am having the above medical procedure so I can have a tooth removed and an inplant inserted. The oral surgeon said with the tooth being in the lower jaw the therapy is required. I am concerned about any adverse side effects.

Author: Rush
0 Votes
5 Answers
Where to live - info needed from Dr after Diagnosis

Hi - found this site today and hope i can find a few answers - I have been on a quest to find the best place to live in the USA that is less likely to cause illness to people with bronchiectasis / NTM - also I would like to let the medical community …

Author: bunnyhop
0 Votes
4 Answers
Inhaler

I use a ProAir inhaler and Advair. My question is, how do you clean the actuator when it is plugged? Do you use clorox or vinegar to get it to work? Mine seems to be plugged and I have used hot water to get it unplugged. Also do you find yourself very …

Author: Ruth
0 Votes
0 This question has no answers.
Low Dose Naltrexone (LDN) and MAI

Hi, I'm new to the Community. I have a family member diagnosed with MAI, who is taking multiple antibiotics. I'd like to know if anyone here take Low Dose Naltrexone (LDN) as an adjunct therapy and what your experience has been. I take LDN myself for an …

Author: Kara
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0 Votes
4 Answers
Eliquis

I was recently diagnosed with a fib and was placed on Eliquis. Today I noticed that the mucis I cough up is bloody, I am wondering if this is a temporary problem that I have to work through or do I need to see if I need to change my medications.

Author: Rush
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0 Votes
2 Answers
Bronchiectasis

Is this site active as of 3/26/2022?

Author: Ruth
0 Votes
4 Answers
Thoracotomy

Has anyone had a lobectomy due to mac infection and broncheatasis? The surgeon suggested removing the upper right lobe of the right lung and a portion of the lower right lobe in the right lobe where there is MAC. Just curious if anyone else has had …

Author: JackieH
Tags:
0 Votes
6 Answers
Names of pulmos in Ga. and Fla.

We are currently living in Mass. We are looking at over 55 places in Georgia and Florida Can anyone recommend a good pulmonologist in Atlanta, Ga. or St. Petersburg, Fla ?

0 Votes
6 Answers
oropharyngeal flora in sputum sample

I have repeatedly submitted sputum samples and gotten the following response "The presence of 10 or more epithelial cells per low power field indicates contamination with oropharyngeal flora making the specimen unsuitable for processing." Why is this …

Author: BklynProf
0 Votes
13 Answers
Do you practice airway clearance techniques?

Hello! This question is one that I have based on a discussion from the Coffee Break time we had earlier this week. Do you practice airway clearance techniques every day? If so, what works best for you? If not, would you share why you don't? This is a …

0 Votes
14 Answers
How cautious must you be with water?

This whole disease is sooo frustrating. Different doctors recommend different things so it is hard to know what to do. I beat MAC after 10 years! I try to be careful but evidently not careful enough, because now I have M. massiliense. Same type of …

Author: Tracer
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