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Sodium Chloride 7% coverage?
Windy, Hello! Welcome to the community. You can purchase saline online on Amazon, priced at $29.00 per box, or at stores like Walmart.. There are several different brands posted on Amazon in a similar price range.
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Is Nanoe-X air purification in Toyota cars safe if you have NTM?
Apparently Toyota (in Europe) includes a Panasonic technology in the air conditioning system in some of its cars. Nanoe-X technology feeds trillions of nano-sized, atomized water particles into the ventilation airflow. These hydroxyl radicals have been …
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Are you getting a good nights sleep?
Sleep is an essential part of the healing process. Sleep provides restoration within our bodies. It impacts our ability to perform our daily tasks such as airway clearance, treatments, preparation of highly dense nutritious foods , energy to exercise and …
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Are you getting a decent quality of sleep at night?
Sleep is an essential part of the healing process. Sleep provides restoration within our bodies. It impacts our ability to perform our daily tasks such as airway clearance, treatments, preparation of highly dense nutritious foods , energy to eand so much …
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Brinsupri Results
If anyone is on Brinsupri, I would love to hear your expeience
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NTM and macrolide resistance
Hi, Recently found out I have MAC again (successfully treated m.avium species 10 years ago) but now have intracellular species and seems to be macrolide resistant. I have been looking at some very negative outcomes online for this scenario and wondering …
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Is it safe to use to inhale doterra breathe in a cup of boiled water?
With BE is it safe to inhale doterra essential oil breathe in a cup of boiled water?
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Can you see me?
Anyone know if when we're watching or listening to a webinar, can the host see us? Only I have always assumed not and taken my phone with me to all sorts of places
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6
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HRT
I'm sure I heard on a webinar something about HRT and NTM/BE. Does anyone know of any studies into the effect of HRT on post menopausal women who get NTM? I'm wondering if it might help prevent NTM in the first place, but then once you've got it, or had …
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Not accepted into Bronchiectasis Clinic
Hello, I was recently diagnosed with bronchiectasis and potentially NTM (awaiting sputum sample results). Based on everything I read, I requested a referral to the UNC Bronchiectasis & NTM Clinic, in order to take advantage of the expertise and …
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Feeling overwhelmed with new diagnosis
I have recently been diagnosed with mild bronchiectasis. I am reading what i can online about it, but there is just so much to take in.. When i'm well i don't have much of a cough, and then when i do cough its very dry, and difficult to bring anything up …
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Coughing while traveling
Hello, I was recently diagnosed with bronchiectasis and potentially NTM (awaiting sputum sample results). We currently have a trip planned for out of the country (Spain and Greece) for mid-May. Right now I am coughing a great deal, despite religiously …
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Hello! Do you use medications while doing your airway clearance?
Mucolytics are medications that thin or break up the sputum in your lungs, making it easier to cough up and out. These medications assist one to clear out the mucus as much as possible. Below is a link to the different medications. Please let us know if …
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Update on NAC
Have looked through the questions/answers on NAC. Saw this about 3 months ago. https://pmc.ncbi.nlm.nih.gov/articles/PMC12603500/ I have asthma/Bronchiectasis. People taking this were in threads a while ago. I don't want to take more supplements than I …
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What medication do you currently use for airway clearance?
The link below reviews medication used for airway clearance. If your current medication doesn’t seem effective or causes negative side effects, please discuss with your healthcare provider. https://www.facebook …
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Do you understand the difference between Manometry and Ph testing?
The Key Difference between the two: Manometry = How the muscles are working pH monitoring = Determines whether acid is coming up and how much Together, they give a complete picture of function and acid exposure, which is especially important …
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Sputum sample collection difficulty
I've been through all processing for the Airtivity clinical trial, and all good so far. Now the stumbling block for me is to produce a good sputum sample. Apparently I won't get on the trial if I cannot produce two good samples. I am not allowed to use …
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time spent clearing airways
Hi. My diagnosis is mild bronchiectasis. Typically I have to clear airways every 4 to 5 days. But it takes me up to 3 hours to clear airways start to finish. From what I read on this blog, I am slow! Currently steaming for 15 minutes, nebulizing with …
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Allergy related bronchiectasis flareups
Currently undergoing allergy shots. Lately any exposure to outside air flares the bronchiectasis. Are these flares likely to increase the frequency of the need to clear lungs or will the frequency return to what it has been? When at maintenance with …
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7
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Has your Pseudomonas infection cleared and then reoccurred?
I have had colonized Pseudomonas for 2 years. Recently I took a strong dose of Levaquin (after having no antibiotics for the past 2 years) for pneumonia and the last sputum culture indicated no presence of Pseudomonas. I fear a reoccurrence and am asking …
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Are you using a nasal wash?
Nasal washes are solutions used to rinse out your nasal passages and sinuses using a saline(saltwater) mix. I find using these washes beneficial, especially throughout the winter months when we are dealing with dry heat in our homes. These washes …
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Is Bronchiectasis the same as COPD?
I am just beginning to learn about bronchiectasis and engage in the bronch and NTM community. Is Bronchiectasis the same as chronic obstructive pulmonary disease?
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Share Your Story - Symptoms and Diagnosis
What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?
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How much time does airway clearance take?
I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the …
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Are you doing airway clearance regularly?
As the cold weather begins to roll in, we must face the fact that flu season is around the corner. Doing airway clearance regularly may assist you in lessening the chances of respiratory infections. Hopefully, you were able to get the flu shot- whether …
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