0 Votes
3 Answers
Anyone know of Bronchiectasis doctor in Cincinnati or Phoenix area? Thanks much!

Recently diagnosed with BE and live in Cincinnati and Phoenix areas. Looking for the right physician who specializes in BE treatment and can let me know how to fight and manage this disease. Your help is much appreciated! Thanks Greg

Author: Greg
0 Votes
14 Answers
New to this diagnosis and overwhelmed!

Hi, I am very newly diagnosed with Bronchiectatis, Mycobacterium Abscessus, and Aspergillus. I am feeling a little overwhelmed to say the least. I will be going to National Jewish Hospital in Denver for a second opinion sometime in the near future. My …

Author: kwg
0 Votes
4 Answers
Bronchiectasis coughing&daily CPAP

Newbie here. Diagnosed last month with Bronchiectasis and severe Obstructive Sleep Apnea. I want to learn and I think many of you have already walked where I’m likely headed. First night last night on my CPAP machine. My Bronchiectasis not riled up right …

Author: DianeJG
0 Votes
0 This question has no answers.
Has anyone tried Buteyko?

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

Author: redhead
0 Votes
2 Answers
MAC, Bronchiectasis and CPAP

I just learned I have sleep apnea and am being fitted with a CPAP. What do I need to know about using CPAP as it relates to my MAC and bronchiectasis? It seems like disinfecting may be a problem. I don't think CPAP mask, tubing, etc can be boiled like my …

Author: sewcrazy64
0 Votes
7 Answers
How Do you clean your clearance equipment?

Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...

Author: Gretchen
0 Votes
3 Answers
Is there anyone in the world like me with ongoing symptoms post influenza?

This is a question from participant Elaine. After having severe H1N1 swine flu in 2009, followed by another chest infection within 10 days - my health and lifestyle changed. My main continuing issues are - persistent throat clearing and occasional …

Author: Gretchen
0 Votes
1 Answers
Any contraption or non-medical device that improves your quality of life?

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

Author: Gretchen
0 Votes
4 Answers
Multiple ntm infections from single sample and bronchiectasis

I'm newly diagnosed with Bronchiectasis and as part of the follow up I was tested for TB/NTM, this has shown negative for TB but I've been found to have 3 different NTM infections which were all discovered from a single sputum afb smear/culture, is this …

Author: Annie70
0 Votes
2 Answers
Been to National Jewish in Denver

After being off treatment for MAC with bronchiectasis for 3 months my sputum cultures are positive once again. My doc is referring me to National Jewish in Denver for assessment and treatment plan. If you've been can you share your experience so I'll …

Author: KC
0 Votes
8 Answers
What are your side effects? Do you take probiotics?

I am new to lung disease although I’ve had a chronic cough and trouble breathing for two decades. Never saw anybody for it because I was once told it was all from anxiety . January 2015 I decided I should get it checked out and after much testing & many …

Author: teaberry
0 Votes
23 Answers
Cause(s) of Bronchiectasis

Does anyone know what causes Bronchiectasis? Also interested in hearing diagnosis experiences (i.e. did your doctor tell you how you got Bronchiectasis?) if anyone is willing to share. Thanks!

Author: Delia
0 Votes
9 Answers
What is the best way to get results from a nebulizer, using 7% hypertonic saline solution?

Bob I tried to get my pulmo to give me the Tobramycin but all he said its expensive and your insurance wont pay for it so he gave me zpak to take 3 times a week.

Author: jancookz
0 Votes
17 Answers
Is anyone on PPI for GERD problems?

After taking Nexium (PPI that blocks all acid) for over 3 years, due to problems with the antibiotics for NTM, I read that PPI's cause bacteria to go into the lungs. Don't need more of that! So now I am going cold turkey, with no Nexium for the past 3 …

Author: jancookz
0 Votes
8 Answers
NTM MAI and the bird connection

Hi - found out recently that there is a connection with NTM MAI and living with birds - has anyone been told this by a doctor, I saw a new pcp and he was stunned to learn that I was living in a house with a bird (amazon) - I was stunned that no one ever …

Author: bunnyhop
0 Votes
4 Answers
Do others have recurring flareups in the form of pleurisy?

My most frequent exacerbations show up as pleuritic pain, sometimes accompanied by extra lung congestion, sometimes accompanied by fever. Usually 1 or 2 days of extra tiredness. I generally rest, apply heat, take Advil, maybe extra Mucinex. But I just …

Author: Connie
0 Votes
7 Answers
Has anyone had success applying for Social Security Disability?

I needed to quit my visual art high school teaching job of 33 years due to my Bronchiectasis. I would frequently have bronchospasm, coughing for several minutes with difficulty breathing, sweats while trying to teach 5 classes per day of 40 students per …

Author: Kel
0 Votes
10 Answers
Young age at diagnosis

I was diagnosed with bronchiectasis and NTM as a young teenager. I was just curious to see if anyone else was diagnosed at a young age.

Author: Rachel
0 Votes
2 Answers
What Nebulizer should I choose?

I'm newly diagnosed with Bronchiectasis and MAI. Apparently I have only two brands of nebulizers available in my area that my insurance will cover: Drive (compact or MedNeb I think) and Phillips Respironics Innospire Mini. Does anyone know which is the …

Author: sewcrazy64
0 Votes
2 Answers
Bronchiectasis/NTM education

What kind of Bronchiectasis/NTM educational efforts/programs would be useful to you?

Author: Delia
0 Votes
3 Answers
Does anyone have suggestions for frequent coughing? Does anyone w/ Bronchiectasis not have a cough?

If anyone has any tips or recommendations, I would love to hear them !

Author: Cbp
0 Votes
3 Answers
What is the relationship between Bronchiectasis and NTM?

As a novice to these diseases, I am curious about the connection, if any, between Bronchiectasis and NTM. Does anyone have information on this?

Author: Gretchen
0 Votes
1 Answers
Joining the Research Registry

I know a couple of patients interested in joining the Bronchiectasis and NTM Research Registry - How can they join?

Author: MeganW
0 Votes
1 Answers
International Bronchiectasis programs

Are there international programs offered to those with Bronchiectasis? I'm definitely interested to know what other countries are doing in terms of research and patient support!

Author: MeganW
0 Votes
2 Answers
How common is bronchiectasis?

I am interested in knowing how common Bronchiectasis is. Does anyone have any statistics associated with Bronchiectasis?

Author: Bill Clark
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