BronchandNTM360social welcomes new member David Brooker who joins 4,051 current members of our community. We’re glad you're here!


laff4evr

laff4evranswered the question Are you taking a short term bronchodilator?

nebulized albuterol
Kandy also answered the question Kandy also answered the question

4 hours ago

Ksmiles123

Ksmiles123asked the question: Are you taking a short term bronchodilator?

Short-acting Bronchodilators: These meds work quickly to relax the muscles around your bronchial tubes, helping to relieve shortness of breath. These meds are inhaled into the lungs from an inhaler or nebulizer. You often begin to feel relief within a …

5 hours ago

Ksmiles123

Ksmiles123answered the question Silicone toxicity

Was curious about the guidelines- What do the new FDA breast implant guidelines include? The FDA is now requiring that the following guidelines be included in all breast implant labeling, which all surgeons are expected to review with their patients: …

7 hours ago

~b

~basked the question: Silicone toxicity

Hi, has anyone else on here had silicone implant ruptures causing lung damage? If so how and what has helped ? TIA

10 hours ago

Jill Wallace

Jill Wallace

Doing ok

15 hours ago

Ksmiles123

Ksmiles123asked the question: Do you know that there are 3 different types of inhalers?

Inhalers, or “puffers,” deliver reliable and consistent doses of inhaled medicines.There are three types of inhalers: metered-dose, dry powder, and soft mist. A metered-dose inhaler (MDI) is a small, pressurized canister that fits inside a plastic, boot …

17 hours ago

Ksmiles123

Ksmiles123

1 day ago

Bookfriend

Bookfriend

I was just diagnosed with bronchiectasis a few weeks ago. I'm pretty miserable with fatigue, shortness of breath, cough, lung pain. I have trouble making it through a full day of work. The asthma/allergy office is only willing to do 2 hours a week of PTO on the FMLA paperwork. I need more than that. I asked my primary care physician, and she said that bronchiectasis doesn't qualify for more leave than that. She also said there must be an underlying problem that's causing me to be so miserable. That contradicts what I see here. Does anyone have any advice? I'm so frustrated. I'm not trying to shirk my duties - I'm just very sick. I'm in line to see another pulmonologist at a local hospital, but not until September. 

1 day ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Ksmiles123Bookfriend,
    Hello! I understand your frustrations- it is very difficult to be pleasant in the workplace when you are exhausted, coughing a lot, etc. it takes a lot of energy to concentrate on the task at hand and coworkers don’t understand since you probably look okay other than coughing. I wish that you didn’t have to wait until September to see another specialist. Do they keep a cancellation list? Or can you call every few days to see if something has opened up? 1 day ago
  • StorytellerI am so sorry, Bookfriend. Bronchiecstasis has been neglected for years by medical professionals , and it is such a time consuming and difficult disease. 
    I hope that you get seen soon by someone who knows the disease. 
    I can relate to your struggles and wish you a huge improvement in your health and answers. 1 day ago
  • LoremHi Bookfriend​​, I hope that you can get into a pulmonologist sooner than your schedule. Are there any other specialists in-network in your area?1 day ago
Lucinda

Lucindaanswered the question Coloring our hair

Absolutely! I've discovered two different brands that have are non-anomia dyes. This has helped me tremendously. Not all salons carry them and in some cases they've had to be special ordered. Redken and L'Oreal-Professional are the two I've used. There …
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 day ago

Ksmiles123

Ksmiles123asked the question: Do you know the “ red flags 🚩 “ of an exacerbation?

The link below provides information on exacerbations and the red flags 🚩 associated with exacerbations: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

2 days ago

hastyRetreat

hastyRetreatasked the question: Coloring our hair

Hi, Has anyone with bronchiectasis had exascerbations or lung symptoms from coloring your hair? Thank you 🤓

2 days ago

Storyteller

Storyteller

does anyone here use a nightguard that cleans with a UV light and tablets ? 

3 days ago

Fairy

Fairy

Im Fairy .
Not doing very well .Was on ethambutol ,anthromizin for four months dr put me on clofazimine started them with just one pill a day to start slowly after three days had red liquid diareaha for those three days .I had to stop couldnt eat ...stopped as one infrcteouse disease dr told me to another told me not to otherwise would ntm get worse .I just cant get a straight answer from any of the four drs i have to see .has anybody just taken the two only ,did the ntm get worse ?

3 days ago

Bookfriend

Bookfriend

Hi. I was just diagnosed with bronchiectasis. I am not in a bronchitis flare-up period, but for weeks now, I have felt bad -- lung pain, shortness of breath, occasional cough, and extreme fatigue. I'm on antibiotics and steroids. I'm so discouraged. Are my symptoms normal? Are they likely to go away? Thank you. 

5 days ago

Beezer

Beezer

Hi ... right now I'm in the hospital for seems like the hundredth time in one year!  May be discharged tomorrow.  Newly diagnosed with bronchiectasis and on oxygen for the first time, will see pulmonologist for the first time soon.  Thank you!

6 days ago

marsrocket

marsrocketI hope everyone has a peaceful easy-breathing Wednesday. 

6 days ago

Niamhy

Niamhy

Hi there
I had an end of treatment CT after being on the big 3 for NTM in May. I came off the antibiotics in February and felt great. Had a bit of a flare up in March but took antibiotics and steroids and was fine again. My CT only came back this week and I have a fungal ball in the right lower lobe of my lung. Has anyone ever had this? Did you recover from it? The thoughts of more treatment is making me anxious as I felt awful when I was on the big 3. 
Feel like I am on a roller coaster again just when things were getting back to some sort of normality. 

1 week ago

  • NewestOldest
  • Ksmiles123Niahmy,
    Hello! I am so sorry to read your update. Having NTM can feel like an emotional rollercoaster- it is unpredictable of when you will get a reoccurrence of NTM, other gram negative infections or a fungal infection. It is super frustrating , to say the least. I haven’t had a fungal ball infection.The treatment is different for the fungal infection. Did they propose a treatment plan yet?
    It is only normal to be anxious- all we ever want is to return to our “ pre diagnosis “ life. Hold onto hope, believe that you will get through this challenge- one day at a time for now. You are not alone. We are here for you! 6 days ago
  • NiamhyAh thank you. I just felt so good after stopping my NTM treatment. No treatment plan yet. The team will be meeting to discuss my case. I am starting a new teaching job in September. I have worked fulltime for 35 years and now I am going down to 3 days a week. Hopefully my treatment if any will not cause any side effects as the big 3 were horrific. Onwards and upwards. Thank you for your positive message.5 days ago
  • Ksmiles123Niamhy,
    Hello! You are most welcome! Yes, it is very challenging since you start to feel like your “ self “ after getting off the meds…
    I am glad you were able to reduce your work hours. The waiting time / uncertainty before a treatment plan can be anxieties producing but as you said,” Onward and upward “! . We can only keep going forward and deal in whatever tasks at hand to the best of our abilities. One day at a time. Enjoy this drug holiday time!😍😍5 days ago
hastyRetreat

hastyRetreatcommented onRespiratory Therapist Turns Personal Connection to Bronchiectasis into a Passion for Raising Awareness

 Hi everyone! Lovely person Bambi is! 💞 Where can we purchase bracelets?Thank you...

1 week ago

Alyssa Dittner

Alyssa Dittneranswered the question Do you carry a medication management wallet card?

Yes, this is so important not only for the clinic but if you end up hospitalized. Often pharmacy comes and checks your medication with you to ensure you are getting your home regimen additional needs met.
KandyKsmiles123 also answered the question Kandyand 1 other also answered the question

1 week ago

Ksmiles123

Ksmiles123Hello! Below is a video on airway clearance from the Lung Foundation, Australia. It is great to witness the progress in educational activities since World 🌎 Bronchiectasis Day began 3 years ago. https://lungfoundation.com.au/resources/airway-clearance-and-exercise-for-bronchiectasis/

1 week ago

laff4evr

laff4evrWatch this until Sylvestor catches Tweety...... (click on image to see them run)

1 week ago

laff4evr

laff4evrHow long did you watch?

0-5 seconds = there's hope for you

5-10 seconds = did you audition for Forest Gump ?

10-20 seconds = remedial classes are nothing to be ashamed of

20-30 seconds = it is recommended you don't breed

30-60 seconds = write a letter to your younger self letting them know what you've become

1-2 min = your house plant is smarter than you

2-5 min = dead people score in this range

6 minutes or more = your I.Q. is a negative number


To find out what your prize is, watch Bugs until he finishes his carrot

1 week ago

Ksmiles123

Ksmiles123Are you dealing with excessive mucus? The link below discusses Coping with airway mucus, reviews the different types of airway clearance techniques: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Coping-with-Airway-Mucus

1 week ago

Alyssa Dittner

Alyssa Dittnercommented onRespiratory Therapist Turns Personal Connection to Bronchiectasis into a Passion for Raising Awareness

 What a great story of a woman's eagerness to learn for her loved one. If anyone has a story that they want to share of the journey you as a caregiver have been on or perspective of one who's affected I would love to hear it. It would be so fun to...

1 week ago

Ksmiles123

Ksmiles123commented onRespiratory Therapist Turns Personal Connection to Bronchiectasis into a Passion for Raising Awareness

 I love the words- “seeing people’s eyes light up when they understand more about the lung disease”. Knowledge is empowering- it propels us forward to take the right action steps for a better outcome. ...

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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