Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffCheck out this new animated and brief video talking about grassroots advocacy! What is advocacy? Watch this video, I bet you have already participated in an advocacy activity and didn't even realize!


https://www.youtube.com/watch?v=uuAj2I0hXAw

10 hours ago

    Ksmiles123

    Ksmiles123http://www.lung.org/lung-health-and-diseases/protecting-your-lungs/

    Tips to Keep Your Lungs Healthy

    Your body has a natural defense system designed to protect the lungs, keeping dirt and germs at bay. But there are some important things you can do to reduce your risk of lung disease. Here are some ways to keep your lungs healthy.

    19 hours ago

      Kandy

      Kandyvoted on Event Alert: Second Town Hall Teleconference: A Dive into Bronchiectasis and NTM

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      1 day ago

      Sheri

      Sherireceived the badge Getting started

      Earned the Getting started badge!
      PurplepattyBillieAnnShellyand 1057 others also received the badge Purplepattyand 1059 others also received the badge

      1 day ago

      K Merry

      K Merry

      Thank you, KSmiles, for the water filtration websites. I am learning a great deal!

      1 day ago

      Ksmiles123

      Ksmiles123http://knowbefore.weatherbug.com/2014/01/20/changing-weather-affect-health/

      Does Changing Weather Affect Your Health? - WeatherBug Know Before

      People throughout the world claim that the weather has a direct connection to their health – from changing symptoms of current ailments to the increased... �

      1 day ago

        Ksmiles123

        Ksmiles123

        Hello! Happy Sprinter! Tis snowing again here in PA.
        Do the weather fluctuations affect your energy levels?

        1 day ago

          Vinny M

          Vinny Mvoted on Event Alert: Second Town Hall Teleconference: A Dive into Bronchiectasis and NTM

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          2 days ago

          Vinny M

          Vinny Mvoted on Linhaliq/FDA Update

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          2 days ago

          Vinny M

          Vinny Mvoted on The FDA NEEDS to Hear from You!!

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          2 days ago

          Randel

          Randelvoted on Applying for Disability Benefits

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          2 days ago

          Ksmiles123

          Ksmiles123answered the question Has anyone ever been cured from Mycobacterium abscessus and chelanae?

          Taz, Hello! You are most welcome! There is a lot of great information in the booklet. Some doctors do take the wait and see approach based on the subjective findings/ symptoms of a patient. I would suggest calling the doctor if your mom notices any …
          TazkuwColinda and 2 others also answered the question Tazand 4 others also answered the question

          2 days ago

          K Merry

          K Merry

          Hi! I'm new to this site.
          Do any of you have any information you could share about home water filters that stop MAC from getting through? It could be either about a whole-house filter or faucet/showerhead filters. Thank you!

          4 days ago

          Made Pramana

          Made PramanaI really really love this story. 🙏
          http://palliativecare.org.au/story-stage-four-lung-cancer

          A Story About Stage Four Lung Cancer - Palliative Care

          My husband Jay was diagnosed with stage 4 lung cancer in March 2011 and was given less than a year to live. He was 39 and had no obvious risk factors for developing the disease. We had an eight year old daughter and I was pregnant with our second child when he was diagnosed. He survived the disease …

          5 days ago

            Ksmiles123

            Ksmiles123

            Hello! Do you fully understand your pulmonary function tests?
            https://www.verywell.com/how-do-i-interpret-my-spirometry-test-914755

            5 days ago

            Ksmiles123

            Ksmiles123https://www.healthline.com/health/scholarship-program

            The Healthline and NORD Stronger Scholarship

            Healthline and NORD are teaming up to launch the 2018 Stronger Scholarship, a program that aims to assist and empower college students making a positive impact on rare and/or chronic diseases. Learn more about the scholarship and how to apply.

            5 days ago

              Ksmiles123

              Ksmiles123answered the question Caregiver supports

              Kristen, You are welcome. Thank you for posting the latest of the state by state resources. It is so beneficial for caretakers to utilize some of the resources out there.
              KristenBret99Gretchen also answered the question Kristenand 2 others also answered the question

              5 days ago

              Gretchen

              Gretchen

              Quote of the Day: The key to transformation is to see how the extraordinary can be found in the ordinary in each day of our lives...by being present moment to moment to moment.

              Enjoy this day. I hope Spring has finally arrived at your door and you are breathing easy.

              5 days ago

              Ksmiles123

              Ksmiles123Hello! The link below offers tips on calming a cough; several, such as the use of a humidifier do not apply to NTM/bronchiectasis patients.
              https://www.webmd.com/cold-and-flu/ss/slideshow-cough-treatments

              Slideshow: Tips for Calming Your Cough

              Can't stop coughing? See which home cough remedies and other cough treatments work. And find out when it's time to see a doctor for your cough.

              6 days ago

                Gretchen

                Gretchen

                We know that a negative mindset will never help create a positive atmosphere. It is so easy to go down the rabbit hole, ruminating and getting lost in the chaos and stress of our day, circumstances and/or those we come into contact with. I love this article discussing How to use Positive Self-Talk. It truly can make all the difference in putting things into perspective at challenging times.

                https://www.verywellmind.com/how-to-use-positive-self-talk-for-stress-relief-3144816

                1 week ago

                • Ksmiles123Gretchen,
                  Yes, stress and negativity can further impair our immune systems. Life is challenging, to say the least. Tips in the article on how to change your negative thoughts into positive thoughts can be beneficial to our health.6 days ago

                Ksmiles123

                Ksmiles123https://themighty.com/2018/04/emojis-explaining-chronic-illness/

                The Emojis of Chronic Illness

                Using emojis, one writer describes her life with chronic illness.

                1 week ago

                Merry

                Merryasked the question: Completed NMT treatment, lung inflammation returned, now what?

                1-2 months after beating the NTM and ending the Clarithromycin (and other antibiotics) I have increased shortness of breath. My pulmo thinks the Clarithromycin was reducing my COPD inflammation, and now the inflammation is back. However, she is hesitant …

                1 week ago

                Kristen

                Kristenasked the question: Caregiver supports

                Does anyone know of good resources for caregivers and family members of people with chronic illness? Thanks in advance.

                1 week ago

                Gretchen

                Gretchen

                Please feel free to post questions or answer any questions that have already been asked. Each patient, caregiver or clinician may have experiences, expertise or words of support that can benefit the individuals in this community! Often we need to rise up to to help each other lessen stress, burdens and frustrations along the Bronchiectasis and/or NTM journey. Thank you all for your support that you offer here!

                1 week ago

                  Ksmiles123

                  Ksmiles123Hello! Do you have other tips for financial assistance, (other than what is listed in the link below)
                  that you can share with the group?
                  http://www.caringvoice.org/ways-to-find-assistance/

                  Ways to find financial assistance - Caring Voice Coalition

                  We want to offer guidance for any financial help we have verified as potentially useful. Below are some resources organized and explained according to need.

                  1 week ago

                  Ksmiles123

                  Ksmiles123Hello! Spring is finally arriving....
                  The link below describes the benefits of exercise. I understand how hard it is to exercise when the energy levels may be very low; however, the benefits are great if you can push through on good days.https://drmowll.com/get-moving-why-you-need-to-exercise/

                  Get Moving – Why You Need To Exercise | Dr Brian Mowll

                  Spring is finally here, which means many of us can venture outside, enjoy the warm temps and sunshine, and get our bodies moving after a long hibernation. So why is it that many people choose to stay inside and remain couch potatoes?

                  1 week ago

                    Ksmiles123

                    Ksmiles123Hello! We all need to review the foods that fight acid reflux periodically.
                    http://www.emergencyemail.org/newsemergency/anmviewer.asp?a=11321&z=58

                    1 week ago

                    fabiana

                    fabianavoted on Applying for Disability Benefits

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                    1 week ago

                    fabiana

                    fabianavoted on Bronchiectasis and NTM 101 Town Hall Recording

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                    1 week ago

                    Randel

                    Randelvoted on Bronchiectasis and NTM 101 Town Hall Recording

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                    1 week ago

                    Randel

                    Randelvoted on FDA Hearing: Ciprofloxacin Inhalation Powder

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                    1 week ago

                    Vinny M

                    Vinny Mvoted on Bronchiectasis and NTM 101 Town Hall Recording

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                    1 week ago

                    Vinny M

                    Vinny Mvoted on Is it possible that eating various foods can slow a lung function decline?

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                    1 week ago

                    Made Pramana

                    Made PramanaNever had the six minute walk test before :s
                    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5708370/

                    Distance-saturation product of the 6-minute walk test predicts mortality of patients with non-cystic fibrosis bronchiectasis

                    Previous surveillance methods to monitor the prognoses of patients with bronchiectasis are too complex for use in daily practice. The 6-minute walk test (6MWT) is a simple exercise test to predict the prognosis of chronic obstructive airway disease and ...

                    1 week ago

                    Ksmiles123

                    Ksmiles123

                    Hello! Have the huge fluctuations in the weather impacted your everyday activities?

                    1 week ago

                    Ksmiles123

                    Ksmiles123Hello! An interesting article on antibiotic resistance.
                    https://www.cdc.gov/vitalsigns/containing-unusual-resistance/index.html

                    Containing Unusual Antibiotic Resistance

                    Learn what actions to take to keep germs with unusual resistance from spreading and causing potentially untreatable infections.

                    1 week ago

                      Kandy

                      Kandyvoted on FDA Hearing: Ciprofloxacin Inhalation Powder

                      Gave a thumbs up for a blog post!

                      2 weeks ago

                      oklawoman

                      oklawomananswered the question respiratory equipment source

                      ebay has high standards so if it says new it is new; however, I know you live in Indonesia and it is very much more difficult for you to resolve issues with sellers. Good to know you've investigated options.
                      Ksmiles123Made Pramana also answered the question Ksmiles123and 1 other also answered the question

                      2 weeks ago

                      Ksmiles123

                      Ksmiles123answered the question World Conference Registration fee

                      Yes, we must remind one another everyday of things that we are grateful for, ways to be joyful.:)))
                      oklawoman also answered the question oklawoman also answered the question

                      2 weeks ago

                      Ksmiles123

                      Ksmiles123https://www.everydayhealth.com/news/7-things-you-never-knew-lemons-could-do/

                      7 Things You Never Knew Lemons Could Do

                      Put this zesty citrus fruit to good use with these unexpected tricks that take some of the hassle out of your cooking session.

                      2 weeks ago

                        Gretchen

                        Gretchenanswered the question PDF question

                        Hi oklawoman! If you want to email it to me at gmccreary@copdfoundation.org I will see what I can do and then let you know how to do it in the future!

                        2 weeks ago

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                        About NTM

                        Medical Advice

                        It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.