DLEmmich313

DLEmmich313answered the question Advice on Nausea Side Effects.

My doctor put me on an anti-nausea medicine which really helped! It is Ondansetron HCL 8 mg.
MunchkinKsmiles123 also answered the question Munchkinand 1 other also answered the question

4 hours ago

Ksmiles123

Ksmiles123answered the question Interested in an Informal Conversation with other Participants?

Gretchen, Sounds great! Looking forward to hearing more about it.
Brandon also answered the question Brandon also answered the question

7 hours ago

Brandon

Brandon

Good morning!  Here is a great article that talks about the importance of breathing exercises that can help strengthen your lungs, and why it matters with the COVID-19 pandemic.


https://www.aarp.org/health/conditions-treatments/info-2020/lung-health-covid19.html

8 hours ago

Gretchen

Gretchenasked the question: Interested in an Informal Conversation with other Participants?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

9 hours ago

Kandy

Kandyanswered the question Monitoring air quality inside

Jimmy I have many allergic asthma is why my 2 honeywells. I was diagnosed in 2014 with bronchiectasis and before that emphysema chronic bronchitis and PH.
JanneyKsmiles123 also answered the question Janneyand 1 other also answered the question

18 hours ago

Kandy

Kandy

Up at 5:00 AM to get meds done before 2 hr trip to ND for 4 appts.  Was not best mood with my pulmo she will not give pred for any maintenance says it affects muscle and other organs.  I am to the point when am sob a lot anymore. She says i am progressing I don't like hearing that. Also I need to get reconditioned.   My co2 was 50 need 52 and a sleep study for any cpap. Failed two sleep studies already.  I do steroids in neb and Flovent guess that is good enough. My allergist was great took a hour with me and talk to my daughter a lot about quieting  smoking.  He is a gem!  So for hearing test that went ok my previous hearing aid never worked right took 5 yrs to finally get in for them to check it my stubbornness.   So another on order maybe she thinks it be covered I hope so.   So have to get back up to check on new hearing aid in two weeks or more takes a while cause of covid she said. 

18 hours ago

  • Ksmiles123Kandy,
    I a, so sorry to read your recent updates. I am sure that it has been an overwhelming day; I am so glad that you have your supportive daughter with you today.6 hours ago
Janney

Janneyanswered the question Puzzled. Am I normal

Hi Elaine, do you have allergies or any other condition that might cause the breathlessness? I just got diagnosed two weeks ago. I'm only breathless when I walk and talk at the same time. Hoping it doesn't get worse.
KandyKsmiles123 also answered the question Kandyand 1 other also answered the question

22 hours ago

Ksmiles123

Ksmiles123

Hello! How are you dealing with the corona virus challenges? The link below offers some suggestions on coping: https://www.healthline.com/health/tips-for-coping-with-coronavirus-fear-while-chronically-ill#Well-get-through-this-together

22 hours ago

WalshKTF

WalshKTFvoted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

2 days ago

WalshKTF

WalshKTFvoted on Coronavirus and the NTM Patient

Gave a thumbs up for a blog post!

2 days ago

Ksmiles123

Ksmiles123

Hello! Have you ever dealt w tendinitis due to antibiotics? Below is information on symptoms of tendinitis: https://www.emedicinehealth.com/symptoms_tendinitis_causes_treatment/article_em.htm?ecd=mnl_spc_072420

2 days ago

  • NewestOldest
  • KandyMy ears ring constantly and am deaf in right ear. Have a earing aide that is expensive but did not care for it.  Wednesday be seeing the hearing center to decide what to do with it besides doing hearing test. I had lost right ear before zpak which can cause hearing loss. 1 day ago
  • Ksmiles123Kandy,
    Good luck at the audiologist on Wednesday.   Please keep us posted.1 day ago
Gretchen

Gretchencommented onNTM/Bronchiectasis Patients and Carbohydrates

 "Eating, breathing and feeling better are part of our daily goals and activities of daily life." This is a great reminder. Especially as COVID has changed our abilities to get out and about, we need to still be mindful of nutrition-that what we...

2 days ago

Gretchen

Gretchenvoted on NTM/Bronchiectasis Patients and Carbohydrates

Gave a thumbs up for a blog post!

2 days ago

Putalen

Putalen

Hello all,  I'm new here, just found this site.  Learned of my Bronchiectasis in Feb. I also have Situs Inversus Totalis with Kartagoners Syndrome.  I've known of the other 2 things for many, many years.  Was wondering if there is anyone else here with either or both of the other two rarities? 
Also wanted to say, after reading through some of the comments already, i never realized there were so many of us, with this Bronchiectasis.  
I have a crazy tip that sometimes helps loosen the crap in my chest and feels good.... loud boom boom music in the car.  Lol! It not only rattles your chest, but relieves the stress from the pain๐Ÿ‘

2 days ago

Ksmiles123

Ksmiles123

Hello! Are you getting enough exercise?  The link below offers suggestions on how to get adequate exercise while at home:https://www.verywellfit.com/best-ways-to-exercise-at-home-1231142?utm_campaign=health_tod&utm_medium=email&utm_source=cn_nl&utm_content=21069327&utm_term=list_gl_dt_eats-default

3 days ago

Ksmiles123

Ksmiles123

Hello! Walking is so good for our mental and physical well being. I have been pushing myself to walk as frequently as possible. We must push ourselves to exercise on days that we are uncertain whether or not we can- if we cannot , we know that we attempted to do so. .https://www.newyorker.com/tech/annals-of-technology/walking-helps-us-think?utm_source=linkedin&utm_social-type=owned&utm_brand=tny&utm_medium=social

4 days ago

Ksmiles123

Ksmiles123

Hello! Below are resources from the CDC re: coping with the Corona Virus : https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html

5 days ago

Delia

Deliaasked the question: Bronchiectasis and NTM Information Podcast

Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …

6 days ago

Ksmiles123

Ksmiles123

Hello! I feel that many of us are more equipped to handle the corona virus challenges since we have been dealing w so many necessary precautions over the years. Also, from an emotional level since we have been quarantined in different ways for quite some time and have learned to cope with restrictions.Today, we can choose to stay stuck, go further into the mud hole or take daily action steps to keep us in a better mindset which will impact our immune systems. Below is a monthly chart of daily steps to consider to maintain a positive attitude. Please respond if are interested in taking daily action steps. We are all in this together. https://www.actionforhappiness.org/altruistic-august

6 days ago

Ksmiles123

Ksmiles123Hello! The link below describes the differences in the Covid 19 tests:https://www.nationaljewish.org/patients-visitors/patient-info/important-updates/coronavirus-information-and-resources/patient-care/covid-19-testing-antibody-diagnostic/the-difference-between-tests-for-covid-19

The Difference between Tests for COVID-19 (Coronavirus)

Learn about the differences between COVID-19 (Coronavirus) tests: Molecular (Swab) Test, Antibody (Serology) Test, Antibody Tests for IgG and Antibody Test for IgM.

1 week ago

Ksmiles123

Ksmiles123

Hello! The article below is about communication on how one really feels during these challenging times: https://www.nytimes.com/2020/07/28/smarter-living/coronavirus-how-to-check-in-with-a-friend.html

1 week ago

Janney

Janney

I am a newly diagnosed bronchiectasis patient, awaiting results from sputum test. So I've been reading about NTM and am overwhelmed by it all. I was wondering if you have concerns about visiting other people's homes due to air quality?

1 week ago

  • NewestOldestClick to View All Comments10 comment(s)
  • KandyHello Janney welcome.  My allergist had me remove my humidifier for reason of grown of bacteria or molds.   I have bronchiectasis among other lung diseases. 1 week ago
  • JanneyThanks for your welcome, Kandy!  It really helps to hear others' voices. Makes me feel less alone with all of this.  I'm thinking your allergies dictate what you can handle. I'm waiting to find out if I have NTM and with that (I could be wrong) it seems like you have to be careful to avoid exposure from tap water, soil and dust. 'cause the bacteria may be lurking in them.  It's all a bit much to take in after only a week. Thanks again for responding. I really look forward to hearing from people. Take care, janney 6 days ago
  • KandyI had bronchoscopy a few years ago and they grew a sample in lab for a week it was nothing to worry about normal flora.   I do drink tap water do not buy water.  6 days ago
Ksmiles123

Ksmiles123

Hello! HOPE is a powerful word! The link below offers suggestions on increasing hope during these challenging times: https://medium.com/@benjaminhardy/10-science-based-ways-to-increase-your-hope-430892caacb2

1 week ago

Ksmiles123

Ksmiles123

Hello! Do you check out the air quality in your area before heading outside? The link below reviews the air quality in my area : https://weather.com/forecast/air-quality/l/6edbe6f43ea5f01b5ce04bde2bf64d098511d4950e718605916e408bf8766b7b

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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