ChristinaH

ChristinaHSharing helpful information on coping with your bronchiectasis and/or NTM diagnosis can be very helpful to others. This month's "Share Your Story" series question is on the topic of airway clearance. Click on the link below to share your best tips or advice on what airway clearance techniques work for you!

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Question-and-Answers/Share-Your-Story-Airway-Clearance


3 days ago

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  • laff4evrhasn't ever needed devices or techniques.
    Boyish activities adequately cleared my lungs as a young'n.
    Although, manual and mechanical chest percussions were utilized during hospitalizations in my teen years.  After my condition went from wet to dry at age 46, the only method required is an intentional cough when needed. 3 days ago
  • ChristinaHlaff4evr​ Thank you so much for sharing! I think for those that have mucus pooling those "boyish activities" or exercise is a great way to clear the lungs while getting in shape! :)19 hours ago
edao

edaoanswered the question Share Your Story - Airway Clearance

I exercise everyday for 50-60 minutes doing either Zumba, Cardio Dance, Advanced Step Aerobics, Rebounding, or some type of strength and toning class. I also use my Aerobika acapella device attached to my nebulizer for daily inhalation of hypertonic …
ChristinaHtabbitsKsmiles123and 2 others also answered the question ChristinaHand 4 others also answered the question

13 hours ago

Ksmiles123

Ksmiles123

Hello! The cooler weather has begun. Have you made plans for  flu shot?
I plan on getting it next week.  October is the best time to get the flu vaccination before flu season begins.

19 hours ago

Kandy

Kandyvoted on Sleep and Healing for NTM/Bronchiectasis Patients

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1 day ago

Ksmiles123

Ksmiles123Hello! Below is an article on the Corona Virus Booster:https://connect.uclahealth.org/2021/08/20/heres-what-you-need-to-know-about-the-3rd-dose-of-the-covid-19-vaccine/

1 day ago

TimD

TimDvoted on Sleep and Healing for NTM/Bronchiectasis Patients

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1 day ago

Vinny M

Vinny Mvoted on Sleep and Healing for NTM/Bronchiectasis Patients

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2 days ago

360Coach Brandon

360Coach Brandon voted on Sleep and Healing for NTM/Bronchiectasis Patients

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2 days ago

ChristinaH

ChristinaHasked the question: Share Your Story - Airway Clearance

What airway clearance methods, techniques, or devices work best for clearing mucus from your airways?

3 days ago

Ksmiles123

Ksmiles123

The CDC will release a report this week re: Covid booster shots. Are you ready , interested in getting the 3rd shot?

4 days ago

Ksmiles123

Ksmiles123

6 days ago

Ksmiles123

Ksmiles123

1 week ago

theroz

theroz

I'm not sure what NTM is?
I have copd, I am on 3 liters of oxygen day and night. My problem is bronchial with slight emphysema.
I have an inogen so I get out and socialize. I do go to pulmonary rehab twice a week.

1 week ago

360Coach Brandon

360Coach Brandon voted on Communication – A two-way street between health care provider and patient

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1 week ago

ChristinaH

ChristinaHcommented onCommunication – A two-way street between health care provider and patient

 Thanks Katie! I couldn't agree more :)...

1 week ago

ChristinaH

ChristinaHcommented onCommunication – A two-way street between health care provider and patient

 Thank you! :)...

1 week ago

Ksmiles123

Ksmiles123

How are you feeling today? Have the fluctuations in weather been bothering you? 

1 week ago

Ksmiles123

Ksmiles123commented onCommunication – A two-way street between health care provider and patient

 Christina,Great article! I love the line w “ somewhere between signing in and the ride home.... “. Many of us forget one question, even if we were fully prepared. These tips are very valuable. We only get to spend a short time w our health care...

1 week ago

laff4evr

laff4evrcommented onCommunication – A two-way street between health care provider and patient

 Excellent blogiticle ...

1 week ago

laff4evr

laff4evrvoted on Communication – A two-way street between health care provider and patient

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1 week ago

ChristinaH

ChristinaHadded a new article Communication – A two-way street between health care provider and patient

This blog article was written by Christina Hunt, BS, RRT, Director of Bronchiectasis and NTM Research and Education at the COPD Foundation.

The outcome every patient wants from good communication with their health care provider is a plan. A plan to help them feel better or cope with their condition . However, somewhere between “signing-in” and “riding home” patients often find themselves still with...

1 week ago

Kandy

Kandyvoted on COVID-19: One Patient's Personal Account on the Effects

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1 week ago

Ronna210

Ronna210

Hi All,
I am new to this forum, but not new to bronchiectasis. I am 55 now, diagnosed at age 29 due to chronic infection, chronic productive cough, and my suspicion of bronchiectasis because my mother has had it her entire life (she is 81 - still going - but at end stage now). I was misdiagnosed with asthma as a teenager, tested for CF several times, etc. Other than having my yearly (or bi-yearly) infections and having poorer exercise tolerance for someone my age, my bronchiectasis has not impacted my life too much. I was diagnosed with MAC and Pseudomonas A about 2-1/2 years ago, and that was a big shocker, though it shouldn't have been. My pulmonologist advised me not to treat either, since I wasn't symptomatic. I've been inconsistently "compliant" with airway clearance and regular exercise. My PA is more active at the moment, and we've decided to treat with inhaled Tobi. Both my sisters have bronchiectasis as well, and one sister has PA. I've done some genetic testing (about 400 of the most common CF genes - I'm convinced we have a rare CF mutation), but not testing for all of the nearly 2000 known CF mutations. I also looked into genetic testing for bronchiectasis, but haven't followed through yet. I'm writing to say hello but also curious if anyone has experience with genetic testing. Thanks! 

1 week ago

  • NewestOldestClick to View All Comments6 comment(s)
  • ChristinaHWelcome to our site Ronna210​! I am hopeful that you can get some feedback from our community members.  Glad you are here! :)1 week ago
  • Ronna210Thank you for the warm welcome! Agreed, Ksmiles, treatment is the same whether it's CF or not. I guess it's a puzzle that I've wanted to solve.. which gene is responsible for this? Ironically (or perhaps not), I work as a mental health clinician with cystic fibrosis patients. They have a medication, Trikafta, that's been available for 2 years now, which targets the disease at a genetic level. Some patients feel as if they no longer have CF! Perhaps there will be something like that for us bronchiectasis folks at some point in the future. Meanwhile I'll be getting my oscillating vest and Tobi soon ! 1 week ago
  • Ksmiles123Yes, that would be a wonderful miracle!!! We must hold on abs believe in such miracles. I have a friend who has CF and yes, Trikafta sure has been a miracle drug for him.
    I used to want to find out e dry detail, every possible diagnosis- drove a, marphans, etc then my pulmonologist looked at me and said” it is not going to make much of a difference in the path ahead”.  I didn’t want to hear this at that time but it was, is true.  Katie 1 week ago
Ksmiles123

Ksmiles123

1 week ago

Ksmiles123

Ksmiles123

Hello! Are you working on boosting your immune system? The article below reviews things that suppress your immune system: https://www.webmd.com/cold-and-flu/ss/slideshow-how-you-suppress-immune-system?ecd=wnl_spr_091021&ctr=wnl-spr-091021_lead_cta&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3D

1 week ago

Ksmiles123

Ksmiles123

Hello! Below is an article on current Covid virus treatments, dated August 2021: https://www.goodrx.com/blog/coronavirus-treatments-on-the-way/

1 week ago

laff4evr

laff4evr

According to updated recommendations from the Centers for Disease Control & Prevention and The American Academy of Pediatrics, patients can now receive their COVID-19 vaccine and flu shot during the same visit.

https://www.medscape.com/viewarticle/958545?uac=390654SR&faf=1&sso=true&impID=3632191&src=wnl_edit_tpal

1 week ago

Ksmiles123

Ksmiles123

Hello! It is hard to believe that it has been 20 years since 911.  Remembering all those who suffered, continue to suffer or who are no longer with us.  Many courageous firefighters and other lay people have dealt with severe respiratory issues since then. 

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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