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7 hours ago

Cbp

Cbpvoted on Applying for Disability Benefits

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13 hours ago

Vinny M

Vinny Mvoted on To Be or Not To Be Compliant-That is the Question

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16 hours ago

Ksmiles123

Ksmiles123commented onApplying for Disability Benefits

 Dear Kel,Hello! I feel for you. You are not alone on this journey. So many do not understand the impact of NTM/Bronchiectasis has on a patient's life since it is usually an invisible disease. Multiple educational degrees or no formal education...

17 hours ago

Ksmiles123

Ksmiles123Hello! Do you have trouble staying asleep at night?
The link below offers a few good tips. Please remember the tips on prevention of acid reflux symptoms previously posted as well. https://www.webmd.com/sleep-disorders/ss/slideshow-worst-jobs-for-sleep

Slideshow: Jobs That Wreck Your Sleep

Having trouble staying awake at work? WebMD shows you a few jobs that might keep you from getting enough sleep.

17 hours ago

    Made Pramana

    Made Pramanavoted on Applying for Disability Benefits

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    1 day ago

    Merry

    Merryvoted on Applying for Disability Benefits

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    1 day ago

    Kel

    Kelcommented onApplying for Disability Benefits

     PIC line in my arm, not "art" haha...

    1 day ago

    Kel

    Kelcommented onApplying for Disability Benefits

     I applied for disability on my own the first time, knowing that it would probably get denied. I included all the paperwork. Tons! I then hired a disability attorney that was recommended to me by someone who had success. She helped me apply the...

    1 day ago

    Ksmiles123

    Ksmiles123commented onApplying for Disability Benefits

     Great suggestions.If your doctor completes the forms, is there still a possibility that the SS doc will see you as well?...

    1 day ago

    MLS

    MLScommented onApplying for Disability Benefits

      Applying for SS. disability, two things made it much easier for me and I received it on my first try. At the time I was 56.1. Hire a lawyer, try to find one that worked for SSA. Your doctor can probably give you a reference. The lawyer’s fee is...

    1 day ago

    Ksmiles123

    Ksmiles123

    Hello! The link below discusses air quality.
    https://www.stateofglobalair.org/air

    1 day ago

      Ksmiles123

      Ksmiles123

      Hello! Have you tried alternative medicine? Please respond with your comments, both positive and negative so that other members can learn from your experiences.
      https://www.verywell.com/traditional-chinese-medicine-what-you-need-to-know-88936

      1 day ago

        Ksmiles123

        Ksmiles123commented onApplying for Disability Benefits

         You are welcome! Good luck with the transition....

        1 day ago

        Irene

        Irenecommented onApplying for Disability Benefits

         Thank you. Valuable info as I find it difficult continuing work...

        1 day ago

        Bud

        Budanswered the question Cause(s) of Bronchiectasis

        My Bronchiectasis is believed by Lung Specialist to have started with Acid Reflux at night then aspiration pneumonia. Personally I don't really care as I have it and it is what it is. I've been treated since 2010 but have had symptoms for over 25 years, …
        oklawomanLainey301Ksmiles123and 5 others also answered the question oklawomanand 7 others also answered the question

        1 day ago

        Tracie Sullivan COPDF Staff

        Tracie Sullivan COPDF StaffCheck out this new animated and brief video talking about grassroots advocacy! What is advocacy? Watch this video, I bet you have already participated in an advocacy activity and didn't even realize!


        https://www.youtube.com/watch?v=uuAj2I0hXAw

        2 days ago

        Ksmiles123

        Ksmiles123http://www.lung.org/lung-health-and-diseases/protecting-your-lungs/

        Tips to Keep Your Lungs Healthy

        Your body has a natural defense system designed to protect the lungs, keeping dirt and germs at bay. But there are some important things you can do to reduce your risk of lung disease. Here are some ways to keep your lungs healthy.

        2 days ago

          Kandy

          Kandyvoted on Event Alert: Second Town Hall Teleconference: A Dive into Bronchiectasis and NTM

          Gave a thumbs up for a blog post!

          3 days ago

          K Merry

          K Merry

          Thank you, KSmiles, for the water filtration websites. I am learning a great deal!

          3 days ago

          Ksmiles123

          Ksmiles123http://knowbefore.weatherbug.com/2014/01/20/changing-weather-affect-health/

          Does Changing Weather Affect Your Health? - WeatherBug Know Before

          People throughout the world claim that the weather has a direct connection to their health – from changing symptoms of current ailments to the increased... �

          3 days ago

            Ksmiles123

            Ksmiles123

            Hello! Happy Sprinter! Tis snowing again here in PA.
            Do the weather fluctuations affect your energy levels?

            3 days ago

              Vinny M

              Vinny Mvoted on Event Alert: Second Town Hall Teleconference: A Dive into Bronchiectasis and NTM

              Gave a thumbs up for a blog post!

              4 days ago

              Vinny M

              Vinny Mvoted on Linhaliq/FDA Update

              Gave a thumbs up for a blog post!

              4 days ago

              Vinny M

              Vinny Mvoted on The FDA NEEDS to Hear from You!!

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              4 days ago

              Randel

              Randelvoted on Applying for Disability Benefits

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              4 days ago

              Ksmiles123

              Ksmiles123answered the question Has anyone ever been cured from Mycobacterium abscessus and chelanae?

              Taz, Hello! You are most welcome! There is a lot of great information in the booklet. Some doctors do take the wait and see approach based on the subjective findings/ symptoms of a patient. I would suggest calling the doctor if your mom notices any …
              TazkuwColinda and 2 others also answered the question Tazand 4 others also answered the question

              4 days ago

              K Merry

              K Merry

              Hi! I'm new to this site.
              Do any of you have any information you could share about home water filters that stop MAC from getting through? It could be either about a whole-house filter or faucet/showerhead filters. Thank you!

              6 days ago

              Made Pramana

              Made PramanaI really really love this story. 🙏
              http://palliativecare.org.au/story-stage-four-lung-cancer

              A Story About Stage Four Lung Cancer - Palliative Care

              My husband Jay was diagnosed with stage 4 lung cancer in March 2011 and was given less than a year to live. He was 39 and had no obvious risk factors for developing the disease. We had an eight year old daughter and I was pregnant with our second child when he was diagnosed. He survived the disease …

              1 week ago

                Ksmiles123

                Ksmiles123

                Hello! Do you fully understand your pulmonary function tests?
                https://www.verywell.com/how-do-i-interpret-my-spirometry-test-914755

                1 week ago

                Ksmiles123

                Ksmiles123https://www.healthline.com/health/scholarship-program

                The Healthline and NORD Stronger Scholarship

                Healthline and NORD are teaming up to launch the 2018 Stronger Scholarship, a program that aims to assist and empower college students making a positive impact on rare and/or chronic diseases. Learn more about the scholarship and how to apply.

                1 week ago

                  Ksmiles123

                  Ksmiles123answered the question Caregiver supports

                  Kristen, You are welcome. Thank you for posting the latest of the state by state resources. It is so beneficial for caretakers to utilize some of the resources out there.
                  KristenBret99Gretchen also answered the question Kristenand 2 others also answered the question

                  1 week ago

                  Gretchen

                  Gretchen

                  Quote of the Day: The key to transformation is to see how the extraordinary can be found in the ordinary in each day of our lives...by being present moment to moment to moment.

                  Enjoy this day. I hope Spring has finally arrived at your door and you are breathing easy.

                  1 week ago

                  Ksmiles123

                  Ksmiles123Hello! The link below offers tips on calming a cough; several, such as the use of a humidifier do not apply to NTM/bronchiectasis patients.
                  https://www.webmd.com/cold-and-flu/ss/slideshow-cough-treatments

                  Slideshow: Tips for Calming Your Cough

                  Can't stop coughing? See which home cough remedies and other cough treatments work. And find out when it's time to see a doctor for your cough.

                  1 week ago

                    Gretchen

                    Gretchen

                    We know that a negative mindset will never help create a positive atmosphere. It is so easy to go down the rabbit hole, ruminating and getting lost in the chaos and stress of our day, circumstances and/or those we come into contact with. I love this article discussing How to use Positive Self-Talk. It truly can make all the difference in putting things into perspective at challenging times.

                    https://www.verywellmind.com/how-to-use-positive-self-talk-for-stress-relief-3144816

                    1 week ago

                    • Ksmiles123Gretchen,
                      Yes, stress and negativity can further impair our immune systems. Life is challenging, to say the least. Tips in the article on how to change your negative thoughts into positive thoughts can be beneficial to our health.1 week ago

                    Ksmiles123

                    Ksmiles123https://themighty.com/2018/04/emojis-explaining-chronic-illness/

                    The Emojis of Chronic Illness

                    Using emojis, one writer describes her life with chronic illness.

                    1 week ago

                    Merry

                    Merryasked the question: Completed NMT treatment, lung inflammation returned, now what?

                    1-2 months after beating the NTM and ending the Clarithromycin (and other antibiotics) I have increased shortness of breath. My pulmo thinks the Clarithromycin was reducing my COPD inflammation, and now the inflammation is back. However, she is hesitant …

                    1 week ago

                    Kristen

                    Kristenasked the question: Caregiver supports

                    Does anyone know of good resources for caregivers and family members of people with chronic illness? Thanks in advance.

                    1 week ago

                    Gretchen

                    Gretchen

                    Please feel free to post questions or answer any questions that have already been asked. Each patient, caregiver or clinician may have experiences, expertise or words of support that can benefit the individuals in this community! Often we need to rise up to to help each other lessen stress, burdens and frustrations along the Bronchiectasis and/or NTM journey. Thank you all for your support that you offer here!

                    1 week ago

                      Ksmiles123

                      Ksmiles123Hello! Do you have other tips for financial assistance, (other than what is listed in the link below)
                      that you can share with the group?
                      http://www.caringvoice.org/ways-to-find-assistance/

                      Ways to find financial assistance - Caring Voice Coalition

                      We want to offer guidance for any financial help we have verified as potentially useful. Below are some resources organized and explained according to need.

                      1 week ago

                      Ksmiles123

                      Ksmiles123Hello! Spring is finally arriving....
                      The link below describes the benefits of exercise. I understand how hard it is to exercise when the energy levels may be very low; however, the benefits are great if you can push through on good days.https://drmowll.com/get-moving-why-you-need-to-exercise/

                      Get Moving – Why You Need To Exercise | Dr Brian Mowll

                      Spring is finally here, which means many of us can venture outside, enjoy the warm temps and sunshine, and get our bodies moving after a long hibernation. So why is it that many people choose to stay inside and remain couch potatoes?

                      1 week ago

                        Ksmiles123

                        Ksmiles123Hello! We all need to review the foods that fight acid reflux periodically.
                        http://www.emergencyemail.org/newsemergency/anmviewer.asp?a=11321&z=58

                        1 week ago

                        fabiana

                        fabianavoted on Applying for Disability Benefits

                        Gave a thumbs up for a blog post!

                        1 week ago

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                        About NTM

                        Medical Advice

                        It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.