WalshKTF

WalshKTFSAVE THE DATE: IMPACT Lung Health 2023

Our virtual advocacy day is planned for Tuesday, March 14, 2023. Join us in requesting $150M for lung health research from your Congressional Leaders. More details on training to come.

Please register to participate here: https://www.surveymonkey.com/r/IMPACT2023Registration

2023 IMPACT Lung Health Registration

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13 hours ago

Ksmiles123

Ksmiles123

Please join BronchandNTM360social for our monthly โ€œCoffee Breakโ€ held the second Wednesday of every month. These virtual events gather our community informally to catch up, get to know each other, provide education, and ask your most pressing questions. Patient ambassadors John Torrence and Katie Keating, RN lead the discussions. The next event is scheduled for Wednesday, February 8th at 3 p.m. EST. The topic is โ€œAlpha-1 Antitrypsin Deficiency: An Underappreciated Cause of Bronchiectasis and NTM Infectionโ€ presented by Robert A. Sandhaus, MD, PhD, FCCP. Dr. Sandhaus is a Pulmonologist, Professor of Medicine, and Director of the Alpha-1 Program at National Jewish Health.To register for this Zoom event and receive details on how to connect, click here: https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG



Welcome! You are invited to join a meeting: Monthly BronchandNTM360social Coffee Break. After registering, you will receive a confirmation email about joining the meeting.

1 day ago

Ksmiles123

Ksmiles123

7 hours ago

  • NewestOldest
  • ChristinaHI'm glad that you posted this Katie! I just had a friend from the community email me about aspergillosis.
    5 hours ago
  • Ksmiles123Yes, a good friend of mine has been dealing with aspergillosis for quite some time. We need to discuss this topic further. 3 hours ago
Ksmiles123

Ksmiles123

Hello! Happy February! Tis the shortest month of the year and spring is to follow ๐Ÿ˜„.
We will be focusing on getting the most from your therapies and heart health throughout the month.
This will include medication management, including the big 3 for NTM, other NTM medications, inhalers, nebulizers, steroids, oxygen, nutrition, and exercise.  Please post any questions regarding this subject matter.  We are here to support you on the journey.

10 hours ago

Ksmiles123

Ksmiles123Hello! We need to read about new drugs and therapies in the pipeline to boost our spirits at times. Please read the article below, especially the paragraph with the quote from Ruth Tal-Singer, PhD, President of 360Net https://rtmagazine.com/disorders-diseases/chronic-pulmonary-disorders/copd/copd-patients-open-antiviral-nasal-spray-reduce-seasonal-flare-ups/?utm_term=COPD%20Custom%20Newsletetr%20Jan%202023&utm_campaign_type=newsletter&utm_hsid=346581813&utm_medium=email&_hsmi=243943954&_hsenc=p2ANqtz-_xfON-42k3p-rh5hhpxLy_p_SP9SnwSfa0U2ZVXE9yus_1Hc8Zd5r8p8lmiIvSBnhrpr_4ELp96hzjLf6C7JX1LOnXeA&utm_source=newsletter

COPD Patients Open to Antiviral Nasal Spray to Reduce Seasonal Flare-Ups

Individuals with COPD were positive about the prospect of taking an antiviral nasal spray throughout the winter season to prevent flare-ups.

1 day ago

Fancy

Fancy

๐Ÿ˜”

1 day ago

ChristinaH

ChristinaH

Welcome Lori2015โ€‹ to the community! 

2 days ago

WalshKTF

WalshKTFvoted on MAC2v3 study update โ€“ December 2022

Gave a thumbs up for a blog post!

2 days ago

WalshKTF

WalshKTFvoted on Tips for Those Newly Diagnosed Bronchiectasis and NTM lung Disease

Gave a thumbs up for a blog post!

2 days ago

Ksmiles123

Ksmiles123

Are you a newly diagnosed Bronchiectasis patient? The link below provides some helpful information:https://www.bronchiectasisandntminitiative.org/Bronchiectasis/Bronchiectasis-Resources/Bronchiectasis-FAQs

2 days ago

ChristinaH

ChristinaH

Happy Monday BronchandNTM360social community! How's the weather outside your window? Did anyone get a heap of snow this weekend? Snap a pic and share it with us! 

2 days ago

ChristinaH

ChristinaH

Welcome Katbevโ€‹ to the community! 

2 days ago

ChristinaH

ChristinaH

Welcome MF21โ€‹ to the community! 

2 days ago

Ksmiles123

Ksmiles123Hello! New drugs and treatments are in the medical pipeline. Hold onto the ๐ŸŽ of HOPE. 

3 days ago

Ksmiles123

Ksmiles123

Hello! Are you taking precautions to avoid the reoccurrence of exposure to NTM? The blog article below offers some suggestions:https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/110/Avoiding-Environmental-Exposure-to-NTM

3 days ago

Ksmiles123

Ksmiles123

Hello! The blog article below reviews the basic diagnostic tests for respiratory patients: https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Check-In-Basics-of-COPD-Diagnostic-Tests.aspx

4 days ago

ChristinaH

ChristinaHEuropean Lung Foundation Bronchiectasis Patient Conference

ELF is holding its third Bronchiectasis Patient Conference. It will take place virtually on Sunday 12 March 2023 at 10 CET. The event is open to anyone interested in learning more about bronchiectasis. The conference has been planned with the ELF Bronchiectasis Patient Advisory Group and with clinicians from EMBARC (European Multicentre Bronchiectasis Audit and Research Collaboration). 

Talks will be recorded and made available online after the event. 


More details about the event can be found on the ELF event page: https://europeanlung.org/en/get-involved/events/bronchiectasis-patient-conference-2023/  


Link to register: https://www.eventbrite.co.uk/e/bronchiectasis-patient-conference-2023-registration-514708806897

Bronchiectasis Patient Conference 2023 - European Lung Foundation

Time: 10:00 โ€“ 16:00 Central European Time (CET)

5 days ago

Ksmiles123

Ksmiles123

Hello! Tis almost the end of January. One more month before the signs of spring begin to arrive in March. How are you doing today? 

5 days ago

ChristinaH

ChristinaH

Hi Sean Yitโ€‹. Welcome to the community! 

5 days ago

JohnT

JohnTI would like to remind everyone that we are still conducting our Home Sputum Project. If you would like to receive a FREE home sputum test conducted by one of the best labs in the country, either click the link below or copy and paste the info into your search engine. Give this information to your pulmonologist or infectious disease provider and have them sign you up for this great service. This is a limited time project.

https://www.copdfoundation.org/Research/Research-Projects-and-Consortia/Sputum-Home-Collection.aspx

Sputum Home Collection | COPD Foundation

To enhance the process of Nontuberculous Mycobacterial (NTM) lung disease detection and diagnosis, the COPD Foundation in partnership with a network of experts at National Jewish Health as well as patient advocates from NTM Info & Research (NTMir) has designed a pilot program aimed at improving the …

6 days ago

ChristinaH

ChristinaH

Welcome Rickieโ€‹ to the community! If you have questions or need feedback or just want to say "hello", feel free to post! 

6 days ago

ChristinaH

ChristinaHcommented onTips for Those Newly Diagnosed Bronchiectasis and NTM lung Disease

 This is a great blog for those just starting their bronch and NTM journey. Great work @Ksmiles!...

6 days ago

JMS

JMS

I am new to taking the 3 antibiotics for MAC. If you are taking antibiotics 3 days a week, do you take the probiotic everyday or just days you are taking the antibiotics? Do you take all of the antibiotics at one time or take each one at a separate time during the day. Does either make a difference  in tolerance or side effects?
Thank you

6 days ago

ChristinaH

ChristinaH

Welcome BWMโ€‹ to the community! We are here to support you!

6 days ago

Ksmiles123

Ksmiles123asked the question: Sleep

Hello! Are you sleeping 💤 well throughout these winter months? Sleep is of upmost importance for our immune systems/ healing. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/150/Sleep-and-Healing …

6 days ago

Ksmiles123

Ksmiles123answered the question PFTs

Lol! Thank you for bringing chuckles to our day. Silver spittoon award is quite amusing.
laff4evr also answered the question laff4evr also answered the question

6 days ago

Kandy

Kandyvoted on Tips for Those Newly Diagnosed Bronchiectasis and NTM lung Disease

Gave a thumbs up for a blog post!

6 days ago

JD

JDvoted on Tips for Those Newly Diagnosed Bronchiectasis and NTM lung Disease

Gave a thumbs up for a blog post!

6 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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