ChristinaH

ChristinaHWe're interested in learning about how you manage your lung condition - please check out the link below if you would like to share.

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Question-and-Answers/Lung-Disease-Management




1 day ago

Lakegirl

Lakegirl

Can I still swim in the lake,and garden.

3 hours ago

  • Ksmiles123Hello! Welcome to the site. I would suggest wearing a mask when gardening, dampen the soul so that you don’t inhale the dust from the dirt.  Swimming outside is safer than inside.  Some lakes, rivers have high levels of mycobacterium. We cannot totally cut ourselves off to the outside world. Each individual must decide which risks she or he is willing to take.2 hours ago
Lakegirl

Lakegirl

Just joined.I think.newly diagnosed NTM disease.learning all I can about it.

3 hours ago

DAJ

DAJanswered the question Lung Disease Management

I was diagnosed with bronchiectasis 16 years ago. I have always used herbs, so I have combined their use along with traditional medicine. Symptoms have gotten worse over the years and antibiotics have lost their effectiveness, but I will list things that …
laff4evrKsmiles123Kandy also answered the question laff4evrand 2 others also answered the question

9 hours ago

ChristinaH

ChristinaHasked the question: Lung Disease Management

Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …

1 day ago

Tolive

Tolive

Newly diagnosed with NTM and Bronchiectasis. Started treatment for NTM 11 days ago.The antibiotics are making me so sick. 
Would like to know if anyone with treated with NTM wad treated with antibiotics, if so how did you deal with the side effects. Was it bad enough to stop treatment. If do what was another treatment option if any.Or suggestions of how to get through this and the side effects. Doctor said treatment could take a year. I am so sick from one of the antibiotics I cannot see how I can keep taking it for a year. Any suggestion would be greatly appreciated. 

1 day ago

Ksmiles123

Ksmiles123answered the question Does a sputum sample have to be completed in the morning?

Hello! You are welcome! As long as the mucus is mucus, not a lot of saliva. Yes, wetter produces the sputum which is needed. It is absolutely necessary to get the specimen before you start antibiotics. I hope that you feel better soon. I hope that you …
Franny also answered the question Franny also answered the question

3 days ago

Franny

Frannyasked the question: Does a sputum sample have to be completed in the morning?

My cough is dry in the morning and gets better throughout the day.

3 days ago

Ksmiles123

Ksmiles123

Hello! I received my 2nd Covid 19 vaccination yesterday, yahoo!!! It is finally behind me, a new chapter begins. I was apprehensive about the first night afterwards since people are experiencing a wide array of post vaccination symptoms. I am happy to report that I only experienced mild fatigue and arm soreness last evening. We will see what today brings since symptoms can occur over the first few days. I hope that you can get vaccinated very soon if you haven’t been vaccinated already.  It is such a HUGE relief to know that I am a step closer to personal freedoms and most likely will not be hospitalized for Covid. Have a pleasant day! Stay safe,positive!:)

3 days ago

Gretchen

Gretchen

We have over 2,000 members of BronchandNTM360social! Welcome to the newest members! Thank you for being here and participating in the lives of others like you. As we learn at many conferences and through our reading, we all have a lot of unanswered questions. Is there something you need help in answering or do you have some experiences that could help someone else? Please share and inquire. If you are wondering about something related to Bronchiectasis and NTM, there is a good chance someone else is too. To Answer a question, click on the Question you wish to view and then click on Add an Answer. A box will appear for you to type in your answer or experience. We have 219 questions-share your knowledge! If you wish to Ask a question, go to the left side of the screen under the Community Discussion menu. • Click on Question and Answers. • From here you will see Ask a Question. • Click on it and you will be taken to a separate screen.• Under Question, type in what you wish to ask and add in a brief description or any other comments under Description. • There is a section named Tags. This will assist users in searching for information that involves your question, like Bronchiectasis, NTM, Quality of Life, Research, etc. You can add as many tags as you want. Make sure you add a comma between each individual tag.• Finally, click on the orange box labeled ASK and it will be posted in the Activity Feed.

4 days ago

JR

JR

My pulmonary doctor has me draining twice a day (half hour in morning and 1/2 hour at night) before meals.  Does anyone think about how to do this on long car trips. 

5 days ago

Ksmiles123

Ksmiles123Hello! Spring , opening windows can be a season of mold for some. Below is information on potentially toxic molds: https://fmidr.com/mold-illness/

5 days ago

Ksmiles123

Ksmiles123Hello! Below is a comparison of the vaccinations, from NJC:https://www.nationaljewish.org/patients-visitors/patient-info/important-updates/coronavirus-information-and-resources/covid-19-vaccines/vaccine-articles/side-by-side-comparison-covid-19-vaccine

1 week ago

Ksmiles123

Ksmiles123Hello! Are you a positive person? The article below reviews the benefits of positive thinking. We especially need to be positive throughout the vaccination process and until we truly see the light at the end of the pandemic tunnel. https://www.webmd.com/mental-health/positive-thinking-overview#2

1 week ago

Ksmiles123

Ksmiles123

Hello! Happy Easter 🐇🐰 to all who celebrate! Katie

1 week ago

laff4evr

laff4evr

Happy Birthday To Me !!
My bronchiectasis lungs will blow out 62 candles today.
Coincidentally, that's the same number of attempts required to accomplish the task.

1 week ago

Mama mojo

Mama mojo

I got my second moderna shot last evening. Feeling a little feverish. BuIt that might be due to the absolutely freezing weather today.  I think I will have the same side effect as the first shot. My arm itched at the site and it was swollen for a few days.. I think I will have to ice it again and use.cortisone cream.  I am soooo happy to be completely vaccinated.YEA!!

1 week ago

Ksmiles123

Ksmiles123

Hello! How are you celebrating the holidays? Are you seeing a few friends, family if you have been fully vaccinated? 

1 week ago

Franny

Frannyanswered the question Has anyone seen ENT / voice center for cough?

Exactly!
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 week ago

Kandy

Kandy

I maybe going to Sanford in Bismarck ND worry about stats with this covid.  Daughter talking to my pulmo up there.   

1 week ago

Ksmiles123

Ksmiles123

Hello! Below are a list of foods that may assist in improving the quality of your sleep. Be mindful of eating too close to bedtime if you have been diagnosed with acid reflux. https://www.healthline.com/nutrition/9-foods-to-help-you-sleep#The-bottom-line

1 week ago

Ksmiles123

Ksmiles123

Happy April1st! So glad that the nicest time of the year,( in my opinion) is here.  Beware that today is April Fools Day!:)

1 week ago

laff4evr

laff4evranswered the question Interested in an Informal Conversation with other Participants?

Count me in.
FrannyGretchenGaryLand 13 others also answered the question Frannyand 15 others also answered the question

1 week ago

Ksmiles123

Ksmiles123answered the question Share Your Story - Sharing with Family and Friends

Hello! Yes, it is difficult to speak with others who do not understand the impact on your daily life, especially when you look normal. Yes, it can be depressing to deal with, accept limitations. We are here to support you on the journey Please review …
Maggie OMama mojo also answered the question Maggie Oand 1 other also answered the question

1 week ago

Ksmiles123

Ksmiles123Hello! Do you understand the difference in the colors of mucus?Only people on this site can appreciate this post...
https://symptoms.webmd.com/cold-flu-map/mucus-and-health

1 week ago

Franny

Frannyasked the question: Has anyone seen ENT / voice center for cough?

I have been coughing constantly since last January. My pulmonologist is sending me to an ENT who is at a voice center. I'm wondering what to expect. I read about the center and found cough training listed but not much information.

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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