Molly Butz | COPD Foundation

Molly Butz | COPD FoundationDon't miss the new โ€œAll About Bronchiectasisโ€ booklet, now available for download! This colorful booklet is an excellent resource for those newly diagnosed with bronchiectasis or for anyone wanting more information about this chronic lung disease.
This guide covers a wide range of topics, including how bronchiectasis is diagnosed, treatment options, tips for avoiding exacerbations, and much more. Download your free copy at https://www.bronchiectasisandntminitiative.org/Bronchiectasis/Bronchiectasis-Resources/Bronchiectasis-Educational-Materials

16 hours ago

Molly Butz | COPD Foundation

Molly Butz | COPD FoundationWorld Bronchiectasis Day is this Friday. How much have you learned about bronchiectasis? Find out with our new quiz! Take the quiz: https://bit.ly/bronchquiz 
How many questions did you answer correctly?

2 days ago

Kandy

KandyWorld Bronchiectasis Day supporting all those who have bronchiectasis around the world. 

18 hours ago

Ksmiles123

Ksmiles123

Share your story: 
Has bronchiectasis impacted you? Whether you have bronchiectasis, are a caregiver for someone that does, a friend, a family member, or a health care provider, we encourage you to tell your story. Post on social media and use the hashtag #WorldBronchiectasisDay, or contact us at info@bronchiectasisandntm360.org.

19 hours ago

Storyteller

Storytelleranswered the question What to do about coughing up blood?

I am not on arikayce, but sometimes cough up small amounts of blood. My pulmo is not concerned about this. It is usually after my induced coughing from The Vest
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 day ago

smcbenner

smcbennerasked the question: What to do about coughing up blood?

I have been taking Arikcase for 4 months. Today I am coughing up small amounts of blood. should I suspend my use of Arikcase?

1 day ago

Delia

DeliaMy girls, Penny and Lilly, are gearing up for an evening stroll with mom wearing her World Bronchiectasis Day t-shirt. I'd love to see others' Lace up photos!

P.S. Don't judge the scruffiness - they are overdue for a Summer haircut. ๐Ÿ˜Š

1 day ago

Louise L.

Louise L.

๐Ÿ™‹

1 day ago

Ksmiles123

Ksmiles123

1 day ago

Molly Butz | COPD Foundation

Molly Butz | COPD FoundationIn the Faces of Bronchiectasis video, hear from people around the world with bronchiectasis as they share their journey with the path to bronchiectasis diagnosis. Learn the symptoms they experienced, how they were diagnosed, and how having bronchiectasis impacts their lives. Watch the video at https://www.youtube.com/watch?v=Wyfmq0wo3bs

1 day ago

bejay

bejay

Has anyone had Covid with bronchiectasis? I am recovering from a covid infection that started last Friday June 24 2022.My husband and daughter were infected also. I am now at day 11 since positive test. Still having residual mucus build up and slight amount of fever. I feel very lucky that the vaccines, booster, and paxlovid took care of me and my husband. Thank you to the federal government and Pfizer corporation! 

2 days ago

  • NewestOldestClick to View All Comments6 comment(s)
  • bejayAlso I am excited about this Friday and I will be wearing my world bronchiectasis day shirt!1 day ago
  • Ksmiles123Bejay,
    We are happy that you are here. I am so looking forward to wearing my tee shirt ๐Ÿ‘• on World ๐ŸŒŽ Bronchiectasis Day as well! This day has been a dream of many patients for a very long time:). Katie 1 day ago
  • KandyI had covid March 2021 and yes I have 4 lung diseases with covid.  Was in covid unit 10 days also had a bacterial infection.  My pulmo didn't believe that I made it through the covid. 17 hours ago
Delia

DeliaHappy Monday, all! 

I am making progress with completing the goals listed in my Lace up for Lungs goal tracker, in honor of the upcoming inaugural World Bronchiectasis Day. I hope you all are making progress with your goals too!

Be sure to use the hashtags #LaceUpforLungs and #WorldBronchiectasisDay as you spread the word on social media.

2 days ago

Ksmiles123

Ksmiles123

2 days ago

JohnT

JohnTvoted on Research Opportunity for People with Non-CF Bronchiectasis

Gave a thumbs up for a blog post!

3 days ago

Kandy

Kandyvoted on Research Opportunity for People with Non-CF Bronchiectasis

Gave a thumbs up for a blog post!

3 days ago

Kandy

KandySupporting Bronchiectasis all around the world for World Bronchiectasis Day July 1, 2022

3 days ago

Jean1

Jean1

Hello All! Has anyone taken a pneumonia vaccine in close time proximity or at the same time as a COVID vaccine? 

3 days ago

Vinny M

Vinny Mvoted on Research Opportunity for People with Non-CF Bronchiectasis

Gave a thumbs up for a blog post!

3 days ago

Drenyt

Drenyt

Hello there, 
I just got the diagnosis recently and I stressed because my left lung has fibrosis but I have pains on my right back side radiating towards the center part of the spine and each time I sit for too long or walk I feel tired and the pain kicks in not forgetting persistent headache on my left side of the head just above my ear. What should I do? 

3 days ago

  • Ksmiles123Hello ! I would suggest notifying your doctor of your current symptoms and or seeking treatment at an urgi care center if you do not communicate directly with your doctor. The persistent headaches and radiating right back pain are of concern and are not common in Bronchiectasis patients. 3 days ago
Ksmiles123

Ksmiles123

Hello! Are you getting ready for World Bronchiectasis Day? Activities are being held each day. :) 

3 days ago

Molly Butz | COPD Foundation

Molly Butz | COPD FoundationWorld Bronchiectasis Day is next Friday, July 1! To get ready, letโ€™s see if you can solve the World Bronchiectasis Day word search. Play it here: https://thewordsearch.com/puzzle/3571843/world-bronchiectasis-day/

4 days ago

Vinny M

Vinny Mvoted on Summer Precautions for People with Bronchiectasis and NTM Lung Disease

Gave a thumbs up for a blog post!

4 days ago

Kandy

Kandyvoted on Preventing Spring Flare-ups for those with Bronchiectasis

Gave a thumbs up for a blog post!

4 days ago

Kandy

KandyThis a Bronchiectasis t-shirt my daughter made for me for World Bronchiectasis Day July 1,2022

4 days ago

Storyteller

Storyteller

I use a mouthguard to prevent teeth grinding at night. It comes with a very mild cleaner, which I suspect does not disinfect.
What would people use to disinfect a mouth guard ? I donโ€™t care if it gets discolored .
I am currently on Bactrim and praying it clears up the staph aureus and b cepacia. 3 rd round of antibiotics. 

4 days ago

Sarmarie1993

Sarmarie1993

๐Ÿ˜’

5 days ago

Ksmiles123

Ksmiles123Hello! Below is a fact sheet on sputum culture reports. It is important to be able to interpret the results, especially if you are dealing with frequent exacerbations: https://irp-cdn.multiscreensite.com/d820f98f/files/uploaded/Microbiology_Fact_Sheet_Sputum_MCS.pdf

5 days ago

JohnT

JohnTvoted on Preventing Spring Flare-ups for those with Bronchiectasis

Gave a thumbs up for a blog post!

5 days ago

Kandy

Kandy

6 days ago

Kandy

Kandy

6 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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