Welcome to BronchandNTM360social

BronchandNTM360social is an online community for individuals affected by Bronchiectasis and/or NTM, including patients, family members, caregivers, physicians and other healthcare providers. It serves as an online home for these communities and provides a comfortable venue to share thoughts and ideas, ask questions, start discussions, read and comment on blogs, and communicate with peers, thought leaders and community managers.

 

Kandy

Kandyvoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

Gave a thumbs up for a blog post!

6 hours ago

Delia

Deliavoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

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16 hours ago

Gretchen

Gretchenadded a new article Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

This blog post was written by Katie Keating, RN, MS, and patient advocate

As a client of a respiratory specialty care facility, many of us have spoken with a nutritionist. Often, we were not feeling up to par and perhaps were overwhelmed with information that was provided to us. It is difficult to learn and retain newly acquired information under these circumstances. Hiring a private or personal nutritionist can be financially challenging and not feasible for most of us. Proper...

19 hours ago

Made Pramana

Made Pramana

Hello everyone. Today I didn't do much things since the weather was rainy and windy. I checked my saturation while walking around at home. The saturation was at range 91-93. However the pulse rate was a little bit high, above 100. It is not new problem. I already told this to 2 pulmonologist. One pulmonologist said that "Well that's a good sign that your body compensate your lung condition." I hope my body can compensate for a little bit longer before I can find better pulmonologist or cardiologist or any doctor. Tomorrow I will take a rest too because tomorrow is Nyepi Day in Bali. People here can't go outside, can't turn on lights, be silent for a day. I'm still remember the Nyepi Day last year and I told to you COPD360Social. Time went fast!
Have a good day! I will tell you later about the Nyepi Day. ;)

22 hours ago

  • Click to View All Comments4 comment(s) -
  • GretchenI am excited to hear about it Made. We could all use a day of silence and meditation! Are you attending the parade? 16 hours ago

  • DeliaAgreed, Ksmiles123! A day of reflection does sound therapeutic. And yes... Made, I hope you find a great pulmonologist soon!16 hours ago

  • KandyWell today was a good breathing day I have no idea why was complete fog when waking this morning. I did 50 min at rehab increasing level and speed. Not all days are as good. Then this afternoon decided to take walk and did at least 10 blocks. Very little wind and seemed like I could walk forever. Not many days like this so got to take them while there here. Plan on more as weather permits. Want to get my bike out see how that goes. Basket for my oxygen in front. 6 hours ago

Kandy

Kandyanswered the question How to manage coughing/ clearing mucus while working

I hate coughing in public myself. I did cough out and someone gave me a funny look and told them its not contagious. I have bronchiectasis. That really makes them wonder!! haha
Ksmiles123GembobMade Pramana also answered the question Ksmiles123and 2 others also answered the question

1 day ago

Ksmiles123

Ksmiles123Happy Spring! We all need a hobby to keep us busy, whether or not we are homebound or able to be out and about. If we are unable to get out, hobbies serve as a good distraction from our present health issues, when we have the energy. Listening to the news alone can be depressing for many at times. Often, we are too tired to focus on reading a good book or lengthy matierials.
The link below has a few good suggestions; a few may not be doable for many at this time.

http://takelessons.com/blog/cheap-hobbies-for-spring?utm_campaign=promo&utm_source=em_engage&utm_medium=email&utm_content=6_hobbies_to_try_this_spring%20&mkt_tok=eyJpIjoiT0dFNE1EZGpOakpsTWprdyIsInQiOiIrcWFWRzFZM3czVHRMTm9XcDRISHVlbnJvNVZYTkIyZWt6NEU4bGJVUWxrSW5iS2NtS1kxYkdqUnBQTFljRmk2VEh3c3FGZk1yUkVSSHZLdVo0OElqOXN2clM4M3k2QTFUTG15elR1V2IzbTFNRlwveVlDNms2a05jRk9BTlV5N2UifQ%3D%3D

1 day ago

sstevens

sstevensThis article focuses on patients with COPD practicing yoga and the positive affects they experienced. I think anyone with chronic respiratory issues could benefit from these tips.


https://www.sciencedaily.com/releases/2013/10/131028114836.htm

2 days ago

Ksmiles123

Ksmiles123answered the question Does anyone have an out of control cough?

Thank you for the link. I am going to discuss NAC w my doctor. Have a pleasant day! I hope it is spring like for you today; 'tis 65 here.:
KandyJenP also answered the question Kandyand 1 other also answered the question

2 days ago

Made Pramana

Made PramanaI just watched a video on youtube. It's a presentation given by a clinician to a radiology congress. I like how the doctor speak. I feel like he care about bronchiectasis. I hope I can find this kind of doctor :) Here is the link if you want to watch. Have a good weekend everyone. https://youtu.be/mVqolNMeyWM

2 days ago

  • Ksmiles123Great presentation. Yes, this doctor truly empathizes with bronchiectasis patients. He cares to go the extra step beyond diagnosis to see what can be done to lessen the progression since we do not all follow the same path. He makes a great point of the radiological reports being inconsistent with patients symptoms. I also like how he breaks down the different causes of bronchiectasis. Many of us have the post infection type of bronchiectasis. Thank you so much for posting this.1 day ago

  • Made PramanaHello Katie. Yes I agree with you. I feel like the doctor understand about bronchiectasis. He explained the need of bronchiectasis patient to be grouped into some specific groups. A specific group has very similar symptoms and could respond to therapy better..1 day ago

  • Ksmiles123Yes, I totally agree with you. I think they often categorize patients into a group which has major variations in symptom severity. The psychosocial support needed varies based upon the symptoms, severity.21 hours ago

Ksmiles123

Ksmiles123

Hello again! I hope that you all make the best of springtime, within our limitations.:)

A poem by Emily Dickinson (1830-1860), entitled Hope

“Hope” is the thing with feathers
That perches in the soul
And sings the tune without the words
And never stops- at all

And sweetest- in the Gale- is heard
And sore must be the storm
That could abash the little Bird
That kept so many warm

I’ve heard it in the chilliest land
And on the strangest Sea
Yet-never-in Extremity,
It asked a crumb-of me.

3 days ago

Ksmiles123

Ksmiles123

Hello! March is national nutrition/fitness month.
The link below is a guide to exercises you can do within the comforts of your own home.

file:///C:/Users/Katie/Downloads/copdExercise_for_Health_15_Easy_Exercises_to_Do_at_Home_for_free.pdf

3 days ago

Katherine

Katherineasked the question: Does anyone have an out of control cough?

My bronchiectasis and MAC was diagnosed in Oct 2015. for 20 years prior, and ever since, I have had a strenuous, every day and night cough that I take numerous medicines and inhalers to try to control. Does anyone else have this much trouble with …

4 days ago

Kel

Kel

I have had such fatigue, weakness on a daily basis especially in the past three years. I was diagnosed 7 years ago with Bronchiectasis /MAC. (misdiagnosed many years prior) I have several exacerbations of infection each year. I had to retire from teaching high school visual arts (after 33 years) due to necessity of PIC lines, coughing and not having the strength to lift, bend over, speak for any length of time to classes of 36+ each hour. I have applied for social security disability (turned down the first time, which is normal), but now have an attorney working on this. Has anyone else applied/received disability because of fatigue, etc..?

4 days ago

  • DeliaKel, I'm sorry to hear that you're dealing with fatigue and weakness and that it has caused the need for you to give up your career. I don't have experience with applying for social security disability, but I certainly hope others will chime in. Sending well wishes your way!4 days ago

  • Ksmiles123Kel,
    Hello! I realize this is a very challenging time for you to say the least...
    Disability cases can take some time, even with an attorney.
    I suggest you bring matierials from the NTM Info&Research website and this site with you for the medical review .
    Too often, the medical review MD has never heard of NTM and may not understand the impact NTM / fatigue may have on your daily functioning.
    Also, a letter from your primary care doctor , explaining your current health status may help as well . I hope this helps.4 days ago

Anne

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4 days ago

Kandy

Kandyhttp://www.buzzle.com/articles/phlegm-in-throat-causes.html

4 days ago

    Kandy

    Kandyhttps://bronchiectasisnewstoday.com/2017/03/20/bronchiectasis-more-likely-in-copd-p

    4 days ago

    Gretchen

    GretchenA recent study shows that bronchiectasis is frequently found in patients with chronic obstructive pulmonary disease. It is present in all stages of COPD but seems to be more prevalent with higher severity. Read more about the study and its findings:
    https://copdnewstoday.com/2017/03/02/bronchiectasis-in-patients-with-copd-an-irrelevant-imaging-finding-or-a-clinically-important-phenotype/

    4 days ago

      Gembob

      Gembobasked the question: How to manage coughing/ clearing mucus while working

      Hi All, I have had bronciatais all my life and I am full time working, I am finding it difficult in work to clear my lungs so I am suppressing my cough cause it sounds horrendous. I am very self conscious of going into the toilet I ususlly wait until …

      5 days ago

      Ksmiles123

      Ksmiles123commented onThe Basics of Acid Reflux

       You are very wise to switch, protect yourself.I am doing much better w/ reflux since I totally changed my diet and have been following the guideline. It is challenging to change, but it is worth it....

      5 days ago

      Kristen

      Kristen

      Loved the e-blast I just got from this group. Looking forward to Quality of Life and Energy Management next month!

      5 days ago

      Bernadette in Durham

      Bernadette in Durham

      I have a word document I created for managing side effects during NTM treatment. Is there a way to share that here?

      5 days ago

        Bernadette in Durham

        Bernadette in DurhamI would like to request that this group sign on to the letter below, or an edited and updated version of it. I sent this letter well over a year ago and got no response.

        ________________________________________________

        Bernadette Chasteen
        Durham, NC

        November 13, 2015

        CHEST Global Headquarters
        Richard S. Irwin, MD, Editor in Chief
        2595 Patriot Blvd
        Glenview, IL 60026
        United States of America

        Dear Dr. Irwin,

        A 1992 article entitled "Mycobacterium avium complex pulmonary disease presenting as an isolated lingular or middle lobe pattern. The Lady Windermere syndrome" featured in CHEST makes the damaging claim that women are willfully “suppressing the natural cough” and that the suppression of cough is what leads to illness. I am writing to ask you to print a retraction of this claim, to cease from referring to this disease as “Lady Windemere Syndrome,” and to ensure that articles in CHEST that reference this original article likewise print a retraction.

        The article makes the claim that NTM (Non-Tuberculosis Mycobacterium aka MAC) lung disease, when and only when it occurs in women, is caused by "a willful suppression of the natural cough." Doctors and researchers claim these patients “habitually” suppress the cough, but I challenge these researchers to present proof that this claim is based on scientifically verifiable evidence or even on patient testimony. This assumption that a woman “suppress[es] the cough” is being applied to female patients and is not something the patients themselves have reported. This claim, as it is written in the article, is backed up by zero scientific evidence, and as such, is nothing but misogynistic bias.

        Making such a baseless claim is more damaging than you might imagine. The claim has been repeated numerous times in other scientific publications to the point that the disease is nicknamed "Lady Windemere Syndrome,” which ...

        5 days ago

        • Click to View All Comments4 comment(s) -
        • Bernadette in Durhamlikely that women have been infected with NTM during procedures in thoracic surgery and then told they are at fault for this infection because they willfully suppress their natural cough. Such responses make it all the more imperative that the “Lady Windemere” claim be retracted, as the claim is gender-biased.

          It is most unfortunate that the culture for NTM infection is often only identified to the level of MAC with no further species identification (primarily M. chimaera also identified as M. intracellulare), which does not help us connect the infection to the heater/cooler units. My doctor, Dr. Jason Stout, explained that further species identification is not typically done because it is “not seen as beneficial to the patient." Is it not beneficial to the patient to accurately identify the infecting bacterium in an effort to discover the source of the infection so we can prevent this devastating infection in other patients?

          I believe this lack of attention is due, at least in part, to the stigma attached to this disease. It’s time to stop the use of such biased language and treat all patients, men and women, as equals.

          I do hope you consider this request.

          Respectfully,
          Bernadette Chasteen, Research GIS Analyst for RTI International
          Professional working single parent in Durham, NC
          Currently on partial disability during the 18 month treatment for NTM5 days ago

        • Ksmiles123Bernadette,
          Hello! I feel your frustrations. However, I feel that there is "Hope", so much has been done since 1992, 2005. Increased public awareness, research, media coverage, respiratory industry interest, new drugs are in the pipeline, NTM Info & Research and this site.
          I recall stats of 95% female back in 2002, but that has changed drastically. I heard one MD recently mention that 50% of his patients were male. We do not have accurate stats at this time, but hope to in the near future.

          Yes, I agree with you. Many go through chemo/radiation and are able to return to a normal lifestyle/ work within 6 months. NTM is more challenging in different ways. Some deal with sever fatigue and other issues, such as recurrent infections which keep them from returning to their prior lifestyle.

          It is very sad about the coolers in the surgical units. However, I hope this was an eye opener, similar to Legionnaire's Disease which results in greater research w/ answers asap. I know that Va.Tech , Dr. Joe Falkinham has been studying similar issues and continues to do so. Yes, some patients may be predisposed, but strict infection control precautions/ universal precautions should be taken for all in the future, i.e. water temperature of distilled water...etc. Pall Medical is also continuing research on water filters.

          Will you be able to attend the ATS conference in DC on 5/19? This will be a great informative, update for patients by key physicians.
          I wish there was a support group in your area. The NYC group helped me tremendously in the past.5 days ago

        • GretchenBernadette, I am so sorry to hear of your struggles. I hear you and also feel your frustration. Are you involved in a support group or have you ever considered starting one? You clearly are well versed in everything that is happening with this disease. I hope, if anything, you have a support system with your friends and family. 4 days ago

        Elizabeth Benkert

        Elizabeth Benkertvoted on The Basics of Acid Reflux

        Gave a thumbs up for a blog post!

        5 days ago

        Kandy

        Kandycommented onThe Basics of Acid Reflux

         I am silent gerd and have just changed to a new one that is not to have as many side affects as prilosec and nexicum. There was a warning on these just last week about affecting kidney last year was the heart. I got protonix from my pulmo. ...

        5 days ago

        Kandy

        Kandyvoted on The Basics of Acid Reflux

        Gave a thumbs up for a blog post!

        5 days ago

        Gretchen

        GretchenStress, anxiety and depression affect us on a physical, mental and emotional level. Exercise, meditation, as well as eating well can help combat these chaotic disrupters. Meditation in particular helps to quiet the mind, slow the nervous system and increase our bodies immunity. Here is an article with some easy tips to get started and a few different techniques to try.

        https://www.verywell.com/different-meditation-techniques-for-relaxation-3144696?utm_campaign=healthsl&utm_medium=email&utm_source=cn_nl&utm_content=9060290&utm_term=onetap

        5 days ago

        Gretchen

        GretchenFor our exercise and Nutrition information for this month, here is some information on dairy and mucus. Do you notice that there is a correlation when you add dairy to your diet or leave it? Does it have any affect on mucus production?
        https://www.copdfoundation.org/COPD360social/Community/Blog/Article/293/Milk-Products-and-Mucus-in-COPD.aspx

        6 days ago

          Randel

          Randelvoted on The Basics of Acid Reflux

          Gave a thumbs up for a blog post!

          1 week ago

          fabiana

          fabianavoted on The Basics of Acid Reflux

          Gave a thumbs up for a blog post!

          1 week ago

          Ksmiles123

          Ksmiles123Hello! I hope that you are having a pleasant Sunday.
          I realize the fluctuations in the weather may take a toll on many. The link below explains some of the reasons why different weather conditions may affect anyone with a respiratory disorder.
          Please comment on which weather change/ condition bothers you the most and what you do about it to minimalize the impact. We can all learn from one another . :))

          http://www.rotech.com/respiratory/documents/Weather.pdf

          1 week ago

          • Click to View All Comments6 comment(s) -
          • Ksmiles123Made,
            Yes, you are doing the right thing by wearing a mask as needed. I don't know what the political climate is like there or how others respond to a group who are are concerned about the pollutants.
            Perhaps, print a simple flier to bring to your yoga class asking if others are interested in a group discussion, taking some action to lessen the local pollution?
            Yoga participants are usually interested in their health and perhaps would be interested in helping taking small steps too change. Just food for thought! 6 days ago

          • Made PramanaHi Ksmiles123. Love your idea of printing the fliers and share the message. I can distribute the flier to them and other people. I will take into consideration ;)5 days ago

          • Ksmiles123Glad to hear! I hope others in yoga class are receptive.
            All change start with small steps. I wish you the best!
            A fav quote of mine is " worry is a substitute for not taking action".3 days ago

          Ksmiles123

          Ksmiles123Hello again!
          I found this great link and could not refrain from posting on St. Pat's Day.

          https://content.govdelivery.com/accounts/USDACNPP/bulletins/18d1d18

          1 week ago

          Gretchen

          Gretchen

          "St. Patrick's Day is an enchanted time, a day to begin transforming winter's dreams into summer's magic."~Adrienne Cook

          My Favorite Irish Blessing:
          May joy and peace surround you,
          Contentment latch your door,
          And happiness be with you now,
          And bless you evermore.

          What is your favorite Irish poem, blessing or toast? Share on this Saint Patricks Day.

          1 week ago

          Ksmiles123

          Ksmiles123Hello! Below is information on poor appetites and weight gain strategies.

          Tips for Proper Nutrition When Your Appetite is Poor

          Written by: Carrie Gleeksman, M.S, R.D., National Jewish Health ,Denver, Colorado
          Reviewed by: Timothy Aksamit, M.D.
          Pulmonary Disease and Critical Care Medicine,Mayo Clinic, Rochester, Minnesota
          Phung Lam, Ph.D., University of California, San Diego Medical Center

          Eat five to six small meals a day and snack whenever you are hungry.
          Determine what times of day you are most hungry, make sure to eat at those times, and do not limit how much you eat.
          Have snacks ready to eat, include 2-3 designated snack times each day between meal times.
          Eat nutritious snacks that are high in calories and protein.
          Keep your favorite foods on hand for snacking and meals (such as frozen dinners).
          Add calories and protein to foods by adding sauces, gravy, butter, cheese, peanut butter, cream, and nuts. Calorie-boosting ideas are listed later in this pamphlet.
          Fat is a concentrated source of calories. Small amounts of vegetable oil, butter or margarine can increase the calorie content of any food.
          Use higher calorie versions of foods you eat (butter crackers or cheese crackers instead of soda crackers).
          Avoid “lite” products (skim milk, low fat yogurt and cottage cheese, reduced calorie mayonnaise, low-fat salad dressings, etc).
          Don’t fill up on fluids. Drink fluids between meals rather than with meals. Drinking during a meal can make you feel full quickly.
          Avoid filling up on low calorie foods like salad at meal times; instead eat heartier foods first.
          Choose nutritious drinks, such as whole milk, milkshakes, and juices. Consider supplemental drinks such as Boost®, Ensure®, or Scandishake®.
          Ask family members or friends to prepare foods when you are too tired to cook. Ask them to shop for groceries or buy pre-cooked meals.
          Try to eat in pleasant surr ...

          1 week ago

            AnnaFJ

            AnnaFJ

            Hi all.. I'm looking for some support and advice about the journey ahead for my 16 year old son. He has severe bronchiolitis obliterans and bronchiectasis following a bout of influenza a and MRSA that lead to necrotising pneumonia. He has been diagnosed with NTM (m.abcessus) and is to commence multi drug therapy after Easter. They haven't sugar coated it, it's going to be awful. He will be hospitalised for a minimum of 6 weeks and meds will be primarily IV. They are looking a a therapy of up to 5 drugs..
            what can we do to get him into the best shape possible before the treatment? He has a PEG, as he is severely underweight.. he is only just getting his appetite back after initially becoming unwell in late June of last year...
            He's terrified that this is going to

            1 week ago

            • Click to View All Comments8 comment(s) -
            • Ksmiles123Great suggestion! Keeping accurate records, copies of all reports will save you headaches along the way.1 week ago

            • MerryHi AnnaFJ,
              I am so sorry to hear about your son! It's heartbreaking for a parent standing beside a sick child and not being able to FIX it, like we did when they were little.

              It's great he's gotten some appetite. Gaining some weight now will help his body through the next phase of treatment. If it were my son, I think I'd be pushing the Big Macs and fries right now. :)

              I want to second KSmiles' recommendation for yoga. I can imagine that will be a tough sell to a 16 y.o. boy! But there are plenty of stretches that can be done in a chair or sitting up in a hospital bed, and it has all kinds of therapeutic effects.

              My 18 y.o. daughter would recommend World of Warcraft for maximum distraction. ;) But he may not have the energy for video games. Don't forget audiobooks and podcasts as those take very little energy and can be very immersive. I could point you to some sources (again, courtesy of dear daughter) if he like geeky stuff.

              Finally, remember to TAKE CARE OF YOU! Caregiver stress is a detrimental thing, as I'm sure you already know. How about some yoga for mom? :)1 week ago

            • Ksmiles123Yes, so very important,
              Caretakers often forget to take care if themselves as well.
              As parents, we put our children first. But , a great analogy is that we must put the masks on ourselves, similar to being on the airplane,
              then we can assist others in need.
              If we don't get the assistance we need, nor have the strength, we will not be as effective.1 week ago

            Made Pramana

            Made PramanaHello, good morning friends. This morning I went to the field and had a yoga exercise with "Seger Oger Group." I felt sharp pains in my chest and was a little bit distracted. However after thirty minutes and after finished the surya namaskara I feel the mucus and coughed. It felt so great to clear the mucus. Then after the yoga session finished I coughed and release mucus again. I stayed in the field and had some chat with friends there. When I went home I coughed and release mucus again. Coughed three times this morning which is great! Have a good night. I hope the weather will be stable and not so cold.

            1 week ago

            Gretchen

            Gretchen

            Is anyone in the path of the Nor'easter that is headed towards the East coast? DC is expected to get 6-8 inches of snow tonight through tomorrow. Stay safe and warm all!

            2 weeks ago

            Gretchen

            GretchenThe Bhagavad Gita claims that, "Yoga is the journey of the self, through the self, to the self." The benefits are vast on both a physical, mental and emotional level. The controlling of the breath leads to reduction of stress, quieting of the nervous system and cleansing of the systems. I found an article depicting the top 5 yoga poses for individuals with Chronic Lung disease, including Bronchiectasis. There is no harm in trying, right? To opening your chest and breathing more easily:
            https://hubpages.com/health/Five-Yoga-Poses-to-Benefit-the-Lungs

            2 weeks ago

            Ksmiles123

            Ksmiles123Hello! The link below is a great review of the function of sinuses. I forgot what the purpose of your turbinates was. The video will give you a better understanding why it is so importance of covering your nose and mouth with a scarf in the cold weather . Also, the video will help you understand the rationale for daily nasal rinses .
            http://www.webmd.com/allergies/video/sinus-function-breathing

            2 weeks ago

              Ksmiles123

              Ksmiles123

              Good morning! I hope that you remember to set your clocks ahead one hour. Tis hard to believe it is this time of year already; we had little snow. As the clocks are set forward, I find this a good time to reflect about going forward; spring is around the corner, St. Patrick’s Day is on Friday.
              It is the time of the year to think about our vitality goals, within our limitations due to bronchiectasis/NTM. Where are you now regarding nutrition, exercise, sleep? Where do you want to be, within reason of our limitations? What is your action plan, small steps to go forward? It is important to have measurable goals.
              One of my favorite old clichés is “Worry is a substitute for not taking action”. A small step, such as pushing oneself to do 5 minutes of exercise or selecting healthier foods in the evening which may affect our sleep may make you feel better. I look forward to hearing your comments. We are all on this journey together.

              2 weeks ago

                Made Pramana

                Made Pramana

                2 weeks ago

                Made Pramana

                Made Pramana

                Just finished doing yoga. Have a good day my friends.

                2 weeks ago

                • Click to View All Comments12 comment(s) -
                • GretchenMade, I hope you make it back to medical school...with your compassion and understanding, you WILL make a wonderful doctor someday!1 week ago

                • Made PramanaGretchen thank you so much for your encouragement. I really appreciate this. I hope I will be more healthier physically and mentally so I can be productive, do good things for other people and feel good with myself.1 week ago

                • Ksmiles123Believe! I hope and pray that you will find the strength to make dreams come true.
                  Yes, you would make a great doctor, via your life experiences, your compassion.
                  The fact that there is 1)this website, 2) more research being done worldwide, )3 several inhaled antibiotics in the pipeline with less systemic effects, gives me great hope 4) more patient involvement in treatment options and research...etc.
                  I know you will use your time wisely by starting to study a specific topic in the interim.
                  I have never stopped reading, studying, learning; it keeps us going. :)))))
                  I wish you the very best!!!
                  1 week ago

                Kristen

                Kristenanswered the question Remembering John W. Walsh

                It is hard to believe he is really gone. What a life well lived, as they say.

                2 weeks ago

                Gretchen

                GretchenLack of sleep, sleep deprivation or sleepiness can be depressing and lead to chronic health issues. Sleep affects a multitude of things in our lives. With Daylight Savings Time just a few days away, WebMD has some tips about what you can do to reset your internal clock in order to adapt more quickly to these changes. Start now! If you have any suggestions as to what has worked for you in the past, please share! We will all sleep better because of it.
                http://www.webmd.com/sleep-disorders/features/coping-with-time-changes

                2 weeks ago

                • Ksmiles123Thank you for the reminder of daylight savings time!!
                  I view this time as positive,
                  More daylight , spring is around the corner. We will have time to get out for a walk in the daylight /evening if we are up to it.
                  Re: sleep, I recently started drinking golden tea, which consists of warm almond milk, turmeric, nutmeg, 1 drop of marshmallow extract.
                  It helps me sleep.
                  Has anyone else tried it?
                  😀2 weeks ago

                • KandyMy clocks are changed.2 weeks ago

                Kandy

                Kandy

                We are back to winter 11 with -8 wc. We are in a weather advisory for today and weekend. Don't want to go out but have xolair shots and rehab. BRRR

                2 weeks ago

                Merry

                MerryTwo researchers at Oregon State University are seeking people with rare diseases to complete an online survey about their needs for emotional and physical support. Please help if you can and fill out the survey. It took me about 30 minutes to complete. http://oregonstate.qualtrics.com/jfe/form/SV_7VEgG8kwTizenAN

                2 weeks ago

                Vinny M

                Vinny Mvoted on The Basics of Acid Reflux

                Gave a thumbs up for a blog post!

                2 weeks ago

                Ksmiles123

                Ksmiles123Below is an informative CDC article, entitled, Know When Antibiotics Work, with frequently asked questions on antibiotics and antibiotic resistance.
                I feel that fully understanding this information will empower us to take better control of our health, medication management. Misuse of antibiotics can lead to antibiotic resistance and deterioration of our gut health.

                https://www.cdc.gov/getsmart/community/about/antibiotic-resistance-faqs.html

                2 weeks ago

                  Ksmiles123

                  Ksmiles123answered the question When to start antibiotic?

                  Here is important information on antibiotic resistance.:) http://www.webmd.com/cold-and-flu/antibiotic-resis...
                  Kandy also answered the question Kandy also answered the question

                  2 weeks ago

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                  Medical Advice

                  It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.