Delia

DeliaThe COPD Foundation has been monitoring the global pandemic of a disease caused by the recently identified coronavirus family member SARS-CoV-2 named coronavirus disease 2019 (abbreviated as "COVID-19"). We are working with our medical and scientific experts to ensure that accurate information is shared with our community. The COPD medical and scientific community would like to hear from you about your experience with the COVID-19 pandemic so we can serve you better and address your needs. Please click the link below to complete a questionnaire about your experience with the COVID-19 pandemic. 


https://www.surveymonkey.com/r/2SF7299 


We anticipate administering this questionnaire approximately bi-weekly until the COVID-19 pandemic resolves. You are not required to provide personal information in your responses to the questions in this survey.

3 days ago

Gretchen

GretchenPlease stay up to date about COVID-19: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1553/A-Coronavirus-Update-for-the-COPD-Community.aspx We continue to update and all information is reviewed by the COPD Foundation Medical and Scientific Advisory Committee (MASAC).


6 days ago

Ksmiles123

Ksmiles123

Hello! How are you coping with the current crisis?

6 hours ago

  • GretchenThe isolation is difficult, but know that this is a necessary step. Still working but reading more and trying to get out for walks as often as I can. The weather is luckily getting nicer in DC which makes it more enjoyable. The news is alarming and doing my best to have a media diet and not consume it 24 hours. 
    How are you doing K?5 hours ago
Ksmiles123

Ksmiles123

17 hours ago

Ksmiles123

Ksmiles123Hello! The link below discusses wearing protective ://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1553/A-Coronavirus-Update-for-the-COPD-Community.aspx#February28Update

1 day ago

Ksmiles123

Ksmiles123Hello! I hope that you are ingesting vitamin D rich foods at this time.  Vitamin D comes in liquid form and injection if you are unable to ingest oral vitamin D. https://www.everydayhealth.com/news/illnesses-linked-vitamin-d-deficiency/?slot=2&eh_uid=76390480&xid=nl_EHNLwomenshealth_2020-04-07_19954148&utm_source=Newsletters&nl_key=nl_womens_health&utm_content=2020-04-07&utm_campaign=Womens_Health&utm_term=creativeA

1 day ago

Sergio M.

Sergio M.voted on COPD Foundation Resources on Coronavirus (COVID-19)

Gave a thumbs up for a blog post!

1 day ago

Brandon

Brandon voted on COPD Foundation Resources on Coronavirus (COVID-19)

Gave a thumbs up for a blog post!

2 days ago

Ksmiles123

Ksmiles123Hello! How are you coping today?https://www.verywellmind.com/protect-your-mental-health-during-quarantine-4799766

2 days ago

Bret99

Bret99voted on COPD Foundation Resources on Coronavirus (COVID-19)

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2 days ago

Gretchen

Gretchenadded a new article COPD Foundation Resources on Coronavirus (COVID-19)

The COPD Foundation continues to monitor the outbreak of the novel coronavirus disease (COVID-19). As time progresses, our medical and scientific experts learn more how the disease behaves, and they continue to provide important information and recommendations to our community.

What is COVID-19?


COVID-19 is a new disease caused by a novel coronavirus that is different than the common cold, flu, or pneumonia. COVID-19 is spread from one person to another through respiratory droplets that are spread when an infected person sneezes or coughs from less than 6 feet away. One can also be infected from touching contaminated surfaces and then touching the eyes, nose and/or mouth.

Symptoms of COVID-19

According to the Centers for Disease Control and Prevention (CDC), reported illnesses have ranged from mild symptoms to severe illness and death for confirmed COVID-19 cases. Symptoms include fever, cough, and shortness of breath. These symptoms may appear 2-14 days after exposure.

2 days ago

Joanna

Joanna

I was diagnosed with Bronchiectasis 2012 . I was 59 years old , went to drs know dr could diagnose me right 
always sick , lung infections then discovered the Mac , my disease was very advanced . Iโ€™ve got constant  puedemonus 
Iโ€™ve had 3 IV PICK LINES , getting ready to go on my fourth . I have  mycobacterium abscesses , will be on this IV six months , then 18 months antibiotics . I pray for treatments to help the disease , not so harsh so much side effects 
      All the stomach problems , these harsh treatments cause . This last bacteria is the roughest as being sick Iโ€™ve dealt with yet , prayers to all the people deal with this dreadful disease ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™
 

3 days ago

Ksmiles123

Ksmiles123

Hello! Vitamin A rich foods are important to assist our immune systems. Please revise the list of foods below: https://draxe.com/nutrition/top-10-vitamin-a-foods/

3 days ago

Ksmiles123

Ksmiles123

Hello!  Are you wearing a mask if and when you go outdoors? I wore one outdoors yesterday when I went for a walk- I did get a funny look from one woman, however,our well being is more important than a funny look from a stranger.  Stay safe! The link below provides instructions on how to make a mask at home.

3 days ago

Ksmiles123

Ksmiles123Hello! The link below reviews the basic respiratory issues; this may assist you with a differential diagnosis & or preparation for when you speak w your doctor via Tele medicine:  https://www.onhealth.com/content/1/respiratory_infections_causes

4 days ago

Ksmiles123

Ksmiles123Hello! Link below reviews corona virus on fabric ; the virus will die over time when it does not come in contact with a cell.https://www.medscape.com/viewarticle/927973?nlid=134833_4622&src=WNL_mdplsnews_200403_mscpedit_nurs&uac=287092CY&spon=24&impID=2334296&faf=1

5 days ago

Ksmiles123

Ksmiles123

Hello! Good news: Studies are showing that this drug is really combatting the immune response; this is offering me hope since I have a hyperactive immune system :https://www.usnews.com/news/us/articles/2020-03-27/sun-pharmas-us-unit-donates-hydroxychloroquine-sulfate-tablets-in-fight-against-coronavirus

5 days ago

Ksmiles123

Ksmiles123

Hello! How are you doing today?
I am taking all precautions and taking one day at a time.

5 days ago

  • NewestOldest
  • KristenThat sounds like a positive approach, Ksmiles. I find that I feel better if I do not become overly consumed by the news. We can be cautious and informed without becoming too immersed in the crisis.3 days ago
  • Ksmiles123Kristen,
    I wholeheartedly agree!  Initially, I was watching the news more than I  would recommend.  It is depressing, even though we may accept it as news as we watch it.   Unconsciously, it cam really take a toll on our physical and mental health energies.1 day ago
Ksmiles123

Ksmiles123

Hello! Blood plasma treatments have started: https://www.medscape.com/viewarticle/927716

5 days ago

Sergio M.

Sergio M.voted on Coronavirus and the NTM Patient

Gave a thumbs up for a blog post!

5 days ago

SunnyB

SunnyB

Good

5 days ago

Ksmiles123

Ksmiles123Hello! Update News on corona vaccination:https://triblive.com/local/pittsburgh-allegheny/pittsburgh-scientists-say-coronavirus-vaccine-could-be-fast-tracked-after-key-animal-testing/

6 days ago

Ksmiles123

Ksmiles123Hello! I hope that you are taking all precautions re: food shopping -https://www.healthline.com/health-news/worried-about-contaminated-groceries-how-to-be-safe?slot_pos=article_1&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=diabetes&utm_content=2020-04-02&apid=25246343

6 days ago

Ksmiles123

Ksmiles123Hello! Are you taking your vitamin D? What was your last Vit D level? Vitamin D comes in liquid form injection as needed. https://www.healthline.com/nutrition/vitamin-d-coronavirus?slot_pos=article_1&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=generalhealth&utm_content=2020-04-02&apid=25246343#bottom-line

6 days ago

Clare Christine

Clare Christine

I am having an exasperation with my MAC. Been feeling pretty sick, but am getting back on my feet and starting to go on walks again and jump on my trampoline

6 days ago

Ksmiles123

Ksmiles123Hello! Are you wearing a mask when you go out?https://www.nationaljewish.org/patients-visitors/patient-info/important-updates/coronavirus-information-and-resources/health-tips/who-needs-a-facemask-and-why?utm_medium=email&utm_source=EN&utm_campaign=HealthInsights+April+1+2020&utm_content=Health+Insights+-+April+1+2020

1 week ago

Kandy

Kandyvoted on Coronavirus and the NTM Patient

Gave a thumbs up for a blog post!

1 week ago

Ksmiles123

Ksmiles123Hello! A positive diversion: https://www.playbill.com/article/15-broadway-plays-and-musicals-you-can-watch-on-stage-from-home

1 week ago

Ksmiles123

Ksmiles123

Hello! The link below discusses ventilators.  I just want you to understand that ventilators do not mean a death sentence.  A ventilator assist one breathing throughout the corona virus crisis for approximately 7-14days.  Some patients are weaned off the ventilator and continue to live their lives.  Unfortunately, others are never weaned off the ventilator.https://health.howstuffworks.com/medicine/modern-technology/ventilators.htm

1 week ago

Brandon

Brandon voted on Coronavirus and the NTM Patient

Gave a thumbs up for a blog post!

1 week ago

Made Pramana

Made Pramanavoted on Coronavirus and the NTM Patient

Gave a thumbs up for a blog post!

1 week ago

Ksmiles123

Ksmiles123Hello! Below is a story of HOPE and the Corona Virus :https://www.express.co.uk/news/uk/1260673/Coronavirus-cystic-fibrosis-covid19-latest-news-lung-disease

1 week ago

Kelly Murphy

Kelly Murphycommented onMy Journey with Lung Disease: Referral and Initial Treatment

 Wow. I appreciate your sharing and your example of persistence and courage. I'm sure everyone reading this wishes you well. Thank you, John....

1 week ago

Gretchen

Gretchenadded a new article Coronavirus and the NTM Patient

Do you find yourself living in great fear since the outbreak of the corona virus?

Fear can paralyze us and create anxiety when we feel out of control. But we can also find an opportunity to practice letting go of the control we think we have. Awareness of our limits in the here and now is the antidote. I believe that we must accept the things we cannot change. And, we must change the things we can. For example, infection-control procedures in your home, getting involved in diversional...

1 week ago

Ksmiles123

Ksmiles123

1 week ago

warhero

warhero

worried and getting anxious,about all around me,tend to  feel illish when im ok i think

1 week ago

  • NewestOldest
  • Ksmiles123War hero,
    Hello! It is normal to feel worried, anxious.  What do you mean by feeling ill ish?1 week ago
  • GretchenWarhero, welcome to 360social. I think a lot of people are experiencing heightened anxiety these days. Try to take it one day at a time and do your own due diligence to take the precautions when shopping or leaving the house. I hope today brings some calm in your mind and body.1 week ago
  • KandyHi Warhero welcome to the group.  I am dealing with it one day at a time I am used to being home a lot so it doesn't bother me as much.  I know the younger generation that are always on the go it my opinion affects them more. I got a couple daughters in there 30's that are having a hard time of it.  We did have a social distancing Saturday in the yard in our lawn chairs.  It helped.  We have no virus in our county or town we are rural area.  There are 108 cases so far 1 death in my state.  This next couple weeks sound like a lot more maybe showing.  Stay safe everyone!! 1 week ago
Ksmiles123

Ksmiles123Hello! The video below is in grocery shopping safety.https://m.youtube.com/watch?v=sjDuwc9KBps&feature=youtu.be

1 week ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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