WalshKTF

WalshKTFSAVE THE DATE: IMPACT Lung Health 2023

Our virtual advocacy day is planned for Tuesday, March 14, 2023. Join us in requesting $150M for lung health research from your Congressional Leaders. More details on training to come.

Please register to participate here: https://www.surveymonkey.com/r/IMPACT2023Registration

3 days ago

Ksmiles123

Ksmiles123

Please join BronchandNTM360social for our monthly “Coffee Break” held the second Wednesday of every month. These virtual events gather our community informally to catch up, get to know each other, provide education, and ask your most pressing questions. Patient ambassadors John Torrence and Katie Keating, RN lead the discussions. The next event is scheduled for Wednesday, February 8th at 3 p.m. EST. The topic is “Alpha-1 Antitrypsin Deficiency: An Underappreciated Cause of Bronchiectasis and NTM Infection” presented by Robert A. Sandhaus, MD, PhD, FCCP. Dr. Sandhaus is a Pulmonologist, Professor of Medicine, and Director of the Alpha-1 Program at National Jewish Health.To register for this Zoom event and receive details on how to connect, click here: https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG



Welcome! You are invited to join a meeting: Monthly BronchandNTM360social Coffee Break. After registering, you will receive a confirmation email about joining the meeting.

4 days ago

Ksmiles123

Ksmiles123

Hello! How are you dealing with the extreme weather changes? 

21 hours ago

  • NewestOldest
  • KandyI don't deal with it very good my lungs really act up.  First its way below zero then its up in the 30's  changes all the time.  19 hours ago
  • Ksmiles123The 30s sounds like a heat wave! It was 8 here this morning. The extreme cold weather causes bronco spasms in some patients. 17 hours ago
  • laff4evr
    Yesterday, it was so cold.... I got brain freeze drinking hot chocolate.5 hours ago
Ksmiles123

Ksmiles123Today is National Women’s Physicians Day! https://nationaltoday.com/national-women-physicians-day/

1 day ago

ChristinaH

ChristinaH

Welcome chrissy​! We are glad you are here! 

1 day ago

Ksmiles123

Ksmiles123asked the question: Nebulizers

Hello! Do you have any specific questions about nebulizers and or the type of medications you use in a nebulizer? The link below, Nebulizers 101 will provide you with some helpful information. Please let us know if you have any questions? https://www …

1 day ago

Ksmiles123

Ksmiles123asked the question: Aspergillis

Have you heard if the term “ aspergillosis” before? It is a mold that can affect the respiratory system https://www.mayoclinic.org/diseases-conditions/aspergillosis/symptoms-causes/syc-20369619

2 days ago

ChristinaH

ChristinaH

Welcome to the community Federica Harvey​!

2 days ago

Ksmiles123

Ksmiles123

3 days ago

Ksmiles123

Ksmiles123

Hello! Happy February! Tis the shortest month of the year and spring is to follow 😄.
We will be focusing on getting the most from your therapies and heart health throughout the month.
This will include medication management, including the big 3 for NTM, other NTM medications, inhalers, nebulizers, steroids, oxygen, nutrition, and exercise.  Please post any questions regarding this subject matter.  We are here to support you on the journey.

3 days ago

Ksmiles123

Ksmiles123Hello! We need to read about new drugs and therapies in the pipeline to boost our spirits at times. Please read the article below, especially the paragraph with the quote from Ruth Tal-Singer, PhD, President of 360Net https://rtmagazine.com/disorders-diseases/chronic-pulmonary-disorders/copd/copd-patients-open-antiviral-nasal-spray-reduce-seasonal-flare-ups/?utm_term=COPD%20Custom%20Newsletetr%20Jan%202023&utm_campaign_type=newsletter&utm_hsid=346581813&utm_medium=email&_hsmi=243943954&_hsenc=p2ANqtz-_xfON-42k3p-rh5hhpxLy_p_SP9SnwSfa0U2ZVXE9yus_1Hc8Zd5r8p8lmiIvSBnhrpr_4ELp96hzjLf6C7JX1LOnXeA&utm_source=newsletter

4 days ago

Fancy

Fancy

😔

4 days ago

ChristinaH

ChristinaH

Welcome Lori2015​ to the community! 

5 days ago

WalshKTF

WalshKTFvoted on MAC2v3 study update – December 2022

Gave a thumbs up for a blog post!

5 days ago

WalshKTF

WalshKTFvoted on Tips for Those Newly Diagnosed Bronchiectasis and NTM lung Disease

Gave a thumbs up for a blog post!

5 days ago

Ksmiles123

Ksmiles123

Are you a newly diagnosed Bronchiectasis patient? The link below provides some helpful information:https://www.bronchiectasisandntminitiative.org/Bronchiectasis/Bronchiectasis-Resources/Bronchiectasis-FAQs

5 days ago

ChristinaH

ChristinaH

Happy Monday BronchandNTM360social community! How's the weather outside your window? Did anyone get a heap of snow this weekend? Snap a pic and share it with us! 

5 days ago

ChristinaH

ChristinaH

Welcome Katbev​ to the community! 

5 days ago

ChristinaH

ChristinaH

Welcome MF21​ to the community! 

5 days ago

Ksmiles123

Ksmiles123Hello! New drugs and treatments are in the medical pipeline. Hold onto the 🎁 of HOPE. 

6 days ago

Ksmiles123

Ksmiles123

Hello! Are you taking precautions to avoid the reoccurrence of exposure to NTM? The blog article below offers some suggestions:https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/110/Avoiding-Environmental-Exposure-to-NTM

6 days ago

Ksmiles123

Ksmiles123

Hello! The blog article below reviews the basic diagnostic tests for respiratory patients: https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Check-In-Basics-of-COPD-Diagnostic-Tests.aspx

1 week ago

ChristinaH

ChristinaHEuropean Lung Foundation Bronchiectasis Patient Conference

ELF is holding its third Bronchiectasis Patient Conference. It will take place virtually on Sunday 12 March 2023 at 10 CET. The event is open to anyone interested in learning more about bronchiectasis. The conference has been planned with the ELF Bronchiectasis Patient Advisory Group and with clinicians from EMBARC (European Multicentre Bronchiectasis Audit and Research Collaboration). 

Talks will be recorded and made available online after the event. 


More details about the event can be found on the ELF event page: https://europeanlung.org/en/get-involved/events/bronchiectasis-patient-conference-2023/  


Link to register: https://www.eventbrite.co.uk/e/bronchiectasis-patient-conference-2023-registration-514708806897

1 week ago

Ksmiles123

Ksmiles123

Hello! Tis almost the end of January. One more month before the signs of spring begin to arrive in March. How are you doing today? 

1 week ago

ChristinaH

ChristinaH

Hi Sean Yit​. Welcome to the community! 

1 week ago

JohnT

JohnTI would like to remind everyone that we are still conducting our Home Sputum Project. If you would like to receive a FREE home sputum test conducted by one of the best labs in the country, either click the link below or copy and paste the info into your search engine. Give this information to your pulmonologist or infectious disease provider and have them sign you up for this great service. This is a limited time project.

https://www.copdfoundation.org/Research/Research-Projects-and-Consortia/Sputum-Home-Collection.aspx

1 week ago

ChristinaH

ChristinaH

Welcome Rickie​ to the community! If you have questions or need feedback or just want to say "hello", feel free to post! 

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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