Lainey301

Lainey301answered the question NTM MAI and the bird connection

I think i got this ntm and bronciectisis from some kind of mite, bird or rodent. I moved to this apartment a two years ago and six months later I was getting stinging sensations with severe itching it is still gowing on. Never had lung problems or …
MerryKandy also answered the question Merryand 1 other also answered the question

8 hours ago

Ksmiles123

Ksmiles123Hello! Many of you most likely had heard of hot tub lung and several have been diagnosed with hot tub lung. The below link reviews the causes of hot tub lung with pictures.
http://www.wisegeekhealth.com/what-is-hot-tub-lung.htm
I am posting this as a reminder of the dangers of hot tubs, now and throughout the year with indoor hot tubs.
Please share your experience if you have been diagnosed with hot tub lung.

15 hours ago

  • Made PramanaHi Katie. Thank for reminding this! I will be careful not entering inddor hot tubs. Do you think it's possible for us to go to natural hot springs?6 hours ago

Made Pramana

Made PramanaJust arrived home this evening after praying in two temples. The smoke from the incense sticks was too much. It's okay. I learned that I should come to the temple early and avoid mass number of people. I had a fun talk with my friend. I enjoyed this day. Thank you.
(Today is "Saraswati Day." It's about doing prayer and tell gratitude for knowledge and education.)
Have a good weekend everyone.
Here is a picture of Jagadnatha Temple, Denpasar, Bali. 😊

16 hours ago

  • Ksmiles123Made,
    I can relate. I sit in the very last pew at church during the times they may use incense. The ventilation is better in the back and often the doors are open a crack. I had to leave a funeral of a relative recently due to the excessive incense. We must learn to identify our tirggers and take action to care for ourselves. Years ago, I would have remained in church and dealt with the consequences; I no longer take the chance.
    Have a good weekend. 15 hours ago

  • Made PramanaHi Katie! Yes, I need to take care of myself. I should go to the temple when it's not crowded and more empty. :)6 hours ago

Elvie

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20 hours ago

oklawoman

oklawomananswered the question What foods bother your condition? Have you noticed any that have positive or negative effects?

Wowzers! So much good info. I have seasonal allergies well-controlled with a protocol from my sleep apnea pulmonologist. One spray of QVAR in each NOSTRIL followed by one spray of Patanase in each nostril, morning and evening, all year round. To spray …
Ksmiles123kellisRed1and 3 others also answered the question Ksmiles123and 5 others also answered the question

1 day ago

Gretchen

Gretchen

Where will everyone be for the Solar Eclipse on Monday? Do you have your glasses? From Oregon to South Carolina, the skies will darken. Here in the DC area, there is definitely a craze happening!

1 day ago

Kandy

Kandyvoted on The Challenges of Summer for Respiratory Patients

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2 days ago

Ksmiles123

Ksmiles123

Hello! A storm is moving its way in; I feel the impact as I write.
We learn to deal w the storms and how they impact us over time.
How do you deal w the impact of storms on your respiratory system, overall functioning?

2 days ago

Sara L

Sara LHi everyone! I wanted to re-introduce myself. I know some of you already from COPD360social but I work at the COPD Foundation and am so glad to be part of this community.

After reading what Gretchen wrote about diet I found this interesting article from National Geographic about how even reducing your meat consumption a bit helps both your health and the planet. I am not vegetarian but am always looking for good recipes using vegetables. I stumbled across a website and found this interesting breakfast recipe https://reducetarian.org/recipes-source/2015/6/20/sweet-potato-and-kale-breakfast-hash.

I want to try it soon!

2 days ago

Gretchen

GretchenWe have talked a lot about diet, the foods that make us feel better and those we should avoid. The food and drink we consume can help us achieve better health. Read about foods that we should all eat, especially if living with a chronic lung condition.

https://bronchiectasisnewstoday.com/2017/08/10/7-foods-eating-well-chronic-lung-condition/?utm_source=BRO+E-mail+List&utm_campaign=a54b9677e0-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_d9df0e1c03-a54b9677e0-72008673

2 days ago

Ksmiles123

Ksmiles123Hello! I realize that many NTM patients do not take showers , only baths. The link below offers some good tips on overall bathing practices which people without chronic conditions would never think about. Bathing, and other activities of daily living take up a lot of energy on days when energy levels are limited.
Let me know if you feel that any of the listed suggestions are worthwhile for you.

https://themighty.com/2017/08/hacks-tips-showering-chronic-illness/?utm_source=Chronic%2BIllness%2BNewsletter&utm_campaign=32ecb8acd7-EMAIL_CAMPAIGN_2017_08_16&utm_medium=email&utm_term=0_afdeea0335-32ecb8acd7-210544309

2 days ago

Randel

Randelvoted on The Challenges of Summer for Respiratory Patients

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2 days ago

Bret99

Bret99voted on The Challenges of Summer for Respiratory Patients

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3 days ago

Ksmiles123

Ksmiles123

Hello! We all need to chuckle to assist us on good days and bad days.
Today is National Tell A Joke Day. I realize that it is hard to tell a joke when you are not feeling well; however, reading a few jokes may lift your spirits during this time.
http://blogs.loc.gov/loc/2017/08/national-tell-a-joke-day-listen-to-the-earliest-recording-of-one/

3 days ago

Ksmiles123

Ksmiles123

Hello! Indoor air quality is so very important. As I was falling asleep last evening, I remembered that I did not change the filter on the air conditioning unit yet this month. It is so very important to assess/ change these filters regularly since we do not want to breathe in dirty air which may aggravate our lungs. It is advisable to wear a mask and gloves while cleaning/ changing these filters and or cleaning a portable ac unit. Same cleaning measure applies to fans. Exhaust fans in the bathroom need to cleaned regularly as well.
How do you keep track of your AC cleaning schedule?

3 days ago

Ksmiles123

Ksmiles123Hello! A good site for an easier to prepare dinner in a bowl, healthy salads for the warm summer months. Do you have any easy to prepare recipes to share?
https://www.nutritionaction.com/category/daily/healthy-recipes/

3 days ago

    Gretchen

    Gretchenvoted on The Challenges of Summer for Respiratory Patients

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    4 days ago

    Ksmiles123

    Ksmiles123Hello! Below is a link describing how the sun may affect you while on antibiotics.
    Years ago, I burnt like a lobster before realizing that I should not be out in the sun while taking the specific antibiotic. I was beat and more tired for days.
    Prevention is better than cure.
    Have you had a similar experience?
    http://health.howstuffworks.com/medicine/medication/antibiotics-sensitive-to-sun.htm

    4 days ago

    • Brandon I have experienced this different medications, it's surprising how quickly you can go from getting a little color to a full on sunburn. I can completely related to the Lobster look, and luckily my doctor and pharmacists both are good about mentioning to watch sun exposure with different meds.4 days ago

    • Ksmiles123Brandon,
      Glad to hear that your doctor and pharmacist forewarned you. I assumed at that time that I would be ok after taking many different antibiotics without an issue in the sun. 4 days ago

    Made Pramana

    Made Pramanaanswered the question What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

    Hi Sheila F. I would like to share some information about Pseudomonas that I get from an online bronchiectasis forum (www.bronchiectasis.info). Also I would like to say that pseudomonas is a common thing among bronchiectasis patient. I meet many people …

    4 days ago

    Sheila F

    Sheila Fasked the question: What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

    I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

    5 days ago

    Kandy

    Kandyvoted on Energy Management-The Key to Living with NTM/Bronchiectasis

    Gave a thumbs up for a blog post!

    5 days ago

    Kandy

    Kandyhttps://bronchiectasisnewstoday.com/2017/08/08/bronchiectasis-is-leading-risk-factor-for-chronic-cough-danish-researchers-find/?utm_source=BRO+E-mail+List&utm_campaign=7d737f92cc-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_d9df0e1c03-7d737f92cc-71479961

    5 days ago

    • Click to View All Comments6 comment(s) -
    • Made PramanaHi Gretchen and Kristen! Sorry for the late reply. Yes. I didn't mentioned this to you. I always talk about my condition only. πŸ™Š
      Yes, I think her cough is quite frequent. She managed to clear her lungs everyday which is great πŸ˜† About the scoliosis, I think there wasn't much explanation about this. She practices yoga sometimes but not very frequent.
      At this moment I think the things that need to be done for her is to manage her diet and eat on time (she has gastritis). And then she needs to maintain her sleep schedule and her insomnia. And the last is to keep coughing and clear the mucus out of her lungs. 😊1 day ago

    • KristenThanks Pramana -- I hope she is able to keep her symptoms in check. Keep us posted -- we are sending good thoughts to her, as well!1 day ago

    • Made PramanaThank you Kristen!22 hours ago

    Cathy

    Cathyvoted on Energy Management-The Key to Living with NTM/Bronchiectasis

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    5 days ago

    Kandy

    Kandy

    Was told that bronchiectasis is genetic? Destracardia is genetic?

    6 days ago

    Kandy

    Kandy

    6 days ago

    Ksmiles123

    Ksmiles123Hello! Another helpful link to assist you in preparing for doctors appointments.
    Does anyone have any helpful suggestions or interested in sharing your record keeping from multiple doctor visits?
    https://www.nih.gov/institutes-nih/nih-office-director/office-communications-public-liaison/clear-communication/talking-your-doctor

    6 days ago

    Ksmiles123

    Ksmiles123https://www.cdc.gov/salmonella/kiambu-07-17/index.html

    6 days ago

      Ksmiles123

      Ksmiles123answered the question Micobacterium abscessus cure?

      Lorna Lee, Hello! I am sorry to read your update. Do you have light sensors in/ near your bedroom and bathroom for the night hours? You can look up other fall precautions on line since you are really concerned when you wobble. I feel that many of us …
      Merry also answered the question Merry also answered the question

      1 week ago

      Vinny M

      Vinny Mvoted on The Challenges of Summer for Respiratory Patients

      Gave a thumbs up for a blog post!

      1 week ago

      Merry

      Merry

      So happy to see new names and faces joining in the conversations here!

      Yesterday was CT scan day, so I'm just chilling and waiting for results. Hope everyone has a fun Friday and wonderful weekend.

      1 week ago

      Elisha Malanga

      Elisha Malangavoted on The Challenges of Summer for Respiratory Patients

      Gave a thumbs up for a blog post!

      1 week ago

      Red1

      Red1asked the question: What foods bother your condition? Have you noticed any that have positive or negative effects?

      Wonder what foods may or may not affect my condition. Others with experience? Thanks for your responses.

      1 week ago

      Ksmiles123

      Ksmiles123Hello! The link below reviews sinus washes which I feel is so important since
      it is all interconnected. Do you do nasal washes daily?
      http://www.wikihow.com/Flush-Sinuses

      1 week ago

        Made Pramana

        Made Pramana

        Just arrived home from the field this afternoon from doing yoga. Coughed and released mucus (which felt amazing). I'm happy that there is a store near my house that sells yogurt now! I ate the yogurt straight away. Have a good day everyone.

        1 week ago

        Linda Mullin

        Linda Mullin

        Fall and winter weather will soon be approaching, brrrr. Staying inside so much is a major concern for many folks with breathing problems. What to do with that time? I try to stay busy with various projects and hobbies. There is a notepad listing on my refrigerator door to remind me of the current small goal that is my main priority. Does anyone have additional ideas?

        1 week ago

        • Click to View All Comments16 comment(s) -
        • kellisI do a lot of baking and candy making before Christmas. a little wood working but I am also very involved with my church and that keeps me busy too. And now that I have a garage I plan to tinker a little on the motorcycles as well4 days ago

        • Ksmiles123Kellis,
          That sounds like a diversified group of great activities, Enjoy! 3 days ago

        • oklawomanI have 6 throw quilts to make before Christmas. After that, I have a bunch of quilt kits and projects. Love to read, bake, cook.
          Volunteer at church as a Faith Community Nurse and they are aware of my new limitations.
          Was just thinking I could make cookies to give away at Christmas.

          Adjusting to my new normal. Quit teaching as I was in the hospital with nursing students-and was sick most of last winter because of all the serious respiratory illnesses last winter, which led to being symptomatic permanently. Figured the hospital was not a good place to be working. And I don't ever know how I'll be until that day.1 day ago

        Randel

        Randelvoted on Energy Management-The Key to Living with NTM/Bronchiectasis

        Gave a thumbs up for a blog post!

        1 week ago

        Brandon

        Brandon

        Does anyone use a treadmill as part of your exercise routine, how long do you usually walk?

        1 week ago

        • Click to View All Comments5 comment(s) -
        • Brandon I try to stay with a regular exercise goal/plan for the week, and know I feel better after even on the days when it can be hard to get motivated to either get on the treadmill or stationary bike. You're right, it really can help out mentally and physically! I know my duration is shorter some days, but I know I can still get some benefit from it.1 week ago

        • Ksmiles123Brandon,
          Yes, it is sooooo hard to get motivated some days when you just don't feel up to par to begin with.
          However, if you can 'push through" , many do experience the benefits. :)1 week ago

        • KandyI go 3 times a week usually 50 min each. I do 30 on treadmill 1.0 level and up to 2.0 speed. The level is more important than the speed the specialists say. 20 min on the nu step. Started in 2012 at pulmonary rehab. Oh I have missed thru out these years being sick and dr appts. I keep trying to stay with it. Have a treadmill at home this is not the best its old and needs something sure not as nice as the ones at rehab. Cheap when I bought it. 1 week ago

        JD

        JDvoted on The Challenges of Summer for Respiratory Patients

        Gave a thumbs up for a blog post!

        1 week ago

        Ksmiles123

        Ksmiles123Hello! A good review on medications. It is easy to forget whether or not you have taken a medication or not when you are not feeling well and are very tired.
        Creating a plan, a regular routine will assist you with this task.
        Do you have any tips which you use to remind you to take your meds?
        http://www.caringvoice.org/2017/06/getting-know-medications/

        1 week ago

        Bret99

        Bret99August is usually a humid month, making it uncomfortable for most and especially those living with a respiratory disease, to be outside for any length of time. Here is a blog post from COPD360social and the Importance of Indoor Air Quality and what you can do to make sure you are breathing the cleanest possible air.

        https://www.copdfoundation.org/COPD360social/Community/Blog/Article/563/The-Importance-of-Indoor-Air-Quality.aspx

        1 week ago

        • Ksmiles123Bret,
          Yes, too often we focus on the outdoor air quality and do not pay as much attention to the indoor air quality when we are not feeling up to par.
          Taking care of our dwelling, a little each day will assist us in keeping our indoor air quality up to par.1 week ago

        Ksmiles123

        Ksmiles123Hello! A good article re: MD visits.
        https://bronchiectasisnewstoday.com/2017/06/05/nine-questions-to-ask-the-doctor-about-your-bronchiectasis/
        Preparation is key. Do you have any comments or suggestions to add?

        2 weeks ago

          Kandy

          Kandyhttps://bronchiectasisnewstoday.com/2017/07/28/non-cystic-fibrosis-bronchiectasis-candidate-therpay-nda-submitted-for-linhaliq-for-p-aeruginosa-infection/?utm_source=BRO+E-mail+List&utm_campaign=9a3df74328-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_d9df0e1c03-9a3df74328-71479961

          Didn't know if this has been posted yet or not!!

          2 weeks ago

          LornaLee

          LornaLeeasked the question: Micobacterium abscessus cure?

          I was diagnosed with this NTM in 2014, and recently my pulmonary doctor has told me he sees progression of growth in my CT's of suspect new activity of the disease. I thought we had beat it back. Now do I start all over? Doing the three tests AFB again. …

          2 weeks ago

          LornaLee

          LornaLeevoted on Key points from NYU NTM Patient Education Seminar, QOL Segment presented by Betsy Glaeser

          Gave a thumbs up for a blog post!

          2 weeks ago

          LornaLee

          LornaLeevoted on The Challenges of Summer for Respiratory Patients

          Gave a thumbs up for a blog post!

          2 weeks ago

          Brandon

          Brandon voted on The Challenges of Summer for Respiratory Patients

          Gave a thumbs up for a blog post!

          2 weeks ago

          Ksmiles123

          Ksmiles123answered the question Travel masks?

          Hello Kristen, I have used an I 95 mask on an airplane in the past. I carry one with me in case I am sitting by someone who may be coughing. Ventilation on a plane is not great . I will take any one essay precaution not to get an infection at this point …

          2 weeks ago

          Kristen

          Kristenasked the question: Travel masks?

          Hi everyone, Has anyone tried using masks when they travel to minimize risk of exposure to illness? What have you tried -- and have they worked for you? Thanks!

          2 weeks ago

          Ksmiles123

          Ksmiles123Hello! NTM /Bronchiectasis falls under the umbrella of a COPD diagnosis.
          The link below is a good review of many discussions we have previously posted over the past months..
          I feel that it takes repetition of reading similar topics over and over again until we can really take the small steps needed to create real changes which will truly help us.
          Please comment on which suggestion assists you the most. I hope that you have a good day!
          http://www.everydayhealth.com/copd/managing-copd/?xid=nl_EverydayHealthHealthyLiving_20170801

          2 weeks ago

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            Medical Advice

            It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.