BronchandNTM360social welcomes new member Hummingbird who joins 4,132 current members of our community. We’re glad you're here!

360Coach Brandon

360Coach Brandon Hello everyone! 

Our next BronchandNTM360social Coffee Break will be on Wednesday, October 9, 2024, @ 3 pm ET.

We will be joined by Mike Hess, MPH, RRT, RPFT, the COPD Foundation’s Senior Director of Advocacy and Regulatory Affairs, to discuss important things to consider about Medicare ahead of the annual enrollment period. Mike also leads the Foundation’s oxygen therapy programs and will review this year’s World Oxygen Day event, which occurred on October 2 (“O-2”).

Below are some helpful resources related to our discussion:

World Oxygen Day | COPD Foundation
https://www.copdfoundation.org/Take-Action/Get-Involved/World-Oxygen-Day.aspx

Oxygen Therapy
https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx

Medicare & You | Medicare
https://www.medicare.gov/medicare-and-you

How Much Does Medicare Pay for Portable Oxygen Concentrators
https://www.medicarefaq.com/faqs/medicare-coverage-for-oxygen-therapy/

We open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. We will save any health-related discussion for the start of the meeting.


The meeting registration link is here: 
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration

Looking forward to seeing you all Wednesday!

1 day ago

Ksmiles123

Ksmiles123asked the question: Do you understand what Medicare Part B covers?

Medicare Part B covers two types of services. The link below reviews the details of what is covered by Medicare Part B: https://www.medicare.gov/providers-services/original-medicare/part-b

15 hours ago

Ksmiles123

Ksmiles123answered the question Do you own a pulse oximeter?

Lorem, It is great to be equipped with a tool that may help us to identify what is going on in our bodies when we are not feeling well.
Loremlaff4evr also answered the question Loremand 1 other also answered the question

20 hours ago

Ksmiles123

Ksmiles123

Hello! Choosing a Medicare plan can be overwhelming and confusing for many people. Medicare plans, consist of several different letters- like alphabet soup.:). To begin with, Medicare Part A helps pay for inpatient care you get in hospitals, critical access hospitals, and skilled nursing facilities. It also helps cover hospice care and some home health care. Let us know if you have any specific questions on Medicare part A. 

1 day ago

Ksmiles123

Ksmiles123asked the question: Do you own a pulse oximeter?

Pulse oximeters are a small piece of plastic equipment that you place on your finger to check your oxygen levels. They are a noninvasive, reasonably priced and easy to use tool to use. The article below reviews the top rated pulse oximeters with the …

2 days ago

Ksmiles123

Ksmiles123

Hello! Do you have any specific questions about oxygen therapy?  We are here to answer your questions. In addition, Oxytalk Social Hour is a monthly meeting, led by Michael Hess, RT on the 2nd Wednesday of each month at 4pm. 
Please let us know if you are interested in registering for the upcoming meeting on October 9th at 4pm. 

2 days ago

Kandy

KandyWorld Oxygen Day!! Some just need a little more!!

3 days ago

Ksmiles123

Ksmiles123Hello! Today , October 2nd- is O2 Day!  Stay up to date with the O2 team today on social media as we share more highlights and opportunities to get involved throughout the day! Looking for more information or resources now? Visit us at WorldOxygenDay.org

3 days ago

laff4evr

laff4evranswered the question Do you currently use oxygen?

I'm currently on oxygen therapy and considering changing my user name to oxygen4evr.

3 days ago

Ksmiles123

Ksmiles123asked the question: Do you currently use oxygen?

YouAndOxygenTherapy.com , created in collaboration with the American Thoracic Society, provides interviews/videos with clinicians and oxygen therapy users. The above link provides very useful information on oxygen therapy to share with anyone who needs …

4 days ago

Ksmiles123

Ksmiles123Happy October to all members of our BNTM community! We will kick off October with World Oxygen Day tomorrow, October 2nd. The link below discusses the event in detail and describes what will happen worldwide . 
https://www.copdfoundation.org/Take-Action/Get-Involved/World-Oxygen-Day.aspx


Please let us know if you have any questions about oxygen therapy or any questions about Bronchiectasis and or NTM throughout the month.

4 days ago

Ksmiles123

Ksmiles123

Have you planned your flu vaccination yet? October is the best time to get the vaccination before flu season begins . Your body needs a few weeks before the vaccination is fully effective, and ready to fight the flu. The article below reviews the basics on flu vaccinations: https://www.cdc.gov/flu/prevent/vaccinations.htm?s_cid=SEM.MS:PAI:RG_AO_MS_TM_A18_F-FLU-StayUpToDate-Brd:when%20to%20get%20flu%20shot:SEM00159&utm_id=SEM.MS:PAI:RG_AO_MS_TM_A18_F-FLU-StayUpToDate-Brd:when%20to%20get%20flu%20shot:SEM00159#when

5 days ago

Alyssa Dittner

Alyssa Dittner

Good morning! Hope every one had a good weekend. My thoughts and prayers are with those affected by the hurricane. I live in NC and the westside of the state had devastating damage. Anyone here have damage? We had a tree fall over in our backyard but the worst of it missed us. 

5 days ago

Storyteller

Storyteller

Has anyone else ever experienced TOBI podhaler capsules being sticky ? I keep it at room temp. In a drawer.

6 days ago

marsrocket

marsrocket

6 days ago

Ksmiles123

Ksmiles123

Autumn 🍂 has arrived, the leaves are starting to fall from the trees. The blog article below reviews some of the concerns for respiratory patients throughout the autumn season: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/59/Foliage-and-the-Respiratory-Patient

1 week ago

Storyteller

Storyteller

what is the best way to sterilize the aerobika ? 

1 week ago

Ksmiles123

Ksmiles123Community support is of utmost importance- whether it is online, in person and or both: 

1 week ago

Alyssa Dittner

Alyssa Dittner**Call to Action: 3 spots left**
A caregiver or support person can be defined as someone who helps with activities of daily living, picks up groceries, helps clean, provides transportation, accompanies you to the doctor and/ provides emotional support. This could be a child over the age of 18, sibling, spouse, partner, or friend.

Help the initiative to understand the everyday impact of
Non-Cystic Fibrosis

Bronchiectasis (NCFBE).

They are looking for adults living with bronchiectasis (without cystic fibrosis), also known as NCFBE, and their
caregivers to participate in interviews. Your experiences may potentially drive change, help inform care, and increase awareness of this under-researched condition. Participants will be compensated for their time. Register now to share your perspective and contribute to creating awareness about bronchiectasis.

https://bronchiectasis-burden.com/us/

1 week ago

Ksmiles123

Ksmiles123

Hello! Below are the Frequently Asked Questions from the NIH on Palliative Care: https://www.nia.nih.gov/health/hospice-and-palliative-care/frequently-asked-questions-about-palliative-care

1 week ago

Kandy

KandyWorld Lung Day is an annual campaign observed on September 25th to raise awareness about lung health and promote better lung care around the world. It endeavours to highlight the importance of healthy lungs and to address the causes and prevention methods of lung diseases.

1 week ago

Ksmiles123

Ksmiles123asked the question: Did you miss the recent webinar on “ How the Lab Works?”

Knowledge is power. Understanding how the lab works can lessen some frustrations on the BNTM journey. The you tube video reviews the basics of labs used for BNTM individuals: https://m.youtube.com/watch?v=gLieUFmA0q0

1 week ago

Ksmiles123

Ksmiles123

Hello! Below is more information on Palliative Care from the World Health Organization: https://www.who.int/news-room/fact-sheets/detail/palliative-care

1 week ago

Ksmiles123

Ksmiles123Did you grow up playing on monkey bars in the local park? I love the quote below - it applies to how we must accept what we have to deal with, let go, commit to doing everything in our power to move forward:

1 week ago

Ksmiles123

Ksmiles123asked the question: Are you familiar with the term “Palliative Care “?

Most people are not familiar with this term. Individuals with chronic conditions may be covered by insurance plans for these services.The link below reviews the services offered and th program in detail. https://my.clevelandclinic …

1 week ago

Ksmiles123

Ksmiles123Welcome Autumn 🍂! Beautiful, cooler, less humid days are approaching. I hope that you enjoy the season.:) 

1 week ago

Ksmiles123

Ksmiles123answered the question Has anyone tried hydrogen inhalation therapy or hydrogenated water?

It reads promising for respiratory conditions but doesn’t specify NTM infections: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8861563/

2 weeks ago

KarenU

KarenUasked the question: Has anyone tried hydrogen inhalation therapy or hydrogenated water?

I have done some reading on hydrogen inhalation therapy. There are references to it being helpful with lung problems and covid, but not specifically to NTM. I have been trying inhaled hydrogen and drinking hydrogenated water for a few weeks and I think …

2 weeks ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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