BronchandNTM360social welcomes new member sissy who joins 3,792 current members of our community. Weโ€™re glad you're here!


Tara COPDF

Tara COPDFYour unique life experience matters. Do you have a lung condition such as COPD, bronchiectasis, or NTM lung disease? We want to hear from you! The COPD Foundation is currently interested in learning more about how experiences differ between patient populations. Take our 10-minute survey to be a part of important research. The survey is anonymous and linked to no personal identifiable information. Thank you in advance for your participation.
 
Click the link to take the survey:  https://copdf.co/pops-survey

3 days ago

Kandy

Kandy

I have a question can you get a true sputum.sample test if your taking a anyibiotic? 

5 hours ago

  • NewestOldest
  • Ksmiles123It will not be fully accurate once you start antibiotics. 4 hours ago
  • Ksmiles123Bacteria were less frequently detected in culture-based tests collected after antibiotics. 
    Pub Med Central 4 hours ago
Ksmiles123

Ksmiles123March 18th is Squash Superbugs Day. Superbugs are bugs commonly resisted by antibiotics and other medications. 

13 hours ago

Ksmiles123

Ksmiles123

Hello! The article below differentiates health disparities from health inequities: https://patientengagementhit.com/news/what-is-the-difference-between-health-disparities-equity

13 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question elevated platelet levels

Good morning, Dragonlady! Higher platelet levels have been seen in people living with chronic lung conditions. I recommend having your health care provider keep tracking your labs to make sure that they are aware of your numbers, but your situation is …
Ksmiles123 also answered the question Ksmiles123 also answered the question

13 hours ago

Ksmiles123

Ksmiles123Happy Saint Patrickโ€™s Day to all! May the luck of the Irish โ˜˜๏ธ be with you today. 

1 day ago

Ksmiles123

Ksmiles123answered the question Are you taking Probiotics regularly?

What were the bad bacteria in your lungs and the name of matching probiotics? I am glad that you are feeling much better?
DragonladyChristinaHSusanaCafeand 2 others also answered the question Dragonladyand 4 others also answered the question

2 days ago

Dragonlady

Dragonladyasked the question: elevated platelet levels

I have experienced higher than normal platelet levels since I was diagnosed with bronchiectasis in 2015. Has anyone experienced the same?

2 days ago

Ksmiles123

Ksmiles123Tis the weekend of the bagpipes: 

2 days ago

Ksmiles123

Ksmiles123

Tis the day of St.Patrickโ€™s Day parades throughout the country. Are you up to baking an Irish โ˜˜๏ธ Soda Bread? https://www.allrecipes.com/recipe/16947/amazingly-easy-irish-soda-bread/

2 days ago

marsrocket

marsrocketHappy Friday from a dancing blueberry-- and from me, too. 

3 days ago

Ksmiles123

Ksmiles123Information on how to get started witha pulmonary rehab program: 

3 days ago

Marcus

Marcus

 I was diagnosed with bronchiectasis in 2023. My family got a dog over the summer and I have been sick several times since. The one in December was really bad. My question is, does pet dander harm my lungs? I have been told yes and also no. I find it odd that since getting the dog my bronchiectasis has gotten worse. He is a great dog but I don't want to always be sick because of him. Any feedback will be appreciated. 

4 days ago

Ksmiles123

Ksmiles123

Health inequity refers to preventable differences in health outcomes between different groups of people. The article below describes health inequity in greater detail:https://www.medicalnewstoday.com/articles/health-inequity

5 days ago

Delia

DeliaOn March 14 at 3 p.m. Eastern Time, the COPD Foundation and Village Medical will present a free 45-minute virtual event.  Join us to learn about the signs, symptoms, and treatments for COPD, learn valuable strategies to breathe better with COPD, and hear from COPD Foundation Captains, Caroline Gainer and Barry Hoehn, who are both living with COPD. Dr. David Hatfield, chief physician executive at Village Medical, and Dr. David Mannino, co-founder and chief medical officer of the COPD Foundation, will lead the discussion. Share this information with patients to kick-start their journey to better health! Register using the following link:

https://www.villagemedical.com/copd?utm_source=website&utm_medium=copd_digest&utm_campaign=copd_webinar&utm_id=copd_webinar

5 days ago

baileymccrary

baileymccrary

Hello all! On March 5, our team of COPD Foundation lung health advocates traveled to the US Capitol in Washington, DC to meet with their legislators and advocate for our 2024 policy priorities. Our advocates shared three "asks" that would increase the quality of life for lung health patients across the United States:


- Co-sponsor HR 1406 or S 3021 to Extend and Make Permanent Medicare Coverage for All Virtual Pulmonary Rehabilitation
- Co-sponsor S 3821, the Supplemental Oxygen Access Reform (SOAR) Act, or emerging House Companion Bill, to Ensure Medicare Patients have Access to Essential Oxygen Therapy
- Increase FY25 NIH Funding and Prioritize COPD, Bronchiectasis, and NTM Research through NHLBI Appropriations Report Language


Now is the time to share these policy priorities with YOUR legislators. Visit our Advocacy: Action Center to encourage your elected officials to support our 2024 policy priorities!: https://www.votervoice.net/COPD/Campaigns/112969/Respond

6 days ago

360Coach Brandon

360Coach Brandon voted on MAC2v3 study update โ€“ March 2024

Gave a thumbs up for a blog post!

6 days ago

Ksmiles123

Ksmiles123Pulmonary Rehab offers educational resources on your respiratory disorder, dietary guidance, assists you in setting up a manageable exercise plan, social/ emotional support and so much more.
Let us celebrate / send a shout out to respiratory therapists, nurses, dietitians psychologist and others who work at pulmonary rehab centers. 

6 days ago

Ksmiles123

Ksmiles123We are celebrating Pulmonary Rehab Week- March 10-16th.
Do you have a positive experience with Pulmonary Rehab that you would like to share with the group?

1 week ago

ChristinaH

ChristinaHadded a new article MAC2v3 study update โ€“ March 2024

This blog post was authored by Emily Henkle, PhD, MPH, and reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee.

Hello NTM community!

The MAC2v3 clinical trial led by Dr. Kevin Winthrop and team at Oregon Health & Science University is mid-way through its 6th year. This study is important to the NTM lung disease community as it is...

1 week ago

Ksmiles123

Ksmiles123

Health inequity refers to the differences in health between different groups of people. Examples of health inequity are difficulty getting healthcare.living conditions that impact overall health status. What are some examples of health inequity in your area? 

1 week ago

Ksmiles123

Ksmiles123

1 week ago

Ksmiles123

Ksmiles123

Longer days of sunlight and sunshine โ˜€ are upon us. Donโ€™t forget to push non automatic devices forward! https://time.com/6898948/daylight-saving-time-march-2024-what-to-know/

1 week ago

Ksmiles123

Ksmiles123answered the question Have you been to a pulmonary rehab program? If yes, what was the best part of the program?

Kandy, I am so glad that you are able to keep up with your exercise routine at home that you are learned at pulmonary rehab. You are truly inspirational. Keep up the fight!
Kandy also answered the question Kandy also answered the question

1 week ago

360Coach Brandon

360Coach Brandon Hello everyone!โ€ฏ

Our next BronchandNTM360social Coffee Break will be on Wednesday, 03/13 @ 3pm EST.

This month please join us and share a story, picture, or something fun and inspiring with the group. We'll give each person about a minute to share with the group, and we don't discuss religion or politics.

The meeting registration link is here:

https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration
Lookingโ€ฏforward to seeing you all Wednesday!

1 week ago

Ksmiles123

Ksmiles123Today is International Womenโ€™s Day! The theme of the campaign Inspire Inclusion emphasizes the importance of diversity and empowerment in all aspects of society.
We must continue to inspire one another to be the best versions of ourselves, despite the unique challenges we may face. 

1 week ago

Ksmiles123

Ksmiles123answered the question I am going to be going for a salt therapy session. Any comments. Does it work on bringing up mucus

Cookie, Hello! Welcome to the site. Do you nebulize regularly with 3% saline?
Cookie11Kristen Szymonik, BS, RRT, AE-C (Manager of Public and Professional Education)marsrocketand 1 other also answered the question Cookie11and 3 others also answered the question

1 week ago

Tara COPDF

Tara COPDFHave you ever heard of NTM lung disease? If you have another lung condition, you may be susceptible. Learn about NTM lung disease by reading this NEW NTM Lung Disease information sheet. You might be surprised where you may find NTM lurking in your environment and how similar the symptoms can be to other lung conditions. 


Learn more and download here: https://copdf.co/NTMInfoSheet

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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