Made Pramana

Made PramanaMy old article on The Mighty got featured in their Facebook Page.🙈
https://m.facebook.com/story.php?story_fbid=1943313392427230&id=947493782009201&_rdr

8 hours ago

    Ksmiles123

    Ksmiles123answered the question Traveling

    Sut, You are most welcome! You don’t have to wear the mask constantly If no one around you is coughing or showing any cold, flu symptoms ; it is always wise to be safe rather than sorry. Enjoy the trip!:
    sutKandy also answered the question sutand 1 other also answered the question

    15 hours ago

    Skippy

    Skippyreceived the badge Getting started

    Earned the Getting started badge!
    TishCopper23wylieriderand 1338 others also received the badge Tishand 1340 others also received the badge

    1 day ago

    Ksmiles123

    Ksmiles123

    2 days ago

    Ksmiles123

    Ksmiles123

    2 days ago

    Made Pramana

    Made Pramana

    Hello. Have a nice weekend!
    I read about how to calculate calorie requirement with using some formulas and I used the formula to calculate my calorie needs. It's about Basal Metabolic Rate and Resting Energy Expenditure. I took account of the strees factor as well. I think my calorie needs are around 2700 cal. I need to eat more because I usually consume less than that.

    3 days ago

    Ksmiles123

    Ksmiles123Hello! Have you ever experienced tendinitis from taking antibiotics?
    https://www.webmd.com/arthritis/ss/slideshow-overview-tendinitis

    3 days ago

      Ksmiles123

      Ksmiles123answered the question Bronchietasis and Nails

      Hello! I am so sorry to read of your issues with your nails. I have heard of others getting infections in nail salons, but not to this degree Thank you for sharing this with the group.
      klKandy also answered the question kland 1 other also answered the question

      4 days ago

      Gretchen

      GretchenThe COPD Foundation recently held an informative webinar on Hope and Inspiration Through Goal Setting on November 1. For those of you who were unable to attend, we invite you to view the recorded webinar: https://register.gotowebinar.com/recording/4230860665062897159
      and slides: https://copd.egnyte.com/dl/BHbuKF26fA. The slides are a large file so must be downloaded.

      4 days ago

        Yooj

        Yooj

        Hi everyone! I am a biomedical engineering student at Columbia University working on a project to design a more efficient airway clearance device/technique. In your opinion, what features would an ideal airway clearance device/technique have?

        5 days ago

        BRigby

        BRigby

        Hello Everyone! I hope you are all choosing to make it as good a day as possible. I am a little bummed today but trying to remember to "count it all joy" through various trials. I was diagnosed with Bronch & MAC in my lungs 2 years ago, but today results from Stanford labs read, "many white blood cells" in the sputum from the base of my lungs, and now NTM abscessus in my lungs. : ( I already have NTM abscessus, MRSA, & acintobacter baumaniiin my sinuses, but we were hoping and praying the abscessus wouldn't get to my lungs. And now it has. It's a bit of a shock since I'm currently fairly asympotomatic (working full time, enjoying the grand kids, exercising, etc.), just very tired. I'd love to hear from some of you that have both MAC and abscessus in your lungs, and if there's anyone out there with CRS (sinus disease) like me? I'm scheduled for a final sinus surgery at Stanford in January....now wondering if the lung doc will want to start me on Big 3 treatment? Or maybe a Bronchoscopy? Trying to not let my mind jump ahead while I wait to hear from the doctor. Thanks for providing this sharing site as a place to vent to others who understand while I wait. Days like this it really helps. God Bless & keep you all! Brenda

        6 days ago

        • Click to View All Comments7 comment(s) -
        • Ksmiles123Rplaset,
          Hello! Great to hear from you. So very glad to hear that your wife is doing well. Thank you for sharing “ hope” with others.:)5 days ago

        • GretchenRplaset, Thank you for sharing encouragement. It is so easy to go down the rabbit hole of despair. I am happy to hear how well your wife is doing! She is lucky to have a compassionate caregiver in you.4 days ago

        • BRigby@rplaset, THANK YOU so much for taking time to respond to my post and offer encouragement. I am so very sorry to hear about your wife at only 39 years of age being diagnosed with this stubborn disease! You must be an incredible care giver. I am so glad to hear your wife has improved with treatment! Let's stay in touch.7 hours ago

        sut

        sutasked the question: Traveling

        I have Bronchiectasis and I am supposed to go to Denver for Christmas. I have not traveled on a plane since I came down with this. I'm wondering if going to Denver for a week is such a good idea. I cough a lot and after my inhalers I cough up Phlem. …

        6 days ago

        Delia

        Deliaasked the question: Market Research Opportunity

        Hi all, BioTrak Research is seeking individuals diagnosed with bronchiectasis to participate in an in-person, 30-minute market research study session. During the study session, participants will be asked to perform a task for dose preparation of a new …

        6 days ago

        Ksmiles123

        Ksmiles123https://themighty.com/2016/10/finding-support-when-living-with-a-chronic-rare-illness/

        6 days ago

          Ksmiles123

          Ksmiles123https://www.arikayce.com

          6 days ago

          Gretchen

          GretchenWe all struggle with commitments and energy conservation. Sometimes we just have to take care of ourselves.

          1 week ago

          Ksmiles123

          Ksmiles123Hello ! Do you know the signs of dehydration?https://www.everydayhealth.com/news/unusual-signs-of-dehydration/?slot=0&xid=nl_EHNLhealthyliving_2018-11-06&utm_source=Newsletters&utm_content=2018-11-06&utm_campaign=Healthy_Living&eh_uid=76390480

          1 week ago

            ncares

            ncaresSpero Therapeutics Announces Positive Results from SPR720 IND-Enabling Studies and Plans to Initiate a Phase 1 Trial

            Spero Therapeutics announced results from preclinical IND-enabling studies of SPR720, an oral antimicrobial agent being developed for the treatment of pulmonary non-tuberculous mycobacterial (NTM) infections. The preclinical in vitro and in vivo toxicology studies demonstrate that SPR720 achieved wide therapeutic margins and activity versus multiple clinically important species of non-tuberculous mycobacteria, which Spero believes supports its advancement into human clinical trials.

            http://www.tradershuddle.com/2018/11/05/spero-therapeutics-announces-positive-results-from-spr720-ind-enabling-studies-and-plans-to-initiate-a-phase-1-trial/

            1 week ago

            Kandy

            Kandyhttps://cysticfibrosisnewstoday.com/2018/10/10/bicarbonate-eyed-as-weapon-to-combat-2-most-prevalent-bacteria-cystic-fibrosis/?utm_content=buffer08275&utm_medium=organic+social&utm_source=facebook.com&utm_campaign=buffer

            1 week ago

            Ksmiles123

            Ksmiles123https://www.healthline.com/nutrition/electrolytes

            1 week ago

              Ksmiles123

              Ksmiles123Hello! Do you have any suggestions on sleeping well? Several of the tips below apply to Bronchiectasis/ NTM patients.
              https://www.healthline.com/nutrition/17-tips-to-sleep-better#section18

              1 week ago

                Ksmiles123

                Ksmiles123Hello! Do you understand the results of routine blood tests?https://www.webmd.com/a-to-z-guides/rm-quiz-blood-tests

                1 week ago

                  Red1

                  Red1

                  Hi Everyone! My name is Marilyn. I am a Caregiver, my spouse has COPD. I have worked on the COPD Foundation Information Line since 2011. I find it a true honor to speak with and assist patients and caregivers.
                  Five simple words can help make a world of difference to someone. "How can I help you?" Simple as that. Know that we are there to do just that. We educate, offer educational materials, research resources available to further aid patients and caregivers and most often, we just listen. And sometimes that may be all the help needed on that call.
                  I am very proud of my role and services to the COPD community and even more proud to work along side and with my fellow Team Leaders and Associates. We look forward to hearing from you!

                  1 week ago

                  Ksmiles123

                  Ksmiles123Hello! Some of the examples in the article below may apply to Bronchiectasis/NTM patients. Please share with a family member or friend who may not understand what it is like when you simply cannot “ push through “.https://themighty.com/2018/05/why-people-with-chronic-illness-cant-simply-push-through/

                  1 week ago

                    Gretchen

                    GretchenIt is important to set goals, as a patient and in life. Join tomorrow for an important webinar: COPD Awareness Month will be on Friday, November 1st from 2:00pm-3:00pm EST. This webinar will be on patient focused goal setting! Please join us for a lively conversation with two of our respiratory therapists on staff, Stephanie Williams and Jane Martin! To register and learn more information, click here: https://attendee.gotowebinar.com/register/8800034066023593731

                    1 week ago

                    Jv537

                    Jv537

                    Feeling fine . Just got an accapella after a official diagnosis.got my flu shot and pneumonia shots so I am ready for the winter

                    2 weeks ago

                    Ksmiles123

                    Ksmiles123Hello! Pulse oximetry is a 4th vital sign for many respiratory patients. It is advisable to kee track of your own oxygen levels, especially on bad days. You can purchase one if these devices on amazon for approximately $20.00.
                    https://www.thoracic.org/patients/patient-resources/resources/pulse-oximetry.pdf

                    2 weeks ago

                      Ksmiles123

                      Ksmiles123Hello! Do you own a pulse oximeter ?
                      https://www.healthline.com/health/pulse-oximetry

                      2 weeks ago

                      Brandon

                      Brandon

                      It's only 24 days until Thanksgiving, have you had your Flu shot yet?

                      It takes about two weeks after vaccination for antibodies to develop in the body and provide protection against influenza virus infection. Be safe and talk with your doctor or pharmacist to learn more.

                      2 weeks ago

                      Made Pramana

                      Made Pramanahttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3415114/

                      2 weeks ago

                        CCFL

                        CCFL

                        No energy can’t get up today.
                        I have a question is it important to find out what kind of Multifocal infection due to atypical mycobacterial disease
                        You have? I have done the sputum test but I don’t have a productive cough and even doing the induced sputum test nothing shows up. When they did the bronchoscope I had 1 colony aspergillus they removed I guess from a mucus plug. Does anyone else have this problem and does it really matter?

                        2 weeks ago

                        • Click to View All Comments6 comment(s) -
                        • CCFLThank you for the information but where do I get the information? The NTM information on this site? I need to call or fill out application.. is that what you are talking about? I could go to either Miami or Jacksonville I live in between. Is there a list of support groups on this website? I’m sorry to keep bothering you but I do appreciate the information.

                          Thanks again 2 weeks ago

                        • Ksmiles123You are most welcome! No worries, you are not a bother. We need information when we need information. Support goes a long way when dealing with a chronic disorder. See link below.
                          https://www.ntminfo.org/support-groups/2 weeks ago

                        • GretchenWelcome CCFL, we are here to help and find answers to questions you may have. I know a lot of patients do not have access to doctors who are well informed about all things Bronchiectasis and/or NTM. We do our best to find the info for you or for other patients to share experiences they have had that may be valuable to you. Let us know how you are doing and if there is anything else we can do.2 weeks ago

                        Ksmiles123

                        Ksmiles123

                        Hello! Happy Friday! How are you feeling since the weather is getting cooler?

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123Hello! There are different classifications of drugs used for NTM/ Bronchiectasis. Below is a list of the macrolides. It is important to keep track which drugs agree with you and which do not. One drug may wreak havoc in one patients body and do nothing to another patient. I will post the other classifications periodically. Knowledge is power and will assist you in improving the quality of one’s life.
                        https://www.drugs.com/drug-class/macrolides.html

                        2 weeks ago

                          Tracie Sullivan COPDF Staff

                          Tracie Sullivan COPDF StaffCheck out this interesting article on the incremental shuttle walk test!


                          https://bronchiectasisnewstoday.com/2018/10/18/incremental-shuttle-walk-test-valid-measure-bronchiectasis-therapy-response-study/?utm_source=BRO+E-mail+List&utm_campaign=7380c7174c-RSS_WEEKLY_EMAIL_CAMPAIGN_US&utm_medium=email&utm_term=0_d9df0e1c03-7380c7174c-72008673

                          2 weeks ago

                          Gretchen

                          GretchenIt is National Respiratory Care Week! We are recognizing and honoring the respiratory therapists that make a huge difference in the lives of patients with lung diseases. Have you had experiences with RTs? Share a story or the impact you have experienced because of an RTs contribution.

                          http://www.scotlandcountyhospital.com/Articles/national_respiratory_care_week.aspx

                          2 weeks ago

                            Ksmiles123

                            Ksmiles123https://www.webmd.com/cold-and-flu/ss/slideshow-flu-symptoms-treatment

                            2 weeks ago

                              Ksmiles123

                              Ksmiles123https://www.webmd.com/food-recipes/food-poisoning/news/20181017/drug-resistant-salmonella-hits-dozens-across-us?ecd=wnl_spr_102318&ctr=wnl-spr-102318_nsl-ftn_1&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3d

                              3 weeks ago

                                Ksmiles123

                                Ksmiles123

                                Hello! What is your personality type?
                                Interesting article below describes how our personality may affect our health.

                                3 weeks ago

                                Tracie Sullivan COPDF Staff

                                Tracie Sullivan COPDF Staffanswered the question Getting to Know You...

                                Hi All, My name is Tracie, and I work at the COPD Foundation in the DC office on grassroots advocacy, and engage with our volunteers! Favorite place is a tough one, I love being outdoors, and any chance I get to hike, and camp I am there :) This year I …
                                Ksmiles123MerryAnissaand 12 others also answered the question Ksmiles123and 14 others also answered the question

                                3 weeks ago

                                Tracie Sullivan COPDF Staff

                                Tracie Sullivan COPDF StaffThis week begins with Respiratory Therapy appreciation week! Thank you to all of the RT's in our community and State Captain Program, who work tirelessly and selflessly with us, and for the COPD community! We appreciate you! To learn more about the week events, and activities going on, check out the American Association for Respiratory Care's website here: http://www.aarc.org/resources/programs-projects/respiratory-care-week/

                                3 weeks ago

                                Ksmiles123

                                Ksmiles123Hello! Do you take supplements? It is difficult to determine which supplements are really worth purchasing. Can you recommend a supplement that has helped you?https://www.webmd.com/vitamins-and-supplements/news/20181012/fda-unapproved-ingredients-in-many-supplements

                                3 weeks ago

                                  Ksmiles123

                                  Ksmiles123

                                  https://www.businessinsider.com/amazon-patent-alexa-emotional-Hello! Interesting what Alexa will be able to do in the near future.
                                  intelligence-2018-10?IR=T&utm_source=Triggermail&utm_medium=email&utm_campaign=BII%20Weekender%202018.10.19%20-%20Marketing&utm_term=BII%20Marketing%20%28Engaged%2C%20Active%2C%20Passive%2C%20Disengaged%2C%20New%29%20Active%20Suppression

                                  3 weeks ago

                                    Ksmiles123

                                    Ksmiles123Hello! I thought I would follow up from yesterday’s posting by others on the differences between being alone and lonely.https://www.mindbodygreen.com/0-5804/The-Difference-Between-Lonely-and-Alone.html

                                    3 weeks ago

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                                    Medical Advice

                                    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.