ChristinaH

ChristinaHUPCOMING EVENT! The COPD Foundation is airing a new NTM lung disease educational event on Facebook. Join us on Tuesday, December 6th at 4 pm ET to see a first-hand account of a person living with NTM lung disease consulting with an expert in the field. This event will not disappoint!

https://www.facebook.com/events/547043900577183/?ref=newsfeed 

4 days ago

Ksmiles123

Ksmiles123

Hello! December is upon us- throughout the month we will be focusing on helpful holiday hints, goal setting/ preparing for the new year, self-care, and ongoing infection control tips.  Please feel free to contribute to any of these topics and or comment with suggestions or questions.  

22 hours ago

Bob_NC

Bob_NC

Hi folks, this is my first post. I was diagnosed in 2021 with Bronchiectasis and COPD. I'm in the midst of an exacerbation that started a week ago. My last one was in May. Are there many folks here with both lung diseases?

1 day ago

  • NewestOldest
  • Ksmiles123Bob,
    Welcome to the group.  I am sorry that you are going through an exacerbation at this time. I do not have both lung diseases.  Hopefully, other members with both will chime in. Have you read the materials on exacerbations, under learn more in the menu/ links above?22 hours ago
  • KandyHello Bob, NC yes I had asthma as a young girl then bronchitis, then copd which is emphysema is one of the lung diseases under the umbrella and then 2014 was diagnosed with bronchiectasis then PH.  Its a job dealing with all of these.  My lung functions are very sever due to covid in 2021 and this last March human metapneumovirus.  Hospital in October my pulmo says pneumonia but my pcp said nothing.  Each time we have a exacerbation or infections we loose lung function.  I do my treadmill every day as much as i can,  any exercise helps keep things running as best we can. 17 hours ago
Ksmiles123

Ksmiles123The holidays are around the corner. Do you have a favorite holiday movie? 

1 day ago

Ksmiles123

Ksmiles123

Indoor air quality is so important, especially when we are indoors more throughout the winter months. The article below reviews indoor air quality: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/563/The-Importance-of-Indoor-Air-Quality.aspx

2 days ago

JohnT

JohnTvoted on Facing The Challenges of NTM Lung Disease

Gave a thumbs up for a blog post!

2 days ago

Ksmiles123

Ksmiles123answered the question First message from a patient's husband in Australia

Aussie, You are most welcome! Orange/ red urine is typical due to Rifampin. Keeping a medical journal is very important to keep track of any changes, symptoms, questions for her doctor. I also kept a journal to express my feelings while on the NTM …
aussieChristinaH also answered the question aussieand 1 other also answered the question

3 days ago

360Coach Brandon

360Coach Brandon voted on Facing The Challenges of NTM Lung Disease

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3 days ago

marsrocket

marsrocketNot a huge surprise. Keep fighting for cleaner air, friends.

https://www.lifespan.io/news/air-pollution-harms-immune-function-in-lungs/

3 days ago

ChristinaH

ChristinaHadded a new article Facing The Challenges of NTM Lung Disease

This blog post was authored by Christina Hunt, BS, RRT.

Nontuberculous mycobacterial (NTM) lung disease is caused by common bacteria found in soil, freshwater, and natural water sources.1 You may not have heard of it because NTM lung disease is described as a rare disease. People who have NTM lung disease may have a...

3 days ago

Ksmiles123

Ksmiles123Hello! The link below reviews the differences between the flu and Covid 19: https://www.cdc.gov/flu/symptoms/flu-vs-covid19.htm

3 days ago

hastyRetreat

hastyRetreatvoted on Preventing Spring Flare-ups for those with Bronchiectasis

Gave a thumbs up for a blog post!

4 days ago

hastyRetreat

hastyRetreatvoted on Wheezing and the Bronchiectasis/NTM Patient

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4 days ago

Ksmiles123

Ksmiles123A note to pay respects to Dr. Michael D. Iseman who has passed away at the age of 83. Dr. Iseman served for many years as the Chief of the Division of Mycobacterial and Respiratory Infections at National Jewish Health and regarded as a pioneer and leading scholar in the field of NTM. Dr. Iseman was an advocate for the NTM community, participating in advocacy events in Washington, DC in 2006 and beyond.  Greater public awareness, research, medications and treatments are a result of his passion and involvement in the field of NTM. 

4 days ago

Ksmiles123

Ksmiles123Hello! I am sure that the Thanksgiving holiday reminded you of a few things that you are grateful for. The link below includes positivity quotes: https://www.inspiringquotes.com/14-quotes-about-the-power-of-positivity/YVRz4jTAMwAGYi1t

5 days ago

Ksmiles123

Ksmiles123

Hello! How are you doing after the Thanksgiving holiday? 

5 days ago

marsrocket

marsrocketHere's a Mayo Clinic article about the relationship between gut health and lung health, what is sometimes called the gut-lung axis. Quick read.

https://www.mayoclinic.org/medical-professionals/pulmonary-medicine/news/the-gut-lung-axis-intestinal-microbiota-and-inflammatory-lung-disease/mqc-20483394

1 week ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Ksmiles123Laff4ever,
    I agree with you! My lungs have been behaving better over the past 6 years- better food selections, greater infection control measures, etc.
    We do have some control over our future lung ๐Ÿซ health. 6 days ago
  • Jean1Are here any foods found to have positive or negative effects. The only food I have found to have a negative impact is sugar. 5 days ago
  • Ksmiles123Jean,
    Dairy such as yogurt provides probiotics but many cannot tolerate dairy. The greater number of fresh vegetables , ๐Ÿฅ— the better your gut will be.
    Have you ever listened to Dr. Mark Hymanโ€™s videos? 4 days ago
Ksmiles123

Ksmiles123Happy Thanksgiving ๐Ÿฆƒ๐Ÿ๐Ÿฝ Holiday to all! Stay safe and well. Make the holiday decisions which work best for you. 

1 week ago

BeClearwithBronchiectasis

BeClearwithBronchiectasis

Next Friday, December 2nd at 10:30 EST, Dr Steven Lommatzsch, the director of the Non-CF Bronchiectasis Program at the top US bronchiectasis center, National Jewish Health in Denver, Colorado, will be speaking on โ€œTackling Bronchiectasis through Research, Treatment and Education.โ€


Iโ€™ve listened to Dr Lommatszch (aka Dr Airway Clearance, Airway Clearance, Airway Clearance) give a talk in the past - it was excellent. I also know that he is well-liked by his patients.


If you are in the Boca Raton, Florida where Dr Lommatzsch will be giving the talk, you might want to attend in person.


https://bit.ly/3OoDK0J


Best,
Linda Esposito

1 week ago

Kandy

KandyWant to wish everyone that celebrates Thanksgiving a Blessed day hope you are with family and friends this day!! 

1 week ago

laff4evr

laff4evrhas shared a holiday poem
(click or tap to enlarge image)

1 week ago

Ksmiles123

Ksmiles123The link below discusses a new Phase 1 Clinical Trial study for pseudomonas . I love to read about all of the possible new medications and treatments in the horizon. This gives us the gift ๐ŸŽ of Hope! https://www.infextx.com/infex-enters-clinic-with-lead-anti-virulence-candidate-resp-x-for-pseudomonas-aeruginosa/

1 week ago

Ksmiles123

Ksmiles123answered the question How cautious must you be with water?

Sal, Spring water is recommended over distilled or purified water. Below is a link on reducing exposure re: household items: https://ntminfo.org/reducing-exposure/
BklynProfSusan BeeBmblebeeand 5 others also answered the question BklynProfand 7 others also answered the question

1 week ago

Ksmiles123

Ksmiles123

Hello! Will you be traveling for the Thanksgiving holiday? https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Travel

1 week ago

Ksmiles123

Ksmiles123commented onPreventing Winter Exacerbations in Bronchiectasis and NTM Patients

 A clean pot of water under the bed, or near the bed was recommended to me in the past. It is important to change the water on a daily basis. Some people open a window a crack to lessen the dryness. Keeping the temperature loose and bundling up may...

1 week ago

Sal100

Sal100commented onPreventing Winter Exacerbations in Bronchiectasis and NTM Patients

 What do people use instead of a humidifier when the air is dry? I live in NW Wisconsin and when the heat comes on the air gets terribly dry. ...

1 week ago

Ksmiles123

Ksmiles123

Hello! A new drug is in the market for the Covid Virus: https://www.lagevrio.com/patients/

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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