BronchandNTM360social welcomes new member Linda Cimino who joins 4,106 current members of our community. We’re glad you're here!

360Coach Brandon

360Coach Brandon

Hello everyone! 

Our next BronchandNTM360social Coffee Break will be on Wednesday, September 11, 2024, @ 3 pm ET.

Gabrielle (Gabby) Davis, MPH, MA, RRT, LPC, NCC will be joining us to discuss mental health awareness with our group. Gabby has been a registered respiratory therapist for over 15 years.

Below are some helpful resources related to our discussion:

Coping with Chronic Illness and Disability
https://www.goodtherapy.org/learn-about-therapy/issues/disabilities

When to Consult a Psychologist
https://www.healthline.com/health/mental-health/psychologist-help

Understanding the Link Between Chronic Disease and Depression
https://www.nimh.nih.gov/health/publications/chronic-illness-mental-health

We open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. We will save any health-related discussion for the start of the meeting.


The meeting registration link is here: 
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration
Looking forward to seeing you all Wednesday!

2 days ago

laff4evr

laff4evrFour out of five lung buddies say this day is their favorite day of the week.


11 hours ago

Ksmiles123

Ksmiles123

Hello! The European Respiratory Society is holding its annual international conference in Vienna , Austria. Telehealth , AI and other interesting technologies are being discussed to assist respiratory patients worldwide. Advances in medicine take time but hold onto hope that many advances/ new treatment therapies are in the pipeline. :) 

15 hours ago

Storyteller

Storyteller

We are considering buying a house near saltwater marshes and within walking distance of a Ct, beach. I checked with my pulmo who did t see a problem with it, but I am concerned about possible stinky smells from the marshes. 
I am trying to get my husband to leave Ga, where I am not happy, but don’t want to make another mistake on a house.
Very few houses available that meet criteria.
Any feedback on living near water and bronchiecstasis ?

1 day ago

Ksmiles123

Ksmiles123

Tele health appointments are protected by privacy rules. Do you have any concerns about privacy or your personal data? The link below discusses these topics:https://telehealth.hhs.gov/patients/additional-resources/data-privacy

2 days ago

marsrocket

marsrocketHappy Friday, friends. 

2 days ago

Ksmiles123

Ksmiles123Hello!  The link below provides information on the different types of telehealth and remote patient monitoring: https://telehealth.hhs.gov/patients/what-are-different-types-telehealth

What are different types of telehealth?

There are many ways you can use telehealth to connect to your health care provider.

4 days ago

Alyssa Dittner

Alyssa Dittner

Can you believe Fall is 20 days away! Where did the summer go??

5 days ago

Ksmiles123

Ksmiles123asked the question: Do you understand the basics of telehealth?

The infographic below reviews some basic information on Tele health: https://telehealth.hhs.gov/documents/BasicsofTelehealth_03-07-24.pdf

5 days ago

Kandy

KandyHappy Monday and Labor Day Everyone!! 

6 days ago

Ksmiles123

Ksmiles123Happy Labor Day! 

6 days ago

Corky

Corky

Having a pretty good day thank you!

1 week ago

Ksmiles123

Ksmiles123

Hello! Happy September to all! Tis hard to believe that summer has flown by and we are now approaching the Autumn Season. Hopefully, we will be able to enjoy many beautiful Indian Summer days throughout September.
We will be discussing the use of Telehealth for health care appointments, the use of supplemental Oxygen, and .Coping with Chronic Illness.  Please let us know if you have any specific questions on these topics.  Have a pleasant day!

1 week ago

Storyteller

Storyteller

Has anyone taken IV antibiotics for pseudjomomas ?

1 week ago

Storyteller

Storyteller

I have a small amount of pseudomonas for the second time. I am struggling with terrible nausea from cipro for which I take zofran which causes constipation. . Has a nooner here tried lactulose for this ?
I am also using the TOBI podhaler. I feel miserable . 

1 week ago

Kandy

KandyWishing everyone a Happy Labor Day Weekend. 
 

1 week ago

Ksmiles123

Ksmiles123

Hello! It is hard to believe that the summer has flown by . Do you have any interesting plans for the weekend or in the upcoming fall? 

1 week ago

Ksmiles123

Ksmiles123

Hello! Exciting news on technology in the pipeline for listening to your lung sounds, while on a telehealth call: https://respiratory-therapy.com/products-treatment/diagnostics-testing/diagnostics/self-check-device-shows-promise-remote-lung-assessments/?utm_term=RT%20Respiratory%20Sep%202024&utm_campaign_type=newsletter&utm_hsid=346581813&utm_medium=email&_hsenc=p2ANqtz-8R1eCKWB8KzgKWviODEyQWG9iDiJTZyMJjuWSWm38ttDD29JAPCOCMJfj9qnFQHuJMyMm6dGQG1_V0vsQp2X_Z-iWxnA&_hsmi=322149172&utm_source=newsletter
This type of technology lessens our need to physically go to a doctors office in the peak of flu season. I hope that this and other similar devices in the pipeline get approved for use in the near future. 

1 week ago

BanjoMan

BanjoMan

I’m encouraged by the treatment plan I am on beginning today, thanks to the Pulmonary team at Kirklin clinic. I started inhaled - Tobramycin this afternoon: 28 days in - 28 days off. I hope this helps with the recurring pseudomonas.  I’m afraid this may have a negative effect on my singing voice. I’m in a bluegrass a acoustic band. 

1 week ago

Ksmiles123

Ksmiles123asked the question: Have you dealt with a power outage recently?

If not, below is information on preparing for power outages , including many links on the latest research on power outages: https://community.fema.gov/ProtectiveActions/s/article/Power-Outage-Make-an-Emergency-Plan-and-Prepare-Your-Home

1 week ago

Alyssa Dittner

Alyssa Dittneranswered the question Do you have any Disaster Preparedness Apps on your phone?

I have never thought to do this. But your right its important to be prepared. "Safety is no accident". For those who have oxygen at home or vital medical equipment what kinds of things do you need to be prepared for and what tips can you provide for …

1 week ago

Ksmiles123

Ksmiles123asked the question: Do you have any Disaster Preparedness Apps on your phone?

Below is a list of 7 different apps you may be interested in placing on your iPhone: https://www.wired.com/story/best-emergency-apps/

1 week ago

SallyB

SallyB

Hi JohnT, I read in a post that you told clofazamine several years ago. Did it work to clear your bacteria? Thank you. 

1 week ago

  • JohnTHi SallyB,
    I have taken Clofazamine for three separate infections as part of a multidrug protocol. I found it to be highly effective. The side effects have not been as bad as what you read on the internet.  You can call me directly on our info line at 833-411-5864 if you would like more details.1 week ago
marsrocket

marsrocketHappy National Dog Day!

1 week ago

Ksmiles123

Ksmiles123

Hello! Below is an Emergency Supply checklist from the federal government:,https://www.ready.gov/kit

1 week ago

Ksmiles123

Ksmiles123answered the question Do you know how to do a huff cough?

Thank you Lorem, Cool app! We are being coached by a phone- lol. We just have to set our phone timers to remind ourselves to use this app twice a day.:)
Lorem also answered the question Lorem also answered the question

2 weeks ago

marsrocket

marsrocketThis recent in-depth article summarizes the various airway clearance techniques and possible benefits, including breathing exercises, high-frequency chest wall oscillation, manual chest physiotherapy, autogenic drainage, oscillating positive expiratory pressure, active cycle of breathing techniques, and more. Worth your time, I reckon.."Neglecting airway clearance can lead to a vicious cycle of infection, inflammation, and lung damage, resulting in the deterioration of a patient's respiratory health and overall quality of life."
'https://www.ncbi.nlm.nih.gov/books/NBK604210/

Postural Drainage and Vibration

Chest physical therapy (CPT) utilizes mechanical methods, specifically chest percussion, postural drainage, and vibration, to assist in airway clearance of lung secretions. Airway clearance techniques (ACTs) are critical in managing respiratory conditions characterized by mucus hypersecretion and …

2 weeks ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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