Ksmiles123

Ksmiles123

Hello! Happy Halloween ๐ŸŽƒ! I hope that you have a pleasant day. Below are the guidelines from the CDC re: Halloween .:) https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/holidays/halloween.html

7 hours ago

DC

DC

Hi, I am newly diagnosed and wanted to join a group for support and maybe advice 

18 hours ago

Ksmiles123

Ksmiles123answered the question Do you practice airway clearance techniques?

Di, Thank you for sharing with the group. What type of exercises are you doing? Secretions often pool when lying flat. Every body is different- we must do what works best for us. Kati
Di also answered the question Di also answered the question

19 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTasked the question: Do you practice airway clearance techniques?

Hello! This question is one that I have based on a discussion from the Coffee Break time we had earlier this week. Do you practice airway clearance techniques every day? If so, what works best for you? If not, would you share why you don't? This is a …

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Hi All!
I really enjoyed spending time with you all at the Coffee Break call yesterday! Hope we can do it again sometime!

2 days ago

Ksmiles123

Ksmiles123Hello! Did you get your flu shot?https://www.everydayhealth.com/flu/understanding-flu-vaccines-and-picking-the-right-type-for-you/

2 days ago

  • NewestOldest
  • Stephanie Williams, RRTI got mine! I loaded the family up and we all got them at the same time.  We wanted to make sure we got them on board before flu season really hits here. Takes about 10 days to 2 weeks to see full effectiveness of the vaccine, so we tried to get ahead of the curve.
    It is important and I hope everyone who is able to get the vaccine will do it...soon! :)1 day ago
  • Ksmiles123Yes, now is the time to get that flu vaccination before flu season kicks in. Wishing everyone the best! 1 day ago
Delia

DeliaHi all, hope you're doing well! I know this is last minute, but I am posting this in case anyone is interested and available.

NTM Lung Disease Webinar
Thursday, October 29th
1:00-2:00pm ET
Topics covered: NTM risk factors, diagnosis and testing, and management


Click the link below to register!

https://event.on24.com/eventRegistration/EventLobbyServlet?target=reg30.jsp&referrer=&eventid=2625965&sessionid=1&key=D96DEBD329E5AB9B0E1CEABED5C8E675ยฎTag=&sourcepage=register 

2 days ago

Gretchen

GretchenVoting closes tomorrow! Make sure to cast your votes to help inform new resources for COPD & COVID research! If you have any questions, post a comment below and we will help you figure it out. Your voice is important to guide this new research agenda. https://www.copdfoundation.org/Research/BRIDGE-Project/Help-Guide-COPD-Research.aspx

4 days ago

Gretchen

Gretchen

We are looking forward to our informal gathering, "Coffee Break" on Wednesday, October 28th at 3pm. I hope to see you all there! If you haven't registered yet, please sign up with the following link: https://attendee.gotowebinar.com/register/7718159720396737552 

5 days ago

Ksmiles123

Ksmiles123commented onFall Precautions for NTM/Bronchiectasis Patients During the Covid-19 Pandemic

 Thank you! I am glad that you enjoyed reading the article. You are most welcome! Katie...

5 days ago

Abdi

Abdicommented onFall Precautions for NTM/Bronchiectasis Patients During the Covid-19 Pandemic

 Great advice and information. Thank you!...

6 days ago

Ksmiles123

Ksmiles123

Hello! How are you doing throughout these tunes of uncertainty? The link below offers some suggestions on how to deal with uncertainty: https://ideas.ted.com/7-strategies-to-help-you-live-with-uncertainty/

6 days ago

Ksmiles123

Ksmiles123Hello! Below is information on flu medication:https://www.webmd.com/drugs/2/drug-17453/zanamivir-inhalation/details

1 week ago

Kandy

Kandyvoted on Fall Precautions for NTM/Bronchiectasis Patients During the Covid-19 Pandemic

Gave a thumbs up for a blog post!

1 week ago

Ksmiles123

Ksmiles123answered the question traveling for the holidays

Rosa, You are welcome! Keep safe. Kati

1 week ago

Abdi

Abdi

Hi, Im 24 year old, diagnosed with Bronchiectasis and sinusitis two months ago. Im having frequent exacerbations and working with an ENT and a pulmonologist. I would like to collect daily entries describing how Iโ€™m feeling each day, medications, any symptoms Iโ€™m experiencing, any triggers, etc. I have been using Notes my phone but itโ€™s not the smoothest. Does anybody use apps or softwares that use to collect persona daily entries?

1 week ago

Abdi

Abdi

Hi, Im a 24 year old, diagnosed with Bronchiectasis and sinusitis two months ago. Im having frequent exacerbations and working with an ENT and a pulmonologist. I would like to collect daily entries describing how Iโ€™m feeling each day, medications, any symptoms Iโ€™m experiencing, any triggers, etc. I have been using Notes my phone but itโ€™s not the smoothest. Does anybody use apps or softwares that use to collect persona daily entries?

1 week ago

Abdi

Abdi

Hi, I was diagnosed with Bronchiectasis and sinusitis two months ago. Im having frequent exacerbations and working with an ENT and a pulmonologist. I would like to collect daily entries describing how Iโ€™m feeling each day, medications, any symptoms Iโ€™m experiencing, any triggers, etc. I have been using Notes my phone but itโ€™s not the smoothest. Does anybody use apps or softwares that use to collect persona daily entries?

1 week ago

360Coach Brandon

360Coach Brandon voted on Fall Precautions for NTM/Bronchiectasis Patients During the Covid-19 Pandemic

Gave a thumbs up for a blog post!

1 week ago

360Coach Brandon

360Coach Brandon Good morning, I hope everyone is doing well and having a good day! I ran across an interesting conference video that focuses more on NTM, and how it is everywhere. The speaker gives a closer look at how prevalent NTM is around the world and closer to home.

Rachel Thomson, MBBS NTM Everywhere

https://youtu.be/weYLlNQ4YQI



1 week ago

Gretchen

Gretchenadded a new article Fall Precautions for NTM/Bronchiectasis Patients During the Covid-19 Pandemic

This blog post was written by Katie Keating, RN, MS, patient advocate

Fall is upon us; winter is approaching. Days are getting shorter with less sunlight and cooler temperatures. This can be a very challenging time of year if you are mostly homebound and especially difficult as we deal with the challenges of the pandemic. We are making history with the COVID-19 quarantine.

...

1 week ago

Sumter

Sumter

Hi... Does anyone Know how I can talk with/contact someone who specializes in Bronchiectasis and related illness?  

1 week ago

Kristen

KristenNHLBI -- which is the National Heart, Lung, and Blood Institute, a part of NIH -- has created new videos about COVID-19. Here is one that explains the impact of COVID-19 on the lungs: https://www.youtube.com/watch?v=ZL1z3Uju-I0&list=PL_ntiNjc6GvlsZ9ow8z-BCOZdN4jZyi3M&index=1 


Their page also has videos on COVID-19's effects on the heart as well as your blood.

1 week ago

Ksmiles123

Ksmiles123Hello! Are you looking for a way to use your creative energy while at home?Https://www.creativebug.com/classseries/single/halloween-diy-masks?eType=EmailBlastContent&eId=4a1ba37b-608c-419b-bad4-a1738c1a44f7

1 week ago

Delia

DeliaInsurance coverage can significantly impact the quality and affordability of the care and treatments you need to stay healthy. Most people are required to make a series of choices every year that can have a big impact on your out of pocket costs, the types of treatments that are covered, and the network of physicians available to you.

How people navigate these choices, what factors are considered important in decision making, and what resources are utilized to help inform choices will all vary by individual and by the type of insurance options available.

Despite the importance of insurance choices, there is little insight into why patients make choices to enroll in different types of insurance options, if they are satisfied with their choices and what resources might be useful to help ensure people can make informed choices in the future.

The COPD Foundation is conducting the Medicare Insights Project to generate this important information that can be used to plan future education, community outreach, and research projects related to insurance coverage and COPD.

The survey is open to anyone with COPD, NTM, Alpha-1, and Bronchiectasis regardless of what type of insurance coverage you have now. NO identifying information is requested during the survey so your answers are completely anonymous. Please click the link below if you'd like to participate. Thanks in advance!

https://www.surveymonkey.com/r/MedicareInsightsCOPDFoundation

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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