AnnePetti

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42 minutes ago

KarenC

KarenCasked the question: Hi. I'm curious if anyone who has bronchiectasis is on calcium channel blockers?

I read that calcium channel blockers can cause silent GERD symptoms such as coughing and that this is correlated with respiratory diseases such as bronchiectasis (BE). My dad has been on calcium channel blockers and has had a severe cough and now …

2 hours ago

Ksmiles123

Ksmiles123Hello! Pages 12-15 review NTM medications in the Insight Patient Manusl below.
https://www.ntminfo.org/wp-content/uploads/2018/04/englishpamphlet_ntminfo.pdf
Page 22 lists questions to ask your doctor. It is good to review these materials periodically; being prepared for doctor visits pays off.

4 hours ago

    Ksmiles123

    Ksmiles123Hello! Perhaps, you can share the fact sheet below with your primary care doctor. The greater awareness will result in patients getting diagnosed earlier.https://www.ntmfacts.com/pdfs/NTM_fact_sheet.pdf

    14 hours ago

      Ksmiles123

      Ksmiles123Hello! Below is a free website on depression. I have not listened in on their webinars nor endorsing the site. Just thought I would post since they will discuss dietary and lifestyle changes which can assist patients experiencing depression.https://www.crowdcast.io/e/mj43lhlm/register?utm_source=classes-ellen-vora&utm_medium=email&utm_campaign=ellen-vora-depression-webinar-reminder-interest-081418

      1 day ago

        Ksmiles123

        Ksmiles123https://www.everydayhealth.com/asthma/symptoms/surprising-connection-between-gerd-asthma/?xid=nl_EHNLasthmaallergies_2018-08-09&utm_source=Newsletters&utm_medium=Asthma%20and%20Allergies&utm_campaign=2018-08-09

        1 day ago

          Macfit

          Macfitanswered the question Any positive stories/tips on successfully managing m. abscesses with bronchiectasis?

          Hi there! I was diagnosed with Bronchiectasis and MAC in April. I am a wellness coach and now have a very important client—-me!! One of my biggest challenges is not getting down. I handle this with a combination of walking with intermittent jogging, …
          Ksmiles123pamck60ncaresand 6 others also answered the question Ksmiles123and 8 others also answered the question

          2 days ago

          Ksmiles123

          Ksmiles123https://www.webmd.com/cold-and-flu/rm-quiz-antibiotics-myths-facts

          3 days ago

            Ksmiles123

            Ksmiles123

            Hello! Do you get sick easily? Many NTM/ Bronchiectasis patients have reported getting sick easily and staying sick for longer periods of time. Hence, it is so very important to be more cautious than the average person .https://www.thespruce.com/things-in-the-kitchen-that-are-making-you-sick-4171737?utm_campaign=todaysl&utm_medium=email&utm_source=cn_nl&utm_content=14088221&utm_term=onetapHM

            4 days ago

              Ksmiles123

              Ksmiles123

              Hello! How is the summer weather treating you?

              5 days ago

              Ksmiles123

              Ksmiles123answered the question What is pseudomonas? Has anyone experienced pseudomonas? If so, what was the treatment?

              https://www.mdedge.com/chestphysician/article/170004/pulmonology/fluoroquinolones-can-cause-fatal-hypoglycemia-fda-warns
              KandyliyahslolaDeeand 3 others also answered the question Kandyand 5 others also answered the question

              5 days ago

              Macfit

              Macfit

              Anyone taking NAC orally?

              5 days ago

              Kandy

              Kandyanswered the question Bronchietasis and Nails

              Nothing like that for me. Brittle but not what your experiencing!

              5 days ago

              Kandy

              Kandyanswered the question Has anyone else found out that they have low levels of CD8 killer T-cells?

              I had a lot blood work done by a hemotologsit I hope these were checked. This info about the t cells I never heard before.
              Ksmiles123 also answered the question Ksmiles123 also answered the question

              5 days ago

              Ksmiles123

              Ksmiles123https://www.everydayhealth.com/asthma/symptoms/surprising-connection-between-gerd-asthma/?xid=nl_EHNLasthmaallergies_2018-08-09&utm_source=Newsletters&utm_medium=Asthma%20and%20Allergies&utm_campaign=2018-08-09

              5 days ago

                Ksmiles123

                Ksmiles123Hello! I sure hope that you are not using the nasal spray listed below.https://www.healthyexaminer.com/nationwide-recall-of-sinus-relief-nasal-mist-due-to-microbiological-contamination/?utm_source=&utm_medium=email&utm_campaign=20180809-sponsored

                6 days ago

                liyahslola

                liyahslolaasked the question: Bronchietasis and Nails

                Anyone experiencing nail bed problems and losing fingernails. My experience is I started getting artificial nails in October or December of 2017. I've always had beautiful nails, but I got gel nails and the last lady that removed them, damaged my nails. …

                6 days ago

                gardeniaintexas

                gardeniaintexasasked the question: Has anyone else found out that they have low levels of CD8 killer T-cells?

                My immunologist discovered through blood tests that I have very low levels of CD8 killer T-cells. He says in about a decade they may be able to correct this genetic defect. This may be a piece of the puzzle why I have bronchiectasis and a history of …

                6 days ago

                Ksmiles123

                Ksmiles123Hello! How are you handling dietary restrictions for GERD over the summer months? I love bruschetta and many other summer food / drink items which aggravate reflux. I have been trying really hard to remain compliant. Are you?https://www.webmd.com/heartburn-gerd/ss/slideshow-heartburn-overview

                6 days ago

                Ksmiles123

                Ksmiles123Hello! Do you often say you “ should” do something when you are physically unable to do so?
                https://blogs.webmd.com/mental-health/2018/07/how-to-get-rid-of-the-shoulds.html?ecd=wnl_emw_080818&ctr=wnl-emw-080818_nsl-ftn_1&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3d

                6 days ago

                Ksmiles123

                Ksmiles123commented onMoving Closer to an Approved Therapy for NTM Lung Disease: FDA Advisory Committee says Arikayce (Inhaled Liposomal Amikacin) is a safe and effective treatment for those with limited options

                 Yes, the patient voice is extremely important to the decision makers; it adds the human element , the impact on one’s daily life into the equation. Many of us look “ normal “. It is so very important for others to listen to the impact on QOL....

                1 week ago

                Vinny M

                Vinny Mvoted on Lend Your Voice to Raising Supplemental Oxygen Awareness

                Gave a thumbs up for a blog post!

                1 week ago

                Delia

                Deliacommented onMoving Closer to an Approved Therapy for NTM Lung Disease: FDA Advisory Committee says Arikayce (Inhaled Liposomal Amikacin) is a safe and effective treatment for those with limited options

                 I cannot agree with you more! The patient perspective is so important during meetings like this one....

                1 week ago

                Cbp

                Cbpcommented onMoving Closer to an Approved Therapy for NTM Lung Disease: FDA Advisory Committee says Arikayce (Inhaled Liposomal Amikacin) is a safe and effective treatment for those with limited options

                 It was amazing to hear the powerful stories from patients and physicians who stood up during the public comment section of the meeting to advocate for themselves and the people they serve. It was very courageous and helped put the patient...

                1 week ago

                Gretchen

                Gretchenadded a new article Moving Closer to an Approved Therapy for NTM Lung Disease: FDA Advisory Committee says Arikayce (Inhaled Liposomal Amikacin) is a safe and effective treatment for those with limited options

                As you know currently there are no FDA-approved treatments specifically for nontuberculous mycobacterial (NTM) lung disease caused by MAC. Yesterday, the Antimicrobial Drugs Advisory Committee of the U.S. Food & Drug Administration met to assess a newly proposed treatment, Arikayce (Inhaled Liposomal Amikacin) for NTM lung disease caused by Mycobacterium avium complex (MAC).

                During the meeting, the Advisory Committee heard presentations from Insmed, the company who...

                1 week ago

                unknown

                unknown

                Is bronchiectasis with sinusitis and chronic indigestion problem symptoms of fibrosis ? am i heading to fibrosis ?

                1 week ago

                • Ksmiles123Unknown,
                  There are so many different types of lung diseases. Bronchiectasis, sinusitis, indigestion are different from pulmonary fibrosis. Bronchiectasis , sinusitis includes inflammation. Indigestion can be improved for many with dietary changes.
                  It is important for you to discuss your particular case details with your doctor.1 week ago

                • Made PramanaHi unknown! I just read your question. I don't know the answer. It's possible probably to consult your condition with your doctor. Hope you are okay.5 days ago

                Ksmiles123

                Ksmiles123

                Hello! Social support/ connection is so important for everyone, especially patients who are unable to work and do not get out of the house frequently. We are here to support you online. Please let us know how you are doing ; many others are in the same situation. Support, encouragement on a daily basis goes along way. You are not alone on this journey.https://newsinhealth.nih.gov/2018/08/care-connection

                1 week ago

                QueenHelene

                QueenHelene

                Hello all. Just joined and am excited about learning more about my disease. Looking forward to read, ask and answer questions.
                Right now, I am looking for a source to purchase hypertonic solution for my nebulizer. My pulmonologist wants me to use it with my respirator vest, but I can't find a source. Walgreens can get it for me but Aetna HMO will not cover the cost. However, if it is purchased thru a medical supplier like Lin Care (they don't have it), it will be billed as medical not pharmacy and they will cover it. Any suggestions?

                1 week ago

                Tracie Sullivan COPDF Staff

                Tracie Sullivan COPDF StaffDid you know that August is National Immunization Awareness Month? Do you always get your annual flu shots? How about a pneumococcal pneumonia vaccine? Talk to your doctor at your next week about ways you can protect yourself as Fall comes around the corner! To learn more about awareness month, read an article here: https://www.prnewswire.com/news-releases/national-immunization-awareness-month-highlights-how-vaccines-have-helped-reduce-our-rate-of-death-and-disease-in-the-united-states-300687225.html

                1 week ago

                Macfit

                Macfit

                For bronchies who do exercise as a component of their airway clearance, let’s talk! What works best for you? Are you an experimenter or do you stick with a routine?

                1 week ago

                • Click to View All Comments7 comment(s) -
                • Ksmiles123Hello! The warm weather/ humidity is winding down soon. I hope that you have more good days in the fall.1 week ago

                • Made PramanaHi! Sorry for the late reply. The exercises that you do are good Macfit! 👍
                  I do yoga and walk in order to clear my lungs. Now I use acapella too. Love it.
                  Good job Katie and Kandy for your exercises 👍5 days ago

                • Ksmiles123😀😀4 days ago

                Ksmiles123

                Ksmiles123Hello! Do you research drug interactions or do you solely rely on your pharmacist?https://reference.medscape.com/drug-interactionchecker?src=wnl_drugguide_180806_mscpref&uac=287092CY&impID=1702999&faf=1

                1 week ago

                  Gretchen

                  GretchenAs marijuana has become legal in several U.S. states, its use has increased along with medical professionals exploring positive affects on various diseases. Read more about its impact on lung conditions here:

                  https://pulmonaryhypertensionnews.com/2017/06/16/cannabis-help-people-lung-diseases/amp/

                  1 week ago

                    Ksmiles123

                    Ksmiles123answered the question Multiple ntm infections from single sample and bronchiectasis

                    Yes, so true. I grew that years ago and they said the same; it was only on one specimen
                    MacfitMerry also answered the question Macfitand 1 other also answered the question

                    1 week ago

                    Gretchen

                    Gretchen

                    On Tuesday, August 7th we will be performing routine maintenance on BronchandNTM360social. There will be some disruptions that could last 30 minutes or more. Please check back later in the day to utilize the various resources available. Thank you all for your understanding and patience. Let me know if you have any questions! Have a great day everyone.

                    1 week ago

                    Macfit

                    Macfit

                    Hi Made! I see in your posting to the Mighty that you don’t use a flutter device. Do you mind me asking why?

                    1 week ago

                    Macfit

                    Macfit

                    Has anyone noticed they get mucus-y after eating? I do not have acid reflux so I lnow that is not the culprit.

                    1 week ago

                    gardeniaintexas

                    gardeniaintexasanswered the question False negative?

                    Here are some of the things I do to help me cough up sputum. I first use nebulized saline (a pulmonologist can prescribe this - I use 7% saline). You would need to get a nebulizer machine as well as the prescribed saline. I actually use the saline DAILY …
                    Ksmiles123 also answered the question Ksmiles123 also answered the question

                    1 week ago

                    Siegfried

                    Siegfried

                    Very tired, and coughing a lot

                    1 week ago

                    Ksmiles123

                    Ksmiles123

                    Exciting times for the NTM Community . We hope that all goes well on Tuesday!https://www.fda.gov/AdvisoryCommittees/Calendar/ucm612659.htm

                    1 week ago

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                    Medical Advice

                    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.