BronchandNTM360social welcomes new member Grandma Sam who joins 4,113 current members of our community. Weโ€™re glad you're here!

Alyssa Dittner

Alyssa DittnerAre you a caregiver for a family
member with bronchiectasis? Be part of the BURDEN initiative by Insmed
Incorporated.


Researchers are looking for adults living with bronchiectasis (without
cystic fibrosis), also known as NCFBE, and their caregivers for
interviews. Your experiences may drive change. Adults providing care to
someone who currently has symptoms and has experienced at least one
bronchiectasis flare (exacerbation) in the past year may be eligible. Participants
will be compensated. Register now and share your perspective on
bronchiectasis care.

Only 7 spots left!! 
https://bronchiectasis-burden.com/us/

1 day ago

  • Alyssa DittnerCaregiver:
    A caregiver should live with and provide care to someone
    with a confirmed diagnosis of bronchiectasis. This could be a child over the
    age of 18, sibling or spouse for example. 


    **If you have completed the survey already your spouse will
    likely qualify to participate as well. A spousal caregiver is a person who
    provides care and support to their spouse or partner. Responsibilities may
    include managing daily tasks, meeting medical needs (like transportation or obtaining
    prescriptions) and providing emotional support. 1 day ago
Alyssa Dittner

Alyssa DittnerListen to Our New Podcast Episode

This month on the Bronchiectasis and NTM 360 podcast, Dr. Timothy Aksamit, Medical Director of Bronchiectasis and NTM 360, joins us as we explore an โ€œIntroduction to Bronchiectasis and the Vicious Cycle.โ€ https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Podcasts

Podcasts | Bronchiectasis and NTM 360 Podcast

Bronchiectasis and NTM 360 Podcast is a series that educates, guides, and empowers patients and their family members with current information and resources. Hear from leading health experts, passionate advocates, caregivers, and people living with bronchiectasis and NTM lung disease.

2 days ago

Ksmiles123

Ksmiles123988 is the nationwide, free call center number for anyone who is dealing with an emotional crisis, mental health issues. Please read the link below for more information on this topic: https://www.nami.org/advocacy/crisis-intervention/988-reimagining-crisis-response/

988: Reimagining Crisis Response

If you or someone you know is struggling or in a crisis, help is available. Call, text or chat the 988 Suicide & Crisis Lifeline to reach a trained crisis counselor who can provide support in a mental health, substance use or suicide crisis. To learn how 988 can help in a crisis, read our [โ€ฆ]

1 hour ago

Ksmiles123

Ksmiles123asked the question: Which coping skills work best for you when you are feeling stressed?

The article below lists 71 different coping strategies to deal with stress and anxiety. https://www.happierhuman.com/coping-skills/

1 hour ago

Ksmiles123

Ksmiles123answered the question Have you heard about Acceptance and Commitment Therapy?

Marsrocket , You are most welcome! We all deal with our challenges in different ways. Reading about ACT assists us to be more mindful of our options to keep going forward. Yes, some people going through long term cancer/ chemotherapy treatments are …
marsrocket also answered the question marsrocket also answered the question

16 hours ago

Ksmiles123

Ksmiles123Today is World Mindfulness Day! Let us be mindful of daily action steps to improve our wellbeing.

22 hours ago

Ksmiles123

Ksmiles123asked the question: Have you heard about Acceptance and Commitment Therapy?

Acceptance and Commitment therapy assist individuals to accept where they are on their health journey. Once acceptance is achieved, one can become more committed to take action steps to go forward in their lives to take action steps. The goal is to …

1 day ago

360Coach Brandon

360Coach Brandon Here is a method to reduce anxiety that many people find helpful during overwhelming moments. This technique can assist with managing intrusive thoughts and worries. The 5-4-3-2-1 Grounding Technique involves identifying:

5 things you can see

4 things you can touch

3 things you can hear

2 things you can smell

1 thing you can taste

By engaging in this practice, it helps redirect your focus from anxious thoughts to the present moment.

1 day ago

m999pam

m999pam

Feel down today

1 day ago

Ksmiles123

Ksmiles1239/11 changed our lives forever.  9/11  had and continues to have an impact on so many people. We will never forget those who lost their lives on 911, and those who continue to suffer with respiratory issues and other medical conditions due to being at the scene of 911. 

2 days ago

Alyssa Dittner

Alyssa DittnerHave you every been curious about the process of clinical trials? What kinds of questions to ask and why its important. Katie helps answer some of these and directs you to resources to learn more! 


 https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/197/Participating-in-Clinical-Trials-Helps-Assess-New-Treatments-and-Therapies

Participating in Clinical Trials Helps Assess New Treatments and Therapies

By Katie Keating, R.N., M.S This blog is a summary of a presentation by Emily Henkle, MPH, PhD, at the NTM & Bronchiectasis Patient Conference, San Diego, CA, May 16, 2024. This blog was reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee Clinical trials are …

2 days ago

ChristinaH

ChristinaHHello community. I am coming to you with some sad news. We lost an amazing lady and patient advocate in the bronchiectasis community. Barbara Crossley worked tirelessly to promote awareness and better management of bronchiectasis. Although closely tied to our friends at the European Lung Foundation, Barbara was always willing to pitch in and assist with patient-centered events like our patient panel discussion in 2023 and our clinical research discussion in 2024 for World Bronchiectasis Day. We thank Barbara from the bottom of our hearts and will never forget her contributions to helping those with bronchiectasis. 

2 days ago

Patsyann

Patsyann

Trying to clear my lungs of mucus. I have been reading your website about what l can do to help me. Itโ€™s been very informative of what lโ€™m going to do.

2 days ago

JennyJM

JennyJM

Happy September everyone! This year is flying by. I am not ready for cold winter but am happy to transition into hoodie weather! Looking forward to all the exciting things happening in the next few months here! Be sure to check out the coffee breaks coming up and the mental health awareness resources posted. โ˜บ

2 days ago

Tara COPDF

Tara COPDF created the event BronchandNTM360social Coffee Break - December

Please join our virtual social hour to learn more about bronchiectasis and NTM. Register here: https://copdf.co/BronchNTM-coffeebreak

2 days ago

Tara COPDF

Tara COPDF created the event BronchandNTM360social Coffee Break - November

Please join our virtual social hour to learn more about bronchiectasis and NTM. Register here: https://copdf.co/BronchNTM-coffeebreak

2 days ago

marsrocket

marsrocketHave a triumphant Tuesday, friends. 

3 days ago

Ksmiles123

Ksmiles123asked the question: Have you ever used a journal to vent your feelings about living with a chronic lung disease?

The link below provides a tool, entitled, Chronic Disease Management Through Therapeutic Writing- A Self-Care Tool https://healingworksfoundation.org/wp-content/uploads/2022/04/Chronic-Disease-Management-Writing-Prompts-1.pdf

3 days ago

Lorrainewenn

Lorrainewenn

๐Ÿ˜€

3 days ago

Ksmiles123

Ksmiles123asked the question: Are you interested in finding a therapist to discuss your health challenges??

The link below reviews the different types of counselors, and questions to ask the counselor before you make an appointment. Finding and Working with a Therapist โ€“ Healing Works Foundation

3 days ago

Ksmiles123

Ksmiles123

Living with a chronic illness is not easy.  We must always hold onto to the gift of HOPE. Below is one of my favorite quotes on the subject: 
โ€œHopeโ€ is a thing with feathers โ€“That perches in the soul โ€“And sings the tune without the words โ€“And never stops โ€“ at all โ€“โ€”Emily Dickinson.  Do you have a favorite quote that assists you with coping?

3 days ago

Ksmiles123

Ksmiles123added a new article Participating in Clinical Trials Helps Assess New Treatments and Therapies

By Katie Keating, R.N., M.S

This blog is a summary of a presentation by Emily Henkle, MPH, PhD, at the NTM & Bronchiectasis Patient Conference, San Diego, CA, May 16, 2024.

This blog was reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee

Clinical trials are done to test treatments or therapies for specific diseases...

4 days ago

laff4evr

laff4evrFour out of five lung buddies say this day is their favorite day of the week.


4 days ago

Ksmiles123

Ksmiles123

Hello! The European Respiratory Society is holding its annual international conference in Vienna , Austria. Telehealth , AI and other interesting technologies are being discussed to assist respiratory patients worldwide. Advances in medicine take time but hold onto hope that many advances/ new treatment therapies are in the pipeline. :) 

5 days ago

Storyteller

Storyteller

We are considering buying a house near saltwater marshes and within walking distance of a Ct, beach. I checked with my pulmo who did t see a problem with it, but I am concerned about possible stinky smells from the marshes. 
I am trying to get my husband to leave Ga, where I am not happy, but donโ€™t want to make another mistake on a house.
Very few houses available that meet criteria.
Any feedback on living near water and bronchiecstasis ?

5 days ago

Ksmiles123

Ksmiles123

Tele health appointments are protected by privacy rules. Do you have any concerns about privacy or your personal data? The link below discusses these topics:https://telehealth.hhs.gov/patients/additional-resources/data-privacy

6 days ago

360Coach Brandon

360Coach Brandon

Hello everyone!โ€ฏ

Our next BronchandNTM360social Coffee Break will be on Wednesday, September 11, 2024, @ 3 pm ET.

Gabrielle (Gabby) Davis, MPH, MA, RRT, LPC, NCC will be joining us to discuss mental health awareness with our group. Gabby has been a registered respiratory therapist for over 15 years.

Below are some helpful resources related to our discussion:

Coping with Chronic Illness and Disability
https://www.goodtherapy.org/learn-about-therapy/issues/disabilities

When to Consult a Psychologist
https://www.healthline.com/health/mental-health/psychologist-help

Understanding the Link Between Chronic Disease and Depression
https://www.nimh.nih.gov/health/publications/chronic-illness-mental-health

We open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. We will save any health-related discussion for the start of the meeting.


The meeting registration link is here:โ€ฏ
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration
Lookingโ€ฏforward to seeing you all Wednesday!

1 week ago

marsrocket

marsrocketHappy Friday, friends. 

1 week ago

Ksmiles123

Ksmiles123Hello!  The link below provides information on the different types of telehealth and remote patient monitoring: https://telehealth.hhs.gov/patients/what-are-different-types-telehealth

What are different types of telehealth?

There are many ways you can use telehealth to connect to your health care provider.

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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