BronchandNTM360social welcomes new member Danknowhathappened who joins 5,068 current members of our community. Weโ€™re glad you're here!

Ksmiles123

Ksmiles123answered the question time spent clearing airways

KB, I wish you the best! 1:1 coaching with a respiratory therapist is definitely worthwhile. I hope that you can get a less time consuming but effective airway clearance program in place soon.

2 hours ago

Suepink1

Suepink1

Interesting read in the European Lung Foundation's (ELF) newsletter about a study into how menthol can help to relieve the feelings of breathlessness. Hopefully this link works, but if not, take a look at their site:Can menthol inhalation reduce the feeling of breathlessness? - European Lung Foundation

8 hours ago

baileymccrary

baileymccrary

Hi everyone! Yesterday, Congress advanced and the president signed the Consolidated Appropriations Act of 2026. This funding package includes several big "wins" for the lung health community!:


- COPD Foundation/Bronchiectasis and NTM Association priority report language accompanying the National Institutes of Health (NIH) budget
- Overall budget increase for the NIH
- Two-year extension of Medicare coverage for virtual pulmonary rehabilitation
- Restrictions on "forward funding" to provide more research funding
- Limits on indirect payment caps for research


Our lung health community's tireless dedication on advocacy helped make these "wins" possible! Thank you for your support of these policy priorities throughout 2025. Everyone should be very proud of their hard work that contributed to better policies for the lung health community.


Thank you to everyone for your passion and commitment for better lung health policies. We are incredibly proud of our community and look forward to more policy "wins" in 2026!

11 hours ago

TimD

TimD created the event February 2026 BronchandNTM360social Coffee Break

Hello everyone! Our next BronchandNTM360social Coffee Break is Wednesday, February 11, 2026 @ 2:30pm EST. Michelle MacDonald, MS, RDN, CDCESโ€ฏwill join us again to address "How your Lab Results and Nutritional Needs are Interrelated.โ€ Time allowing, …

15 hours ago

Ksmiles123

Ksmiles123

Hello! Do you fully understand the connection between the lungs and the heart? The link below from the Cleveland Clinic , including an infographic reviews this important information: https://www.nationaljewish.org/education/health-information/infographics/whats-the-connection-your-heart-can-affect-your-breathing
Please let us know if you have any specific questions. 

15 hours ago

KB

KBasked the question: time spent clearing airways

Hi. My diagnosis is mild bronchiectasis. Typically I have to clear airways every 4 to 5 days. But it takes me up to 3 hours to clear airways start to finish. From what I read on this blog, I am slow! Currently steaming for 15 minutes, nebulizing with …

1 day ago

KB

KBanswered the question Allergy related bronchiectasis flareups

Thanks for all this feedback. I am seeing allergist/immunologist and pulmonologist. Answers soon I hope but its looking like allergies exacerbate the bronchiectasis; flares, cold adds to it as you all knew. Its nice to have people to talk to about this. …
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 day ago

Ksmiles123

Ksmiles123Hello!This has been the longest cold stretch that I can remember.  Staying indoors for extended periods of time can take a toll on some individuals. 
Are you dealing with Cabin Fever? The link below, from Medical News Today, defines Cabin Fever and Ways to Cope with Cabin Fever: 
https://www.medicalnewstoday.com/articles/cabin-fever

Cabin fever: Definition, symptoms, and how to cope

Cabin fever describes the psychological symptoms that a person may experience on being confined to their home for extended periods. Learn how to manage it here.

1 day ago

Ksmiles123

Ksmiles123The Groundhog predicts six more weeks of winter ๐Ÿฅถ!!!!On my! We must work together to bring the sunshine โ˜€ in on this site!!!! I canโ€™t wait to enjoy beautiful warmer, spring days. 

2 days ago

Ksmiles123

Ksmiles123answered the question Has your Pseudomonas infection cleared and then reoccurred?

Das23, Hello! Thank you for sharing your update. I am glad that Colistin is working for you. Thank you for the information on the drug under current research. We must always hold onto Hope- so much has happened in the BNTM space over the past decade.
DAJ also answered the question DAJ also answered the question

3 days ago

DAJ

DAJasked the question: Brinsupri Results

If anyone is on Brinsupri, I would love to hear your expeience

3 days ago

KB

KBasked the question: Allergy related bronchiectasis flareups

Currently undergoing allergy shots. Lately any exposure to outside air flares the bronchiectasis. Are these flares likely to increase the frequency of the need to clear lungs or will the frequency return to what it has been? When at maintenance with …

3 days ago

Ksmiles123

Ksmiles123

Hello! Welcome February.We just got through one of the coldest Januaries I can remember. I hopethat you are keeping warm and safe.Extreme cold weather can result in bronchospasm in some individuals; itis best to have your rescue inhaler or nebulizer available when needed. Groundhog Day is tomorrow- letโ€™s see what Punxsutawney Philpredicts tomorrow. There are 46 days until spring, on March 20th.Yippee!!! Spring is my favorite time of the year since I love being outdoors, and it is neither too cold nor too hot. 
Throughout the month, we will focus on the following topics: heart and physical health, exercise, nutrition, the Gut Microbiome, GI testing-EGD/Endoscopy, Manometry, and Colonoscopy. Lastly, we will review Acid Reflux and other comorbidities, such as theassessment and follow-up on a hiatal hernia diagnosis.

3 days ago

Ksmiles123

Ksmiles123International Quality of Life Month is observed in January, highlighting ways individuals can improve the quality of their lives. This is the first year that I have heard about this worthwhile celebration! The goal is to encourage people to assess their current lifestyles and improve their physical, mental, emotional, and social well-being. The month aims to motivate people to take control of their lives, develop a sense of purpose, and improve overall happiness and satisfaction. Many of us have heard this term used repeatedly at webinars; new medications/ treatments are aimed at improving the quality of life for BTM individuals. What action steps are you taking towards improving the quality of your life?

https://nationaltoday.com/international-quality-of-life-month/

International Quality of Life Month

International Quality of Life Month focuses on how people can attain happiness in the long run.

5 days ago

  • NewestOldest
  • 360Coach Brandon Thank you for sharing, Katie. Quality of life really matters when youโ€™re living with bronchiectasis or NTM, and it looks different for everyone. Itโ€™s not just about treatments -- itโ€™s about feeling supported and remembering that taking care of ourselves goes beyond the medical side of things.5 days ago
  • Ksmiles123Brandon, 
    I agree with your comment wholeheartedly. We are more than our physical beings, we have individual psychosocial needs. We all need some support to keep going forward. Letโ€™s use this language โ€œ quality of life โ€œ more often when we speak of goal setting. 5 days ago
Ksmiles123

Ksmiles123

Hello! We all experience good days and challenging days. We need to have a toolbox of activities/ ideas to assist us on challenging days. Below is a link to 101 Activities to Boost You When You are Feeling Down, from Psychology Today Magazine. Activities included in the article are for a diverse range of age groups. Do you have a favorite activity in your toolbox that boosts your mood on a challenging day? https://www.psychologytoday.com/us/blog/mapping-your-mental-health-journey/202404/101-activities-to-boost-your-mood?msockid=0ca9b0b92ddf6727275ca33b29df6150

6 days ago

Ksmiles123

Ksmiles123

Hello! We want to take a moment to talk about the social and
emotional side of living with a chronic conditionโ€”something that often doesnโ€™t
get enough space or conversation. For many people, chronic illness can affect
mental and emotional well-being in real and lasting ways. Some of those
experiences may include: 
ยท
Relationships feel different. Living with a
chronic condition can change how we connect with loved ones. It may be hard to
explain what daily life feels like now, ask for support, or adjust to a โ€œnew
normalโ€ together. Bronchiectasis and NTM are invisible conditions and are often
misunderstood, which can add another layer of challenge. 
ยท
Medical stress and burnout. Many people with
bronchiectasis or NTM spend years searching for answers before receiving a
diagnosis. Some have felt dismissed or not fully believed along the way, which
can be exhausting and discouraging. On top of that, ongoing appointments, phone
calls, and insurance hurdles can be overwhelmingโ€”especially when it is ongoing,
not just an occasional task. 
Let us know if you can relate to either of the effects of
chronic illness listed above. You are not alone; we are here to support you on
your journey. Knowledge empowers people
to keep going forward. Learning how to communicate effectively with our
families, friends, and health care professionals is the key to a better quality
of life. Community support enables us to get the assistance we need. We are
here to walk alongside you and support you on your journey.

1 week ago

Ksmiles123

Ksmiles123answered the question Are you using a nasal wash?

Das23, Glad you are using nasal washes. Tis another tasks on our healthcare list but I feel it is definitely worth the time. Have a pleasant day
das23Suepink1 also answered the question das23and 1 other also answered the question

1 week ago

Ksmiles123

Ksmiles123asked the question: Are you using a nasal wash?

Nasal washes are solutions used to rinse out your nasal passages and sinuses using a saline(saltwater) mix. I find using these washes beneficial, especially throughout the winter months when we are dealing with dry heat in our homes. These washes …

1 week ago

Ksmiles123

Ksmiles123

Hello! Spring is my favorite season. There are 53 days until spring, on March 20th. ๐Ÿ˜ I know that we are supposed to live in the present moment and I attempt to do so. Do you have a favorite season? 

1 week ago

Ksmiles123

Ksmiles123answered the question Sputum sample collection difficulty

SuePink, They would prefer a one time sputum but this is the 2nd best way of getting adequate sputum for some individuals. I have done this many times over the years; they will reject the specimen if not an adequate amount, or other reasons. I wish you …

1 week ago

Ksmiles123

Ksmiles123

Hello! Many of us are housebound due to the severe cold weather
conditions throughout the USA. Scrolling
through social media or watching the weather reports all day is not good for
us. Diversional indoor activities are therapeutic pastimes. Hopefully, thereโ€™s
something on the list below for you to enjoy.

Learn a new skill, such as knitting or painting. Cooking and
baking are great activities to do on a snowy day. You can try out new recipes or
make some of your favorite comfort foods. Search online for some winter recipes
or check out this list of winter comfort foods.

Reading -you can curl up with a good book or magazine.
Practice some relaxation techniques like meditation, yoga, or deep breathing
exercises to help you unwind and de-stress. There are many free programs on
YouTube or free apps.

Movie Marathon- grab some blankets, popcorn, and your
favorite movies for a cozy movie marathon or watch old TV shows. I have been
watching Johnnie Carson reruns that are very entertaining.

Board Games and Puzzles are classic snow day activities that
never get old. Try some arts and crafts if you are feeling creative. Check out
winter craft ideas online for some inspiration.

Treat yourself to a home spa day? A warm bath with some
Epsom salts and essential oils, homemade face masks and body scrubs.

Writing is a great way to spend this alone time because you
can express your thoughts while also having a creative outlet. There are so
many different methods that you can use to improve writing skills, such as
journaling, blogging, and writing a short story. Getting your thoughts on paper
can be therapeutic, whether you write about things that are happening in your
life or someone else's life. I hope that
you enjoy some activity to take your mind off what you cannot control. Do you
have a favorite pastime activity?

1 week ago

Suepink1

Suepink1asked the question: Sputum sample collection difficulty

I've been through all processing for the Airtivity clinical trial, and all good so far. Now the stumbling block for me is to produce a good sputum sample. Apparently I won't get on the trial if I cannot produce two good samples. I am not allowed to use …

1 week ago

Ksmiles123

Ksmiles123Hello! Extreme cold temperatures are affecting many parts of
the USA. Below is some basic information on hypothermia and frostbite.

Hypothermia- Cold, dry air can trigger bronchospasm, coughing,
chest tightness, and shortness of breath. People with already-limited lung
function may feel sudden fatigue, dizziness, and worsening breathlessness. Cold
exposure can weaken immune defenses in the airways. Thickened mucus becomes
harder to clear โ†’ higher risk of exacerbations or infections.   Hypothermia early symptoms: Shivering that may stop as it
worsens

โ€ข Slurred speech, confusion, or brain fog

โ€ข Rapid breathing at first โ†’ slow, shallow breathing later

โ€ข Blue or pale lips/fingertips.

Frostbite most often affects an individualโ€™s fingers, toes,
nose, and ears. Respiratory patients are at higher risk because of reduced
circulation from chronic illness or medications. Also, fatigue may delay
noticing symptoms.

Early frostbite signs: Numbness or tingling

โ€ข Skin turning pale, lighter color

โ€ข Loss of fine motor control

Cold-weather protection that actually helps: Cover your airways-wear
a scarf, gaiter, or mask over nose & mouthโ†’ warms and humidifies inhaled
air. Protect extremities with mittens, gloves, cover your ears fully, wear
insulated socks, and layer your clothing.

Please stay warm and safe throughout this cold spell. For more
information, please see the link below: https://my.clevelandclinic.org/health/diseases/15439-frostbite

Frostbite: Signs & Symptoms, Stages, Treatment & Prevention

Frostbite is skin damage that happens in freezing temperatures. Symptoms include pain, numbness and skin discoloration.

1 week ago

Dianne

Dianne

Fair, recovering (I hope) from an exacerbation. 

1 week ago

Suzanne H

Suzanne H

Hello Everyone, I'm new here from Texas. Home sick today with stomach flu and tired of coughing... hoping its not something more. Struggled with getting in to see a doctor this morning and was not successful. I'm very frustrated with that. Does anyone have suggestions on being able to reach a doctor quickly when you need them? I'm new to Bronchiectasis. 

1 week ago

  • NewestOldest
  • das23Welcome ... If you think you need the doctor you could go to an ER or an Urgent Care1 week ago
  • Ksmiles123Suzanne,
    Hello! Welcome to the community. I am sorry to read that you are not feeling well.  Do you have an established relationship with a pulmonologist?  Many are now doing telehealth visits after you have had your initial visit in person.  Telehealth really offers a great service, especially throughout the winter months.
    Otherwise, there are urgent care centers for walk-ins.  I hope that you get the assistance you need and that you feel better soon. 1 week ago
Lelee

Lelee

Blessed

1 week ago

Ksmiles123

Ksmiles123Hello! There are many causes of anxiety. Upcoming storms can lead to greater anxiety for those who are mostly homebound. The link below, from the National Institutes of Health, offers tips on dealing with anxiety. The link will take you to other topics regarding mental health and anxiety. Please let us know if you have any questions. We are here to support you throughout the year, especially now through this cold and snowy season. Caring for Your Mental Health - National Institute of Mental Health (NIMH) Anxiety Disorders, https://www.nimh.nih.gov/health/topics/anxiety-disorders

Anxiety Disorders

Learn about NIMH research on anxiety disorders. Find resources on the signs and symptoms of anxiety disorders and potential treatments and therapies.

1 week ago

Alyssa Dittner

Alyssa Dittner created the event Highlights from the Forum on Respiratory Tract Infections

The Forum on Respiratory Tract Infections is a world-class scientific conference built on innovation, collaboration and groundbreaking research.It brings together a global community of medical professionals, healthcare industry and respiratory patients, …

1 week ago

Ssieber

Ssieber

Coughing and tired

2 weeks ago

360Coach Brandon

360Coach Brandon DPP Check-In ๐ŸŒง๏ธโ„โšก | Bronchiectasis & NTM Community

With intense storms impacting many areas right now, this is a good moment for a quick Disaster Preparedness Plan (DPP) check-inโ€”especially for those living with bronchiectasis or NTM, where breathing needs and routines matter even more.

A few gentle reminders to help you stay ready and safe:

Medications & airway clearance ๐Ÿ’Š๐Ÿงฐ๐Ÿซ: Make sure you have extra meds, nebulizer supplies, inhalers, and anything you use for airway clearance, plus batteries ๐Ÿ”‹ and chargers ๐Ÿ”Œ if needed.

Power plan โšก๐Ÿ ๐Ÿ“ž: If you rely on electric equipment (nebulizers, compressors, oxygen), double-check backup power options and keep emergency numbers handy.

Air quality & breathing needs ๐Ÿ˜ฎโ€๐Ÿ’จ๐ŸŒฌ๏ธ๐Ÿซถ: Storms can bring humidity changes, mold exposure, and cold airโ€”listen to your body, pace yourself, and adjust treatments as advised by your care team.

Stay informed ๐Ÿ“ฒ๐Ÿ“ป: Keep weather and emergency alerts on, and know where to get local updates if conditions shift quickly.

Reach out ๐Ÿค๐Ÿ’ฌ: Let a trusted person know how youโ€™re doing, especially if you live alone or symptoms start to change.

If storms are affecting your area, know youโ€™re not alone. Take things one step at a time, rest when needed, and put your health first. ๐Ÿ’™

If youโ€™d like, share how things look where you areโ€”or any preparedness tips that have helped you manage bronchiectasis or NTM during severe weather.

Here is our Disaster Preparedness Plan (DPP) available in our Downloads Library:
https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Downloads-Library#DisasterPrepared

Downloads Library | Bronchiectasis and NTM Association

Thank you for your interest in Bronchiectasis and NTM 360 educational library. We have a variety of useful booklets, flyers, and tools to help you learn more about living with bronchiectasis and NTM lung disease.

2 weeks ago

  • NewestOldest
  • Ksmiles123It is always best to be prepared rather than panic and experience high anxiety throughout the storms of our lives. Have plenty of non perishable foods and drinks in your home. Please review the disaster preparedness plan in the link above . 2 weeks ago
  • Suzanne HGood idea to be prepared. 1 week ago
  • Ksmiles123Hello! I hope that you are prepared for the upcoming storm- batteries , extra meds, perishable foods.,There is still time, in some parts of the country to order a battery operated nebulizer from Amazon if you need one as a backup. Donโ€™t forget to continue your airway clearance several times each day- dry heat can dry out our nasal passages. We need to continue clearing out our airways. I hope you have a backup up plan for those using a vests- a small generator. Get  those extra blankets out and other supplies as needed. I hope and pray that this storm is lighter than they are forecasting and that you get safely and warmly through the storm and cold spell.1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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