Delia

DeliaHi all,
Thanks again to everyone who participated in COVID-19 Survey #2! The bronchiectasis/NTM-specific results of the survey have been reported in our most recent blog post. Check it out below!

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/121/Highlights-from-COVID-19-Survey-2-Pandemic-Impact-on-the-Bronchiectasis-and-NTM

1 month ago

Ksmiles123

Ksmiles123

Hello! Are you getting enough exercise?  The link below offers suggestions on how to get adequate exercise while at home:https://www.verywellfit.com/best-ways-to-exercise-at-home-1231142?utm_campaign=health_tod&utm_medium=email&utm_source=cn_nl&utm_content=21069327&utm_term=list_gl_dt_eats-default

5 hours ago

  • madepramanaHi Katie. I started to do exercise again since yesterday. Doing stretching and strengthening exercise at home. Not much but will do it regularly.3 hours ago
Ksmiles123

Ksmiles123

Hello! Walking is so good for our mental and physical well being. I have been pushing myself to walk as frequently as possible. We must push ourselves to exercise on days that we are uncertain whether or not we can- if we cannot , we know that we attempted to do so. .https://www.newyorker.com/tech/annals-of-technology/walking-helps-us-think?utm_source=linkedin&utm_social-type=owned&utm_brand=tny&utm_medium=social

23 hours ago

Ksmiles123

Ksmiles123

Hello! Below are resources from the CDC re: coping with the Corona Virus : https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html

1 day ago

Delia

Deliaasked the question: Bronchiectasis and NTM Information Podcast

Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …

3 days ago

Ksmiles123

Ksmiles123

Hello! I feel that many of us are more equipped to handle the corona virus challenges since we have been dealing w so many necessary precautions over the years. Also, from an emotional level since we have been quarantined in different ways for quite some time and have learned to cope with restrictions.Today, we can choose to stay stuck, go further into the mud hole or take daily action steps to keep us in a better mindset which will impact our immune systems. Below is a monthly chart of daily steps to consider to maintain a positive attitude. Please respond if are interested in taking daily action steps. We are all in this together. https://www.actionforhappiness.org/altruistic-august

3 days ago

Ksmiles123

Ksmiles123Hello! The link below describes the differences in the Covid 19 tests:https://www.nationaljewish.org/patients-visitors/patient-info/important-updates/coronavirus-information-and-resources/patient-care/covid-19-testing-antibody-diagnostic/the-difference-between-tests-for-covid-19

3 days ago

Ksmiles123

Ksmiles123

Hello! The article below is about communication on how one really feels during these challenging times: https://www.nytimes.com/2020/07/28/smarter-living/coronavirus-how-to-check-in-with-a-friend.html

5 days ago

Janney

Janney

I am a newly diagnosed bronchiectasis patient, awaiting results from sputum test. So I've been reading about NTM and am overwhelmed by it all. I was wondering if you have concerns about visiting other people's homes due to air quality?

6 days ago

  • NewestOldestClick to View All Comments10 comment(s)
  • KandyHello Janney welcome.  My allergist had me remove my humidifier for reason of grown of bacteria or molds.   I have bronchiectasis among other lung diseases. 4 days ago
  • JanneyThanks for your welcome, Kandy!  It really helps to hear others' voices. Makes me feel less alone with all of this.  I'm thinking your allergies dictate what you can handle. I'm waiting to find out if I have NTM and with that (I could be wrong) it seems like you have to be careful to avoid exposure from tap water, soil and dust. 'cause the bacteria may be lurking in them.  It's all a bit much to take in after only a week. Thanks again for responding. I really look forward to hearing from people. Take care, janney 3 days ago
  • KandyI had bronchoscopy a few years ago and they grew a sample in lab for a week it was nothing to worry about normal flora.   I do drink tap water do not buy water.  3 days ago
Ksmiles123

Ksmiles123

Hello! HOPE is a powerful word! The link below offers suggestions on increasing hope during these challenging times: https://medium.com/@benjaminhardy/10-science-based-ways-to-increase-your-hope-430892caacb2

6 days ago

Ksmiles123

Ksmiles123

Hello! Do you check out the air quality in your area before heading outside? The link below reviews the air quality in my area : https://weather.com/forecast/air-quality/l/6edbe6f43ea5f01b5ce04bde2bf64d098511d4950e718605916e408bf8766b7b

6 days ago

Gma Dobie

Gma Dobie

Hi!  I am a 68-year-old woman diagnosed with bronchiectasis about 8 months ago.  I deal with a bit of coughing but shortness of breath and exhaustion are most prevalent.  I've been on a neb for a few weeks - Brovana and Budesonide twice a day.  I've tried several inhalers but nothing is effective so I have nothing to use in between nebs.  I also have chronic rib pain, which I think is related to the bronchiectasis, headaches and also newly diagnosed
reflux.  I have a pulmonologist at Mayo Clinic in Rochester and one in Coon Rapids - I live north of the Twin Cities in Cambridge - but just feel there's got to be for help for me.  I am so frustrated that my life has changed so much...I have a lot of zest for life, so much to do and am still working in an office at our local high school.  I just wanted to get started on this forum, hoping to receive any helpful comments/suggestions as to how to function better in life.  My next step is to try the UofM in the Twin Cities...has anyone seen a specialist there with good results?

1 week ago

Ksmiles123

Ksmiles123

Hello! What are you doing today ? We must find good diversional activities during this quarantine period.  Watching  the news minimally is advised by many mental health professionals.  Have a pleasant day! 

1 week ago

Ksmiles123

Ksmiles123Hello! How are you coping w the opinions of others regarding taking infection control precautions ?  Some people are bullying others over the way one deals w the virus. https://www.everydayhealth.com/coronavirus/how-to-cope-with-a-pandemic-bully/

1 week ago

Ksmiles123

Ksmiles123Hello! The link below is quite technical/ medical; it explains why we really need to have a decent nights sleep ๐Ÿ’ค:https://en.m.wikipedia.org/wiki/Glymphatic_system

1 week ago

Ksmiles123

Ksmiles123Hello! It is challenging to stay compliant with great nutrition when quarantined.  However, we must continue working towards eating healthier food in order to have strong immune systems.https://www.healthline.com/nutrition/foods-with-minerals?slot_pos=article_1&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=authoritynutrition&utm_content=2020-07-23&apid=25246343#16.-Leafy-greens

1 week ago

Kandy

Kandyhttps://www.statnews.com/2020/07/22/confusion-spreads-over-system-to-determine-priority-access-to-covid-19-vaccines/?utm_source=STAT+Newsletters&utm_campaign=bc1831b774-Daily_Recap&utm_medium=email&utm_term=0_8cab1d7961-bc1831b774-152771766


The fight is  on!! 

1 week ago

Ksmiles123

Ksmiles123Hello! The article below reviews the positive aspects of Tele health: https://www.medpagetoday.com/practicemanagement/telehealth/87662

1 week ago

Kandy

Kandyanswered the question Puzzled. Am I normal

Has your dr ever said anything about pulmonary rehab? That is very good for us and our lungs besides body. Ask for referral may help you.
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 week ago

Kandy

Kandyanswered the question Monitoring air quality inside

I have honeywell for years be sure HEPA and with a charcoal filter no ozone its bad for our lungs.
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 week ago

Ksmiles123

Ksmiles123

Hello! The link below reviews few points:https://www.wral.com/weather/blogpost/3284480/

1 week ago

Ksmiles123

Ksmiles123

2 weeks ago

Kevinl

Kevinl

Hi. Went to the pulmonologist.  Because i responded well to an inhaler on a PFI I've been diagnosed with asthma.  Have been on BREO almost a month now, with albuterol as a rescue inhaler. I dont understand.  The cat scan states bronchiectasis. According to the web they are 2 different things. 
She said "she doesnt treat acxorsing to individual tests, but the patient as a whole.  I have to see her again in a couple of weeks. Im going 4o ask her if i have both, but am I imissing something?
Been doing short walks today due to heat and humidity. Hoping ro get to 10k today sometime qnd get the "disco ball" on my Fitbit.

2 weeks ago

GG

GGasked the question: Monitoring air quality inside

Hi, I am new to the forum, but have lived with bronchiectasis for several years I am fortunate because it is mild and I actively work hard to stay well. We sold our home and have opted to live in an apartment in a walkable area Laughable now since …

2 weeks ago

Yak

Yak

Hi from a newbie to this site but have had bronchiectasis for over 15 years a bout with severe pneumonia. Am interested in comments, insight on the following:  I work for a school district in a very high COVID-19 state.  The district has made employees sign a statement saying they will stay home if they have a cough.  The district did NOT qualify the mandate to address those of us with chronic disease (bronchiectasis, asthma, heart issues, etc.).  I have noticed that, when screening for procedures and visits,  my medical providers are now differentiating between chronic and new symptoms when they ask the screening C-19 questions.  Not working is not currently an option (yes, I am quite aware of what that probably means for me).  Any feedback on the school mandate of not coughing?  Thanks so much.

2 weeks ago

  • NewestOldest
  • Ksmiles123Hello! Welcome to the site.  It is important for you to share information on the nature of your cough, chronic coughs with your school principal? Most people donโ€™t understand these chronic conditions and need to be educated on the difference between a chronic cough and a new, suspicious Covid cough.
    Also, Reach out to the director of nursing in your school district to see if she can assist you?  You do not want to get that โ€œ dirty, paranoid lookโ€ from others if and when you do cough.  Please keep us posted.2 weeks ago
  • KandyWelcome Yak to the group.  I feel so bad for teachers and students this coming year.  I hope all well be ok I have no solution except the children stay home again but some didn't get the education for one reason or another and I think the parents were pulling their hair out as well,  I heard from my kids. haha2 weeks ago
  • JanneyHi Yak, welcome - I'm new too. Did you have an NTM pneumonia when you got sick?  I was just diagnosed with mild bronchiectasis and awaiting sputum results.  I was just wondering how your health is generally.   I started taking an antibiotic 5 days ago after finding out how I have bronchiectasis. It has totally eliminated my cough. I feel good but concerned about a future NTM diagnosis.  Keep hoping that maybe it's the regular walking pneumonia bacteria (mycoplasma) that caused my brochiectasis. Please fill me in when you have a chance. Oh, also I work at a school too but my boss is letting me work from home for now.  I do the communications. Take care,!5 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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