BronchandNTM360social welcomes new member SRLabMD who joins 3,838 current members of our community. Weโ€™re glad you're here!


Storyteller

Storyteller

I am scheduled for pfts on Friday and so nervous after the pfts in Jan. showed I had 50 percent lung functionโ€ฆ.down from 2019.
I am wondering if the anxiety I feel with these tests is skewing the results. I take .5 klonopin in the morning for PTSD and panic attacks .in Jan., I didnโ€™t take the klonopin but am wondering if I should take it before the tests . I did put in a call to the nurse.
The other option is to do the pfts when I see my pulmo, whom I know well, in Ct. in May.

3 minutes ago

  • StorytellerI didnโ€™t take the klonopin in Jan, when I had the tests with my Ct. pulmo with whom I feel very comfortable. Was afraid it would make my breathing worse.1 minute ago
Ksmiles123

Ksmiles123asked the question: Do you know the early signs of an exacerbation?

The link below reviews the red flags of a possible exacerbation: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

1 day ago

Ksmiles123

Ksmiles123Hello! Below are a list of comforting quotes to deal with stressful times: https://www.inspiringquotes.com/comforting-quotes-for-stressful-times/YaauMws67AAGDtPd?liu=679101a10d878ea8d173d494520017c0&utm_source=blog&utm_medium=email&utm_campaign=2113834531

2 days ago

Ksmiles123

Ksmiles123asked the question: Are you planning on traveling soon?

The link below offers some suggestions for BNTM individuals who will be traveling over the upcoming months: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

3 days ago

CHtun

CHtunHerbal tea
https://herbalteatherapy.com/blogs/news

4 days ago

Ksmiles123

Ksmiles123

Does the impact of April rain affect your daily energy levels?

4 days ago

Ksmiles123

Ksmiles123Hello! April is National Humor Month. Please read the article below about the physical and psychological benefits of laughter: https://nationaltoday.com/national-humor-month/

4 days ago

Ksmiles123

Ksmiles123

Hello! Below is an educational video on exacerbations: https://m.youtube.com/watch?v=bfqJK288zPA

5 days ago

Ksmiles123

Ksmiles123The link below reports the best and worst places to live with seasonal allergies: https://www.nationaljewish.org/conditions/health-infographics/20-best-worst-cities-for-seasonal-allergies?utm_medium=email&utm_source=engagingnetworks&utm_campaign=HealthInsights+April+2024&utm_content=Health+Insights+-+April+2024

6 days ago

Grannylu

Grannylu

Thank you.  Just diagnosed and hoping to get some help here.   So far I am just tired!

6 days ago

Kandy

KandyHappy Eclipse Day. Hope you got to see it. Not here.

1 week ago

Tack

Tack

I am doing ok, managing by Bronchietasis some days are better.
My major job is airway clearance,
Still dealing with shortness of breath and tiredness.

1 week ago

360Coach Brandon

360Coach Brandon

Hello everyone!โ€ฏ

Our next BronchandNTM360social Coffee Break will be on Wednesday, 04/10 @ 3pm EST.

Joining us this month will be Amanda Atkinson, MSN, RN, the COPD Foundationโ€™s Manager of Patient and Professional Education and Jonnie Korinko, COPDF Manager of Public and Professional Education who will present our Harmonicas for Health program and lead a play along.

Please join us to learn more about the program and if you have a harmonica (Key of C), please play along with us!

Harmonicas are not required! If you donโ€™t have a harmonica or donโ€™t want to purchase one, please still join us to learn more about the program and enjoy the play along!

You can find more information about our Harmonicas for Health program here:

https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Harmonicas-for-Health.aspx

The meeting registration link is here:โ€ฏ


https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration
Lookingโ€ฏforward to seeing you all Wednesday!

1 week ago

Ksmiles123

Ksmiles123Tis a historical and exciting day! Are you planning on watching the eclipse outside or on tv? Are you in the clear path of the eclipse? 

1 week ago

Kandy

KandyToday April 7tg us World Health Day!! We all know how very important our health is.  

1 week ago

Ksmiles123

Ksmiles123

1 week ago

Ksmiles123

Ksmiles123asked the question: Do you practice meditation?

Practicing meditation improves the quality of life for many individuals. The article below from the Mayo Clinic explains the benefits of practicing meditation: https://www.mayoclinic.org/tests-procedures/meditation/in-depth/meditation/art-20045858

1 week ago

Kandy

Kandyanswered the question Tinnitus

My error tube wss placed in ear drum not lobe.
Ksmiles123BrenBJohnT also answered the question Ksmiles123and 2 others also answered the question

1 week ago

Ksmiles123

Ksmiles123

Life is so uncertain at anytime. I am grateful that the earthquake on the East Coast did not result in major horrific damage. One day at a timeโ€ฆ

1 week ago

Ksmiles123

Ksmiles123The nice weather is finally upon us in some regions. Getting out for a walk in nature when able to do so, offers great mental health benefits.. The article below reviews the benefits: https://mcpress.mayoclinic.org/mental-health/the-mental-health-benefits-of-nature-spending-time-outdoors-to-refresh-your-mind/

1 week ago

Ksmiles123

Ksmiles123

1 week ago

Ksmiles123

Ksmiles123

An upcoming BNTM educational program at NYU Langone: 
2024 Bronchiectatasis and NTM Education ProgramOur annual Bronchiectasis and NTM Education Program will be held on Tuesday, April 9, 2024. This hybrid event (in-person and live stream) will be held from 3:00PM to 6:00PM. To register, please email Marla.Hymes@NYULangone.org.

1 week ago

Jill45

Jill45

Is this where I ask a question about my condition?

1 week ago

CHtun

CHtun

ELF Bronchiectasis Patient Conference 2024
youtube.com/watch?v=uq73Gj1Nk8Y
ELF Bronchiectasis Patient Conference 2024 (youtube.com)

1 week ago

marsrocket

marsrocketA few gentle reminders. Happy Thursday, friends. 

1 week ago

Ksmiles123

Ksmiles123

1 week ago

Ksmiles123

Ksmiles123answered the question Bronchoscopy-Who amongst the bloggers has had a Bronchoscopy?

Glad that you got through the challenging experience with your daughter by your side.
KandyStorytellerBrenBand 4 others also answered the question Kandyand 6 others also answered the question

1 week ago

Deborah7

Deborah7

Prescribed Arikayce. A little nervous about starting it. 

1 week ago

Ksmiles123

Ksmiles123Hello! Below is information on the symptoms and the effects of stress  from the American Institute of Stress: https://www.stress.org/the-effects-of-stress

1 week ago

Ksmiles123

Ksmiles123answered the question Drug Tolerance

Hello BrenB, Welcome to the site. I am glad to read that you are doing well on the prescribed treatment plan. If you would like to speak with a BNTM patient ambassador who has taken Clofazamine , please call 833-411-5864. We are here to support you on …
BrenBJohnT also answered the question BrenBand 1 other also answered the question

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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