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3 hours ago

Ksmiles123

Ksmiles123Hello! Some of these articles may be very technical; however, I just wanted to share the increased research being done around the world for members like us.😀http://err.ersjournals.com/content/15/101/192

3 hours ago

    Ksmiles123

    Ksmiles123Hello! Just want to share some research on airway clearance behind done .http://erj.ersjournals.com/content/51/1/1702232

    4 hours ago

      Ksmiles123

      Ksmiles123answered the question Has anyone ever been cured from Mycobacterium abscessus and chelanae?

      Le, Thank you for your kind words- from all of us:)))
      lea peaC2KulikTazand 4 others also answered the question lea peaand 6 others also answered the question

      4 hours ago

      Kandy

      Kandyanswered the question How Do you clean your clearance equipment?

      Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...
      RCHoklawomanKsmiles123 also answered the question RCHand 2 others also answered the question

      15 hours ago

      Kandy

      Kandyvoted on COPD, Bronchiectasis and NTM Webinar Recording

      Gave a thumbs up for a blog post!

      15 hours ago

      Ksmiles123

      Ksmiles123Hello! The article below describes the possible adverse mental health side effects of specific antibiotics. It is so important to report any changes in mood while on new medications .https://www.medscape.com/viewarticle/898636?src=WNL_infoc_180718_MSCPEDIT_infd&uac=287092CY&impID=1685072&faf=1

      19 hours ago

        P Buckhanon

        P Buckhanonvoted on COPD, Bronchiectasis and NTM Webinar Recording

        Gave a thumbs up for a blog post!

        22 hours ago

        Gretchen

        Gretchencommented onUpcoming FDA Advisory Committee Meeting for ALIS

         The FDA's Center for Drug Evaluation & Research (CDER) plans to provide a free of charge, live webcast of the August 7, 2018 Antimicrobial Drugs Advisory Committee meeting. While CDER is making a webcast available to the public for this meeting,...

        23 hours ago

        Gretchen

        Gretchen

        Please join me in extending Birthday wishes to our amazing participant Ksmiles123.

        Your birthday is the first day of another 365-day journey. Be the shining thread in the beautiful tapestry of the world to make this year the best ever. Enjoy the ride. And Thank You for all you do in the lives of those who participate on BronchandNTM360social. Your experience and compassion are so appreciated!

        1 day ago

        Gretchen

        Gretchen

        FDA Warns about Consumers being targeted by scams. Please read the following from the U.S. Food & Drug Administration to learn more:

        https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm613418.htm

        1 day ago

          RCH

          RCHI know that most here are interested in the use of probiotics. I have consulted with a functional medicine physician before starting on the "big 3" for NTM. Her recommendation was not probiotics not that they are bad, but will most likely be killed off by the antibiotics. Most here have reported using probiotics with good results so perhaps more get through than she thinks. Her number one concern was opportunistic yeast, she recommended taking a supplement containing Saccharomyces boulardii, stating that it is a "substitute organism" that will not be killed off by the antibiotics but will prevent the yeast and fungus from taking over. She also recommended a diet high in fermented foods such as raw sauerkraut (I'm lucky, my husband makes the best), kombucha, (lucky agina because I love it and I make my own if anyone wants information), and kefer which I have not ventured into just yet.
          I like medical evidence, you all might be interested in this article from PubMed. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3296087/

          2 days ago

          • GretchenThanks RCH, I also appreciate medical evidence. The fermented food is a surprise to me-but I also like kombucha. Share his recipe!1 day ago

          • Ksmiles123Hello! I am a firm believer in probiotics. I have witnessed several patients developing major gastrointestinal issues years after initial treatment with the big “3” meds.
            Eating fermented foods as much as possible is great. Not everyone can eat some of the most popular fermented foods. I wish you the very best at this time.1 day ago

          • KandyThanks I posted this in my support groups
            15 hours ago

          RCH

          RCHanswered the question Saline Solution Therapy?

          I am very new to the world of lung disease, and was blindsided with a diagnosis of NTM and resultant the COPD, and don't have it as bad as some folks with CF. I am using 7% saline in a nebulizer 2x/day, followed by airway clearance device. That along …
          DRaphaelKsmiles123Yanand 5 others also answered the question DRaphaeland 7 others also answered the question

          2 days ago

          Kristen

          Kristenvoted on Upcoming FDA Advisory Committee Meeting for ALIS

          Gave a thumbs up for a blog post!

          2 days ago

          Ksmiles123

          Ksmiles123https://m.youtube.com/watch?feature=youtu.be&v=97a0rCKttlg

          2 days ago

            Gretchen

            GretchenThis is from last year, but the questions remain the same. After attending the World Bronchiectasis Conference and engaging with various patients, I think it is helpful to know what is important to ask the doctors about the disease you have. Read about the other important aspects you should be asking about:

            https://bronchiectasisnewstoday.com/2017/06/05/nine-questions-to-ask-the-doctor-about-your-bronchiectasis/

            3 days ago

            ncares

            ncaresAIT Therapeutics Announces Human and In-Vitro Nitric Oxide (NO) Data Presented at the 3rd Annual World Bronchiectasis Conference. Presentations highlighted the direct killing effect of NO on Mycobacterium abscessus (M. abscessus) and Pseudomonas aeruginosa (P. aeruginosa) as well as the use of the NO generator and delivery system as a potential therapy for M. abscessus complex (MABSC) lung infection

            Press release here:
            http://globenewswire.com/news-release/2018/07/16/1537580/0/en/AIT-Therapeutics-Announces-Human-and-In-Vitro-Nitric-Oxide-NO-Data-Presented-at-the-3rd-Annual-World-Bronchiectasis-Conference.html

            Presentation and Posters here:
            http://ait-pharm.com/

            3 days ago

            Ksmiles123

            Ksmiles123

            Hello! Just returned from the 3rd annual Bronchiectasis Conference.
            A lot is in the pipeline.
            Looking forward to posting the updates over the next few weeks.
            Please stay tuned and ask any relevant questions.

            3 days ago

            Brandon

            Brandon voted on COPD, Bronchiectasis and NTM Webinar Recording

            Gave a thumbs up for a blog post!

            3 days ago

            DRaphael

            DRaphaelanswered the question What are your side effects? Do you take probiotics?

            Hi Teaberry, I'm sorry to hear about your condition. I took a number of antibiotics including Amikacin and Imipenim when I had NTM many years ago. After a while taking the antibiotics I began to develop rashes. I was then told by the doctors at National …
            rplasetKsmiles123Kandy also answered the question rplasetand 2 others also answered the question

            3 days ago

            Hoang

            Hoang

            Curious, can we get a roll call? I am wondering where is everybody from? My name is Hoang and I am from New Orleans, LA.

            3 days ago

            Merry

            MerryLook who showed up in my Facebook feed today, posted by NTM Info & Research! Hi Made!
            https://themighty.com/2016/10/what-it-feels-like-to-have-bronchiectasis/

            4 days ago

            Ksmiles123

            Ksmiles123https://www.webmd.com/sleep-disorders/ss/slideshow-sleep-body-effects?ecd=wnl_spr_071418&ctr=wnl-spr-071418_nsl-ld-stry_1&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3d

            4 days ago

              Delia

              Deliavoted on COPD, Bronchiectasis and NTM Webinar Recording

              Gave a thumbs up for a blog post!

              5 days ago

              Ksmiles123

              Ksmiles123https://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0022844/?report=reader

              5 days ago

                Made Pramana

                Made Pramanahttps://www.cugh.org/announcements/share-your-stories-field

                5 days ago

                Ksmiles123

                Ksmiles123Hello! Below is a link which reviews the basics of Bronchiectasis. I feel that it is important to review different resource materials periodically . Reviewing materials will remind us of the importance to remain compliant with the suggested therapies.https://www.drugs.com/cg/bronchiectasis.html

                6 days ago

                  Brandon

                  Brandon voted on Upcoming FDA Advisory Committee Meeting for ALIS

                  Gave a thumbs up for a blog post!

                  6 days ago

                  RCH

                  RCH

                  I just started my triple antibiotic therapy for NTM, three bugs, M. Avium, M Phlei and one more I cant remember. Even if the drugs work, how in the heck do I know if I won't get it again? I guess that is why lung hygiene will be a lifelong commitment. On that note, I have been looking at smaller portable nebulizers on Amazon, I want to keep one at work as well as an easier size to travel with. Any suggestions on brands?

                  6 days ago

                  Ksmiles123

                  Ksmiles123

                  Hello! Just curious- Are you attending the Bronchiectasis Conference this weekend?
                  Would like to meet site members who are attending. I am en route at present. I am looking forward to sharing updates with the group.

                  1 week ago

                  Gretchen

                  Gretchenadded a new article Upcoming FDA Advisory Committee Meeting for ALIS

                  The U.S. Food & Drug Administration (FDA) has posted a Federal Register Notice announcing the upcoming Anti-Microbial Advisory Committee Meeting for Insmed’s inhaled liposomal amikacin. The committee will discuss new drug application (NDA) 207356, amikacin liposome inhalation suspension, sponsored by Insmed, Inc., for the proposed indication of treatment of nontuberculous mycobacterial lung disease caused by Mycobacterium...

                  1 week ago

                  Ksmiles123

                  Ksmiles123https://www.medpagetoday.com/infectiousdisease/generalinfectiousdisease/73954

                  1 week ago

                  Ksmiles123

                  Ksmiles123https://m.youtube.com/watch?v=bOFfckWv7Js&feature=youtu.be

                  1 week ago

                    Kandy

                    Kandyanswered the question Who uses Mucomyst? Please share experiences, thanks.

                    I used it for some years its strong and smells awful but it does the trick. I had the 2.0 I do believe. Some ppl it maybe to strong and really irritate the airways. Now I have hypertonic saline much better than this. There is a supplement that does the …
                    Ksmiles123 also answered the question Ksmiles123 also answered the question

                    1 week ago

                    Kandy

                    Kandyhttps://bronchiectasisnewstoday.com/2018/07/05/non-cystic-fibrosis-bronchiectasis-patients-may-benefit-from-long-term-antibiotics-review-study-says/?utm_source=BRO+E-mail+List&utm_campaign=55f902afa7-RSS_WEEKLY_EMAIL_CAMPAIGN_US&utm_medium=email&utm_term=0_d9df0e1c03-55f902afa7-71479961

                    1 week ago

                      Gretchen

                      Gretchenadded a new article COPD, Bronchiectasis and NTM Webinar Recording

                      We hope you were able to join us for our June 2018 webinar with expert speaker Dr. Charles (Chuck) Daley. We are pleased to offer you the FULL RECORDING of this event. This recording is free and can be accessed at any time.

                      During the 60-minute webinar, Dr. Daley offered an overview of COPD,...

                      1 week ago

                      Gretchen

                      Gretchen

                      The COPD Foundation presented a poster on the burden of cough & phlegm in patients with COPD at the COPD11UK conference this past June. They were awarded the first place prize among all submitted posters! The poster displayed patient reported information from individuals enrolled in the COPD Patient-Powered Research Network. Follow the link to view the full poster: https://www.copdfoundation.org/Downloads/Research/Burden-of-Cough-and-Phlegm.pdf

                      1 week ago

                      Ksmiles123

                      Ksmiles123

                      1 week ago

                        Brandon

                        Brandon voted on Event Alert: An Introduction to Bronchiectasis & NTM Webinar

                        Gave a thumbs up for a blog post!

                        1 week ago

                        suelipton

                        sueliptonasked the question: Who uses Mucomyst? Please share experiences, thanks.

                        mucomyst medication

                        1 week ago

                        Cbp

                        CbpHello everyone! I shared a song by one of my favorite composers, Ludovico Einaudi, a couple months ago. Here is another one that I absolutely love. When I am overwhelmed or very anxious about life or my health I often listen to this song to help me take a step back. Hope you enjoy it as much as I do!

                        https://www.youtube.com/watch?reload=9&v=fy2ZF2ks-9E

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123Hello! The link below provides an overview of protein. Increased protein consumption is required while one is healing.https://www.healthline.com/nutrition/how-much-protein-per-day?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=authoritynutrition&utm_content=2018-07-05#average-needs

                        2 weeks ago

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                        Medical Advice

                        It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.