Ksmiles123

Ksmiles123answered the question Hi Everyone, My Mom was diagnosed with Bronchiectasis a year ago. I need some answers.

Hello! I wholeheartedly agree w Barbfit. For some patients , Periodically, upon exertion you may experience shortness of breath. This is not definitely a sign of infection but a symptom of Bronciectasis. We all learn to know our bodies over time.
BarbfitKandy also answered the question Barbfitand 1 other also answered the question

20 hours ago

Ksmiles123

Ksmiles123IMG_3934.JPG

20 hours ago

    Ksmiles123

    Ksmiles123

    Hello! How are you dealing with stress these days? Do you take adaptogens? https://www.nutritionaction.com/daily/dietary-supplements/can-adaptogens-help-you-adapt-to-stress/

    1 day ago

      Kandy

      Kandyanswered the question Do you use tap water for NeilMed when traveling in Europe?

      Never never use tap water for nose rinse. Distilled water.
      Ksmiles123 also answered the question Ksmiles123 also answered the question

      2 days ago

      Kat67

      Kat67asked the question: Hi Everyone, My Mom was diagnosed with Bronchiectasis a year ago. I need some answers.

      My Mom is 79 years old and she is getting prigressively more miserable. She was diagnosed a year ago after coughing for 15 years. When she wakes up in the morning she has so much mucus congestion that she takes about an hour or two to get going. She has …

      2 days ago

      Kat67

      Kat67received the badge Getting started

      Earned the Getting started badge!
      JazzJoanellaNCHPulmonaryrehaband 1575 others also received the badge Jazzand 1577 others also received the badge

      2 days ago

      Kristen

      Kristenanswered the question What exercise are you doing today?

      Walking is my favorite thing to do. I find that having a pedometer/Fitbit really motivates me to keep moving. You can even use your phone for the same purpose!
      Ksmiles123Brandon also answered the question Ksmiles123and 1 other also answered the question

      2 days ago

      CheriM

      CheriMasked the question: Do you use tap water for NeilMed when traveling in Europe?

      I've been told that distilled water is best to use with NeilMed, which I do at home. But how do I manage that when traveling in Europe? What type of water do you use at home and when traveling?

      2 days ago

      Ksmiles123

      Ksmiles123

      4 days ago

        Ksmiles123

        Ksmiles123Hello! Valuable information in the article below; I am not endorsing this company , just imparting useful knowledge on digestion.https://blog.paleohacks.com/the-ultimate-guide-to-perfect-digestion/

        The Ultimate Guide to Perfect Digestion

        Your digestive health is the key to your overall health!

        5 days ago

          Ksmiles123

          Ksmiles123

          Hello! I love to read articles on possible medications in the pipeline!https://www.futuremedicine.com/doi/full/10.2217/fmb-2016-0234

          5 days ago

            Ksmiles123

            Ksmiles123answered the question Does BE partial or complete lobe reduction reduce exacerbations and improve quality of life?

            Hello! It varies from patient to patient. First line is with the less invasive treatments of antibiotics, pulmonary rehabilitation, nutrition, etc. This type of surgery must be done at a center with experience. Patients must ask about the number of …

            5 days ago

            Greg

            Gregasked the question: Does BE partial or complete lobe reduction reduce exacerbations and improve quality of life?

            Good afternoon All! I havent seen mentioned lobe reduction surgery as a possible way to aggressively intervene to remove the BE area of the lung where fluids and bacteria accumulate and bring on exacerbations. Has anyone had this done and does it help? …

            6 days ago

            Ksmiles123

            Ksmiles123

            Hello! Happy Father’s, godfather’s grandfather’s anyone who acts in the role of a father , day to all of you!
            I hope that you have a pleasant day!

            1 week ago

              Ksmiles123

              Ksmiles123

              Hello! Ha e you tried ginger for nausea due to multiple medications?https://www.nutritionaction.com/daily/dietary-supplements/does-ginger-help-nausea/

              1 week ago

                Ksmiles123

                Ksmiles123

                1 week ago

                Joanella

                Joanella

                HI all, I am a newby. I was diagnosed 6 years ago with having about 4-5 exacerbations needing antibiotics, on prophylaxis with azithro every other day and inhalers. do others here have problems with being tired all the time?

                1 week ago

                • Ksmiles123Joanella,
                  Hello! Welcome to the site!
                  Yes, many patients have issues with fatigue due to Bronchiectasis. Some are impacted by weather changes.
                  Is it possible to take your antibiotics in the evening instead of the morning?
                  This may increase your fatigue???
                  Each person varies in the way they metabolize drugs and their reactions.1 week ago

                Delilah

                Delilah

                Hi
                My name is Rosemary, I was diagnosed with Bronchiectasis in 1983 with occasional bouts of pneumonia from hearmopholis influenza. Recovery was quick and life returned to normal. However, in the past 5 yrs I have been plagued with recurrent bouts of pseudomonous, taking cipro,nebulized tobramycin. Etc. Due to side effect from cipro ( tendon issues) I M told the next step is intravenous anti biotics.
                I am really interested in connecting with someone that has had experience with
                this treatment as well as alternative approaches that have helped.
                This is probably the worst I have felt , currently waiting to talk to my infectious disease Dr. about the choice medication which is best for me, RE side effects effectiveness etc.
                Any help or feedback would be incredibly appreciated.
                Thank you

                1 week ago

                • Ksmiles123Hello Delialah,
                  Welcome to the site. Yes, many patients can have years of feeling well then deal w reoccurring infections.
                  I have dealt with pseudomonas, tobramycin inhalation...
                  Tendinitis from cipro as well.
                  I assume that you trust your doctors.
                  Have you been evaluated at a specialty center?
                  I hope that other patients chime in with their experiences. I realize that starting IV meds for the first time is quite frightening for many patients. However, it is definitely worth it if it can turn your life around once again.
                  1 week ago

                • KandyWelcome to the group Delilah1 week ago

                • GretchenWelcome to 360social! I hope someone can share their experience with you. Let us know other questions you may have. Great to have you!6 days ago

                Ksmiles123

                Ksmiles123

                1 week ago

                Ksmiles123

                Ksmiles123Hello! It is great to see such coverage in the media.:)http://healthliving.today/nontuberculous-mycobacteria/

                Nontuberculous Mycobacteria: What You Need to Know About NTM

                Those with pulmonary problems may experience lung infections caused by nontuberculous mycobacteria, an organism that is present in soil and water.

                1 week ago

                  Gretchen

                  Gretchenasked the question: What exercise are you doing today?

                  The patients and physicians at the recent Bronchiectasis and NTM conference in Texas implored all patients to exercise-saying it is a Critical Necessity!! What do you do on a daily or weekly basis to move your body and help your condition?

                  1 week ago

                  Delia

                  Deliavoted on Patient & Caregiver Support

                  Gave a thumbs up for a blog post!

                  1 week ago

                  jene

                  jene

                  with certain movement, I get short of breath.

                  1 week ago

                  Ksmiles123

                  Ksmiles123commented onManaging Stress with Bronchiectasis and NTM

                   Jane,Ahhh! Thank you sooo much for your kind words!😍...

                  1 week ago

                  Jane Martin

                  Jane Martincommented onManaging Stress with Bronchiectasis and NTM

                   Hello Ksmiles123,I'm glad you found this article helpful! Thank you for all you do for the Bronchiectasis/NTM community. Your knowledge and support inspire us all!Jane....

                  1 week ago

                  Ksmiles123

                  Ksmiles123Hello! Below is a list of antibiotics in the pipeline. Although, they may not be specifically for NTM, they will treat the other gram negative bugs which many NTM / Bronchiectasis Patients often are infected with. Reading this list gives me great joy since very few were in the pipeline when I was diagnosed. I recall reading an article in Time Magazine in 2006, when they discussed that there were no new antibiotics in the pipeline; psychotropic drugs and ED drugs were on the rise since they were more lucrative.https://apps.who.int/iris/bitstream/handle/10665/275487/WHO-EMP-IAU-2018.06-eng.pdf?ua=1

                  1 week ago

                    Greg

                    Greganswered the question What suggestions do you have for managing my Bronchiectasis?

                    Thanks much Kandy for your time and sharing what works for you! It must take over an hour, but if it works, then its time well invested! Hav you done sputum analysis to determine the specific virus that you are fighting? Thanks again!
                    KandyKsmiles123 also answered the question Kandyand 1 other also answered the question

                    2 weeks ago

                    Marea

                    Marea

                    I was diagnosed with Mycrobacterium Abscessus sp abscessus in Oct 2018 in my sphenoide sinus. Can you please share your experience with me? I am 36 old female from Croatia

                    2 weeks ago

                    Kandy

                    Kandyvoted on NTM/Bronchiectasis Patients and Carbohydrates

                    Gave a thumbs up for a blog post!

                    2 weeks ago

                    Vinny M

                    Vinny Mvoted on NTM/Bronchiectasis Patients and Carbohydrates

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                    2 weeks ago

                    Ksmiles123

                    Ksmiles123

                    Hello! It is going to get very hot this weekend. Please keep well hydrated.https://medlineplus.gov/dehydration.html

                    2 weeks ago

                      Ksmiles123

                      Ksmiles123https://wwwnc.cdc.gov/eid/article/24/3/17-1301_article?fbclid=IwAR2o1KfXZRgrHnohSr0O27ij2TPo3IOzoKdzpeGKWfeDi2V1T7m-Ws7OHpQ

                      Increasing Prevalence of Nontuberculous Mycobacteria in Respiratory Specimens from US-Affiliated Pacific Island Jurisdictions

                      Nontuberculous mycobacteria (NTM) respiratory infections represent a growing public health problem in many countries. However, there are limited publi...

                      2 weeks ago

                        Kristen

                        Kristenvoted on NTM/Bronchiectasis Patients and Carbohydrates

                        Gave a thumbs up for a blog post!

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123answered the question surgery and exercising

                        Sindy, Made, Changing jobs depends on many variables- history of recurrent lung infections, age, etc. It is all individually based whether or not a person should stay in a role where they are frequently exposed to infections
                        Made PramanaGreg also answered the question Made Pramanaand 1 other also answered the question

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123answered the question Travel tips with a chronic condition?

                        Cheri, Hello! Welcome to the site. Yes, I think that is a kind, considerate idea. No one wants to sit in fear that they are sitting next to someone who may be contagious; this will reassure passengers and allow them to have a peaceful flight
                        CheriMKandyKristen also answered the question CheriMand 2 others also answered the question

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123

                        Hello! Life happens, small miracles happen. My daughter is graduating from high school today. I wasn’t sure how I would be at this point in time when I was first diagnosed 17 years ago when she was a baby . The statistics at that time were not very promising. Have hope! Patients do get through this challenge. Yes, there is a “ new normal “, and a different view of life.
                        We are all here to boost one another on the journey. Have a pleasant day!

                        2 weeks ago

                        Brandon

                        Brandon voted on NTM/Bronchiectasis Patients and Carbohydrates

                        Gave a thumbs up for a blog post!

                        2 weeks ago

                        Delia

                        Deliavoted on NTM/Bronchiectasis Patients and Carbohydrates

                        Gave a thumbs up for a blog post!

                        2 weeks ago

                        Made Pramana

                        Made Pramanavoted on NTM/Bronchiectasis Patients and Carbohydrates

                        Gave a thumbs up for a blog post!

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123answered the question Anyone know of Bronchiectasis doctor in Cincinnati or Phoenix area? Thanks much!

                        Greg, Hopefully, the link below works. https://www.ntminfo.org/united-states-of-america/
                        Greg also answered the question Greg also answered the question

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123

                        Hello! Are you a parent with a student graduating this year?
                        It is so important to pace yourself, plan ahead to do what you are capable of when not feeling up to par.
                        Pacing ourselves and taking preventive measures will assist you throughout this time of celebration 🎉.

                        2 weeks ago

                        Ksmiles123

                        Ksmiles123Hello! Are you keeping well hydrated in this warmer weather?https://www.nationaljewish.org/health-insights/healthy-eating/hello-healthy-summer-drinks

                        Hello Healthy Summer Drinks!

                        Take summer drinks to a healthier level with these tips and recipes for low- or no-sugar drinks that are high in flavor and nutrition.

                        2 weeks ago

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                          Medical Advice

                          It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.