Delia

DeliaHi all,
Thanks again to everyone who participated in COVID-19 Survey #2! The bronchiectasis/NTM-specific results of the survey have been reported in our most recent blog post. Check it out below!

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/121/Highlights-from-COVID-19-Survey-2-Pandemic-Impact-on-the-Bronchiectasis-and-NTM

Highlights from COVID-19 Survey #2: Pandemic Impact on the Bronchiectasis and NTM Community

The COPD Foundation (COPDF) continues to monitor coronavirus 2019 (COVID-19) and the way it is impacting chronic lung disease communities. We are providing resources to the community based on needs expressed through a series of surveys we are conducting throughout the COVID-19 pandemic. The COPD …

3 weeks ago

Ksmiles123

Ksmiles123Hello! What brand hand sanitizer are you using? https://finance.yahoo.com/news/fda-expands-list-hand-sanitizers-163721153.html

FDA expands list of hand sanitizers to avoid due to methanol risk with more being recommended for recall

The FDA has expanded the number of hand sanitizers to avoid because they may contain the toxic substance methanol. Some have also been recalled.

43 minutes ago

Ksmiles123

Ksmiles123Hello! It is going to be a scorcher today in Pittsburgh. Please check your local weather for heat advisory on a daily basis throughout the summer. Below is a link on staying hydrated in this warm weather. https://www.everydayhealth.com/dehydration/smart-tips-for-staying-hydrated-throughout-the-day/?slot=0&xid=nl_EHNLdiet_2020-07-09_20856870&utm_source=Newsletters&nl_key=nl_diet_nutrition&utm_content=2020-07-09&utm_campaign=Diet_and_Nutrition

6 Smart Tips for Staying Hydrated Throughout the Day | Everyday Health

Chances are that you aren’t drinking enough water. Use this advice to increase your hydration and support your health. You’ll find recommendations for apps and smart water bottles, along with go-to strategies.

2 days ago

Gretchen

Gretchen

We have almost 2,000 members of BronchandNTM360social! Welcome to the newest members! Thank you for being here and participating in the lives of others like you. As we learn at many conferences and through our reading, we all have a lot of unanswered questions. Is there something you need help in answering or do you have some experiences that could help someone else? Please share and inquire. If you are wondering about something related to Bronchiectasis and NTM, there is a good chance someone else is too. To Answer a question, click on the Question you wish to view and then click on Add an Answer. A box will appear for you to type in your answer or experience. We have 190 questions-share your knowledge! If you wish to Ask a question, go to the left side of the screen under the Community Discussion menu. • Click on Question and Answers. • From here you will see Ask a Question. • Click on it and you will be taken to a separate screen.• Under Question, type in what you wish to ask and add in a brief description or any other comments under Description. • There is a section named Tags. This will assist users in searching for information that involves your question, like Bronchiectasis, NTM, Quality of Life, Research, etc. You can add as many tags as you want. Make sure you add a comma between each individual tag.• Finally, click on the orange box labeled ASK and it will be posted in the Activity Feed.

3 days ago

Gretchen

GretchenNew Appointment Reflects Renewed Focus on Clinical Research and Patient Community Education! https://www.copdfoundation.org/About-Us/Press-Room/Press-Releases/Article/1589/COPD-Foundation-Announces-New-Appointment.aspx

COPD Foundation Announces New Appointment

Appointment Reflects Renewed Focus on Clinical Research and Patient Community Education Washington, DC – July 7, 2020 - The COPD Foundation announces the appointment of James D. Crapo, MD, to Chairman of the Board of Directors and as its interim Chief Executive Officer. Dr. Crapo has …

3 days ago

ChrisVA

ChrisVA

I am spending my first summer in weather with dew point of over70.  I normallygetup early before heat to ride my bike, but the dewpoint stays above 70 and when I get home I cough all day.   Any ideas?  

3 days ago

Vinny M

Vinny Mvoted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

3 days ago

Ksmiles123

Ksmiles123

Hello! Great news!!! The new NTM Treatment Guidelines have been published: https://academic.oup.com/cid/article/doi/10.1093/cid/ciaa241/5867961

3 days ago

Ksmiles123

Ksmiles123commented onRe-entering the outside world as a bronchiectasis NTM patient

 Betsy,Yes, the corona virus challenge will give many people better insight into what patients with invisible chronic disorders deal with....

4 days ago

Ksmiles123

Ksmiles123commented onRe-entering the outside world as a bronchiectasis NTM patient

 Ksuzanne,Thank you for your kind words. Yes, small adjustments over time do add up and assist us with preventative strategies to avoid reoccurrences and other pneumonias. The Corona Crisis just reminded me of all the losses that we have dealt with...

4 days ago

ksuzanne

ksuzanneanswered the question Anyone on here taking montelukast, ICS, or biologics?

After many attempt for more in depth needle testing in prep for allergy shots, which had to be put off 3 times now, the allergist dx'd me with severe oersistent asthma when i was last in his office. He prescribed montelukast instead of zafirlukast and i …
Twinburl Ksmiles123Mari305and 1 other also answered the question Twinburl and 3 others also answered the question

5 days ago

ksuzanne

ksuzannecommented onRe-entering the outside world as a bronchiectasis NTM patient

 Truly awesome. Many emotions and strategies well.summed up. You put into words what i have been struggling to say to my family, friends, and contacts. And, pracitce makes perfect--really small adjustments become routine over time and less stressful...

5 days ago

Kandy

Kandy

5 days ago

Kandy

Kandyvoted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

5 days ago

Ksmiles123

Ksmiles123

Hello!  Finding Antibodies that Neutralize SARS-CoV-2,  by Francis Collins,NIH:https://directorsblog.nih.gov/2020/06/30/finding-antibodies-that-neutralize-sars-cov-2/

6 days ago

Ksmiles123

Ksmiles123

Hello! Happy 4th of July to all!
Keep cool and well hydrated throughout the heat wave.

1 week ago

  • NewestOldest
  • KandySame to you Happy 4th.  hope everyone had a enjoyable 4th.  We had 2 parades 3rd and 4th.  My daughters and grands were in the 4th parade walking and biking.  It was sooo miserable the dew was 75 temp 90.  They about died they said,  its a long walk.  Just sitting watching the parade I was sopping wet after. I do not know how I did so good thru it was a miracle!!  Sunday my son took the grands and me boating was so much fun ready for the next fun day on the Lake Oahe. 5 days ago
  • ksuzanneHope everyone enjoyed the 4th. Kandy, once again you make me feel like a wheenie, i did nothing but chill after i did the evening barn chores, and i even had a good, almost symptom free day.5 days ago
  • Ksmiles123Ksuzanne,
    I agree w you re: Kandy.  I just stayed home as well.  Kandy, you are an inspiration to all of us.4 days ago
Brandon

Brandon voted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

1 week ago

KK

KK

Hi thanks  for info on how to find questions and answers  really helped 

1 week ago

Ksmiles123

Ksmiles123

Hello!   How are you managing with the upswing of cases?


This may not be the typical 4th of July weekend, however we must find some creative diversions and to keep safe while home.  We are all in this together, we are not alone.
Below is information on streaming Hamilton today :https://www.cnet.com/how-to/hamilton-on-disney-plus-how-to-watch-it-now-psst-theres-no-free-trial/

1 week ago

Gretchen

Gretchenvoted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

1 week ago

KK

KK

I can never figure out how to use this site i can read answers but never the questions. I look on the left but there is nothing in the left to read the conversations help

1 week ago

Betsy Glaeser

Betsy Glaesercommented onRe-entering the outside world as a bronchiectasis NTM patient

 Katie Keating makes some insightful comments about the similarities between living with bronchiectasis/NTM and the social precautions and often isolation this involves and the effects of COVID 19 for everyone, but especially those like us who are at...

1 week ago

Betsy Glaeser

Betsy Glaeservoted on Re-entering the outside world as a bronchiectasis NTM patient

Gave a thumbs up for a blog post!

1 week ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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