ChristinaH

ChristinaHJoin Bronchiectasis and NTM 360 for an upcoming webinar on April 14th at 1 pm EDT called Feeling Your Best with Bronchiectasis: Airway Clearance. Bradley Boynton, BS, RRT, Clinical Specialist from the Mayo Clinic in Rochester, MN will be presenting on airway clearance techniques and devices followed by a question-and-answer session from attendees.

https://us06web.zoom.us/webinar/register/WN_OYR0HthYRtCpKaY71Zbecg

6 days ago

Ksmiles123

Ksmiles123Great article below on Pulmonary Rehab, written by Christina Hunt, https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Check-in-Youll-Never-Walk-Alone-How-Pulmonary-Rehab-Can-Build-Confidence-Stamina-and-Friendship.aspx

Check-in: Youโ€™ll Never Walk Alone: How Pulmonary Rehab Can Build Confidence, Stamina, and Friendship

I love talking about pulmonary rehab. As a respiratory therapist, it is where I really fell in love with the field. I found a passion for teaching …

22 hours ago

marsrocket

marsrocketGet a grip! Here's an article about grip strength, and how improving it can benefit immunity and overall health.
https://health.clevelandclinic.org/grip-strength/

What Your Grip Strength Says About You

Weak grip is cause for concern

23 hours ago

Ksmiles123

Ksmiles123answered the question Are you getting adequate sleep?

Hello! Fatigue is often noted with weather changes- changes in humidity, pre- rain, pre- snow, etc. Yes, fatigue increases during these times. Sometimes, it passes and you do not experience an infection. Other times, it is a sign that you maybe getting a …
Stephanie Williams, RRTChristinaH also answered the question Stephanie Williams, RRTand 1 other also answered the question

1 day ago

ChristinaH

ChristinaH

Welcome LizMcQโ€‹ to the community! We are here to support you!

2 days ago

Ksmiles123

Ksmiles123asked the question: Are you getting adequate sleep?

Sleep hygiene is of upmost importance when you are dealing with an infection and or a chronic condition. The link below offers some suggestions. The one that I disagree with is not to take a nap. It is okay to take a nap in the afternoon if you are not …

3 days ago

laff4evr

laff4evrSpring Has Sprung All Over The World 

3 days ago

Rara

Rara

Hi everyone,  I have a very personal question to ask, about emotions and I do understand if people do not want to reply.


I get so down about everything at times and have just had another bad exacerbation , chest infection, coughing up blood etc and I sometimes think is it worth living like this. Very blunt I know but I struggle to do simple tasks and I get so frustrated, I do not like going out with other people anymore as I am unable to keep up with them, I cannot walk any great distance unless I go at my pace, in fact I do not like going out as I know I am going to be out of breath before I start, I do not even walk my little dog much anymore, my poor baby. I know you all understand and know these feelings well and I know that exercise is key. I just cannot find the motivation.
I know many of you have suffered with Bronchiectasis for several years and are in far worse positions than myself, how do you find the motivation and strength to carry on or am I just being a wimp. I have struggled with health issues most of my life ( chronic asthma, lung surgery, pneumonia ) but Bronchiectasis I am struggling with both physically and emotionally  and like I have said previously there is very little support in the UK. I have met some lovely people in the pulmonary rehabilitation group and we support each other and meet up for lunch, in fact these are the people I feel the most comfortable with as I know they understand and sadly one of the ladies struggles so much it makes me realise how fortunate I really am. 
I apologies for the depressing post but I just needed to express my feelings and see how other people copeโ€ฆโ€ฆโ€ฆSharon xx

3 days ago

  • NewestOldestClick to View All Comments9 comment(s)
  • ChristinaHHi Raraโ€‹. I am glad that you felt comfortable sharing your thoughts. No two days are the same for those with lung conditions. It's hard to navigate each day not knowing how you will feel. I agree with those here that you have to keep looking forward and acknowledging the "good" in the day. I am glad that you found support in pulmonary rehabilitation. Is it possible to go back and rejoin? Many of the programs here offer a "maintenance" program for a lower cost. Having accountability and seeing people with like circumstances may motivate you to attend. Also, I invite you to our own support group meetings. I will link it below. We would love for you to attend and meet people in the community!
    https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG 
    Welcome! You are invited to join a meeting: Monthly BronchandNTM360social Coffee Break. After registering, you will receive a confirmation email about joining the meeting.

    Welcome! You are invited to join a meeting: Monthly BronchandNTM360social Coffee Break. After registering, you will receive a confirmation email about joining the meeting.

    2 days ago
  • RaraThank you all for taking the time to reply to me. I will take every comment on board. I am so grateful to have people I can express my feelings with and people who understand.  Thank you, thank you. Sharon1 day ago
  • Ksmiles123You are most welcome!  We are here for you! :)1 day ago
DianeD

DianeD

And what about making ice cubes?
Crazy little things but u sure of

3 days ago

DianeD

DianeD

Happy Sunny Sunday!


Crazy question...never thought of it before,
Should I be using Spring water to make my coffee! or should I boil water first?   I have no clue.  Lol
It heats as it brews but Im sure not enough to kill bacteria..
Would be great if it was one of those quality of life things you didn't need to worry about

3 days ago

Ksmiles123

Ksmiles123

Hello! How are you doing today? Spring begins on Monday:).๐Ÿ’

5 days ago

Ksmiles123

Ksmiles123

5 days ago

Ksmiles123

Ksmiles123

5 days ago

DianeD

DianeD

Good morning everyone and thank you for all the positive support I can always use it as I'm sure all of us can but just a heads up I'm seriously thinking about canceling my prolapsed surgery for the simple reason that if I'm going to be doing a lot of coughing that's just a recipe for the surgery to fail if I can possibly hold off for 6 months to a year until I get this lung thing under control with meds and so forth that also will take some stress off anybody have any thoughts on that I just think it makes sense but I am making an appointment with the doctor

5 days ago

ChristinaH

ChristinaH

6 days ago

ChristinaH

ChristinaH

Welcome Laurelโ€‹ to the BronchandNTM360social community. We are here to support you! 

6 days ago

laff4evr

laff4evr
Both Men Have Passed On,  But We Still Want To Wish.....

6 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTHello everyone! I just wanted to stop by and invite you all to a meeting we are having this afternoon. The first half will be a typical support group kind of meeting for those living with COPD and other lung conditions, but the second half will be a Harmonicas for Health play-along. If you would like to come and see what Harmonicas for Health is all about, you are welcome to come and join us!Even if you don't have a harmonica, you are welcome to come and hum or whistle along. I'd love to see you there!
Here is the link to register: https://bit.ly/COPDsocialhour

6 days ago

ChristinaH

ChristinaH

Welcome to the community Hampshireโ€‹. You've found a welcoming, supportive group to support you! 

1 week ago

Ksmiles123

Ksmiles123Sleep hygiene is very important when dealing with illness, chronic disorders. Are you having difficulties sleeping? Below is some information on sleep diaries and some tips/ resources to assist you with this challenge. https://sleepeducation.org/resources/sleep-diary/

Sleep Diary - Sleep Education

A sleep diary is a useful way to track your sleep at home. A typical sleep diary covers a two-week period.

1 week ago

DianeD

DianeD

Good morning,
Well off to the races we go!  Starting my Lexapro today for my anxiety and switching my Prevacid over to the generic because they have raised the dose and my insurance doesnt cover Brand..go figure!
If all goes well by the end of next wk I will be starting my 1st med (azithromycin) 500mg take that until after my surgery end of April...
which I'm surprised they cleared me for, ..also have a hearing test tomorrow  and then start my medical leave from work end of March,
This is going to be rough because I'm widowed 
and on SS and a small pension...
Also heard that you can separate the meds..
1 for 3 days and the remaining 2 the other 3 days...
Hope my body can tolerate all these...I truly dislike meds always have,
Ill keep you posted as I move along.
Thanks
D.

1 week ago

ChristinaH

ChristinaH

Welcome Hoosier60โ€‹ to the community! We are glad that you are here!

1 week ago

marsrocket

marsrocket

An update on Katie's post from 4 years ago about a drug in development to treat bronchiectasis patients colonized with pseudomonas. Phase III test results look promising.
https://rtmagazine.com/products-treatment/pharmaceuticals/us-pharmaceuticals/new-breakthrough-therapy-for-non-cf-bronchiectasis/

1 week ago

Kandy

Kandyvoted on NTM Treatment: Taking the โ€œBig 3โ€

Gave a thumbs up for a blog post!

1 week ago

360Coach Brandon

360Coach Brandon voted on NTM Treatment: Taking the โ€œBig 3โ€

Gave a thumbs up for a blog post!

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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