BronchandNTM360social welcomes new member Carmen who joins 4,902 current members of our community. Weโ€™re glad you're here!

360Coach Brandon

360Coach Brandon November Weather Readiness for Our Bronchiectasis & NTM Community

As we move into November, the weather can change quickly--storms, colder air, and even early snow are showing up in forecasts across the country. For those living with bronchiectasis or NTM, itโ€™s a good reminder to make sure your Disaster Preparedness Plan is up to date.

Sudden weather shifts can affect air quality, humidity, and access to supplies, all of which can impact your breathing and daily routine. Taking a few minutes now to check your medications, airway clearance supplies, and contact lists can make a big difference if severe weather hits.

๐Ÿ“ The COPD Foundationโ€™s Disaster Preparedness Plan can help you get organized and feel confident youโ€™re ready for whatever the weather brings.



๐Ÿ‘‰ https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Downloads-Library#DisasterPrepared

A little preparation now means peace of mind later--so letโ€™s stay ready, stay connected, and look out for one another as we move through this changing season. ๐Ÿ’™๐ŸŒฆ๏ธ

Downloads Library | Bronchiectasis and NTM Association

Thank you for your interest in Bronchiectasis and NTM 360 educational library. We have a variety of useful booklets, flyers, and tools to help you learn more about living with bronchiectasis and NTM lung disease.

2 days ago

  • NewestOldest
  • Ksmiles123There is beauty to every season. Letโ€™s embrace each season by being prepared.
    Keeping a bag with your emergency medical supplies and your essential healthcare needs certainly can assist to lower stress throughout a disaster, a challenging time. 
    Also, be prepared with a good scarf to cover your mouth and nose as we approach the cooler, often windier weather.
    Drastic changes in temperature affect my energy levels. Does this happen to you as well?
    2 days ago
  • 360Coach Brandon It sure can affect how I feel, and great suggestion of a scarf - that can make a difference in colder weather!2 days ago
Ksmiles123

Ksmiles123answered the question Are you doing airway clearance regularly?

Das, It is great to read your positive feedback on airway clearance.

7 hours ago

marsrocket

marsrocketYesterday a visiting nurse from the Cleveland Clinic gave me a guide to chronic lung disease. Some of the information is helpful, but the illustrations are straight out of the 1950s. 

13 hours ago

Ksmiles123

Ksmiles123asked the question: Are you doing airway clearance regularly?

As the cold weather begins to roll in, we must face the fact that flu season is around the corner. Doing airway clearance regularly may assist you in lessening the chances of respiratory infections. Hopefully, you were able to get the flu shot- whether …

17 hours ago

Ksmiles123

Ksmiles123answered the question Has anyone begun using Brensocatib?

Trout, Thank you for sharing your experience with Brinsupri. I have heard that it can take up to 6 weeks or longer to be fully effective. I am so glad you are feeling better from the Zosyn. I am posting information on this drug for others in the …
TroutTim BrownAnnie99 also answered the question Troutand 2 others also answered the question

1 day ago

marsrocket

marsrocket

Did you miss me, haha. Due to flare-ups of BE and Mac and suspected aspiration pneumonia I spent five days in a hospital followed by 13 days at a rehab hospital where I received physical and occupational therapy and speech therapy for swallowing issues. Still pretty weak, so they sent me home with a wheelchair which will hopefully be temporary. My apartment is not designed for wheelchair users so pretty much everything is out of reach. I will also be receiving home therapy. One day at a time remains my motto. Peace and blessings to all.

2 days ago

Ksmiles123

Ksmiles123asked the question: Are you using the Bronchiectasis Action Plan?

Cooler weather is around the corner. Tis the season for annual vaccinations and to closely follow your Bronchiectasis action plan. The plan is in the link below:, https://www.bronchiectasisandntminitiative …

2 days ago

Ksmiles123

Ksmiles123

Hello! Health care disparities exist throughout the world. Social determinants affect the quality of care for respiratory patients. There are well-documented health disparities in pulmonary disease related to factors such as race, socioeconomic status, and sex. Interventions have been trialed to address these disparities with varying results. Future research is needed to validate interventions to reduce disparity and to understand how to plan validated interventions to meet the community's local needs. The articles below discuss in-depth information on this topic.
Do you have an example of healthcare disparity in your area?


https://www.sciencedirect.com/science/article/abs/pii/S0012369223003021
https://pubmed.ncbi.nlm.nih.gov/33040358/

3 days ago

Ksmiles123

Ksmiles123How are you doing today? Dealing with a chronic condition can result in many emotional ups and downs. We are here to support you on your journey. Reach out if you have any questions.  We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone atโ€ฏ(833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand what you are going through.โ€ฏ You can alsoโ€ฏemail us at contactus@bronchandntm.orgโ€ฏto get more information aboutโ€ฏon a specific topic. Our Ambassadors canโ€™t provide medical advice but may be able to assist you with additional information and resources. 

5 days ago

StSch

StSch

StSchUpdate on Brinsupri after one month. After being on Brinsupri for two weeks I was noticing a change in my coughing pattern. I was actually coughing more but bringing up less sputum and what was coming up was smaller wads of sputum. At this point in time I had a sinus surgery and one of the post-op meds war prednisone, 20mg once a day for five days. After the second day for taking the prednisone with the Brinsupri I was not coughing or bringing up sputum anymore and now after a full month and no Prednisone I'm feeling normal with no signs of bronchiectasis and loving life.Brinsupri can be very expensive depending on your insurance coverage so be prepared. But if you're older and on Medicare with Part D and a Medicare Advantage Plan your total med output for the year is only $2,100.00 (2026) so the Brinsupri is basically free. Please check with your Pulmonologist, Insurance company and make sure you're properly set up with Medicare. You can lead a NORMAL LIFE AGAIN.

6 days ago

Ksmiles123

Ksmiles123Hello! Below is a link for a recent presentation by Dr. Anne Oโ€ Donnell on DPP-1 inhibitors, Brinsupri
Https://m.youtube.com/watch?v=WrG1s0APINs

6 days ago

Alyssa Dittner

Alyssa Dittneranswered the question Do you use an indoor wood burning stove?

If you have a wood-burning fireplace, it's important to have proper ventilation. Smoke and fumes can irritate your lungs, and over time, repeated exposure may lead to increased sensitivity, irritation, and decreased lung function. While it's normal to …
Ksmiles123 also answered the question Ksmiles123 also answered the question

1 week ago

Ksmiles123

Ksmiles123Hello! Tis the season for vaccinations. Please consider getting vaccinated soon since it takes a few weeks to be fully effective. Below is a video from a recent Coffee Break, featuring Dr.David Mannino,  Medical Director and Co- founder of the COPD Foundation: https://m.youtube.com/watch?v=Qh1QLlPlMhk

1 week ago

Community Announcements

Community Announcementsadded a new article Two abstracts using Bronchiectasis and NTM Research Registry data presented at CHEST 2025

Conference focused on advancing excellence and innovation in pulmonary and critical care medicine

Miami (October 23, 2025) โ€“ The Bronchiectasis and NTM Association announced today that two abstracts using Bronchiectasis and NTM Research Registry data were presented at CHEST 2025, held October 19-22, 2025, in Chicago.

The abstracts are:

1 week ago

Ksmiles123

Ksmiles123

A moment that we have been waiting for:
An exciting week at the CHEST conference. New guidelines for the treatment of Bronchiectasis will be introduced by top leaders in the BNTM space, including our Medical Director, Dr. Tim Aksamit: https://www.chestphysician.org/annual-meeting/news/panel-to-introduce-new-chest-north-american-bronchiectasis-guidelines/?utm_campaign=16905765-Inside%20Look%202025&utm_content=link-share&utm_medium=social&utm_source=linkedin&hss_channel=lcp-43597

1 week ago

Ksmiles123

Ksmiles123asked the question: Do you use an indoor wood burning stove?

If you have answered yes, please read the article below on the potential impact of wood burning stoves on your lung function: https://respiratory-therapy.com/public-health/healthcare-policy/environmental-news/indoor-wood-burning-linked-to-lung-function …

1 week ago

360Coach Brandon

360Coach Brandon

๐Ÿ‚ Midweek Reflections ๐Ÿ‚

Hey friends, just checking in as we make our way through the week. I hope youโ€™re finding little moments of calm and comfort as the days grow cooler. Thereโ€™s something about this fall air โ€” lighter, quieter, and easier to breathe โ€” that feels like an invitation to slow down and just be. ๐ŸŒค๏ธ

If youโ€™ve been meaning to step outside for a few deep breaths or a peaceful moment on the porch, this is your sign to go for it. Sometimes those simple pauses are the best medicine.


Weโ€™re halfway through the week, and thatโ€™s something to feel good about. Take it one breath, one day, one step at a time. ๐Ÿ๐Ÿ’›

1 week ago

Community Announcements

Community Announcementsadded a new article Twenty-five centers join Bronchiectasis and NTM Care Center Network

Network facilitates access to high-quality, specialized patient care for bronchiectasis and NTM lung disease

Miami (October 21, 2025) โ€“ The Bronchiectasis and NTM Association has accepted eight Care Center and 17 Clinical Associate Center sites in 14 states into the Bronchiectasis and NTM Care Center Network (CCN). The CCN includes 58 centers across the United States.

1 week ago

Ksmiles123

Ksmiles123Hello! As we continue to celebrate Respiratory Therapy Week, I thought you may enjoy viewing the podcast below:
The Power of Pulmonary Rehab Podcast https://m.youtube.com/watch?v=F25YP6yOej8
Let us give a shout out on this site to a respiratory therapist who had helped us at a pulmonary rehab facility. 

1 week ago

Ksmiles123

Ksmiles123

Hello! We are celebrating Respiratory Therapy Week. I want to extend gratitude to Christina Hunt, RRT, Senior Director of Education and Care Delivery, BNTM Association, Alyssa Dittner, RRT, Assistant Director of BNTM Education, the COPD Foundation Respiratory Therapist Staff, and all other Respiratory Therapists who visit this site. We are so grateful for all that you are doing for BNTM patients and this online community. 
Do you have a story about a great respiratory therapist who has assisted you along your journey? 

1 week ago

360Coach Brandon

360Coach Brandon

๐Ÿ’‰ Flu Season Is Knocking โ€” Donโ€™t Let It In Without a Fight!

Itโ€™s that time of year again -- pumpkin spice is everywhere, temperatures are dropping, and the flu virus is out there practicing its evil laugh.
But good newsโ€ฆ we have a shield, and itโ€™s called the flu vaccine!

Whether youโ€™re living with COPD, bronchiectasis, NTM, or caring for someone who is, getting the flu shot is one of the easiest ways to help protect your lungs -- and your peace of mind.

Why It Matters:

The flu isnโ€™t just โ€œa bad coldโ€ -- for people with lung conditions, it can lead to flare-ups, hospital stays, and a whole lot of stress.

Vaccines help your immune system recognize the flu and fight it off before it has a chance to unpack its suitcase and move in.

Caregivers -- youโ€™re superheroes already. Getting vaccinated helps protect the people you love too.

Reasons to Roll Up Your Sleeve (Besides Free Lollipops):

โœ… Helps prevent flare-ups and hospital visits
โœ… Takes less time than finding the TV remote
โœ… Way easier than trying to cough and sneeze at the same time
โœ… Youโ€™ve already survived 2020. You can handle a tiny needle.

๐ŸŽฏ Helpful Reminders:

Ask your doctor or pharmacist about getting the flu shot + RSV + pneumonia vaccines -- many can be done at the same visit.

If youโ€™re new to all of this -- no worries! Weโ€™re here to help answer questions, share experiences, and cheer you on.

Final Thought:

Getting the flu shot isnโ€™t just self-care -- itโ€™s lung care, community care, and โ€œIโ€™d rather be cozy on the couch than in the ERโ€ care!

1 week ago

  • NewestOldest
  • Ksmiles123Brandon,
    I love the line,  It takes less time than finding the TV remote- It sure does take very little time, and the payoff is huge.  Who wants to spend time dealing with major flu symptoms when you can be doing something more fulfilling? 1 week ago
  • 360Coach Brandon It's true, the (often) illusive remote, -it's like going on safari at times! It takes about two weeks after the shot for full protection, so planning now before the holidays is the wise thing to do!1 week ago
Ksmiles123

Ksmiles123Congratulations to the American College of Chest Physicians on their 90th Anniversary and the dedication of Love Your Lungs Day!
CHEST continues to raise awareness on lung health and is recognizing the dedication of those working in pulmonary health care. 

1 week ago

Ksmiles123

Ksmiles123Hello! Are you up to watching a great YouTube video on feeling your best with bronchiectasis symptom management? This video features Dr. Tim Askamit, Medical Director, BNTM 360 Social, and Christina Hunt, RRT, Senior Director, Education Care Delivery, BNTM Association https://m.youtube.com/watch?v=tzYewFwPRoM

1 week ago

Jenifer70

Jenifer70

Hello ๐Ÿ‘‹,  just checking in . Dbling my to 3x's a week has worked with zofran. I get Sundays off w/ no meds. Feeling much better ! Hope all is well with everyone! Take care .....

1 week ago

TimD

TimD created the event November 2025 BronchandNTM360social Coffee Break

Hello everyone! Our next BronchandNTM360social Coffee Break is Wednesday, November 12, 2025 @ 2:30pm EST. We will be joined by Michelle MacDonald, MS, RDN, CDCES to discuss nutrition for Bronchiectasis and NTM Patients. Michelle is a registered …

1 week ago

Lucinda

Lucindaanswered the question Anyone with Alpha 1 antitrypsin deficiency and bronchiectasis

Hi Cjack I also have Alpha 1 and a some bronchiectasis.

2 weeks ago

Swooder

Swooder

Hi Could you direct me to the list of local support groups, specifically looking in New Mexico. Thank you. 

2 weeks ago

irene72

irene72

i am so lost.  coughed up blood(only symptom) 2 yrs ago.  CT confirmed bronchiectasis.  they told me i most likeky have MAC but they still wont confirm wirh bronchoscopy. no treatment, NO recommendations ar all! now i read all the things that can increase your bacterial load, abd things you can do to protect yourself.  i specifically asked and was told "its everywhere" not much you can do to avoid!  so as carbon filters harbor the bacterior what home air purifiers do  you use?  i have been filtering tap water with activated carbon filter.๐Ÿซค
do you just recommend boiling?  does bottled water have MAC in it?  i am 72 and weigh 90lbs.  i have other questions but im so overwhelmed ill end there.  any advice appreciated

2 weeks ago

Ksmiles123

Ksmiles123Medicare Open Enrollment Begins Today!October 15
Explore your options, and understand the plans. Check out our webinar, COPD and Medicare Made Simple: Understanding Your Benefits. 

https://m.youtube.com/watch?v=1zBMrG5ieoE


*Disclaimer/Update:* Since this webinar was recorded, the Medicare Part D 2026 out-of-pocket cap has increased by $100. (At the time of recording, the cap was set at $2,000, but has been adjusted to $2,100 for 2026).

2 weeks ago

StSch

StSch

I'm a 72 year old man with Bronchiectasis and have been taking the newly approved medication Brinsupri for about 6 week now and it seems to to be working pretty good.  It is very expensive but if you already hit your $2,000.00 limit it does not cost you anything.  Talk to your Pulmonologist. 

2 weeks ago

  • NewestOldestClick to View All Comments7 comment(s)
  • LucindaGood to hear from those receiving the new medication.  I'm sure others with bronchiectasis appreciate your post and you sharing your experience.  1 week ago
  • Ksmiles123It is great that we are witnessing the launch of a new drug, the 1st for non cystic Bronchiectasis patients. It is so interesting to read about the different timelines of drug effectiveness. I look forward to reading more updates as time moves forward. 1 week ago
  • StSchUpdate on Brinsupri after one month.   After being on Brinsupri for two weeks I was noticing a change in my coughing pattern.  I was actually coughing more but bringing up less sputum and what was coming up was smaller wads of sputum.  At this point in time I had a sinus surgery and one of the post-op meds war prednisone, 20mg once a day for five days.  After the second day for taking the prednisone with the Brinsupri I was not coughing or bringing up sputum anymore and now after a full month and no Prednisone I'm feeling normal with no signs of bronchiectasis and loving life.
    Brinsupri can be very expensive depending on your insurance coverage so be prepared.  But if you're older and on Medicare with Part D and a Medicare Advantage Plan your total med output for the year is only $2,100.00 (2026) so the Brinsupri is basically free.  Please check with your Pulmonologist, Insurance company and make sure you're properly set up with Medicare.  You can lead a NORMAL LIFE AGAIN.6 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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