Welcome to BronchandNTM360social

BronchandNTM360social is an online community for individuals affected by Bronchiectasis and/or NTM, including patients, family members, caregivers, physicians and other healthcare providers. It serves as an online home for these communities and provides a comfortable venue to share thoughts and ideas, ask questions, start discussions, read and comment on blogs, and communicate with peers, thought leaders and community managers.

 

Ksmiles123

Ksmiles123Hello! Below is information on indoor air pollution which is so important to anyone with lung issues.
https://www.nationaljewish.org/healthinfo/lifestyle/indoor-pollution/

19 minutes ago

    Gretchen

    GretchenOften we are not consciously breathing, taking full, long, expansive breaths. We do know that even a few minutes of breathing with awareness can make us feel better and more energized, less anxious and more relaxed. Read about the things you are probably doing and how it hinders your breath. It is good to have reminders and slow down.
    https://lungdiseasenews.com/2017/04/14/4-breathing-mistakes-youre-probably-making/

    41 minutes ago

      Ksmiles123

      Ksmiles123Here is one healthy drink which looks like a real cocktail! We can play pretend if we are not able to indulge in summer cocktails. :)
      http://calmfulliving.com/project/tasty-anti-inflammatory-turmeric-tonic/

      2 days ago

      • GretchenIt is supposed to be in the 80's here tomorrow-they say it will feel like the middle of July so this will be perfect!3 hours ago

      • Ksmiles123Yes, it is good to get in the practice of drinking refreshing drinks that are good for us and will keep us well hydrated during the upcoming heat wave. :)18 minutes ago

      Ksmiles123

      Ksmiles123With the warm weather approaching,below is the recipe for a very healthy smoothie:)
      http://calmfulliving.com/project/anti-inflammatory-ginger-citrus-smoothie/

      2 days ago

      Kandy

      KandyI thought this article was a good one showing the different breathing exercises.

      http://www.healthline.com/health/copd/breathing-exercises?utm_source=Sailthru+Email&utm_medium=Email&utm_campaign=copd#overview1

      2 days ago

      • Ksmiles123Kandy,
        Great article. These exercises can be done by everyone in the comforts of their home!
        You do not have to get to a gym or yoga class to improve your lung function of unable to do so.
        I have printed this article to keep along other exercises I do at home on the " not so good " days. It is amazing to feel the difference in how you may feel , especially on rainy days, when you do these exercises. 😄😄2 days ago

      • Made PramanaThank you Kandy for the article. I read it and become more understand. I realize that when I exhale my breath with pursed-lip, I don't have to exhale it so long. Four seconds are already good. The article is easy to understand. Thank you.1 day ago

      Elizabeth Benkert

      Elizabeth Benkertanswered the question Has anyone had success applying for Social Security Disability?

      Wishing you so much strength as you push through this process, I am sure it gets very frustrating at times but you seem to be handling it so well. I'm happy to hear you are continuing and have found a lawyer who will work with you, I hope you have a …
      KelKsmiles123Gretchenand 1 other also answered the question Keland 3 others also answered the question

      2 days ago

      Made Pramana

      Made PramanaI've been looking some information on the internet about "Air Quality Index" in Denpasar, Bali. However I didn't find it. There is a device that can be used to monitor air quality indoor or outdoor. This device is used in many countries. I hope there will be someone in Denpasar, Bali that will buy this device. It's great to know the quality of air that we breath. It can motivate us a little bit to protect our health.

      https://airvisual.com/node

      3 days ago

      • Click to View All Comments8 comment(s) -
      • Made PramanaOh I see Katie. So some inspectors do not really understand how to interpret the results. I personally need to improve my indoor air quality. I will consider to buy air purifier. Then I need to improve air ventilation in order to reduce humidity. Wish me luck! :)1 day ago

      • Made PramanaI just watch the first talk. It amazing to see people do their best to improve air quality. I will watch other videos :)1 day ago

      • Ksmiles123Yes, good luck with your indoor air quality improvements. A good air purifier is a great start and attempting to keep humidity at 52% is ideal, but not always achievable.
        Yes, you must make sure the inspector really understands how to interpret the results and has a good remediation plan suitable for lung issues.1 day ago

      Ksmiles123

      Ksmiles123Hello! Happy Saturday!
      Below is a link on controlled breathing; I hope that you enjoy reading it. :)
      http://nyti.ms/2ekot2Z

      5 days ago

      Ksmiles123

      Ksmiles123Hello! Great information below regarding foods to help us breathe better. We learn something new everyday; I did not realize that broccoli was not the best vegetable fro us; spinach and green beans are better choices.
      http://www.livestrong.com/article/370785-food-to-help-breathing/

      1 week ago

      Mary jo

      Mary joreceived the badge Getting started

      Earned the Getting started badge!
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      1 week ago

      Kandy

      KandyWhoops got two pics. This is the gray shirt the lady sold. This is the breathing thru a straw for the awareness. Philips joins COPD Foundation and family of late Leonard Nimoy in asking ... sometimes feeling as though they are breathing through a straw showing a selfie pic.

      1 week ago

      Kandy

      Kandyhttp://www.medicalnewstoday.com/releases/316988.php

      1 week ago

      • KandyMy pulmo been doing EKG every time I see him, every 3 to 4 months now cause of the 3 days a week zpak for bronchiectasis he said my numbers are coming up. So this article I wonder about it. May copy this to take him next week. 1 week ago

      • Kandy4 appts yesterday with drs in ND my numbers came down on the EKG from taking 3 day a week zpak so that is good I can stay on zpak to control my bronchiectasis. Met with my allergist to get my xolair going again. Right now its needed as the pollen is coming up daily.2 days ago

      • Ksmiles123Good news w zpak , EKG.
        Good luck w xolair and managing the pollen.:)1 day ago

      Kandy

      Kandyvoted on Promoting Personal Well Being

      Gave a thumbs up for a blog post!

      1 week ago

      Kandy

      Kandyhttp://www.medicalnewstoday.com/releases/316988.php

      1 week ago

      Randel

      Randelvoted on Promoting Personal Well Being

      Gave a thumbs up for a blog post!

      1 week ago

      Randel

      Randelvoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

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      1 week ago

      Ksmiles123

      Ksmiles123Hello! Below is a link to cleaning products which may cause less respiratory issues. I was not aware of how some of these household products , such as ammonia, could be such a lung irritant until a few years ago. We must take whatever measures we can to improve the quality of everyday life .

      http://www.drnorthrup.com/tips-for-green-cleaning-your-home/?utm_source=9988964_A_CN&utm_medium=email&utm_content=5612&utm_campaign=email_Newsletter_Northrup_2016&utm_id=5612

      1 week ago

        Gretchen

        GretchenOne of our lovely participants, BJ, asked me to post a pic of her and her service dog Zeph! How sweet! Thanks for sharing with us BJ!

        1 week ago

        Gretchen

        Gretchenvoted on Promoting Personal Well Being

        Gave a thumbs up for a blog post!

        1 week ago

        Cbp

        CbpIn regards to the posts about exercise and yoga this month, I found an interesting article about some myths surrounding yoga. It is important to dispel these as there are numerous physical and mental benefits to Yoga. Myth # 9 is especially important to address: Your Physical Condition Prevents you from Practicing. There are so many different types and levels of yoga that can be tailored to the individual needs of the person, including chair yoga.

        http://www.chopra.com/articles/10-yoga-myths-dispelled?utm_source=Newsletter&utm_medium=Email&utm_content=170411+-+CCL+Newsletter&utm_campaign=Newsletter2017411#sm.0000jrsc9nw3ieyutae2cjwurbyqw

        1 week ago

        sstevens

        sstevens

        How do you deal with changes in the weather?

        1 week ago

        • GretchenI am interested in this as well. It is nice to have some tips since the weather is in transition constantly, especially now going from the winter thaw to full blown Spring. Please chime in if you have some advice!1 week ago

        • KandyIts very hard to deal with it seems there is nothing to do but make sure your on top with the meds during the change or weather pressure. Pollen is out now we are in high range for this I wish I had my xolair. Seems to be always something. 1 week ago

        • Ksmiles123I use my rescue inhaler as needed. I may take more mucinex and plenty of fluids on humid days.
          Using an airway clearance device on bad days is so important. We just have to get our mindset , push ourselves to do yoga / some deep breathing exercises to achieve our goal of feel slightly better. 1 week ago

        Kandy

        KandyHere is my new do. Almost out of curl now.

        1 week ago

        Kandy

        Kandy

        Hello everyone a bit of a flare going on started pred clear mucus so not sure if allergies as the xolair is on hold till I see the allergist next week with the pollen out and med to high who knows. Feeling better since Saturday anyway. Hope this finds everyone well.

        1 week ago

        Ksmiles123

        Ksmiles123Hello! We all have different coping strategies. As stated previously, the weather changes impact the way I feel. I have found many new coping mechanisms over the years. I hope that some of the following tips will be helpful for you.
        https://www.verywell.com/using-positive-psychology-for-stress-management-3144620

        1 week ago

        • GretchenI think we forget how stress can greatly impact the health of not only our minds but our bodies as well. Thank you for these tips-they are available to us at any moment. Gratitude is my favorite and truly the most beneficial in my opinion. Melody Beattie said, "Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow." 1 week ago

        • Made PramanaThank you for the article. I read the article. The principles mentiomed in the article are great. I would like to express my gratitude upon the life that I have. I have been living for 21 years long and that's actually really amazing. :)1 week ago

        • Ksmiles123Gretchen,
          That is such a beautiful quote. Yes, we must practice gratitude everyday; it is what will give us peace on challenging days. :)
          Made,
          It is great to read your comments. Here's to many, many great years ahead.:)1 week ago

        Gretchen

        Gretchen

        How is everyone doing today? It is a beautiful spring morning. A perfect day for a walk or a day to read a good book in the park! Rain has washed away some of the pollen that has been accumulating...everything was awash is hello all weekend! Hope you do something in the sunshine today!

        1 week ago

        • Ksmiles123Hello! Yes, it tis a beautiful spring morning. Some of us are greatly impacted by weather changes; it takes a few days to really adjust to change in temperatures. Hopefully, the weather will stabilize and those affected by weather change can get out and truly enjoy the gift of nice weather.1 week ago

        Ksmiles123

        Ksmiles123Hello! Below is a post with the theme of HOPE.
        http://goo.gl/iMfKXa

        1 week ago

          Made Pramana

          Made Pramanavoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

          Gave a thumbs up for a blog post!

          1 week ago

          Elisha Malanga

          Elisha Malangavoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

          Gave a thumbs up for a blog post!

          1 week ago

          Elisha Malanga

          Elisha Malangavoted on Promoting Personal Well Being

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          1 week ago

          Kandy

          Kandy

          I went got my hair colored highlighted and cut. I feel like a big weight is off my head!! haha Wasnt that long really but for me it was.

          1 week ago

          Kandy

          Kandy

          Wishing everyone to have a Happy Easter weekend!!!

          2 weeks ago

          Kandy

          Kandyvoted on Helpful Nutritional Information Related to NTM/Bronchiectasis Patients

          Gave a thumbs up for a blog post!

          2 weeks ago

          Gretchen

          GretchenA study that was originally published in the Journal of Women's Health delves into women with chronic illnesses and the lack of utilizing on-line resources in the older-age range. It is interesting to note that the research spoke to self-care and internet resources optimizing health for those with chronic conditions. Read more here: https://consumer.healthday.com/health-technology-information-18/misc-computer-health-news-150/many-women-with-chronic-ills-don-t-use-online-tools-716955.html

          2 weeks ago

          Kandy

          Kandyhttp://www.medicalnewstoday.com/releases/316883.php

          2 weeks ago

            Made Pramana

            Made Pramana

            Hello Delia, Gretchen and Katie. I just read your comments about the Youtube video that I made. Thank you for watching and your response. I really appreciate it. I make video so I can speak and vent out some of my thoughts. At the moment I would love to try hypertonic saline because I am not really feeling the effect of normal saline. Doing airway clearance everyday by yoga exercise.
            Thank you so much for accompanying me in living with bronchiectasis. I would love to give you all hugs if possible :)

            2 weeks ago

            • Click to View All Comments5 comment(s) -
            • GretchenI so appreciate you sharing this path your on Made. I would absolutely love to give you a hug and practice yoga beside you!2 weeks ago

            • Made PramanaThank you so much guys. :)2 weeks ago

            • Ksmiles123Made,
              Your access to Healthcare video was very informative, thank you for sharing.
              A few questions: Have you been able to purchase an airway clearance device such as a flute or accoppella since then?
              Do you take mucinex or guaifenesin or other natural remedy to help loosen the mucous? I have read that carrot juice and mushrooms can assist in loosening secretions.
              Are the protein powders pure? I have read that many are allergic to whey protein powders. How do you feel an hour after drinking them?
              I usually experience respiratory infections in February, during peak flu season and in August with the severe humidity. I feel for you that you are experiencing recurrent infections every 2.5 months. Our goals is to assist one another to improve the quality of our lives.


              1 week ago

            Ksmiles123

            Ksmiles123answered the question Pulse ox

            Made, I see you using your pulse ox regularly. Yes, the oxygen level will drop but you seem to know how to readjust .The background music is great for your pulse on u tube video!!! Well done!!!:))
            MerryKandyMade Pramana also answered the question Merryand 2 others also answered the question

            2 weeks ago

            Kandy

            Kandyhttps://bronchiectasisnewstoday.com/2017/04/11/mast-therapy-for-chronic-lung-infection-in-bronchiectasis-and-cystic-fibrosis-enters-trial/

            2 weeks ago

              Ksmiles123

              Ksmiles123Hello! Most people don't think of the term " energy management" on a daily basis.
              Many bronchiectasis patients must plan our days based on the energy we have. I compare my energy management to a dollar amount in a bank.I must plan out and prioritize what needs to be done first, similar to the first and most important line item in a budget.
              Many learn to adjust managing their time better over a period of time and become less frustrated
              when they are unable to accomplish all they desire to do within a particular day.
              I am posting this link in attempt to give a few good tips, which may improve the quality of one's life.


              https://www.nationaljewish.org/health-insights/stress-and-relaxation/energy-management

              2 weeks ago

                Delia

                Deliavoted on Promoting Personal Well Being

                Gave a thumbs up for a blog post!

                2 weeks ago

                Kandy

                Kandyhttp://www.medicalnewstoday.com/articles/316837.php

                2 weeks ago

                Elizabeth Benkert

                Elizabeth Benkertvoted on Promoting Personal Well Being

                Gave a thumbs up for a blog post!

                2 weeks ago

                Kandy

                Kandy

                Well I did it!! Walked 12 blocks Saturday was so nice out had to do it. I use c tank in my back pack but on 6 continuous anymore it sure does go fast. I would have to get another tank for more walking.

                2 weeks ago

                Ksmiles123

                Ksmiles123commented onPromoting Personal Well Being

                 Barbara Jo,Hello! Thank you for sharing your story. Yes, many of us had an earlier pneumonia or respiratory condition years ago which weakened our immune systems, resulting in our present state of NTM/ Bronchiectasis.You were so fortunate to study...

                2 weeks ago

                Made Pramana

                Made Pramanahttp://www.atsjournals.org/doi/full/10.1164/rccm.201603-0599LE

                The link above is about a study about bronchiectasis. It's about removing particular antibodies from the bloodstream of patients with bronchiectasis may reduce the negative effects of chronic bacterial infections, the need for days spent in the hospital, and the use of antibiotics, new research shows.

                I got this article from another online bronchiectasis forum that I joined. I always happy when there are new studies published. 😊

                2 weeks ago

                Made Pramana

                Made PramanaHere is a video of me doing yoga on 7 April 2017. Have an enjoyable weekend everybody. 😊
                https://youtu.be/mRzPvv2GzyQ

                2 weeks ago

                Made Pramana

                Made Pramanavoted on Promoting Personal Well Being

                Gave a thumbs up for a blog post!

                2 weeks ago

                Ksmiles123

                Ksmiles123Hello! Just read this and thought I would post in case any of you are using a Ventolin inhaler.
                http://mobile.reuters.com/article/idUSKBN1762F3

                2 weeks ago

                  Gretchen

                  Gretchenadded a new article Promoting Personal Well Being

                  At the age of 15, I almost lost my life due to double mycoplasma pneumonia, which left me with 65% permanent scar tissue on my lungs. Today I am a 59 year-old woman living with bronchiectasis, asthma, and aspergillosis. My experiences with these conditions have altered my life in many ways.

                  As a result of the pneumonia, I spent 2 months at Walter Reed Army Medical Center and upon my return home I weighed 82 pounds and could barely hold my head up. It took a month to even be able to walk,...

                  2 weeks ago

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                  Medical Advice

                  It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.