ChristinaH

ChristinaHWe are interested in learning about how you learned to cope with bronchiectasis after you were diagnosed. Did your physician provide you with information or did you do much of the research on your own? Click on the link below to provide your feedback.

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Question-and-Answers/Bronchiectasis-Diagnosis-and-Education

Bronchiectasis Diagnosis and Education

Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how …

6 days ago

ChristinaH

ChristinaHSharing your experience regarding your condition can help others cope with bronchiectasis and NTM. We continue our "Share Your Story" series with a question on Antibiotics and GI Issues. Click on the link below to share helpful information on how you cope with stomach upset, nausea, etc. associated with taking antibiotics.
 
https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Question-and-Answers/Share-Your-Story-Antibiotics-and-GI-issues

Share Your Story - Antibiotics and GI issues

People with bronchiectasis and/or NTM are often prescribed antibiotics to treat (or prevent) lung infections. We know that antibiotics can cause …

1 week ago

  • KandyI have been on zpak  3  times  a week for 4 yrs or so for my bronchiectasis.  If a person take a probiotic 2 hrs before or after the antibiotic it can help with the stomach issues due to antibiotics.  I do have gerd also which has caused Barret's Esophagus.  I take a gerd pill in morning and one at night.  1 week ago
laff4evr

laff4evr

Who doesn't love success ?
I enjoy reading betterment stories. 
Please share how your condition has improved. 

8 hours ago

DAJ

DAJanswered the question Colloidal Silver and lung infections

I agree that people need to decide for themselves what they are willing to try in an attempt to find something that works for them, and I am certainly not suggesting that anyone use colloidal silver before doing their own research.That is why I included …
Ksmiles123 also answered the question Ksmiles123 also answered the question

9 hours ago

DAJ

DAJasked the question: Colloidal Silver and lung infections

I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …

14 hours ago

spacegirl

spacegirl

Hi There.
Thanks for "friending" me.
I am a newbie to this. 
I think it's a good idea to share helpful information.
I will be happy to share any helpful information I can pass along as I learn.
Best,
Laura

1 day ago

Jim#10

Jim#10

Finally had my bronchoscopy today, was canceled twice last week. Not a very comfortable procedure but tolerable. Results in 2 or 3 days.

1 day ago

Sea Air

Sea Air

First they thought I had asthma, then cancer, then TB and wanted to put me in a third-rate sanitarium, (yes, they still do that it some countries).  Then when the culture grew, it was NTM with Bx with cavities and nodules.  Before the bronchoscopy, I didn't cough at all--asymptomatic.  Now I cough a little bit BUT did my own research, bought a nebulizer, a flutter, and puff.  Trying to keep the airways open.  Short of breath a lot, but you never know.  Try to exercise.  Just started the Big 3 antibiotics.  Looking into alternative meds to keep my strength up.

1 day ago

  • NewestOldest
  • Ksmiles123SeaAir,
    Hello! Welcome to the site. Yes, so many of us were misdiagnosed several times before getting the right diagnosis.  I am so glad that you are now properly diagnosed and getting the treatment that will help you.
    Are you taking probiotics and prebiotics? It is important to eat well balanced meals, stay hydrated  take vitamins, pace yourself throughout the period of taking the big 3. Finding ways to relax , such as meditation, walking ( if able to do so) is important throughout this time period. Please review previously answered questions and blog posts  which are posted in the menu above. Katie1 day ago
  • laff4evrGreetings Sea Air 1 day ago
Ksmiles123

Ksmiles123Hello! Today is National Smoothie Day!  Smoothies are easy to make abd you can refrigerate for several days. Below are some recipes for immune system boosting smoothies: https://www.everydayhealth.com/diet-nutrition/immune-boosting-smoothie-recipes/?slot=0&xid=nl_EHNLdiet_2021-06-21_24209913&utm_source=Newsletters&nl_key=nl_diet_nutrition&utm_content=2021-06-21&utm_campaign=Diet_and_Nutrition

10 Immune-Boosting Smoothie Recipes | Everyday Health

Smoothies offer a convenient way to incorporate fruits and veggies into your diet. These and other ingredients, such as nut butter and spices, can help keep your immune system strong. Here are some nutrient-packed, tasty recipes to try.

1 day ago

spacegirl

spacegirl

Hello. I have been learning to cope mostly on my own. 
I have done a lot of research!
Various meds were not effective.
I will be going to NJH soon, hoping to get some help there.


2 days ago

Ksmiles123

Ksmiles123answered the question Bronchiectasis Diagnosis and Education

Made, I can relate- family and friends often do not understand invisible disorders. I hope that your family has been informed more about Bronchiectasis over the past few years
madepramanalaff4evrDAJ also answered the question madepramanaand 2 others also answered the question

2 days ago

Ksmiles123

Ksmiles123

Hello! Happy Fatherโ€™s Day, Grandfatherโ€™s Day, Godfatherโ€™s Day, soon to be a Fatherโ€™s Day and to anyone who acts in a fatherly role. 
Enjoy your special day!

2 days ago

Ksmiles123

Ksmiles123answered the question Reasons to avoid or stop exercising

Yes, hopefully, the reading is incorrect. Most people do not have the physical nor mental energy to function with very low oxygen levels

4 days ago

Ksmiles123

Ksmiles123answered the question Aspergillus fumigatus

Dawn, Hello! You are most welcome. Yes, a 3rd specimen at the best lab possible is the right choice.I have never used colloidal silver but heard read mixed reviews on it; it is not approved by the FDA.Hopefully, the 3rd specimen will give you the right …
DAJKandy also answered the question DAJand 1 other also answered the question

4 days ago

Jude

Jude

Good morning, I am interested in natural or herbal use. Anyone having success?

4 days ago

  • DAJJude, In addition to traditional medicine, I have been using supplements/herbs for many years.  Some have worked very well and some have not.  It's an expansive field, so if you private message me and tell me what in particular you are interested in, I will be happy to share what I have learned.  4 days ago
Ksmiles123

Ksmiles123Hello! Have you ever experienced a mold issue in your home? Mold appears both outside and inside a home. The article below reviews what the acceptable levels of mold are. However, people who have respiratory issues are more susceptible to issues than the general public.  A mold inspection and a doc who understands the reports would be able to guide you to determine if remediation is needed. Ahttps://findanyanswer.com/what-is-an-acceptable-level-of-penicillium-aspergillus-mold

What is an acceptable level of penicillium aspergillus mold?

200-500 spores โ€“ the most common species (Penicillium/Aspergillus, Cladosporium and Curvularia) are typically not an issue and stay within the normal range. 500-1500 spores โ€“ sometimes the Penicillium/Aspergillus & Cladosporium levels are in this range and do not require remediation.

4 days ago

Celle

Celle

Hi , I was diagnosed with Bronchiectasis last month and I'm just doing the research on my own. I'm hoping that by joining this group could help me in my condition.
Thank you .
God bless !

5 days ago

DAJ

DAJasked the question: Aspergillus fumigatus

Has anyone had any experience treating Aspergillus fumigatus in the lung?

5 days ago

Deppydo

Deppydoanswered the question Share Your Story - Antibiotics and GI issues

I am prescribed Amoxicillin 875 mg 2x a day when my sputum gets very thick. Seems that this happens about every 2 months. Have had no side bad effects so far. Hoping to get some pulmonary therapy so I can learn how to breath properly in order to get the …
ChristinaHKandydmerrilland 1 other also answered the question ChristinaHand 3 others also answered the question

5 days ago

Edgar Collett

Edgar Collettasked the question: Reasons to avoid or stop exercising

I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …

5 days ago

Ksmiles123

Ksmiles123

Hello! Have you identified certain foods that disrupt your sleep? The link below offers information on foods that impact your sleep: https://www.everydayhealth.com/sleep/how-what-you-eat-affects-how-you-sleep/

5 days ago

Kandy

Kandyvoted on Facing a Post-COVID World as a Bronchiectasis/NTM Patient

Gave a thumbs up for a blog post!

6 days ago

Kandy

Kandyvoted on A Dive Into Bronchiectasis and NTM Town Hall Teleconference Recording

Gave a thumbs up for a blog post!

6 days ago

Ksmiles123

Ksmiles123

Hello! Do you have a dentist appointment in the near future? I had postponed the dentist throughout the height of the Covid Pandemic.
I went to my dentist today for the 2nd time in a week - I knew that my dentist and his assistant were fully vaccinated at my last appointment. A new assistant walked into the room today- I inquired about her vaccination status . Unfortunately, she wasnโ€™t vaccinated. I kindly requested a different assistant since I was going to be very close for an hour. The dentist switched to another assistant who was fully vaccinated. We must be assertive in all health care offices. We are not yet out of the woods with Covid. I would rather be safe than sorry. There is still so much to learn about transmission and the 4-10% non effectiveness of the Covid vaccination. 

6 days ago

LucyLil

LucyLilcommented onA Dive Into Bronchiectasis and NTM Town Hall Teleconference Recording

 Thank you for this. Very helpful. Keep these coming!...

6 days ago

Betsy Glaeser

Betsy Glaeservoted on Facing a Post-COVID World as a Bronchiectasis/NTM Patient

Gave a thumbs up for a blog post!

6 days ago

ChristinaH

ChristinaHasked the question: Bronchiectasis Diagnosis and Education

Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how to cope with your condition? Did your physician provide you education on bronchiectasis or did you do much …

6 days ago

Jim#10

Jim#10

Thank you to all who are offering support and advice ๐Ÿ˜Š. Bronchoscopy has been changed to tomorrow due a physician emergency. All for the better, scheduled at 8 a.m. instead of 1:30. Will be so much easier to fast and not drink anything ๐Ÿ‘

6 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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