Ksmiles123

Ksmiles123answered the question Anyone using PALL Med filters on shower or taps?

Hello! Pall filters are highly endorsed by Dr J. Falkinham and other members of the NTM community. No one product offers an 100% guarantee that the filter will prevent an NTM infection. It is important that you replace these filters every few months.

1 hour ago

Ksmiles123

Ksmiles123Hello ! Dealing w chronic disorders can lead to depression for many patients.  The link below offers some good suggestions on how to deal w depressive symptoms.https://www.medicinenet.com/depression_tips_pictures_slideshow/article.htm

1 hour ago

Loopy

Loopy asked the question: Anyone using PALL Med filters on shower or taps?

Hello I have been recommended Pall med filters for NTM-Xenopi control in home shower and taps. has anyone used these or got advise on which ones are best?

5 hours ago

Gretchen

Gretchenadded a new article What is Bronchiectasis, and how can it overlap with COPD?

Recent research suggests that bronchiectasis is more common than previously thought1, and you or someone you know may be living with this condition. We hope that this article will help to increase your knowledge of bronchiectasis and how it can overlap with COPD. There is power in knowing more about the ways these conditions can be treated to help one live better. This knowledge can also help increase awareness and improve communication between families, friends, and health care...

1 day ago

Ksmiles123

Ksmiles123Hello! Lisa Ling, CNN presented information on the โ€œ benzo crisisโ€ in our country last evening.  Very interesting and alarming information in the article below:below.https://www.westword.com/news/inside-cnn-benzos-report-with-lisa-ling-11498488

1 day ago

Ksmiles123

Ksmiles123Hello! Below is an article which reviews the 12 most common respiratory issues.https://www.medicinenet.com/12_causes_of_respiratory_infections_slideshow/article.htm?ecd=mnl_spc_101019#

3 days ago

Ksmiles123

Ksmiles123commented onNTM/Bronchiectasis Patients and Carbohydrates

 Kristen,Hello! Thank you sooo much for your kind words.:). We all need to be reminded over and over again of the foods which will assist our bodies to function at the best possible levels....

3 days ago

Kristen

Kristencommented onNTM/Bronchiectasis Patients and Carbohydrates

 Excellent post, Katie -- thanks for the tips and the sound basic info on our bodies and carbohydrates. I love the fireplace analogy, too -- helps non-medical people like me to understand!...

3 days ago

Gretchen

Gretchen

What did you have for breakfast this morning? In attending the Patient Lecture Series at National Jewish, nutritionist Michelle MacDonald reminded us that, "Food is more than just something you do to fill up. Treat food like medicine, food is a drug." Eat high protein, high calorie, nutrient dense foods in order to avoid weight loss and minimize muscle loss to strengthen the immune system. Breakfast is the most difficult meal for me to eat but she said don't wait until you feel hungry, eat like you take your medicine!

4 days ago

Ksmiles123

Ksmiles123

Hello! Are you getting prepared for flu season?https://www.health.com/cold-flu-sinus/australia-flu-season-us

4 days ago

Ksmiles123

Ksmiles123

Hello! Are you getting adequate daily protein? The link below list the better quality products.https://www.nutritionaction.com/daily/what-to-eat/which-protein-bars-are-some-of-the-best/

6 days ago

Ksmiles123

Ksmiles123

Hello! This is National Mental Health Awareness Week. The article below discusses how important it is to seek treatment early for symptoms of depression, similar to the way you would seek help early on for a medical condition.https://mhanational.org/b4stage4-philosophy

6 days ago

Ksmiles123

Ksmiles123Hello! Have you ever experienced tendinitis secondary to antibiotics?https://www.medicinenet.com/tendinitis_causes_symptoms_treatment/article.htm

1 week ago

  • NewestOldest
  • GladysYES! I got a ruptured achilles tenson from Levaquin! Initially it was a sprain, then it ruptured, aI worse pain I EVER had...I opted not to have surgery and it recovered gradually. Now only option for pneumonias is IV meds. I will never take Levaquin again.2 days ago
  • Kandyi have had leviquin many times for exacrbations.  my pulmo keeps giving it to me even tho I tell them about warning.  I did one time affect back of my legs hurt so bad could hardly walk. Went away in a couple days.1 day ago
  • Ksmiles123Hello! I had severe tendinitis twice, was not a fun experience.
    My tight knee tightened for over an hour, couldnโ€™t move ....
    Didnโ€™t reoccur after stopping the antibiotic.22 hours ago
Made Pramana

Made Pramana

My oxygen saturation is a little bit low today. Itโ€™s around 90-88%. ๐Ÿ™ˆ Scary. I hope itโ€™s just because the device is already old.

1 week ago

JudyW

JudyW

Thank your for letting me join this group. I am in the process of deciding where to get a 2nd opinion. I have bronchiectasis, was successfully treated for MAC for 2+ years. The MAC bacteria is back and in addition I am dealing with a pseudomonas infection in my lungs (which I am being treated for). Before starting another MAC treatment, I would like to get a 2nd opinion. Could group members please share what experiences they have had at Jewish National in Denver and Johns Hopkins. I would appreciate any input.


Thank you.

1 week ago

Ksmiles123

Ksmiles123

Hello! Great comprehensive article on bacteria and viruses.https://www.onhealth.com/content/1/type_2_diabetes_symptoms

1 week ago

Ksmiles123

Ksmiles123

Hello! Are you keeping well hydrated while on antibiotics?https://www.healthline.com/health/how-to-tell-if-youre-dehydrated#takeaway

1 week ago

Gretchen

Gretchencommented onFoliage and the Respiratory Patient

 Summer has hung on longer than usual in most parts of the country, but fall is almost here, as far as temperatures and changes in the environment go. This blog post has a lot of good reminders and tips to get us through the change of seasons....

1 week ago

Ksmiles123

Ksmiles123Hello! The link below offers suggestions on how to take care of our liver by eating the right foods. Livers detoxify our systems. It is especially important to eat the right foods to assist our livers while on many medications.https://www.webmd.com/hepatitis/hep-c-18/treatment/slideshow-foods-help-liver

1 week ago

Kandy

Kandyvoted on Using Two versus Three Antibiotics to Treat MAC Lung Infections

Gave a thumbs up for a blog post!

1 week ago

Delia

Deliavoted on Using Two versus Three Antibiotics to Treat MAC Lung Infections

Gave a thumbs up for a blog post!

2 weeks ago

Ksmiles123

Ksmiles123

Hello! The link below addresses stress in the USA. We must continuously work on lessening the stress in our daily lives since it impacts the healing process.https://www.everydayhealth.com/wellness/united-states-of-stress/#dr-sanjay-gupta-on-chronic-stress

2 weeks ago

Kandy

Kandyanswered the question Hypervolt instead of a Vest or chest PT?

That looks wicked. haha Reminds me of a electric drill!!
Ksmiles123 also answered the question Ksmiles123 also answered the question

2 weeks ago

Ksmiles123

Ksmiles123

Hello! Great article below , written by DrJ Falkinham, the NTM Water Guru,https://www.docdroid.net/SQjJcUt/reducing-human-exposure-to-mycobacterium-avium.pdf#page=3

2 weeks ago

Ksmiles123

Ksmiles123

Hello ! Do you get sick more in the winter months or in the summer months?
https://www.healthline.com/health-news/sick-in-rainy-weather-reasons#Is-there-a-flu-season?

2 weeks ago

JayNYC

JayNYCasked the question: Hypervolt instead of a Vest or chest PT?

Has anyone tried using Hypervolt instead of a vest to improve chest clearance. i discovered it through a physical therapist for back pain, but the 'banging' movement of the tool reminded my of the chest physical therapy i received a while back. …

2 weeks ago

LJ Walsh

LJ Walshvoted on NTM/Bronchiectasis Patients and Carbohydrates

Gave a thumbs up for a blog post!

2 weeks ago

Delia

Delia

Our friends at NTM Info & Research are looking to learn more about patient preferences on airway clearance. Click the link below to share your preferences via a short survey. The results of the survey will help inform clinicians who are treating individuals with lung conditions, and will help inform industry and regulators as new therapies are developed.

https://www.surveymonkey.com/r/RBZ6HDH

2 weeks ago

Ksmiles123

Ksmiles123Hello! The article below is an interesting article that discusses emotions many of us face.
https://www.healthline.com/health/stay-positive-chronically-ill#1

2 weeks ago

Gatorskay

Gatorskay

Has anyone experienced severe headaches using Arikayce? If so, did your treatment change?

2 weeks ago

Bijou

Bijou

Hello all!  Does anyone know if I can use my Instant Pot for sterilizing my nebulizer and aerobika?

2 weeks ago

Ksmiles123

Ksmiles123

2 weeks ago

Ksmiles123

Ksmiles123

Hello! More information on the 2019 flu shot .https://www.livescience.com/40279-flu-shot-information.html

3 weeks ago

Ksmiles123

Ksmiles123

3 weeks ago

Ksmiles123

Ksmiles123

Subject: Dr, Addrizzo on Dr Radio Dr. Doreen Addrizzo will be speaking on Doctor Radio (Sirius XM) tomorrow, Tuesday, morning at 7 AM and I believe Sirius also repeats the broadcast later in the day. She will talk about bronchiectasis and NTM.Betsy Glaeser Co Leader New York NTM support Group

3 weeks ago

Bret99

Bret99voted on Avoiding Environmental Exposure to NTM

Gave a thumbs up for a blog post!

3 weeks ago

Brandon

Brandon answered the question Has anyone tried N-A-C or Quercetin (two different OTC supplement) to reduce mucus production?

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...
Made PramanaKsmiles123 also answered the question Made Pramanaand 1 other also answered the question

3 weeks ago

JayNYC

JayNYCasked the question: Has anyone tried N-A-C or Quercetin (two different OTC supplement) to reduce mucus production?

A friend recommended both and very basic online research suggests that there is some evidence they reduce mucus production. i see a bit more chatter about N-A-C than Quercetin. Ordered both from Amazon and going to try them for my NTM Bronchiectasis. Has …

3 weeks ago

JayNYC

JayNYCvoted on Avoiding Environmental Exposure to NTM

Gave a thumbs up for a blog post!

3 weeks ago

KK

KK

Hi ksmiles. Thx for info on pall medical showers heads will b looking them up on internet thx again

3 weeks ago

Vinny M

Vinny Mvoted on Avoiding Environmental Exposure to NTM

Gave a thumbs up for a blog post!

3 weeks ago

KK

KK

Not bad today. I bought berkey water filters for my showers they r said to get rid of bacteria and other garbage in water hope they work. Berkey water filters u can find them on line there tele number is listed i called them asked questions and then ordered

3 weeks ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.