Delia

DeliaA Medicare Enrollment Webinar for You
Medicare enrollment season is here! Are you newly eligible for Medicare, unsure about your current benefits, or just want to learn more? Join the COPD Foundation and the Medicare Rights Center for an informative and free webinar on Thursday, October 22, 2020 from 4:00 โ€“ 5:00 pm EDT. Topics covered will include the basics of Medicare, navigating through the choices available, helpful resources, and opportunities for financial support.
Register today: https://register.gotowebinar.com/register/7415369610940045327

1 day ago

Gretchen

GretchenWe are pleased to launch the second Help GUIDE COPD & COVID Research event on COPD360social! To participate and to read more about the Help Guide COPD Research Event and participate in the voting click on the research tab at the top of the page and select Help Guide COPD Research. Here you will find information on the event and a short video on how voting works. Scroll further down, answer a few simple questions and then begin voting.You can quickly enter the voting pages with the following link: https://www.copdfoundation.org/Research/BRIDGE-Project/Help-Guide-COPD-Research.aspx Please participate and make your voice heard!

2 weeks ago

Barbfit

Barbfit

I decided to get a compression vest Chose a vest that is battery operated so I can move about while using it. I HATE IT! I want to return it. I have to use it twice a day for 30 minutes.  I can't sit down using it because it will give me a headache and I my fillings may be  coming loose  I think I gain more benefit by exercising for 15 minutes before nebulizing (2x day). Does anyone else feel the same way? 

1 day ago

  • NewestOldest
  • Ksmiles123Barb,
    Hello! I am sorry that you are having a rough time with the vest. I did it for 20minutes twice a day in the past.  Can you adjust the settings to a less intense setting and decrease the time as you get more adjusted with the device?1 day ago
  • KandyI do my vest at 14 setting and for 20 min. to do twice a day.  I see some do them 3 times a day I really don't know how they can stand that.   Please keep trying I didn't like it at first.  At least you can move around mine is stationary electric.  What setting are you using?  Maybe its set to high..  20 hours ago
madepramana

madepramana

I just finished walking and cycling around my neighborhood. Have a nice day. ๐Ÿ˜Š

1 day ago

Ksmiles123

Ksmiles123

The link below reviews the importance of consuming whole grains: https://www.choosemyplate.gov/eathealthy/grains/grains-nutrients-health

2 days ago

Gretchen

Gretchen

Medicare enrollment season is here! Are you newly eligible for Medicare or unsure about your current benefits? Join the COPD Foundation and the Medicare Rights Center for an informative webinar on Thursday, October 22, 2020 from 4:00 โ€“ 5:00 pm EDT. Topics covered will include the basics of Medicare, navigating through the choices available, helpful resources, and opportunities for financial support. Register today! https://register.gotowebinar.com/register/7415369610940045327   

3 days ago

Ksmiles123

Ksmiles123

Hello! Are you taking a one a day vitamin supplement? Below is a basic vitamin guide: https://post.healthline.com/wp-content/uploads/2020/10/Essential_Vitamin_Guide.pdf

3 days ago

Ksmiles123

Ksmiles123Hello! The link below reviews transmission of the covid 19 virus. https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/how-covid-spreads.html

4 days ago

Ksmiles123

Ksmiles123Hello! The link below is for a video on the airborne transmission of the corona virus:
https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Coronavirus-Information.aspx

4 days ago

Ksmiles123

Ksmiles123Hello! A few positive quotes for the day!https://www.goodreads.com/author/quotes/8435.Norman_Vincent_Peale
Let me know if you have a favorite.

5 days ago

Purple_Heather

Purple_Heather

Hello - I'm new to this site. I am 53, in good health, and was dx 3.5 years ago with mild bronchiectasis. In July I had a flare up and I've been on and off antibiotics for the past 3 months with recurring bleeding and mild fever. I don't feel supported by my GP or respirologist and I have many questions: do people get regular CTs? has anyone had a normal sputum analysis and still had an infection? can forced expiry technique cause exacerbations? can exercise cause exacerbations? does anyone experience mild bleeding and fever? Does anyone opt not to take antibiotics, in the hope that the body will take care of the infection? Thank you kindly.

6 days ago

  • NewestOldestClick to View All Comments6 comment(s)
  • KandyHello Purple Heather welcome to our group!!1 day ago
  • BarbfitWhat, if any symptoms did you have before the exacerbation? If you had symptoms you should be doing the following: CT scan every 6 months to determine if the bronch has gotten any worse. Sputum samples every 3 months including checking for MAC infection (can take 6 weeks). you should be nebulizing every day and YES! EXERCISE. Cannot stress this enough. Keeps your lung stronger and helps excrete mucus so you can cough it up. I think it might time for you to get a good Pulmonologist who takes bronch. seriously. Many don't until down the road. I highly recommend proactive measures. I was treated poorly for 3 years until I found a doc who knew what the heck he was doing. I get aches after a coughing fit and do tire more easily, but if you have a fever you probably have an underlying infection. Since treated properly I rarely have blood episodes. HOWEVER, I did early this year after being diagnosed with COVID. I assume you've gotten tested?1 day ago
  • Ksmiles123Barb,
    Hello!How did you fare with Covid?23 hours ago
Ksmiles123

Ksmiles123Hello! Do you understand particle pollution and how it may impact lung health?https://www.lung.org/clean-air/outdoors/what-makes-air-unhealthy/particle-pollution

6 days ago

Ksmiles123

Ksmiles123answered the question Getting to Know You...

Bridget, Hello! Welcome back to the site. I am so happy that you attempted to learn to navigate the site again. I am sorry to read of the challenges that you have been through. You can make a difference in the lives of others by logging in on a regular …
bclangleyEmeeTracie Sullivan COPDF Staffand 14 others also answered the question bclangleyand 16 others also answered the question

6 days ago

dernancourt

dernancourt

How did you cope with medications?

1 week ago

  • KandyI been a long hauler with 4 lung diseases so used to a lot of meds.  Just another day in the neighborhood. 1 day ago
bclangley

bclangley

I am mostly stable but I have noticed my lungs seem to be getting gradually getting worse from year to year.  I walk, with oxygen of course, and get out of the house but I can't seem to do very well with mask.  Even with oxygen I'm gasping for air and have to remove it briefly.  

1 week ago

fluffythewondercat

fluffythewondercat

Hi everyone,


I drink bottled spring water, like many of you.  Boiling tap water to wash neb kits and other equipment isn't working out for me.  Is it safe to use spring water for that without boiling it?  Pardon me if this is a dumb question but I'm new to this.  Thanks!

1 week ago

Delia

Delia

Hope everyone had a nice weekend! I want to share a couple of articles that are relevant and may be of interest to many of you. Will leave links to each of them as separate comments below. Wishing you all a wonderful week!


1 week ago

dernancourt

dernancourt

I have MAC and just started rifampicin or whatever drug makes you cry red tears.  Tomorrow is drug #2 ...


Any words of hope?

1 week ago

madepramana

madepramana

Hello! Sorry I wasnโ€™t visited the website. I was quite busy with my homework. This morning I went for a walk outside (with a mask). Have a nice weekend. ๐Ÿ˜Š

1 week ago

Ksmiles123

Ksmiles123answered the question traveling for the holidays

Hello! I have not traveled due to concerns with the corona virus. One must take into consideration all the possible points of exposure en route to an airplane- security, check in points, lines, restrooms, etc. Personally, I do not feel that it is worth …

1 week ago

sunrise

sunriseasked the question: traveling for the holidays

Has anyone traveled recently (air travel) ? and if so, any complications?

1 week ago

Jim

Jimanswered the question Halotherapy (Salt Room Therapy)

I own a Salt room in Adelaide Australia called Breathe Stretch Float, there is a video on our Facebook page with Barb. 12 months ago Barb was given a month to live due to Chronic Bronchiectasis. Barb took a chance on salt therapy and it's helped her …
Elaine F.L.Ksmiles123 also answered the question Elaine F.L.and 1 other also answered the question

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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