Conference focused on bronchiectasis care and management

Miami (July 22, 2025) – The Bronchiectasis and NTM Association announced today that four abstracts using Bronchiectasis and NTM Research Registry data were presented at the World Bronchiectasis Conference, held July 14-17, 2025, in Brisbane, Australia.

The abstracts are:

• “The Impact of Proton Pump Inhibitor (PPI) Use on Exacerbation Rates in Patients with Bronchiectasis: An Analysis of the US Bronchiectasis and NTM Research Registry,” which examined the impact proton pump inhibitor use has on exacerbation and hospital stay frequency and disease severity.
• “High frequency chest wall oscillation (HFCWO) data in the Bronchiectasis and Nontuberculous Mycobacteria (NTM) Research Registry (BRR),” which highlighted the need for more education on high frequency chest wall oscillation prescribing indications and guidelines to ensure all eligible patients are receiving devices.
• “Treatment patterns by exacerbation history in adults with bronchiectasis: data from the U.S. Bronchiectasis and NTM Research Registry,” which analyzed exacerbation treatment patterns to determine factors that influence disease management.
• “Sociodemographic Factors Associated with Health Outcomes in a Sample of the U.S. Bronchiectasis and Nontuberculous Mycobacteria Research Registry,” which evaluated the impact of socioeconomic factors on health outcomes, including access to care, exacerbations, and health care utilization.

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Fourth annual awareness event occurs July 1, 2025

MIAMI (June 26, 2025) – The Bronchiectasis and NTM Association joins 25 global patient advocacy organizations and professional societies to recognize the fourth annual World Bronchiectasis Day on Tuesday, July 1, 2025.

Bronchiectasis is a chronic lung disease characterized by enlarged airways that are thickened and/or scarred. These permanently widened airways lead to a buildup of mucus and impaired clearance of bacteria from the lungs. It is estimated that more than 1 million people are diagnosed with bronchiectasis worldwide, and of those, 340,000 to 522,000 are adults in the U.S.

The aim of World Bronchiectasis Day is to raise global awareness, share knowledge and resources, and discuss ways to reduce the burden on those affected by the condition. This year, global partners are focused on empowering people with bronchiectasis by sharing resources on self-management, mental health, physical activity, and nutrition.

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Network facilitates access to high-quality, specialized patient care for bronchiectasis and NTM lung disease

Miami (March 12, 2025) – The Bronchiectasis and NTM Association has accepted 27 Care Center and six Clinical Associate Center sites in 23 states and the District of Columbia into the new Bronchiectasis and NTM Care Center Network (CCN).

The CCN aims to facilitate access to specialized care and support for the hundreds of thousands of people with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease.

“As the prevalence of bronchiectasis and NTM lung disease grows, it is even more important for us to create this Care Center Network to improve access to high-quality, specialty care and resources patients need,” said Doreen Addrizzo-Harris, M.D., Chair of the CCN Steering Committee. “The CCN’s innovative, nationwide network will help us achieve our goals of improving care and quality of life for those with these conditions, as well as advancing toward a cure.”

Centers accepted into the CCN receive a designation of either a Bronchiectasis and NTM Care Center or a Bronchiectasis and NTM Clinical Associate Center, based on institutional resources and infrastructure. The requirements are established by the CCN’s Steering Committee, comprised of leading experts in the field.

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