Hi!!! First, Merry Christmas and Happy New year! Does anyone with bronchiectasis use supplements and/or essential oils? If so, why, how and when? I've used supplements for many years and have used essential oils sporadically, and am using EOs more now. I …

How do you find it it easiest for you to set and make progress toward your goals? Do you write them down? Where do you post them to remind yourself? Would love to learn from your approaches.

Does anyone have any information on the 2018 World Conference? Like location, dates, when registration will open up, and where we might go to register(website)? We really would like to attend but need details now so we can save up for the trip.

My 30 year daughter has had a positive acid stain test. The culture is now growing to determine the species. She's had asthma since she was 2 years old. She's a newly graduated pharmacist and is so scared. I really don't know what to expect next ..?

I am considering getting the Afflovest. Anyone using it and does it make any difference? It is not cheap. So far for me the most effective way to clear the mucus is the saline solution 7% and biking on a bike trainer indoors for 30/40 minutes.

Is itpossible to get Disability assistance through the government due toNTM and /or Bronchiectasis? Hasanyone gone through this process?

Hi, all-- Has anyone else experienced delayed side effects from Daliresp? After 4 months on Daliresp I experienced a new and most egregious side effect, and my doctor took me off the med. I had some side effects at the beginning, but they either subsided …

Patients as Partners: Using the "My COPD Action Plan” for Effective COPD Management A webinar for health care professionals and those who have been diagnosed with COPD Free of charge Tuesday, November 7, 2017 4:00pm – 5:00pm EST The “My …

After being told I have bronchiectasis, my pulmonologist informed me that my eosinophil levels were extremely high, 179 was the count, and that it was the main cause of my asthma. Has anyone else experienced this?

Hi! Has anyone with a history of mastectomy with gel implant reconstruction been using a percussion vest, or know anything about the safety to the implants of such use? Any idea where to find case reports of problems or studies showing safety? Thank you! …

I'm newly diagnosed with Bronchiectasis and MAI. Apparently I have only two brands of nebulizers available in my area that my insurance will cover: Drive (compact or MedNeb I think) and Phillips Respironics Innospire Mini. Does anyone know which is the …

Does your respiratory diagnosis create challenges in your daily tasks? Have you found helpful solutions that you can share?

Do any of you use Health Apps to manage your disease? Here is an interesting article from the Wall Street Journal about how certain apps help in the connection between health care professionals and patients. Any thoughts on this? https://www.wsj …

Wonder what foods may or may not affect my condition. Others with experience? Thanks for your responses.

I was diagnosed with this NTM in 2014, and recently my pulmonary doctor has told me he sees progression of growth in my CT's of suspect new activity of the disease. I thought we had beat it back. Now do I start all over? Doing the three tests AFB again. …

Hi everyone, Has anyone tried using masks when they travel to minimize risk of exposure to illness? What have you tried -- and have they worked for you? Thanks!

I do hypertonic saline 7% and it sure has helped me. Also NAC a supplement pulmo do recommend be sure to ask your dr first. My pulmo told me to double my dose I was doing 600 mg for the antitoxin affect till I got bronchiectasis. http://www.webmd …

I sent samples of the bio film in my showerhead to the university study conducted a couple of years ago. Did anyone here participate? Did you get your results? I've never heard back and now cannot even remember who did the study to follow up. Any …

As most of you know our now almost 19 month old has non-cf cystic Bronchiectasis. We have been trying to allow her to experience as many "Normal" activities as possible. One of these being swimming. See, we live in Texas and basically to survive a summer …

Hi all -- how do you approach expressing your needs re: your illness with friends and family? For example, if you need them to stay home when they have a cold so you can avoid infection or you would prefer to stay inside rather than engage in an outdoor …

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Ok guys we are going back to pulmonologist Monday for a follow up for our LO'S pneumonia. When we were told she had Bronchiectasis a few months back our pulmonologist never told us the severity, lung involvement(both or one lobe on specific), or if it …

That is is not going to get any better. I have ppl keep asking are you better do you feel better? There is no getting better. That is the hard part. I have never had this before even with my asthma and emphysema I had no mucus or cough only with an …

When you got your aerobika there was a booklet with it and that show how to hook aerobika and the neb together if that is what you want to do. Here is some information for you. https://www.nationaljewish.org/treatment-programs/...

https://www.statnews.com/2016/02/08/fda-crackdown-stem-cell-clinics/ There cracking down on so called stem cell clinics. All they do is take your money and you get no help and possible death. We did have a lady in our e-mail support group that went to …