We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …

I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …

I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …

Has anyone seen this article that states that United Healthcare is refusing certain non-emergency claims in the ER. If you have bronchiectasis, this is very concerning because, as you know, you can become seriously ill very fast with bronchitis, needing …

I sat around a campfire last night for about three hours. It's the first time I've been around a campfire since I was diagnosed with bronchiectasis. I coughed a good bit during the evening, but I thought I would be fine. I came home, used my nebulizer …

Hello, my mom (71yrs) had a kidney transplant 7 years ago. She has recently been diagnosed with NTM and MAC. She has been doing breathing treatments for the last 3 months but the MAC is spreading and they want to start her on medications. Since she is on …

What hobby do you enjoy the most? Do you have any activities that you turn to for stress relief?

I am fairly new to this site, and I just saw the post about starting a video chat group for people dealing with bronchiectasis about 8 months ago. Was that ever done?

What diet is best for bronchiectasis

I have Bronchiectasis and have had an uncontrollable cough for years. I nebulize saline and use albuterol and symbicort daily with minimal results. What really works for me is a low dose of Tramadol every six hours. I now have a cough I can live with.

I was just diagnosed with sleep apnea. I need advice for cleaning the CPAP. I don't have the equipment yet but I wanted advice from people with Bronchiectasis.

Has anyone experienced numerous false negative sputum sample results before they found the right Doctor/Laboratory?

Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?

I have been coughing constantly since last January. My pulmonologist is sending me to an ENT who is at a voice center. I'm wondering what to expect. I read about the center and found cough training listed but not much information.

More diet tips

COVID vaccine

Hi all, thanks to those of you who joined our Coffee Break yesterday! With St. Patrick's Day in just a few weeks, I am posting some recipes that Ksmiles123 has shared (thank you, Ksmiles!). Do any of you have St. Patrick's Day recipes you're willing to …

I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …

Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?

My pulmonologist is choosing to not give me antibiotics. I think because my lung function is still normal and I don't have a lot of symptoms other than a couple coughing bouts per day. He did give me a nebulizer which I use every day and a flutter device …

On Tuesday I have an appointment with GP to ask if my puffers need to be changed but I'm not sure if I will make a fool of myself asking him because from what I gather it is normal to be breathless when active.

Hi, my name is Elaine and I have the mildest form of Cylindrical Bronchiectasis. I am breathless every day on exursion (fine when doing nothing). Often wheezy. Lately I have been bringing mucus up only once a day or not at all instead of numerous times a …

My niece will soon be getting a bone marrow transplant. I realize that my NTM is not considered infectious to others, but are there any exceptions? I would like to help with her post-transplant care, but that is when she is most vulnerable to infection. …

Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?