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5
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Share Your Story - Hobbies and Stress Relief
What hobby do you enjoy the most? Do you have any activities that you turn to for stress relief?
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2
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Video Chat Group for Bronchiectasis Patients
I am fairly new to this site, and I just saw the post about starting a video chat group for people dealing with bronchiectasis about 8 months ago. Was that ever done?
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2
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What diet is best for Bronchiectasis?
What diet is best for bronchiectasis
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1
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Tramadol (Ultram) for cough
I have Bronchiectasis and have had an uncontrollable cough for years. I nebulize saline and use albuterol and symbicort daily with minimal results. What really works for me is a low dose of Tramadol every six hours. I now have a cough I can live with.
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3
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What is the best way to clean cpap equipment?
I was just diagnosed with sleep apnea. I need advice for cleaning the CPAP. I don't have the equipment yet but I wanted advice from people with Bronchiectasis.
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2
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False Negatives
Has anyone experienced numerous false negative sputum sample results before they found the right Doctor/Laboratory?
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3
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Share Your Story - Sharing with Family and Friends
Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?
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9
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Has anyone seen ENT / voice center for cough?
I have been coughing constantly since last January. My pulmonologist is sending me to an ENT who is at a voice center. I'm wondering what to expect. I read about the center and found cough training listed but not much information.
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2
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What is GERD?
More diet tips
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4
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Has anyone taken the COVID Vaccine and what's your experience? Any issues?
COVID vaccine
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2
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St. Patrick's Day Recipes/Traditions
Hi all, thanks to those of you who joined our Coffee Break yesterday! With St. Patrick's Day in just a few weeks, I am posting some recipes that Ksmiles123 has shared (thank you, Ksmiles!). Do any of you have St. Patrick's Day recipes you're willing to …
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1
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Biologics as a treatment for Bronchiectasis related to IBD
I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …
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5
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Any contraption or non-medical device that improves your quality of life?
Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?
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3
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Do all people receive antibiotics for NTM?
My pulmonologist is choosing to not give me antibiotics. I think because my lung function is still normal and I don't have a lot of symptoms other than a couple coughing bouts per day. He did give me a nebulizer which I use every day and a flutter device …
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1
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Puffers
On Tuesday I have an appointment with GP to ask if my puffers need to be changed but I'm not sure if I will make a fool of myself asking him because from what I gather it is normal to be breathless when active.
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5
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Puzzled. Am I normal
Hi, my name is Elaine and I have the mildest form of Cylindrical Bronchiectasis. I am breathless every day on exursion (fine when doing nothing). Often wheezy. Lately I have been bringing mucus up only once a day or not at all instead of numerous times a …
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2
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NTM risk to others
My niece will soon be getting a bone marrow transplant. I realize that my NTM is not considered infectious to others, but are there any exceptions? I would like to help with her post-transplant care, but that is when she is most vulnerable to infection. …
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3
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CEO Women with NTM
Women with NTM and high level jobs . ( CEO, Managing director , etc ) . How do you get through your long stressful days coping with your disease?
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2
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traveling for the holidays
Has anyone traveled recently (air travel) ? and if so, any complications?
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23
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Getting to Know You...
Hello everyone I am Kandy from South Dakota. Been sick most my life asthmatic overlapping copd, chronic bronchitis every year. Found I had bronchiectasis in 2014. Many end of life predictions starting at 10 yrs old. 1997 very sick told to get my affairs …
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7
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Halotherapy (Salt Room Therapy)
Hello! I was wondering if anybody had ever tried Halotherapy (Dry Salt Therapy) for their Bronchiectasis? My Infectious Disease doctor suggested it as something to try. https://www.saltchamberinc.com/salt-therapy-halotherapy/ Thoughts?
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1
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Is Bronchiectasis the same as COPD?
I am just beginning to learn about bronchiectasis and engage in the bronch and NTM community. Is Bronchiectasis the same as chronic obstructive pulmonary disease?
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9
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When to start antibiotic?
Hi everyone. I found this question on an online bronchiectasis forum that I follow and I would like to know your experience about "when to start antibiotic". When do you start antibiotics? How do you know if you have exacerbation? What is the antibiotic …
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5
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Anyone else live 65 years after Bronchectasis Dx?
I was born in 1946. I was diagnosed with chronic bronchitis at age 4 after a few events of bronchitis and two of pneumonia - the first at three months. At six I was diagnosed with Bronchiectasis and my parents were told I would not make it through my …
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5
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How to manage coughing/ clearing mucus while working
Hi All, I have had bronciatais all my life and I am full time working, I am finding it difficult in work to clear my lungs so I am suppressing my cough cause it sounds horrendous. I am very self conscious of going into the toilet I ususlly wait until …
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