Click Here for COPD Foundation Resources on Coronavirus Disease 2019 (COVID-19)
Return to previous page
Hello, my mom (71yrs) had a kidney transplant 7 years ago. She has recently been diagnosed with NTM and MAC. She has been doing breathing treatments for the last 3 months but the MAC is spreading and they want to start her on medications. Since she is on immunosuppressing drugs, she can't be on "normal" drugs to treat NTM/NAC. They want her to be in a trial for Clofazimine. Has anyone been on this drug? Any information you can pass on to me? Also, she is seeing a pulmonologist at Denver Jewish Hospital but is having trouble finding a Kidney transplant doctor that has treated patients with NTM/MAC. Does anyone have any kidney doctor recommendations? Thanks!
Join the Conversation
Already a Member?