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Nebulizers
Are you currently using a nebulizer? Below is an excellent re on nebulizer usage: https://www.copdfoundation.org/Learn-More/I-am-a-Healthcare-Provider/The-101-Library/Nebulization-101.aspx
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Inhaler usage
Are you presently using an inhaler? The excellent article below includes links to videos which demonstrate proper usage : https://www.copdfoundation.org/Praxis/Community/Blog/Article/1845/Don-t-Forget-to-Check-the-Technique.aspx
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Are you getting adequate Vitamin D on a daily basis?
Many of us have lower Vitamin D levels. The goal, if possible is to be around 60. Below is a list of foods, higher in vitamin D. https://www.healthline.com/nutrition/9-foods-high-in-vitamin-d
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Dysbiosis
Do you understand the term dysbiosis? It refers to the imbalance of good and bad bacteria in our system. The article below explains it in detail: https://www.news-medical.net/health/Dysbiosis-and-the-Microbiome.aspx
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Are you taking prebiotics?
Hello! Are you taking prebiotics? There are plenty of foods that will provide you with the prebiotic fibers your body needs. The article below mentions some of these foods. An apple is one of the foods on the list. As the old cliche goes “ An apple a day …
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Prebiotic
Hello! Are you taking prebiotics? There are plenty of foods that will provide you with the prebiotic fibers your body needs. The article below mentions some of these foods. A apple is one of the foods on the list. As the old cliche goes “ A apple a day …
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Fiber
Do you understand the difference between soluable and non soluable fiber and how they effect your gastrointestinal system? https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/fiber/art-20043983
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Amikacin
Are you currently using inhaled Amikacin? How often are you seeing an audiologist? Below is some basic information about Amikacin from Drugs.com https://www.drugs.com/mtm/amikacin.html
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Picc line
Just that PICC lines should be flushed out after every use. Sterilizing with alcohol might not be enough. When I was at a rehab center a nurse used that shortcut, alcohol instead of flushing the line, and it became clogged. Treatment was delayed two days …
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Mycobacterium Abcesscus
Are you interested in reading an article on Mycobacterium Abcessus, written by Dr. David Griffith? https://pubmed.ncbi.nlm.nih.gov/34314673/
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Sleep
Hello! Are you sleeping well throughout these winter months? Sleep is of upmost importance for our immune systems/ healing. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/150/Sleep-and-Healing-for …
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Support Group Request
Would it be possible to meet as a support group more often? Perhaps once a week? Many of us don’t know anyone else with this health issue. It would be so nice to get to know others better!
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Nebulizers
Hello! Do you have any specific questions about nebulizers and or the type of medications you use in a nebulizer? The link below, Nebulizers 101 will provide you with some helpful information. Please let us know if you have any questions? https://www …
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PFTs
A function I used to perform at a bronchiectasis support site was to run a contest every year called Top Lung . Members would submit their PFT results allowing them to compete. The member with the highest FEV1 would receive the coveted Silver Spittoon …
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6 minute walk
Have you taken the 6 minute walk test recently? How did you do? https://www.verywellhealth.com/6-minute-walk-test-914820
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Adherence to goals
Are you keeping your new years goals? It is not easy to always stay on track. The blog article below discusses staying on track. Small steps towards our goals will eventually get us to where we desire to be. https://www.bronchiectasisandntminitiative …
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What is the best portable mesh nebulizer? The Phillips innospire is back ordered every where!
BestPortable mesh nebulizer
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Wheezing
Are you currently experiencing more frequent wheezing? Do you understand the source of your wheezing? The article below reviews wheezing and it’s possible causes. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community …
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Drug cost
Hello, I am just starting the 3 drug regimen and wondering if anyone is aware of financial assistance for Rifabutin as of 2023 Pfizer discontinued the patient assistance program for Mycobutin most of the discount card resources come out about the same; …
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Have you been recently diagnosed?
Have you recently been diagnosed with NTM, Bronchiectasis or both? Do you have a specific question?
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Reflux
Are you a new patient dealing with acid reflux? The blog article below offers some tips: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/47/The-Basics-of-Acid-Reflux
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Has anyone used the WABI steam sanitizer& dryer for Phillips Innospire Go mouth piece?
Wabi steam sanitizer & dryer. Has anyone used it for Phillips Innospire Go Mouthpiece? I use it on my Aerobika and other nebulizer pieces. I contacted Phillips and have not received an answer to date. Thanks for any info!
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Do you understand all of the medical terminology used at your doctors office?
Do you understand all of the terms used by your pulmonologist? The link below reviews the most common terms used: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Glossary
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Do you understand the diffusion capacity of your lungs?
https://www.verywellhealth.com/diffusing-capacity-of-the-lungs-2249024
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Bronchiectasis and NTM Information Podcast
Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …
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