0 Votes
2 Answers
Littel helpful hints

Does anyone else get relief in the following two ways: 1. When I get phlegm stuck in my throat, I can sometimes get it loose with the use of Ricola cough drops (the original, not the sugar free) 2. Prior to bedtime, I use Neilmed saline rinse, but not in …

Author: oasisman
0 Votes
4 Answers
Are you considering getting the RSV vaccination?

Below is basic information on the RSV vaccination: https://www.singlecare.com/blog/rsv-vaccine/?utm_source=braze-sc&utm_medium=email&utm_campaign=10.20_Newsletter&lid=o2f3jolfejv4

Author: Ksmiles123
0 Votes
17 Answers
Reduced lung function

So I’ve had Bronchiectasis for years with just some coughing. But this year in addition to 2 flares I get short of breath when I’m not flaring. My breathing is clear otherwise.. The shortness of breath has seemed to come on quickly. Has anyone else …

Author: Jeffrey
0 Votes
6 Answers
Medicare Part B payment for 7% sodium chloride vials

I have been trying unsuccessfully for months to arrange a way for Medicare Part B to pay for the 7% sodium chloride in 4ml vials that I use twice daily through a prescribed nebulizer to treat Bronchiectasis. I have consulted with my pulmonologist, …

Author: MKB
0 Votes
0 This question has no answers.
Are you having trouble getting assistance with your mental health needs?

The link below reviews the different sources of mental health support, in person, on line, and the different types of facilities where m: https://www.webmd.com/mental-health/ss/cm/slideshow-where-to-get-mental-health-help

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you experiencing more mucus production in the winter months?

Cold, dry air may lead to increased mucus production. This is certainly the time of the year to do airway clearance regularly to avoid respiratory infections. The article below reviews the impact of dry air on our respiratory tract. https://www.cnet …

Author: Ksmiles123
0 Votes
10 Answers
Bronchoscopy

Hi everyone, I am having PFT MTC and Bronchoscope next week, I just saw the Bronchscope on the orders. Now I’m scared from googling bronchoscope. Is it very frightening and uncomfortable while having the procedure or after? I have been on z-pak, then, …

0 Votes
2 Answers
Are you dealing with anxiety?

Below are 11 tips to assist you to deal with anxiety: https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/11-tips-for-coping-with-an-anxiety-disorder

Author: Ksmiles123
0 Votes
4 Answers
retractable tubing device for long tubing on an oxygen concentrator

Has anyone used a retractable tubing device for long tubing connected to their oxygen machine, so that I do not trip over it?

Author: caarmela
0 Votes
1 Answers
Are you a caregiver?

Hello! Below is an excellent, heartfelt article written by Amanda Atkinson, RN,MS on Caregiving. Multiple links to resources are included in the article. https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Checking-In-On-Those …

Author: Ksmiles123
0 Votes
3 Answers
does anyone know a specialist in equipment for oxygen machines in New York City

I need help in learning how to use the oxygen tanks in case of an emergency, in cleaning canulas and tubing, in finding aids to help me manage the long tubing and getting around the house, and advice on what other equipment to buy for help with using my …

Author: caarmela
0 Votes
2 Answers
tyvaso dpi

Has anyone found an insurance company in Medicare Part D that will cover Tyvaso DPI?

Author: caarmela
0 Votes
8 Answers
Not needing antibiotics for Bronchiectasis

I been having a rough time of it last few months been coughing for weeks not much brought up after all my neb meds saline and vest airway and the extra expap. Vent at night had to stop it for a while due to coughing. Now my Co2 went from 54 to 58 even …

Author: Jeffrey
0 Votes
2 Answers
Are you feeling very stressed?

Ongoing stress can take a toll on our health and our immune systems Below is a stress screening test that you can take and get the results at completion of the test. https://psychcentral.com/quizzes/stress-test

Author: Ksmiles123
0 Votes
1 Answers
Since NTM is EVERYWHERE, how much caution is required to avoid exposure to NTM if you have bronchiec

This question was recently asked at a BNTM Coffee Social Event Since NTM is EVERYWHERE, how much caution is required to avoid exposure to NTM if you have bronchiectasis? KATIE: Basic precautions to avoid aerolized / inhaled NTM should be taken. Below is …

Author: Ksmiles123
0 Votes
0 This question has no answers.
How are you deal with the stressors of your health condition?

The article below reviews 16 ways to cope with stress. Can you identify a few that work best for you? https://www.healthline.com/nutrition/16-ways-relieve-stress-anxiety#15.-Spend-time-with-a-pet

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you feeling depressed for more than a few weeks??

Below is a depression screener test and information on depression: https://www.myhealth.va.gov/mhv-portal-web/depression-screening

Author: Ksmiles123
0 Votes
2 Answers
Is it typical for a Dr. to postpone taking the 3 medications with mild bronchiectasis and MAC?

This question was recently asked at a BNTM Coffee Social. Katie: Your doctor may want to monitor you if you are not symptomatic since the antibiotics themselves may present great side effects. Christina: The decision to start treatment is preferred yet …

Author: Ksmiles123
0 Votes
2 Answers
If a patient has been treated with antibiotics, can the sputum culture show positive again for NTM?

This question was recently asked at a BNTM Coffee Social. Christina: Katie is correct on that. I believe if the statistic is if you have had NTM before, you are almost 50% more likely to develop the infection again.* This doesn’t mean that you might get …

Author: Ksmiles123
0 Votes
0 This question has no answers.
Is a reduced appetite common while taking the Big 3 antibiotics?

This question was asked by one of our community members at a recent BNTM Coffee Social. KATIE: Yes, a lot of patients do get nauseous and are unable to eat while on multiple or single antibiotics. Medications are available that may stimulate your …

Author: TimD
0 Votes
0 This question has no answers.
Do you have questions on medication used for mental health conditions?

The link below from NAMI provides details on a list of commonly used medications for mental health issues such as depression: https://www.nami.org/About-Mental-Illness/Treatments/Mental-Health-Medications

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you dealing with heightened anxiety these days?

Below is a link on the different types of anxiety and treatment discussions https://www.nami.org/About-Mental-Illness/Mental-Health-Conditions/Anxiety-Disorders

Author: Ksmiles123
0 Votes
3 Answers
Anyone know of a breath-actuated mesh nebulizer?

Test Answer. Please ignore as this will be removed shortly

Author: Trey
0 Votes
2 Answers
How do you differentiate between the flu, RSV and Covid 19?

Below is a review of the most common symptoms of the flu, RSV, Covid 19: https://www.labcorp.com/coronavirus-disease-covid-19/covid-news-education/covid-19-vs-flu-vs-rsv-how-tell-difference

Author: Ksmiles123
0 Votes
11 Answers
Do you practice postural drainage techniques for airway clearance?

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Author: Ksmiles123
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0 This question has no answers. Answers

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