After taking Nexium (PPI that blocks all acid) for over 3 years, due to problems with the antibiotics for NTM, I read that PPI's cause bacteria to go into the lungs. Don't need more of that! So now I am going cold turkey, with no Nexium for the past 3 …

Does anyone happen to have a list of pulmonologist's that specialize in Non-cf cystic Bronchiectasis in infants and pediatrics in the United States?? I am battling our insurance company over a denial for her to travel from Texas to Colorado for 10 day …

Hi - found out recently that there is a connection with NTM MAI and living with birds - has anyone been told this by a doctor, I saw a new pcp and he was stunned to learn that I was living in a house with a bird (amazon) - I was stunned that no one ever …

My bronchiectasis and MAC was diagnosed in Oct 2015. for 20 years prior, and ever since, I have had a strenuous, every day and night cough that I take numerous medicines and inhalers to try to control. Does anyone else have this much trouble with …

1-2 months after beating the NTM and ending the Clarithromycin (and other antibiotics) I have increased shortness of breath. My pulmo thinks the Clarithromycin was reducing my COPD inflammation, and now the inflammation is back. However, she is hesitant …

I just discovered you can buy respiratory equipment on ebay. Is that an option for you, Made Pramana?

While it's not targeted specifically towards people with chronic illness, the AARP website has an excellent page full of caregiver resources. It includes helpful information on caregiver basics, physical and emotional health, financial and legal issues …

Does anyone know how to upload a pdf here? I found recent articles on bronchiectasis.

Does anyone have a promotional/discount code for the World Conference registration fee? It is going to cost my husband and I $500 to both register. We habe been saving for almost a year for this, since we are turning this conference into a road trip …

I know I asked this a while back, but has anyone heard anything about 3rd World Bronchiectasis Conference in DC July 12-14th? We are planning to drive from TX with all 3 kiddos and both my parents in their rv and need to make our reservations for our …

Recently we were told by our daughter's geneticist, that she was almost positive she had Opitz G/BBB disease. She said Bronchiectasis, as well as laryngeal cleft and autism are symptoms of the rare genetic disease. We are currently awaiting her test …

We have recently gotten a referral approved for out of state out of network specialist. Was curious if anyone had any experience with Dr. Charles Daley at Nation Jewish Health Facility in Colorado?

I have been prescribed cough pills by my pulmonologist, but I don't take them, thinking that it's better to get the mucous up and out than let it be a breeding ground for infection. But I pretty much cough all day long now, and would like some relief. …

Yes, so many with chronic disorders face these challenges. I feel that you learn over time how to face saying "no" when you are truly unable to function and attend an event. True friends, family will get better insight of what you are dealing with over …

I needed to quit my visual art high school teaching job of 33 years due to my Bronchiectasis. I would frequently have bronchospasm, coughing for several minutes with difficulty breathing, sweats while trying to teach 5 classes per day of 40 students per …

Does anyone know the where, when and how to register for the 2018 conference? I did see it was going to be in Washington, D.C. in July 2018, but have not been able to confirm dates. I also cannot find how to register? My family is really wanting to …

I was diagnosed in the 80's, and have been in the hospital for flare ups, more times than I can count. I almost never feel well, but continue to carry on as tho I am . I think my question might be: How do others with this disease deal with the copious …

Hi!!! First, Merry Christmas and Happy New year! Does anyone with bronchiectasis use supplements and/or essential oils? If so, why, how and when? I've used supplements for many years and have used essential oils sporadically, and am using EOs more now. I …

How do you find it it easiest for you to set and make progress toward your goals? Do you write them down? Where do you post them to remind yourself? Would love to learn from your approaches.

Does anyone have any information on the 2018 World Conference? Like location, dates, when registration will open up, and where we might go to register(website)? We really would like to attend but need details now so we can save up for the trip.

My 30 year daughter has had a positive acid stain test. The culture is now growing to determine the species. She's had asthma since she was 2 years old. She's a newly graduated pharmacist and is so scared. I really don't know what to expect next ..?

I am considering getting the Afflovest. Anyone using it and does it make any difference? It is not cheap. So far for me the most effective way to clear the mucus is the saline solution 7% and biking on a bike trainer indoors for 30/40 minutes.

Is itpossible to get Disability assistance through the government due toNTM and /or Bronchiectasis? Hasanyone gone through this process?

Hi, all-- Has anyone else experienced delayed side effects from Daliresp? After 4 months on Daliresp I experienced a new and most egregious side effect, and my doctor took me off the med. I had some side effects at the beginning, but they either subsided …

Patients as Partners: Using the "My COPD Action Plan” for Effective COPD Management A webinar for health care professionals and those who have been diagnosed with COPD Free of charge Tuesday, November 7, 2017 4:00pm – 5:00pm EST The “My …