My 16 month old daughter was recently diagnosed with bronchiectasis, and I am kind of at a loss as to what this disease looks like? And if anyone else has a child, or was themselves, diagnosed at such a young age. Thank you in advance for any and all …

What kind of Bronchiectasis/NTM educational efforts/programs would be useful to you?

It is with utmost sadness that we must share with you that COPD Foundation Founder, John W. Walsh, passed away surrounded by his loving family. We owe John a tremendous debt for his enduring commitment to curing COPD and bettering the lives of those …

Some people find in-person support groups very helpful. Does anyone have information on starting a support group?

I've heard doctors say that some patients need surgery to remove part of a lung even though the patient is already on treatment. Why is that?

I have bed toppers that look like flower pots that u put under the wheels of your bed. They look like upside down flower pots. It will bring the bed up about 6 inches. Bed looks funny at first but you get used to it.

my drs have differing options on how long to take the big 3 - i so want to stop the meds but am not sure who is giving me the best advice.....so i was wondering about everyone else and how long you took the meds before you were able to stop - norma

My doctor at National Jewish prescribed a daily routine of inhaling a 7% saline solution using an aerobika flutter device and a nebulizer in order to clear my lungs of mucus. I was wondering if anyone else was doing this and how it was affecting them.

How does someone know they are experiencing an exacerbation?

If anyone has any tips or recommendations, I would love to hear them !

Is there something I can do to prevent infections and at the same time help me breathe better

Good morning to all - I am very interested in learning about where people are living at time of diagnosis of MYCOBACTERIA infection and what type of NTM - This ? stems from trying to decide a possible better location to live - I myself live in Sebastian, …

I have a rare eye disease and found that I needed to be with a doctor who specialized in the disease and did lots of transplants a week. The website I was on provided a list of doctors and also the experience people had with them. Is the same true if one …

I may have been misdiagnosed by the scan doctor and two pulmonologists. I need to know if this is possible.

Does anyone have difficulty with sleep, both getting to sleep andstaying asleep through the night, because of your Bronchiectasis and/or NTM? Ifso, do you have any tips to getting a better nights rest?

I've read that some probiotics are better than others for dealing with side effects from antibiotics. What have your doctors recommended? Have you noticed much improvement in side effects when you take a probiotic? Tomorrow's the day I see my doc to …

I am looking into various types of Air Purifiers. Do you have a favorite? There are so many choices...I would love to hear your experiences, good and bad!

I am curious if any one affected by Bronchiectasis has lost their sense of smell or ability to taste? If so, was it temporary? ...

I'm just getting over a cold that had me home for a few days. (I think) I'm really observant about washing my hands, etc. but I seem to get a couple colds a year. What steps do you take to prevent colds and other resp infections?

Yesterday was Falls Prevention Awareness Day -- how do you prevent falls in your own life? You may be interested in this post on COPD and falls posted this week: https://www.copdfoundation.org/Praxis/Community/Bl...

I was wondering what germs many of you have, if you happen to know? I was reviewing my medical records in preparation for a visit to my pulmonologist next Tuesday and was reminded that the last time I was sputum tested, I had these three germs. I think …

This is my daily routine. What is yours? Upon waking.......... Coughing and expelling mucous/phlegm for 40 minutes (average) in order to clear my airway passages. On bad days I can go for 60 minutes and my wife will help me by doing persuasion treatments …

There has been some chatter about energy level and exercise, as well as breathlessness either while exercising or it holding you back from doing so at all. Does anyone have tips about finding your edge and managing your breathlessness?

Recently had to stop iv amikacin due to hearing loss. Still on rifampin and azythromycin. Waiting for bedaquilline which was approved by pharmaceutical co., Sirturo. Any side effects, efficacy of drug?

As a novice to these diseases, I am curious about the connection, if any, between Bronchiectasis and NTM. Does anyone have information on this?