As most of you know our now almost 19 month old has non-cf cystic Bronchiectasis. We have been trying to allow her to experience as many "Normal" activities as possible. One of these being swimming. See, we live in Texas and basically to survive a summer down here means being in the water. Sailor absolutely loves the water, which I love but also scares the crap out of me because she has zero fear of it. If she sees water she will take off full speed and try and jump in. We have tried floats(She is like the hulk and can pull herself out), floaties(She just puts her face directly into the water and tries to drink it). Our problem is her severe dysphagia and chronic aspiration.
So in light of her love of the water and pur concerns for her health, we contacted one of those baby water survival companies. These companies teach infants ranging in age from 6 months to 4 years of age, how to survive if they fall into water fully clothed. I was really hoping they could help her. I received a very blunt message back saying," Your daughter needs to stay away from water and as a parent I should know that. And they could not and would not help her"! I was so hurt and angry by their response that I broke down in tears. Has anyone else had to deal with something like this?