0 Votes
1 Answers
Pulmonary rehab

Have you been in a pulmonary rehab program? If so, what were the greatest benefits for you? https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx

Author: Ksmiles123
0 Votes
1 Answers
Zinc

Do you understand the benefits of zinc https://www.healthline.com/nutrition/zinc#sources

Author: Ksmiles123
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Registered Dietician , nutritionist

https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian

Author: Ksmiles123
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Registered dietician vs. nutritionist

Do you understand the difference between a nutritionist and a registered dietician? https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian

Author: Ksmiles123
0 Votes
5 Answers
Vitamin D

How much vitamin D are you taking on a regular basis? Most of us have a low level to begin with. A level lower than 20 is considered to be deficient. 50,000 units of D2 is recommended once a week for 8-12 weeks, then levels are rechecked. Maintenance …

Author: Ksmiles123
0 Votes
6 Answers
Travel tips with a chronic condition?

Tis the season of travel. Do you have any tips that have made traveling easier while dealing with a chronic lung condition? Please share!

Author: Gretchen
0 Votes
6 Answers
Ideas about foul odor?

The cough has had a foul odor for a while now. The doctors say that is normal and what I have dead says it is. Does anyone have any ideas about dealing with it day to day? I don't smell it, but those around me do.

Author: Jwarner
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0 Votes
2 Answers
Are you currently taking Zithromax?

Zithromax is in the drug class of macrolides. Patients should have an EKG and regular hearing checks while taking Zithromax https://www.webmd.com/drugs/2/drug-1322-3223/zithromax-oral/azithromycin-250-500-mg-oral/details

Author: Ksmiles123
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Rifampin

Hello! Are you currently taking Rifampin? This drug discolors secretions, such as your sweat, tears and urine to an orange, red or brown color. I realize that most meds suggest that you avoid alcohol, but this one really means it. Labs must be checked …

Author: Ksmiles123
0 Votes
1 Answers
Has the BIG 3 for MAC not worked?

Has THE BIG THREE for MAC been a problem? I was on the big 3 for Bronch and MAC and it made me sicker than the disease itself. But my pulmonologist just told me about a trial for patients with MAC who are not responding to standard treatment.They are …

Author: RitaPearl
0 Votes
1 Answers
Is a salty taste normal?

I just joined this forum. I am 67 years old, and was diagonosed with bronchiectasis about 5 months ago. I use a nebulizer twice daily, 7% Hypersal and it seems I taste salt in my mouth and on my lips throughout the day and was wondering if anyone else …

Author: Maxie
0 Votes
1 Answers
Nebulizers

Are you currently using a nebulizer? Below is an excellent re on nebulizer usage: https://www.copdfoundation.org/Learn-More/I-am-a-Healthcare-Provider/The-101-Library/Nebulization-101.aspx

Author: Ksmiles123
0 Votes
2 Answers
Inhaler usage

Are you presently using an inhaler? The excellent article below includes links to videos which demonstrate proper usage : https://www.copdfoundation.org/Praxis/Community/Blog/Article/1845/Don-t-Forget-to-Check-the-Technique.aspx

Author: Ksmiles123
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Are you getting adequate Vitamin D on a daily basis?

Many of us have lower Vitamin D levels. The goal, if possible is to be around 60. Below is a list of foods, higher in vitamin D. https://www.healthline.com/nutrition/9-foods-high-in-vitamin-d

Author: Ksmiles123
0 Votes
2 Answers
Dysbiosis

Do you understand the term dysbiosis? It refers to the imbalance of good and bad bacteria in our system. The article below explains it in detail: https://www.news-medical.net/health/Dysbiosis-and-the-Microbiome.aspx

Author: Ksmiles123
0 Votes
2 Answers
Are you taking prebiotics?

Hello! Are you taking prebiotics? There are plenty of foods that will provide you with the prebiotic fibers your body needs. The article below mentions some of these foods. An apple is one of the foods on the list. As the old cliche goes “ An apple a day …

Author: Ksmiles123
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Prebiotic

Hello! Are you taking prebiotics? There are plenty of foods that will provide you with the prebiotic fibers your body needs. The article below mentions some of these foods. A apple is one of the foods on the list. As the old cliche goes “ A apple a day …

Author: Ksmiles123
0 Votes
4 Answers
Fiber

Do you understand the difference between soluable and non soluable fiber and how they effect your gastrointestinal system? https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/fiber/art-20043983

Author: Ksmiles123
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Amikacin

Are you currently using inhaled Amikacin? How often are you seeing an audiologist? Below is some basic information about Amikacin from Drugs.com https://www.drugs.com/mtm/amikacin.html

Author: Ksmiles123
0 Votes
5 Answers
Picc line

Just that PICC lines should be flushed out after every use. Sterilizing with alcohol might not be enough. When I was at a rehab center a nurse used that shortcut, alcohol instead of flushing the line, and it became clogged. Treatment was delayed two days …

Author: Ksmiles123
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Mycobacterium Abcesscus

Are you interested in reading an article on Mycobacterium Abcessus, written by Dr. David Griffith? https://pubmed.ncbi.nlm.nih.gov/34314673/

Author: Ksmiles123
0 Votes
2 Answers
Sleep

Hello! Are you sleeping well throughout these winter months? Sleep is of upmost importance for our immune systems/ healing. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/150/Sleep-and-Healing-for …

Author: Ksmiles123
0 Votes
1 Answers
Support Group Request

Would it be possible to meet as a support group more often? Perhaps once a week? Many of us don’t know anyone else with this health issue. It would be so nice to get to know others better!

Author: Bobbie77
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Nebulizers

Hello! Do you have any specific questions about nebulizers and or the type of medications you use in a nebulizer? The link below, Nebulizers 101 will provide you with some helpful information. Please let us know if you have any questions? https://www …

Author: Ksmiles123
0 Votes
2 Answers
PFTs

A function I used to perform at a bronchiectasis support site was to run a contest every year called Top Lung . Members would submit their PFT results allowing them to compete. The member with the highest FEV1 would receive the coveted Silver Spittoon …

Author: Ksmiles123
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