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7
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Bronchiectasis and NTM Information Podcast
Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …
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Are flu rates high in your area?
Is the flu widely spreading in your area? https://symptoms.webmd.com/cold-flu-map/default.htm?ecd=wnl_spr_121922&ctr=wnl-spr-121922_lead_title&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3D
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2
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Do you want to reduce exposure to NTM?
Do you want to learn more about reducing exposure to NTM? The video below offers some great recommendations: https://m.youtube.com/watch?v=bRyoYXthxH4
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1
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Do you understand pulmonary function test and its interpretation?
https://bronchiectasis.com.au/bronchiectasis/diagnosis-2/lung-function
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5
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Are you equipped to deal with the flu?
My chimney's immune system is weak due to smoking, and now it has the flue.
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9
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First message from a patient's husband in Australia
Hello from Australia. My wife has been to see her doctor, who has recommended a course of three antibiotics to treat her NTM. The doc says that the treatment might have to be for 6 months to a year or perhaps longer. She has been informed about possible …
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15
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How cautious must you be with water?
This whole disease is sooo frustrating. Different doctors recommend different things so it is hard to know what to do. I beat MAC after 10 years! I try to be careful but evidently not careful enough, because now I have M. massiliense. Same type of …
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3
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I just started inhaled colistin, using a nebulizer. Anyone else doing this?
Inhale colistin using a nebulizer
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4
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support groups
Can someone tell me about the local support groups that I have seen on this site.
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7
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Rasamsonia Argillacea
I am new to this site. Does anyone have information on the mold Rasamsonia Argillacea? I have just had that mold show up on a sputum sample and haven't been able to find much information on it. I understand that it's a really difficult, year long …
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3
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Airway clearance & sputum
I do airway clearance every day using 3% (just started using 7%) hypertonic salineā¦.once in the morning and once late afternoon. I also use the Aerobika after I nebulize the saline. I also take the Big 3 antibiotics 3 days a week even though my last …
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3
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If my bronchiectasis is under control, why do I need a Bronchoscopy?
I am 74. What would a bronschoscopy gain for me?
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4
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CPAP and humidification
Hi All. This question was placed in the activity feed by a community member, and I didn't want it to get missed. :) What affect does the moisture settings on CPAP device have on bronchiectasis? Does anyone use a certain type of water to fill their CPAP …
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1
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How can a Bronchoscopy help me?
The reason I had one a few years ago as kept getting sick so they decided to do one see what bugs where in my lungs. Came up as normal flora. They only grew the sample in the lab 3 days I wonder if that was long enough.
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7
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ARICAYCE side effects
I have only been on this drug for 7 days but have noticed after each treatment my oxygen goes down and my heart rate goes up. My physician said at this time he is not concerned. Has anyone else had these side effects this early in treatment?
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24
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Share Your Story - Hope for the future
What do you feel would be the greatest contribution to those diagnosed with bronchiectasis and/or NTM lung disease?
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3
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Best time to nebulize sodium chloride?
When is the best time to nebulize with sodium chloride? I have been using 3% saline twice a day....usually before meals. I plan on going out to dinner over the long holiday weekend and I am not sure if I should nebulize before or after dinner. Does …
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2
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What to do about coughing up blood?
I have been taking Arikcase for 4 months. Today I am coughing up small amounts of blood. should I suspend my use of Arikcase?
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4
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When to stop taking the Big 3
I saw my Infectious Disease doctor yesterday following up on my most recent sputum culture done in early April and it was negative for Mycobacterium. I have been on the Big 3 for over a year. When I asked if I could stop taking the antibiotics, he said …
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2
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Substitute for Performs
I received a letter from Humana Friday that Medicare has denied coverage for Performist even though I have been taking it for over a year. My doctor's nurse said that they refused to cover a generic that is now available. Does anyone have a suggestion on …
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2
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Hyperbaric Oxygen Therapy
I am having the above medical procedure so I can have a tooth removed and an inplant inserted. The oral surgeon said with the tooth being in the lower jaw the therapy is required. I am concerned about any adverse side effects.
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5
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Where to live - info needed from Dr after Diagnosis
Hi - found this site today and hope i can find a few answers - I have been on a quest to find the best place to live in the USA that is less likely to cause illness to people with bronchiectasis / NTM - also I would like to let the medical community …
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4
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Inhaler
I use a ProAir inhaler and Advair. My question is, how do you clean the actuator when it is plugged? Do you use clorox or vinegar to get it to work? Mine seems to be plugged and I have used hot water to get it unplugged. Also do you find yourself very …
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0
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Low Dose Naltrexone (LDN) and MAI
Hi, I'm new to the Community. I have a family member diagnosed with MAI, who is taking multiple antibiotics. I'd like to know if anyone here take Low Dose Naltrexone (LDN) as an adjunct therapy and what your experience has been. I take LDN myself for an …
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4
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Eliquis
I was recently diagnosed with a fib and was placed on Eliquis. Today I noticed that the mucis I cough up is bloody, I am wondering if this is a temporary problem that I have to work through or do I need to see if I need to change my medications.
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