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Hi. I have an appointment with NJH. I will be there from 11/01 until 11/11. I have been told that there are areas of Denver that you do not want to stay in. Has anyone been there recently? Were you happy with where you stayed? Also, are there any tips or …

I have bronchiectasis. What is the consensus on getting the new Covid vaccine that came out in September. I read several articles that found the vaccine gave lung problems to some individuals. Thank you. Tahoe

I’m waiting for the April social notes but am really struggling with the sanitizing piece of this twice daily ritual. Right now I’m boiling at home 5-10 minutes. Air dry. Does anyone use cold sanitizing procedures? Alcohol, hydrogen peroxide or perhaps …

Have you ever taken a chair yoga class? Would you like to share your experience?

Can a diagnosis of bronchiectasis and NTM be made based on a chest x-ray alone? - Thanks!

Hello! The article below reviews the basic diagnostic tests done by health care providers to get an accurate diagnosis https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Diagnostic-Testing-and-Evaluation

Below is a link on information about this breathing practice: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Breathing-Techniques

Hello,I have the mildest form of Bronchiectasis. I have reached a point where my Specialist and my GP tell me I should be breathing normally now. I am still often breathless when doing housework or when I go for a walk, I still cough occasionally and …

Hi all, I had a bilobectomy 5/3/23 after a bronchiectasis & MAC diagnosis December 2022. My pulmonologist said my future might be better since the bronchiectasis was very localized. I am 4 months postop & mildly symptomatic: cough, clear to white sputum …

My life with bronchiectasis. I am 30 years old and was diagnosed with bronchiectasis at the age of 12 after having a CT scan and bronchoscopy. Before that time, the doctors thought it was asthma but became suspicious when I did not show any significant …

Hello, I am looking for different treatment options for my mother who has Bronchietasis. I was wondering if anyone has tried cannabis (cbd oil, edibles, etc.) for their Bronchietasis? Obviously I feel like smoking cannabis would be counter productive but …

Below is a you tube instructional video to walk you through the steps of emailing another BNTM member:

Good Morning. I am looking for any personal information members are willing to share. My mother just started using Arikayce and has been coughing like crazy and has extreme fatigue. If anyone is using this med, has a family member using it or is a …

I have read several comments where the writer mentions the Big 3. What are they? My doctor only prescribes Levofloxacin and a steriod when I have an infection.

I'm on my third attempt at taking the big 3 medications. I have decided that I will no longer take them. The side effects are just too much for my body. Since March, I have been sick more days than not (from the medications). Has anyone found themselves …

I have noticed that weather seems to affect how I feel. Does anyone have any tips on how to manage the coming winter?

Are you staying well hydrated? The link below discusses the importance of staying well hydrated.: https://diet.mayoclinic.org/us/blog/2022/how-to-stay-hydrated-over-the-summer/

Hi all. I had some community members reach out to me and let me know that they were unable to view the WBD event. We have now posted the event to our website (under WBD education) and to YouTube. Feel free to watch by clicking on the link below and let …

Are you checking out the air quality in your area throughout the summer months? https://www.airnow.gov

Are you traveling internationally in the near future? The link below discusses travel medical insurance : https://www.nerdwallet.com/article/travel/travel-medical-insurance-emergency-coverage-travel-internationally#travel-insurance-vs-travel-medical …

Have you ever had surgery on your lungs? If so, what tips can you share to help others with preparation and recovery?

Q. Have you had a lung wedge resection? A: Yes Q. Where did you have the surgery done? A: Saints Mary & Elizabeth Hospital in Louisville, Kentucky. Part of the middle right lobe was removed in April 1975. I think a sponge was left in there …

Have you ever experienced a hypersensitivity or allergic reaction to a supplement. The blog article below discusses possible reactions from some supplements: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1853/Are-your …

Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and …