Non-tuberculosis Mycobacteria (NTM) symptoms include persistent cough with mucus, shortness of breath, tiredness, unexplained weight loss, night sweats, and coughing up blood. NTM lung disease is difficult to diagnose. Many people have it but do not know …

I’m looking for help with inclined sleeping which I find uncomfortable for my neck and back. I sleep on my left side mostly & sometimes on my back. I’m looking at the MedCline product which is pricey but looks ergonomically good. I have a standard wedge …

The link below from the CDC, reviews the different types of flu vaccinations: https://www.cdc.gov/flu/prevent/keyfacts.htm#Flu-Vaccine-Options

The information below , from the CDC reviews the importance of getting the flu vaccination and other relevant information: https://www.cdc.gov/flu/pdf/freeresources/general/strong-defense-against-flu.pdf

Help uncover the challenges of Non-Cystic Fibrosis Bronchiectasis (NCFBE). The BURDEN initiative by Insmed Incorporated is seeking adults with NCFBE and caregivers for interviews. Your participation in the BURDEN initiative interviews is crucial for …

The link below provides an infographic on Shingles and the Shingles vaccination: ShinglesFlyer 2.pdf

The link below reviews the chances/ risks of people who are at higher risk of having a negative reaction to the vaccinations: https://www.cdc.gov/vaccines/hcp/acip-recs/general-recs/contraindications.html ACIP Contraindications Guidelines for …

Hi, Has anyone with bronchiectasis had exascerbations or lung symptoms from coloring your hair? Thank you

Long-acting Anticholinergics: these meds work by reducing the bronchoconstriction in your lungs, helping you to breathe easier and feel less short of breath. Long acting anticholinergics do not work quickly. These medications may help prevent …

Inhaled Corticosteroids: These medications reduce the inflammation in your lungs via an inhaler or nebulizer . These meds do not work instantly and can take a few weeks of continuous use before you experience results. A few common inhaled corticosteroids …

The link below provides information on exacerbations and the red flags associated with exacerbations: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Hi, has anyone else on here had silicone implant ruptures causing lung damage? If so how and what has helped ? TIA

Short-acting Anticholinergics: These meds work by reducing the bronchoconstriction in your lungs, helping you to breathe easier and feel less short of breath. They work quickly to help relieve your resymptoms. They last for 4-6 hours and are usually …

Long-acting Bronchodilators: these medications are inhaled into the lungs through inhalers and nebulizers and relax the muscles in your lungs. Long-acting bronchodilators do not work quickly. They are often used once or twice a day every day to help …

Short-acting Bronchodilators: These meds work quickly to relax the muscles around your bronchial tubes, helping to relieve shortness of breath. These meds are inhaled into the lungs from an inhaler or nebulizer. You often begin to feel relief within a …

Systemic Corticosteroids: These medications reduce inflammation in your lungs. They are often used for a few days during an exacerbation. Your health care provider will determine the dosage and duration of your systemic corticosteroid treatment . Be sure …

Inhalers, or “puffers,” deliver reliable and consistent doses of inhaled medicines.There are three types of inhalers: metered-dose, dry powder, and soft mist. A metered-dose inhaler (MDI) is a small, pressurized canister that fits inside a plastic, boot …

Below is the link to the medication management wallet card. This may be helpful for you keep in your wallet in case you need it and to show the staff when you visit different specialists. You will not have to write the same lists over and over again. …

The link below reviews the different types of inhalers and the basics on nebulizers. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Inhaled-Medicines

Below is the link to the wallet card. This may be helpful for you keep in your w to show when you visit different specialists: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/WalletalletCard_Bronch_NTM_Web.pdf

The article below describes the difference in the two numbers: https://www.foxweather.com/learn/dew-point-best-way-classify-how-much-humidity-in-air

I was wondering, with environmental exposure to NTMs, aspergillus, etc., has anyone heard anything from doctors or other experts on whether hiking or camping are ok to do? Trying to get an idea if these activities are ok or not, if they should be avoided …

This Independence Day, I want to honor our amazing team of IMPACT 2024 lung health advocates that I worked with in Washington, D.C., where we asked our lawmakers to take action to support lung health! On March 5, individuals with chronic lung disease, …

I started NTM treatment with the "big 3" but had to stop the Ethambutol in the first month because my hands and feet started getting numb. I understand the damage is often temporary, but after 30+ days off the Ethambutol, they haven't gotten better. It's …

My pulmonologist asked me which one I wanted, like I have a clue. Doing research & could use some feedback from anyone willing to chime in. I’m 64”106# & would like to be mobile with it.