0 Votes
0 This question has no answers.
Do you understand the difference between humidity numbers and dew point numbers?

The article below describes the difference in the two numbers: https://www.foxweather.com/learn/dew-point-best-way-classify-how-much-humidity-in-air

Author: Ksmiles123
0 Votes
3 Answers
Does anyone know if hiking or camping are activities that are ok to do?

I was wondering, with environmental exposure to NTMs, aspergillus, etc., has anyone heard anything from doctors or other experts on whether hiking or camping are ok to do? Trying to get an idea if these activities are ok or not, if they should be avoided …

Author: BrenB
0 Votes
1 Answers
Advocacy in America: Reflecting on IMPACT 2024

This Independence Day, I want to honor our amazing team of IMPACT 2024 lung health advocates that I worked with in Washington, D.C., where we asked our lawmakers to take action to support lung health! On March 5, individuals with chronic lung disease, …

0 Votes
7 Answers
Has anyone had nerve damage from Ethambutol?

I started NTM treatment with the "big 3" but had to stop the Ethambutol in the first month because my hands and feet started getting numb. I understand the damage is often temporary, but after 30+ days off the Ethambutol, they haven't gotten better. It's …

Author: Merry
0 Votes
2 Answers
Anyone have input on afflovest vs Hill Rom?

My pulmonologist asked me which one I wanted, like I have a clue. Doing research & could use some feedback from anyone willing to chime in. I’m 64”106# & would like to be mobile with it.

Author: Chrism
0 Votes
0 This question has no answers.
Is the humidity / dew point increasing in your area?

The blog article blow reviews how weather changes, especially increasing humidity and dew point can impact respiratory patients: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/54/Why-Weather-can …

Author: Ksmiles123
0 Votes
0 This question has no answers.
Want to go to Scotland for the World Bronchiectasis Conference??

Do you know there is a World Bronchiectasis Conference? This year the conference takes place in Dundee, Scotland! Association and Patient Village have made it possible for you to attend for FREE. Visit https://bronchiectasis-patient.org/ to get all the …

0 Votes
7 Answers
Does anyone have a top (or top 3) recommendation(s) for getting a second opinion or consult?

I was diagnosed 11/22 with NTM. In 2019, my PCP missed a bronchiectasis diagnosis from a coronary calcium CT scan. I went 3-1/2 years untreated & without airway clearance practices, no sputum til 2022. I had a bilobectomy in 5/23 and in 9/23 started …

Author: Chrism
0 Votes
0 This question has no answers.
How are you dealing with the heat wave?

The link below provides information on dealing with heat waves. Please read the paragraph about nighttime temperatures. https://weather.com/safety/heat/news/2024-06-18-heat-wave-what-to-know-safety

Author: Ksmiles123
0 Votes
2 Answers
​Check-In: World Bronchiectasis Day is July 1st!

World Bronchiectasis Day is celebrated on July 1 st every year to raise awareness about this lung condition. This year, the focus is on research and how it impacts the bronchiectasis community. Take a look at the details below and join us on July 1 st to …

0 Votes
0 This question has no answers.
Are you planning on traveling 🧳 this summer?

The link below offers some great suggestions on making traveling more pleasant: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you know the red flags 🚩 of an exacerbation?

Below is information on the red flags, preventative measures and treatment options: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you keeping up with your airway clearance?

The link below provides the basics on airway clearance: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/Quick_guide_to_airway_clearance_Web.pdf Please let us know if you have any questions.

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you concerned about sitting in the sun while taking medications?

Most of us enjoy being outdoors, sitting in the sunshine throughout the summer months. However, we must be cautious while taking certain medications. Tge article below reviews the categories of medications that are most “ sun sensitive “,: https://www …

Author: Ksmiles123
0 Votes
3 Answers
2024 NTM & Bronchiectasis Patient Conference

Hi! Not sure how to post this, so hopefully it works. I did not know if anyone was aware that there is a conference in San Diego this week - the 2024 NTM & Bronchiectasis Patient Conference. It is May 16-17, & they are still accepting registration for …

Author: BrenB
0 Votes
0 This question has no answers.
Do you have exercise goals for the spring?

The blog article below reviews the benefits of exercise: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/51/NTM-Lung-Disease-Exercise

Author: Ksmiles123
0 Votes
2 Answers
Can Steroid make MAC active?

I was on 6 rounds of Steroids, including IV, for a severe mold allergy. Then diagnosed with MAC after.

Author: RLM
0 Votes
2 Answers
Do you know how to treat allergies?

Beliw is an article on the treatment of allergies: https://www.everydayhealth.com/allergies/treatment/

Author: Ksmiles123
0 Votes
22 Answers
Has anyone ever been cured from Mycobacterium abscessus and chelanae?

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Author: Serrieann1
0 Votes
6 Answers
Tinnitus

Hello. I am new to this site, but wanted to see if anyone can offer any input about tinnitus. I started azithromycin 500 mg three times per week and after one month, developed tinnitus and have stopped it. Does anyone have any experience with this and …

Author: Carmel
0 Votes
4 Answers
Drug Tolerance

How have people tolerated Clofazimine (Lamprene) and/or Amikacin?

Author: Woods
0 Votes
3 Answers
Aspergillis

Have you heard if the term “ aspergillosis” before? It is a mold that can affect the respiratory system https://www.mayoclinic.org/diseases-conditions/aspergillosis/symptoms-causes/syc-20369619

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you know the early signs of an exacerbation?

The link below reviews the red flags of a possible exacerbation: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Author: Ksmiles123
0 Votes
0 This question has no answers.
Are you planning on traveling soon?

The link below offers some suggestions for BNTM individuals who will be traveling over the upcoming months: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

Author: Ksmiles123
0 Votes
0 This question has no answers.
Do you practice meditation?

Practicing meditation improves the quality of life for many individuals. The article below from the Mayo Clinic explains the benefits of practicing meditation: https://www.mayoclinic.org/tests-procedures/meditation/in-depth/meditation/art-20045858

Author: Ksmiles123
Votes
0 This question has no answers. Answers

Author:
Tags:
No questions or answers were found
    No questions or answers were found
    More Questions
    Tags
    No tags found