Good Morning. I am looking for any personal information members are willing to share. My mother just started using Arikayce and has been coughing like crazy and has extreme fatigue. If anyone is using this med, has a family member using it or is a …

I have read several comments where the writer mentions the Big 3. What are they? My doctor only prescribes Levofloxacin and a steriod when I have an infection.

I'm on my third attempt at taking the big 3 medications. I have decided that I will no longer take them. The side effects are just too much for my body. Since March, I have been sick more days than not (from the medications). Has anyone found themselves …

I have noticed that weather seems to affect how I feel. Does anyone have any tips on how to manage the coming winter?

Are you staying well hydrated? The link below discusses the importance of staying well hydrated.: https://diet.mayoclinic.org/us/blog/2022/how-to-stay-hydrated-over-the-summer/

Hi all. I had some community members reach out to me and let me know that they were unable to view the WBD event. We have now posted the event to our website (under WBD education) and to YouTube. Feel free to watch by clicking on the link below and let …

Are you checking out the air quality in your area throughout the summer months? https://www.airnow.gov

Are you traveling internationally in the near future? The link below discusses travel medical insurance : https://www.nerdwallet.com/article/travel/travel-medical-insurance-emergency-coverage-travel-internationally#travel-insurance-vs-travel-medical …

Have you ever had surgery on your lungs? If so, what tips can you share to help others with preparation and recovery?

Q. Have you had a lung wedge resection? A: Yes Q. Where did you have the surgery done? A: Saints Mary & Elizabeth Hospital in Louisville, Kentucky. Part of the middle right lobe was removed in April 1975. I think a sponge was left in there …

Have you ever experienced a hypersensitivity or allergic reaction to a supplement. The blog article below discusses possible reactions from some supplements: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1853/Are-your …

Insmed is kicking off their branded Patient Ambassador Program and is looking for potential patients who are currently prescribed this medication and interested in sharing their story with others to help increase awareness of MAC lung disease and …

Hi again! Does anyone have information or links to share on joining singing for lung health groups? Thank yo

Are you able to get some exercise on a regular basis? The article below offers some good tips on an exercise plan: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Exercise

When collaging a masterpiece what type of lung medium or glue do you recommend ? Elmers says non toxic and all the books on collage say to use acrylic gel medium. Any advise?

Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...

Are you taking dietary supplements? The article below reviews the basics on supplements. https://www.fda.gov/consumers/consumer-updates/fda-101-dietary-supplements

Do you know how to differentiate between allergies, Covid and other respiratory issues? The link below provides some helpful information on the subject: https://www.cnet.com/health/medical/how-to-know-if-its-allergies-covid-or-something-else/

Hi. I can't seem to find much information on M-Xenopi. Can anyone direct me toward a good resource for it? Thanks.

A few weeks ago I slightly injured my upper ribs. No big deal (except coughing, sneezing, ouch!) and I knew it was going to go away. My doctor ordered x-rays as a precaution and although my ribs were fine, the radiologist noted the presence of …

Hi, I got diagnosed with bronchiectasis in December after having problems with my breathing / coughing for years. I take 1 inhaler a day with a pill at night and complete airway clearances once a day. I’m 26 and do regular exercise biking 30 mins a day …

I orginally had MAC in 2008, was treated with azithromycin, refampin, and ethambutol. Cleared in 2010 by the ID doc to stop meds. Ten years later, I'm back with another MAC. He put me on Azithromycin and Ethambutol for life. Said I was too prone to …

Just learned that I have tested positive for MAC again. I went through antibiotic treatment for 11 months in 2018. I have felt good until I had COVID in July of 2022. During COVID I developed a cough. Now MAC . My question for anyone who was treated for …

The link below offers suggestions for better cleaning recipes which are less irritating to our respiratory system https://www.lung.org/getmedia/3030b2d9-02f0-4be4-ab86-d6bd86f88b88/ALA-Safe-cleaning-products-MHE-program-August-2022.pdf

Have you had a sleep apnea test at home or in a hospital setting recently?