Does anyone have recommendations for a reliable, over-the-counter Pulse Oximeter? I was diagnosed with mild bronchiectasis last year. As everyone can relate, this diagnosis has made the pandemic especially difficult. I've been extremely careful about any …

I am at a more advanced stage of bronchiectasis, so I am always looking for ways to reduce inflammation/mucous. I am currently using a Healthy Wave PEMF mat (electromagnetic pulse treatment), which has been helpful in reducing mucous. I also just came …

Am undergoing IV Cefepime treatment with prednisone for pseudomonas pneumonia along with Amikacin nebulizer treatments (28 days on/ 28 days off). Having episodes of dyspnea from walking/talking making it almost impossible to my wear face mask. My nurse …

My pulmo told me before I show antibodies for aspergillus some years ago but that he wouldn't treat it as we pick it up in the air. I guess its easy to do. Noticing on my ct scan of the end of April that is shows aspergillus on that too. So when I had …

Is anyone using Cayston to treat pseudomonas? Is made by Gilead,

Hi all! I'm new to the 3 antibiotic regimen; having just begun the three-day-a-week protocol. Does anyone have any advice for me regarding the scheduling of the meds in combination with the prescribed probiotics and now the addition of carafate for …

I came across a Washington Post article in early October about finding the best (safest) face masks and followed up, checking various resources in the article. One stood out particularly -- his name is Aaron Collins and he is a mechanical engineer who …

'this is so weird I talked to my lincare supplier Rt today about trouble with my vent we talked about several things one of the afflovest maybe I can get approved for and he brought up this suction machine I cant remember the name of it. He as calling my …

I found this on my state's COVID information hub. It's meant for unvaccinated, uninfected individuals living in the 50 states to assess their risk given their medical/health conditions. If you know anyone with bronchiectasis (it's one of the conditions …

Maintaining a positive attitude when you have bronchiectasis and NTM can be challenging. What types of activities bring you joy or improve your mood?

My Bronchiectasis has improved and my lung specialist has told me my lungs are good but I don't understand why I still get breathless when walking up an incline, or doing chores. (he doesn't have an answer) I accept that I am very mild so why does this …

What airway clearance methods, techniques, or devices work best for clearing mucus from your airways?

I read an article that this was a FDA breakthrough therapy. My doctor is unfamiliar with its effectiveness. Have anyone use the drug and been able to discern its effectivenss

i am multi drug resistant with bronchiastasis. My doc wants to add clofazamine but i declined, choosing mainenance therapy and quality of life. Want to know if others have been faced with this decision.

I have altbuterol sulfate for my nebulizer. The problem is when I use it consistently I begin to have bad side effects. I get very shaky, can't stay asleep, headaches and generally fatigue. What has been found helpful for others. I do take a daily …

Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...

Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how to cope with your condition? Did your physician provide you education on bronchiectasis or did you do much …

What is the best piece of advice that a health care provider has given you? Do you know anyone else who lives with the same condition? Where do you find support?

We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …

Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …

I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …

I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …

Has anyone seen this article that states that United Healthcare is refusing certain non-emergency claims in the ER. If you have bronchiectasis, this is very concerning because, as you know, you can become seriously ill very fast with bronchitis, needing …

I sat around a campfire last night for about three hours. It's the first time I've been around a campfire since I was diagnosed with bronchiectasis. I coughed a good bit during the evening, but I thought I would be fine. I came home, used my nebulizer …

Hello, my mom (71yrs) had a kidney transplant 7 years ago. She has recently been diagnosed with NTM and MAC. She has been doing breathing treatments for the last 3 months but the MAC is spreading and they want to start her on medications. Since she is on …