MAC Patient Advisor for Study Advisory Panel

Posted on January 17, 2019   |   
Author: Gretchen   |   
1 Comments   |   
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We are looking for 1 additional (male) pulmonary MAC patient advisor for Kevin Winthrop’s PCORI-funded MAC2v3 pragmatic trial!

This is a remote advisor position, no travel for in-person meetings. Note that while this is a 5-year project, a full 5-year commitment to participate is not required. We have 4 patient advisors already identified, and are looking for 1 more to round out the panel.

This study is titled Comparison of two- versus three-antibiotic therapy for pulmonary Mycobacterium avium complex disease (“MAC2v3”). We will prospectively follow patients newly diagnosed with NTM who are randomized to either a 2-drug or 3-drug treatment regimen. Our objective is to determine whether or not a 2-drug treatment regimen is better tolerated and as effective (based on culture analysis) as a 3-drug regimen.

What would your participation as a Patient Advisory Panel (PAP) member involve?

  • An average time commitment of 12 hours per year
  • Participation includes document review with feedback deadlines, email correspondence, and conference calls (avg 60 min each)
  • $30 per hour compensation, to be paid annually
  • No travel

Schedule:

  • Year 1: Study Protocol review, recruitment plan feedback, participate in study-related webinars
  • Years 2-4: Review ongoing study progress, participate in study-related webinars
  • Year 5: Review and feedback on final results messaging

Please email Emily Henkle, PhD, MPH, Project Director if interested at henkle@ohsu.edu. She is happy to talk more about past projects that have included patient advisors, as well as this particular project, before you commit to this role.

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