Patient-centered Bronchiectasis Research Roadmap

Posted on January 04, 2017   |   
Author: Delia   |   
1 Comments   |   
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As discussed in previous blog posts, Oregon Health & Science University (OHSU) was awarded a Patient-Centered Outcomes Research Institute (PCORI) award to create a patient-centered roadmap for bronchiectasis research. In collaboration with a patient advisory panel, NTM Info & Research and the COPD Foundation, OHSU sought to identify patient research priorities via an online survey. After the data was collected and analyzed, the roadmap draft was disseminated to stakeholders and posted on BronchandNTM360social for feedback. We’re happy to announce that the roadmap has now been finalized and can be accessed here: Bronchiectasis Roadmap 29Dec2016 formatted.pdf (650.92 KB)
We’d like to thank everyone who participated in this project, especially the patients—thanks for sharing your experiences, priorities, and feedback! We hope this roadmap will serve as a guide for bronchiectasis research in the future!

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  • I am new to 360. Glad to have finally come across a site for Non-CF Bronchiectasis NTM. I am seeking any info for engaging in a study or guidance to the Best in the Nation when it comes to treatment. I am on Picc Line this time for 5 weeks so far, 8 days to go. The antibiotics are failing and I am very short of breath and have coughing fits.
    Is there anyone out there who has similar issues, or any advice? I am getting a bit worried as I have been in this battle for 4yrs now. thanks so much..
    Reply
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