Bronchiectasis and NTM Research Registry manuscript Published

Posted on December 08, 2016   |   
Author: Gretchen   |   
1 Comments   |   
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In 2007, in response to requests from the Key Opinion Leaders (KOL), the COPD Foundation, in collaboration with the National Heart, Lung and Blood Institute (NHLBI), convened a workshop to discuss the unmet need to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of non-CF Bronchiectasis. The consensus recommendation from the workshop was that in order to address the critical, but unmet needs of this community, it was necessary to establish a Bronchiectasis Research Consortium.  As a result of the consensus, the COPD Foundation established the Bronchiectasis Research Consortium, whose first priority was to create a Bronchiectasis Research Registry to serve as a platform to collect data on and better understand non-CF Bronchiectasis.  Given the high prevalence of NTM among bronchiectasis patients, COPD Foundation partnered with NTM Info & Research in 2011 to include NTM data collection in the Registry. The goal of the Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder.  We are happy to announce that the first manuscript on the Bronchiectasis and NTM Research Registry baseline data has been published by CHEST. Click here to read the abstract.

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  • It's great to see this outlined in Chest -- congratulations to everyone who works to make these registries a reality. There is such potential in this work!
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