This blog post was written by Gretchen McCreary, Research Coordinator at the COPD Foundation.

Horace Mann said that, “Every addition to true knowledge is an addition to human power.” It is only through asking questions and seeking answers that we elevate the human condition and find power against all that affects us. Research, by definition, is the systematic investigation into and study of materials and sources to establish facts and reach new conclusions. If you live with a rare disease such as Bronchiectasis or NTM, it is customary to want to pursue new avenues and much needed resolutions. This is why research is so important, as well as the power of committed individuals.

Research has contributed to the cure of diseases, improving health outcomes and enhancing the lives of future generations.

Lack of resources and committed parties can impede potential progress. Fortunately, a small group of individuals advocating and pressing for change can have exponential effects. As the old adage says, the squeaky wheel gets the grease, and issues that receive the most attention, even if only affecting a small population, are those with the most vocal advocates. Enhancements in healthcare, pharmaceuticals and prevention of diseases would not be possible without the willingness of those impacted.

There are different types of research, from clinical trials to survey opportunities. To learn about the research currently being conducted and any potential opportunities for participation, visit the Participate in Research page of this website.

Knowledge is power and the investigation into and surrounding your affliction, whether through taking part in a research study or solely to be your own best advocate, is an important and necessary step. Neil Armstrong stated that, “Research is creating new knowledge,” and that is worth the effort.