Living with Bronchiectasis – An Opportunity to Tell Your Story
Posted on January 11, 2022 |
* Recruitment for this study is closed. Check BronchandNTM360social regularly for other potential research opportunities.
Many in our community know first-hand the complexities of living with bronchiectasis. Bronchiectasis is characterized by thickened or scarred airways which leads to excessive mucus pooling. When the mucus gathers in the airways, it can lead to frequent, burdensome infections. Due to the difficulties in moving mucus out of the airways and the importance to avoid illness, a “day in the life” of a patient with bronchiectasis can often be centered around activities that assist with airway clearance.
When it comes to clearing mucus from the airways, many patients first think about airway clearance techniques and devices. A “normal day” is typically planned around, critical mucus clearance sessions that can involve inhaled medications, the use of a mucus clearing device, and purposeful coughing. These sessions are typically scheduled 2-3 times a day and can last anywhere from twenty to forty-five minutes. Factors like daily exercise and nutrition can also play a key role in assisting with mucus clearance and avoiding illness. Exercise causes rapid, deep breathing which can help to “jiggle” the mucus away from the airways, making it easier to clear. Eating a well-balanced, nutritious diet helps to support a healthy immune system and adequate hydration assists in thinning mucus.
Preventing illness is a priority for individuals living with bronchiectasis. As mentioned previously, fighting infection takes on an essential role. Efforts are made by those diagnosed with bronchiectasis to stay well and avoid catching viruses. Good hand hygiene along with up-to-date vaccinations are recommended. Mask wearing is encouraged to reduce triggers that may cause airway irritation or the chance to become ill.
Living with bronchiectasis is unique from person to person. Whether your diagnosis prevents you from working or whether you hardly notice that you have bronchiectasis at all, making sure you feel your best is of great importance.
LaGrippe Research is looking for individuals who have been diagnosed with non-cystic fibrosis related bronchiectasis and are willing to share their experiences with the condition during a 90-minute interview. LaGrippe is interested in learning about patients’ journey to diagnosis, relationships with their care team, family, and friends and how bronchiectasis affects their life on a day-to-day basis. All responses are completely confidential, and if you are eligible and selected to participate, you will be compensated for your time.
To participate, you must:
- Have been diagnosed by a physician with bronchiectasis and not have cystic fibrosis
- Be 21-75 years of age
If you are interested, please contact:
Alex LaGrippe at 847-533-4052 or email@example.com