Return to all articles Research 101 Webinar Posted on March 26, 2019 | Author: Gretchen | 0 Comments | 4 Likes We hope you were able to join us for our March 2019 Research 101 webinar. We are pleased to offer you the full recording from this event here. The recording is free and can be accessed at any time. During the 50-minute webinar, Dr. Yawn and Dr. Mularski gave an overview of research, the different types of research, questions to ask before participating in research, as well as a breakdown of clinical terms and “big words” associated with various types of studies. They were joined by Pam DeNardo, a patient partner, who discussed her experience with research along with her participation in the COPD Patient-Powered Research Network. More about your expert speakers Dr. Barbara Yawn, MD, MSc is a long-time clinical researcher studying how to improve respiratory care in rural and primary care settings. She is currently the Chief Science Officer of the COPD Foundation and co-PI of the COPD Patient Powered Research Network. Dr. Mularski, MD, MSHS, MCR, leads health services research in the areas of obstructive lung disease, palliative care, and delivery science at the Kaiser Permanente Center for Health Research in Portland Oregon; he is also a Clinical Professor of Medicine and Senior Scholar of Ethics at Oregon Health & Science University. He practices pulmonary and critical care medicine as a Senior Physician for Northwest Permanente where he also serves as Regional Clinical Quality Lead for COPD and is the Director of Research and Evaluation for the northwest KP region. He is a founding steering committee member of CONCERT and co-PI of the COPD Patient Powered Research Network. Pam DeNardo is a COPD patient of 20 years and an advocate with the COPD Foundation in many positions since its inception. Along with Bill Clark and John Walsh, she started the COPD Foundation's Information Line in 2007. And like many here, she is a firm believer in the importance of research but also its misunderstandings among the patient population. The COPD Foundation would like to thank Dr. Yawn, Dr. Mularski and Pam DeNardo for their participation in the Research 101 webinar. Stay tuned for information on upcoming events! Below, please find the Key takaways from the Research 101 webinar: WHAT IS RESEARCH? In the simplest terms, research is using science to improve health. There are many ways you can participate and contribute to research that do not necessarily involve taking new medication or physically going to a doctor’s office or clinic. Participating in a focus group or completing a survey contributes to research and can help further researchers understanding the disease and people’s experience. LEARNING MORE ABOUT YOUR RIGHTS IN STUDIES What are my rights when I join a study? You have the right to stop participating at any time. You also have the right to have any of your questions answered during the study. If you have questions about your rights or you feel your rights have been violated you can contact the Institutional Review Board (IRB) that oversees the study. What is an Informed Consent? Informed consent is the process of learning the key facts about a clinical trial or study before deciding whether or not to participate. Informed consent is not a contract, and you may withdraw from the trial at any time. You are allowed to retain a copy of the informed consent for your records. PRACTICAL THINGS TO ASK BEFORE PARTICIPATING How long will I be in the study? Do I have to stop my current medications or treatments? Is there any cost to me? Do I have to travel? If so, will I be reimbursed? When I finish will I get more calls? How will I find out the results? Who is doing the research? Who is paying for the research? Are there any risks or benefits? WHERE CAN YOU FIND RESEARCH OPPORTUNITIES? Go to www.ClinicalTrials.gov Ask your doctor or health care professional if there are any studies Join registries such as the COPD Foundation’s Patient-Powered Research Network (COPD PPRN) No Comments You need to login to comment.