0
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10
Answers
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Singing for lung health group?
Hi again! Does anyone have information or links to share on joining singing for lung health groups? Thank yo
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0
Votes
6
Answers
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Exercise
Are you able to get some exercise on a regular basis? The article below offers some good tips on an exercise plan: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Exercise
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0
Votes
8
Answers
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Collage craft safety
When collaging a masterpiece what type of lung medium or glue do you recommend ? Elmers says non toxic and all the books on collage say to use acrylic gel medium. Any advise?
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0
Votes
9
Answers
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How Do you clean your clearance equipment?
Rich the acapella can be cleaned. Its in this video a ways.. https://www.google.com/search?rlz=1C1NDCM_enUS783U...
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0
Votes
4
Answers
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Dietary supplements
Are you taking dietary supplements? The article below reviews the basics on supplements. https://www.fda.gov/consumers/consumer-updates/fda-101-dietary-supplements
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0
Votes
0
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Differentiate between allergies, Covid and other respiratory issues
Do you know how to differentiate between allergies, Covid and other respiratory issues? The link below provides some helpful information on the subject: https://www.cnet.com/health/medical/how-to-know-if-its-allergies-covid-or-something-else/
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0
Votes
5
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NTM-Xenopi
Hi. I can't seem to find much information on M-Xenopi. Can anyone direct me toward a good resource for it? Thanks.
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0
Votes
2
Answers
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Can noxious chemicals from CPAP machines contribute to Bronchiectasis
A few weeks ago I slightly injured my upper ribs. No big deal (except coughing, sneezing, ouch!) and I knew it was going to go away. My doctor ordered x-rays as a precaution and although my ribs were fine, the radiologist noted the presence of …
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0
Votes
1
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Bronchiectasis
Hi, I got diagnosed with bronchiectasis in December after having problems with my breathing / coughing for years. I take 1 inhaler a day with a pill at night and complete airway clearances once a day. I’m 26 and do regular exercise biking 30 mins a day …
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0
Votes
5
Answers
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On antibiotics for life
I orginally had MAC in 2008, was treated with azithromycin, refampin, and ethambutol. Cleared in 2010 by the ID doc to stop meds. Ten years later, I'm back with another MAC. He put me on Azithromycin and Ethambutol for life. Said I was too prone to …
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0
Votes
4
Answers
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MAC
Just learned that I have tested positive for MAC again. I went through antibiotic treatment for 11 months in 2018. I have felt good until I had COVID in July of 2022. During COVID I developed a cough. Now MAC . My question for anyone who was treated for …
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0
Votes
0
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What type of cleaning products do you use?
The link below offers suggestions for better cleaning recipes which are less irritating to our respiratory system https://www.lung.org/getmedia/3030b2d9-02f0-4be4-ab86-d6bd86f88b88/ALA-Safe-cleaning-products-MHE-program-August-2022.pdf
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0
Votes
0
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Sleep apnea
Have you had a sleep apnea test at home or in a hospital setting recently?
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0
Votes
5
Answers
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Are you getting adequate sleep?
Sleep hygiene is of upmost importance when you are dealing with an infection and or a chronic condition. The link below offers some suggestions. The one that I disagree with is not to take a nap. It is okay to take a nap in the afternoon if you are not …
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0
Votes
1
Answers
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Pulmonary rehab
Have you been in a pulmonary rehab program? If so, what were the greatest benefits for you? https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
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0
Votes
1
Answers
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Zinc
Do you understand the benefits of zinc https://www.healthline.com/nutrition/zinc#sources
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0
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0
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Registered Dietician , nutritionist
https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian
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0
Votes
0
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Registered dietician vs. nutritionist
Do you understand the difference between a nutritionist and a registered dietician? https://www.medicalnewstoday.com/articles/nutritionist-vs-dietician#nutritionist-vs-dietitian
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0
Votes
5
Answers
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Vitamin D
How much vitamin D are you taking on a regular basis? Most of us have a low level to begin with. A level lower than 20 is considered to be deficient. 50,000 units of D2 is recommended once a week for 8-12 weeks, then levels are rechecked. Maintenance …
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0
Votes
6
Answers
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Travel tips with a chronic condition?
Tis the season of travel. Do you have any tips that have made traveling easier while dealing with a chronic lung condition? Please share!
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0
Votes
6
Answers
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Ideas about foul odor?
The cough has had a foul odor for a while now. The doctors say that is normal and what I have dead says it is. Does anyone have any ideas about dealing with it day to day? I don't smell it, but those around me do.
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0
Votes
2
Answers
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Are you currently taking Zithromax?
Zithromax is in the drug class of macrolides. Patients should have an EKG and regular hearing checks while taking Zithromax https://www.webmd.com/drugs/2/drug-1322-3223/zithromax-oral/azithromycin-250-500-mg-oral/details
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0
Votes
0
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Rifampin
Hello! Are you currently taking Rifampin? This drug discolors secretions, such as your sweat, tears and urine to an orange, red or brown color. I realize that most meds suggest that you avoid alcohol, but this one really means it. Labs must be checked …
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0
Votes
1
Answers
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Has the BIG 3 for MAC not worked?
Has THE BIG THREE for MAC been a problem? I was on the big 3 for Bronch and MAC and it made me sicker than the disease itself. But my pulmonologist just told me about a trial for patients with MAC who are not responding to standard treatment.They are …
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0
Votes
1
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Is a salty taste normal?
I just joined this forum. I am 67 years old, and was diagonosed with bronchiectasis about 5 months ago. I use a nebulizer twice daily, 7% Hypersal and it seems I taste salt in my mouth and on my lips throughout the day and was wondering if anyone else …
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