BronchandNTM360social welcomes new member Tori Daniels who joins 4,839 current members of our community. Weโ€™re glad you're here!

Ksmiles123

Ksmiles123

Telehealth is the delivery of healthcare services and information via telecommunications technology. There are pros and cons of telehealth services vs. face to face healthcare visits. Below is a link to Telehealth 101, which includes frequently asked questions on telehealth: https://psyforu.com/telehealth-101-understanding-the-benefits-and-challenges-of-virtual-healthcare/?amp=1

1 hour ago

Ksmiles123

Ksmiles123answered the question Has anyone begun using Brensocatib?

CJack, Hello! Welcome to the BNTM community. I havenโ€™t started Brensocatib/ Brinsupri . I know that other members have already started it and I hope they comment on their experience thus far.

1 day ago

Cjack

Cjackasked the question: Has anyone begun using Brensocatib?

My pulmonologist has recommended that I try Brensocatib which has just been released as a treatment for nonCF bronchiectasis.

1 day ago

NEON8L

NEON8L

Hanging in there. 

2 days ago

JerseyGal

JerseyGal

This is my first time posting on this feed. I was shocked to find out that I have now been diagnosed with both bronchiectasis and NTM. I am scheduled for a bronchoscopy shortly to obtain samples. Has anyone had adverse effects from this procedure, such as infection, etc.? I am pretty anxious about this procedure. Appreciate any feedback here, thanks.

2 days ago

Ksmiles123

Ksmiles123Hello! Below is information on the Covid vaccine.  Awaiting more updated information from the CDC: https://www.forbes.com/sites/omerawan/2025/09/07/what-to-know-about-the-new-updated-covid-vaccines-for-2025-2026/

What To Know About The New Updated COVID Vaccines For 2025-2026

The new updated COVID-19 vaccines for 2025-2026 will be available in the fall. Here are answers to some of the most common questions about the vaccine.

3 days ago

Ksmiles123

Ksmiles123asked the question: Are you planning on getting the RSV vaccine?

Late fall is the best time to get the RSV vaccine. Below is information from the CDC on this vaccine. https://www.cdc.gov/rsv/hcp/vaccine-clinical-guida...

3 days ago

Hockeygirl771

Hockeygirl771answered the question Are you planning on getting the Fluzone vaccinationsoon?

Yes definitely I will be getting the Fluzone and RSV and Covid vaccines. I got the pneumonia vacinne two years ago.

4 days ago

Hockeygirl771

Hockeygirl771

I am newly diagnosed with bronchiectasis and have had antibiotics prescribed over the course of the past year when no one understood what I had. My Respirologist treatment for me is to take 2 puffs of Ventolin 3 x per day waiting 5 minutes after the Ventolin then using a Aerobika Device. I havenโ€™t used the device yet because I
am concerned that it will worsen the fullness and pain I experience from eustation tube dysfunction in my ears. Does anyone use this device with success?

4 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Ksmiles123Hockeygirl771,
    I am sorry to hear about the long wait times to see an ENT. Is it easier to get an appointment with an audiologist ? How about your Pulmonologist speaking with your primary care doctor about this? 3 days ago
  • Hockeygirl771It is my Respirologist that said he did put a referral request in at the start of this year. 3 days ago
  • Ksmiles123Hockeygirl,
    I am sorry that it takes so long to see a specialist in your area. 3 days ago
Hockeygirl771

Hockeygirl771

Does anyone have Bronchiectasis as the result of Sjogrens auto immune disease?

4 days ago

Hockeygirl771

Hockeygirl771

Overwhelmed unfortunately. 

4 days ago

Ksmiles123

Ksmiles123

Hello! Were you able to attend the September Coffee Break yesterday? Do you have any follow up questions?Below is information on the Lace for Lungs activities, scheduled for October:https://www.copdfoundation.org/Take-Action/Get-Involved/Lace-Up-for-Lungs.aspx

5 days ago

marsrocket

marsrocket

A highly informative zoom meeting today -- thanks for setting it up. Did anyone write down the name of the bronchodilator that's being studied which Dr. M mentioned at the end of the session?

5 days ago

Ksmiles123

Ksmiles123asked the question: Are you planning on getting the Fluzone vaccinationsoon?

Fluzone is the stronger flu vaccine recommended for people over the age of 65, those on long term immunosuppressants and transplant patients. I usually get my vaccination in mid October; it can take a few weeks to reach a higher level of effectiveness in …

6 days ago

Ksmiles123

Ksmiles123answered the question How much time does airway clearance take?

Niamhy, Hello! Glad to see your post. It does take time to accept that many of us have to pace our activities; we learn to adapt over time. Energy management strategies assist us in our everyday lives. I think that we all ask the question,โ€ why me?, …
Niamhy also answered the question Niamhy also answered the question

6 days ago

marsrocket

marsrocketI just found out that my Medicare Part D plan approved coverage for Brinsupri, and that I should have the pills later this week. My ridiculously low monthly copayment is $4.80. Wow! 

6 days ago

360Coach Brandon

360Coach Brandon ๐Ÿ’™ Resources Made Just for You

๐ŸŽค โ€œAttention passengers! Our next stop on the BronchandNTM360social tour is one you wonโ€™t want to missโ€ฆโ€

๐Ÿš Welcome to the Educational Downloads library--a hidden corner filled with tools and guides designed especially for those living with bronchiectasis and NTM. This isnโ€™t your ordinary library--itโ€™s stocked with resources to help you feel more prepared, supported, and connected!

As we explore this stop, youโ€™ll find:
๐Ÿ—‚๏ธ Action plans to help manage flare-ups
๐Ÿ“– Guides you can share with your doctors and care team
๐Ÿ’ก Practical tips to make day-to-day life a little smoother

โœจ The best part? The doors are always open, the resources are free, and everything inside was created with your journey in mind.

So grab what you need, save a favorite, and let us know which tools have been the most helpful. Your recommendation could be the compass that points someone else in the right direction. ๐ŸŒŸ

https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Downloads-Library
 

Downloads Library | Bronchiectasis and NTM Association

Thank you for your interest in Bronchiectasis and NTM 360 educational library. We have a variety of useful booklets, flyers, and tools to help you learn more about living with bronchiectasis and NTM lung disease.

1 week ago

Ksmiles123

Ksmiles123asked the question: Do you know what diseases each vaccination protects us against?

A few vaccinations just have initials , not a completely spelt out name. The link below, from the CDC reviews vaccination recommendations throughout our lifeand the diseases that they protect us against. https://www.cdc.gov/vaccines/imz …

1 week ago

Ksmiles123

Ksmiles123

Supplemental oxygen can improve the quality of life for some Bronchiectasis/ NTM patients by reducing breathlessness. The determination of whether or not an individual needs oxygen is based on diagnostic tests ordered by a pulmonologist. Below is information on supplemental oxygen: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Oxygen-Therapy
OxyTalk is a monthly support group that meets every second Wednesday at 4 pm. Please let us know if you are interested in attending a meeting or if you have any questions about supplemental oxygen.

1 week ago

  • Alyssa DittnerAn oxygen evaluation test can be done in the office. It is a simple test used to see if you need supplemental oxygen. During the test, a health care provider measures your oxygen using a pulse oximeter while you breathe normally and during exercise. The results help determine if your oxygen levels are low enough (88% or lower) to qualify for oxygen therapy, which can help improve your breathing.6 days ago
BeClearwithBronchiectasis

BeClearwithBronchiectasisSaturday, September 13, in Denver or livestream from anywhere for the NTM and Bronchiectasis Patient and Family Conference.


This 1-day program features National Jewish Health expert physicians and nurses providing critical updates for both diseases along with tips for airway clearance, nutrition, managing side effects and much more.


Video recordings and slides will be available to all registered attendees after the conference.


Register at: https://brnw.ch/21wVfF4


PLEASE SHARE!!

1 week ago

360Coach Brandon

360Coach Brandon Hello everyone!โ€ฏ

Our next BronchandNTM360social Coffee Break will be Wednesday, September 10, 2025 @ 3pm EDT.

On our upcoming Coffee Break, Dr. Mark Metersky, M.D., F.C.C.P., Professor of Medicine, Director, Center for Bronchiectasis Care UConn will join us to discuss the latest information on Brinsupri (Brensocatib) and other BNTM medicines currently in clinical trials.

We will build on the material presented during Dr. Anne Oโ€™Donnellโ€™s webinar on August 28, 2025 brought to you by Running on Air in partnership with NTMir.

World NTM Awareness Webinar: Dr. Anne O'Donnell on DPP1 Inhibitors and Bronchiectasis Q&A

August 28, 2025

The temporary link below is only valid until the Coffee Break at 3pm on September 10, 2025. A new link will be created once the final version of the webinar is completed. Also, the captions in this video are auto-generated and have not yet been edited.

https://youtu.be/amb-CchC-PU

Resources

https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/202/FDA-Approves-a-New-Medication-for-Bronchiectasis

We will open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. Any health-related discussion will be held until the start of the meeting.

The meeting registration link is here:โ€ฏ
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration

Lookingโ€ฏforward to seeing you soon!
 

1 week ago

Ksmiles123

Ksmiles123The American Red Cross organization with years of experience dealing with disasters, and has compiled a comprehensive Disaster Preparedness Plan to assist in preparing for any type of disaster. Please review the link below. I have posted other Disaster Preparedness plans- please review all of them, decide what one would work best for you, print it out, and discuss with family members and or friends.  Be proactive- it will lessen the stress to a degree of and when you have to deal with any type of disaster. https://www.redcross.org/content/dam/redcross/atg/Chapters/Division_1_-_Media/Denver/Denver_-_PDFs/EmergencyPreparednessChecklist.pdf

1 week ago

Ksmiles123

Ksmiles123Disasters/ emergencies are usually not a predictable event. Do you have a disaster kit set to go in the event that there is an emergency? The CDC link below provides information on how to build an emergency kit, a โ€œ how to build your emergency kit โ€œ video is also provided included in this link. https://www.cdc.gov/natural-disasters/psa-toolkit/build-an-emergency-kit.html
Please let us know if you have any questions. 

1 week ago

Ksmiles123

Ksmiles123

Hello! No one ever wants to hear or think about disasters. However, being proactive and prepared may lessen the stress, anxiety and the overall outcome of a disaster. Below is a Disaster Preparedness Plan for your review. Please let us know if you have any questions. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/Disaster_Prepardness_Plan_WEB.pdf

1 week ago

BeClearwithBronchiectasis

BeClearwithBronchiectasis

๐ŸŒฟOh!!! This is always a good talk๐ŸŒฟโœจ
Living Well with NTM and Bronchiectasis

- Airway Clearance & Moreโ€ผโ€ผSEPTEMBER 10 4PM ET


Ashley Losier, MD -
Living with NTM Lung Disease


Sebastian Kurz, MD, PhD, FCCP-
Bronchiectasis Today


Marjorie Cullinan, MSHA, RRT-NPS, RPFT -
Taking Charge of Your Lungs: What's New in Care & Treatment


Sign up nowโ€ผโ€ผ
https://bit.ly/3JrLf8N

1 week ago

Ksmiles123

Ksmiles123Hello! It is hard to believe that the summer has flown by and we are now starting the month of September. I hope that the cooler, less humid days enable you to be out and about more frequently. 
We will be covering the following topics throughout the month of September:  Disaster preparedness plans, Tele-health awareness 9/21-9/27 , Oxygen Information Basics, and the different types of immunizations. Please let us know if you have any specific questions about these topics.
Enjoy the Labor Day holiday! ๐Ÿ˜

2 weeks ago

Jane M.

Jane M.asked the question: How much time does airway clearance take?

I found out that I have bronchiectasis and probable NTM last December, and my pulmonologist recommended just watching it for a while. I had a follow-up CT in June and then a bronchoscopy in July because I have never produced any sputum. One of the …

2 weeks ago

360Coach Brandon

360Coach Brandon

Wishing all our BronchandNTM360 friends a safe and easier-breathing holiday weekend! ๐Ÿ’™

If youโ€™re grilling, let the food be smokyโ€”not your lungs. ๐Ÿ”๐Ÿ”ฅ๐Ÿ’จ Protect your airways and keep the flavor on the plate where it belongs.

And with the weather doing its usual unpredictable thing, play it smart. If itโ€™s hot or muggy, give yourself permission to retreat indoors, grab the comfy spot on the couch, and call it airway management strategy. ๐Ÿ‘‘โ„


Hereโ€™s to staying safe, cool, and enjoying the weekend the best way you can!


2 weeks ago

360Coach Brandon

360Coach Brandon

๐Ÿ”ฅโœจ Circle up around the campfireโ€ฆ

As the nights get cooler and flu season approaches, thereโ€™s one thing that can help keep our whole circle stronger: vaccinations.

For those living with bronchiectasis or NTM, vaccines like the flu, pneumonia, COVID-19, and RSV are extra layers of protection โ€” like adding logs to the fire so it doesnโ€™t burn out. They canโ€™t prevent every illness, but they can help lessen the risk of flare-ups, infections, or complications.

And caregivers โ€” youโ€™re just as important in this story. By keeping your vaccines up to date, youโ€™re helping guard the fire for everyone. Youโ€™re part of the shield that keeps sparks from turning into bigger flames.

So before flu season kicks in, check with your healthcare provider and make sure both you and your loved ones are covered. The more we work together, the brighter and steadier the fire glows!
 

2 weeks ago

Ksmiles123

Ksmiles123

Hello! We are experiencing cooler temperatures, lower - ideal humidity and dew point levels; it is so much easier to breathe, function well under these conditions.
Are you noticing a difference in how you feel in comparison to how you were feeling during the recent heat wave?
I hope that you are able to get out and about, at least for a little while to enjoy the weather and the end of the summer season. :) 

2 weeks ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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