BronchandNTM360social welcomes new member Harold who joins 3,819 current members of our community. Weโ€™re glad you're here!


Tara COPDF

Tara COPDFYour unique life experience matters. Do you have a lung condition such as COPD, bronchiectasis, or NTM lung disease? We want to hear from you! The COPD Foundation is currently interested in learning more about how experiences differ between patient populations. Take our 10-minute survey to be a part of important research. The survey is anonymous and linked to no personal identifiable information. Thank you in advance for your participation.
 
Click the link to take the survey:  https://copdf.co/pops-survey

1 week ago

Ksmiles123

Ksmiles123answered the question What Is Going On?

Hello! You may have an infection, seasonal allergies. When was the last time you had a sputum culture done? You can request that your doctor order one now instead of waiting until 4-19. I would suggest to do regular airway clearance I hope that you …

3 hours ago

Marcus

Marcusasked the question: What Is Going On?

Question... I went from having no mucus or issues in 2023 to nonstop mucus every day. I was really sick in December but got well after a month of treatment. Since the beginning of March it has been different. I drink plenty of fluids, eat healthy and …

4 hours ago

Marcus

Marcus

Question... I went from having no mucus or issues in 2023 to nonstop mucus every day. I was really sick in December but got well after a month of treatment. Since the beginning of March it has been different. I drink plenty of fluids, eat healthy and exercise. Not sure what is going on. I changed doctors but she can't see me until April 19th. Any feedback would be appreciated. Are these flare ups each day because not sure why the mucus won't stop. Thanks guys! 

4 hours ago

Ksmiles123

Ksmiles123

Good morning! How are you feeling today?  Any plans for the holiday weekend? Are there any specific symptoms getting in the way of your plans? 

15 hours ago

marsrocket

marsrocketAn avocado each day keeps the doctor away? Well, maybe!

https://www.earth.com/news/eating-one-avocado-each-day-can-add-years-to-your-life/

1 day ago

Ksmiles123

Ksmiles123

Hello! Will you be traveling for the upcoming holidays? The link below offers some tips for travel:https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

1 day ago

ChristinaH

ChristinaHanswered the question Lobectomy prognosis

Hi Daniellle. First, I wanted to say that you are a wonderful daughter to be taking the time to find helpful information from your mom. Our community loves to support caregivers and family members on this journey. I agree with John. I think that your …
JohnT also answered the question JohnT also answered the question

2 days ago

Ksmiles123

Ksmiles123

Below are some exercise videos for respiratory patients featuring our director Christina Hunt, RT and Stephanie Williams, RT, VP Education: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Exercise.aspx

2 days ago

Cindy lou

Cindy lou

I am new to this forum. Diagnosed with bronchiectasis due to Alpha One genetic disorder. My symptoms are mild, SOB with exertion.  But I am questioning if snorkeling with bronchiectasis, is good or bad ? Please advise, I can find no information on this . Thanks so much, Cindy

2 days ago

Ksmiles123

Ksmiles123

Hello! The link below offers information on breathing exercises that can assist our lungs: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Breathing-Techniques

3 days ago

DanielleMT

DanielleMTasked the question: Lobectomy prognosis

My mother had her right upper and middle lobes removed 2 weeks ago today. She has emphysema/COPD and NTM, diagnosed 2013. She is still extremely weak and on home oxygen. Has anyone been through this or have a family member that has been through this? Did …

6 days ago

DanielleMT

DanielleMT

My mother had her right upper and middle lobes removed 2 weeks ago today. She has emphysema/COPD and NTM, diagnosed 2013. She is still extremely weak and on home oxygen. Has anyone been through this or have a family member that has been through this? Did you have to stay on oxygen? What is your quality of life now? If a family member, did your loved one survive? My mother is very thin/low body weight and did not exercise prior to surgery and now she can barely walk two steps without gasping.

6 days ago

Frustrated breather

Frustrated breather

Found out I also now have pseudomonas pneumonia 

6 days ago

marsrocket

marsrocketFriday wisdom from Henry James. Happy weekend, friends. 

6 days ago

Ksmiles123

Ksmiles123Hello! Below is an article on exercise, including two exercise videos that you can do at home: https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1637/Did-you-Know-Exercise-Videos.aspx

6 days ago

Violet

Violet

Hi all! New to this site and bronchiectasis.How do I avoid frequent infections which last 2-3weeks or more!with lots of mucus UghI do the usual and above even.Doc wants me to use Symbicort daily but I have osteoporosis and high ocular pressure 
Suggestions 
Insights
Thanks!!

1 week ago

ScubaGirl64

ScubaGirl64

Greetings all,  Just finished two days of diving with my husband and friend! I am SO grateful the days when pseudomonas isn't rearing its ugly head. Hoping to encourage everyone to keep exercising (yes include some weight lifitng in your plan too) Perhaps there's others like me who thought the BE/NTM was devestating diagnosis? It took me awhile to come to terms with my condition - especially after losing my sister to BE 9 months after I was diagnosed. Encouraging everyone to stay on your medical therapies, watch your nutrition & sleep and continue to enjoy the things you've always loved doing -even if there are times we are limited to certain activities because of flare ups!  Wishing you the healthiest of days today. Does anyone know where to purchase bag tags for luggage that denotes it as medical equipment? I always carry my AffloVest and nebulizer with me.  TYIA

1 week ago

Kristen Szymonik, BS, RRT, AE-C (Manager of Public and Professional Education)

Kristen Szymonik, BS, RRT, AE-C (Manager of Public and Professional Education)answered the question Traveling to Greece

Hi Dakota13, I'd also like to add that we have a Guide in our downloads library that is all About traveling with COPD and other chronic lung conditions. It answers many questions about traveling with medical equipment and how to plan ahead for your trip. …
JohnTJonnie Korinko (COPDF Manager of Public and Professional Education)marsrocket also answered the question JohnTand 2 others also answered the question

1 week ago

Ksmiles123

Ksmiles123

Hello! Any type of exercise is beneficial for individuals with respiratory conditions. The link below reviews the benefits of regular exercise: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exercise

1 week ago

Storyteller

Storyteller

Does anyone here have the Reme Halo air purifier installed in their home ? My husband is pushing me to buy two of these machines.
Neither of the two pulmos I consulted have responded yet as to the safety and efficacy of these machines.

1 week ago

Ksmiles123

Ksmiles123The link below is information on an upcoming hybrid educational event, offered by National Jewish Health on 4/27/24: https://www.nationaljewish.org/NTMPatient2024

1 week ago

Dakota13

Dakota13asked the question: Traveling to Greece

I will be travelling to Greece this summer and will be purchasing a travel nebulizer. What nebulizer do you recommend? I also will not be able to disinfect my nebulizer cups and I read somewhere there are disposable cups. Anyone have any experience with …

1 week ago

Ksmiles123

Ksmiles123answered the question Are you taking Probiotics regularly?

Below is a list of recommended probiotics: https://www.healthline.com/nutrition/best-probiotic-supplement
DragonladyChristinaHSusanaCafeand 2 others also answered the question Dragonladyand 4 others also answered the question

1 week ago

Ksmiles123

Ksmiles123answered the question elevated platelet levels

https://www.verywellhealth.com/when-to-worry-about-high-platelet-count-5186732
Jonnie Korinko (COPDF Manager of Public and Professional Education) also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education) also answered the question

1 week ago

laff4evr

laff4evrHappy First Day Of Spring B&NTM360S Members

I've already begun spring cleaning.....

1 week ago

Kandy

Kandy

I have a question can you get a true sputum.sample test if your taking a anyibiotic? 

1 week ago

Ksmiles123

Ksmiles123March 18th is Squash Superbugs Day. Superbugs are bugs commonly resisted by antibiotics and other medications. 

1 week ago

Ksmiles123

Ksmiles123

Hello! The article below differentiates health disparities from health inequities: https://patientengagementhit.com/news/what-is-the-difference-between-health-disparities-equity

1 week ago

Ksmiles123

Ksmiles123Happy Saint Patrickโ€™s Day to all! May the luck of the Irish โ˜˜๏ธ be with you today. 

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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