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4
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6 minute walk
Have you taken the 6 minute walk test recently? How did you do? https://www.verywellhealth.com/6-minute-walk-test-914820
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2
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Adherence to goals
Are you keeping your new years goals? It is not easy to always stay on track. The blog article below discusses staying on track. Small steps towards our goals will eventually get us to where we desire to be. https://www.bronchiectasisandntminitiative …
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2
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What is the best portable mesh nebulizer? The Phillips innospire is back ordered every where!
BestPortable mesh nebulizer
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2
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Wheezing
Are you currently experiencing more frequent wheezing? Do you understand the source of your wheezing? The article below reviews wheezing and it’s possible causes. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community …
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5
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Drug cost
Hello, I am just starting the 3 drug regimen and wondering if anyone is aware of financial assistance for Rifabutin as of 2023 Pfizer discontinued the patient assistance program for Mycobutin most of the discount card resources come out about the same; …
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2
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Have you been recently diagnosed?
Have you recently been diagnosed with NTM, Bronchiectasis or both? Do you have a specific question?
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Reflux
Are you a new patient dealing with acid reflux? The blog article below offers some tips: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/47/The-Basics-of-Acid-Reflux
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2
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Has anyone used the WABI steam sanitizer& dryer for Phillips Innospire Go mouth piece?
Wabi steam sanitizer & dryer. Has anyone used it for Phillips Innospire Go Mouthpiece? I use it on my Aerobika and other nebulizer pieces. I contacted Phillips and have not received an answer to date. Thanks for any info!
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3
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Do you understand all of the medical terminology used at your doctors office?
Do you understand all of the terms used by your pulmonologist? The link below reviews the most common terms used: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Glossary
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Do you understand the diffusion capacity of your lungs?
https://www.verywellhealth.com/diffusing-capacity-of-the-lungs-2249024
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7
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Bronchiectasis and NTM Information Podcast
Hi all, Sharing a podcast featuring Dr. Peadar Noone, who is a Professor of Medicine in the Pulmonary Division at the University of North Carolina at Chapel Hill. The podcast covers important information on both, bronchiectasis and NTM. Enjoy! …
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Are flu rates high in your area?
Is the flu widely spreading in your area? https://symptoms.webmd.com/cold-flu-map/default.htm?ecd=wnl_spr_121922&ctr=wnl-spr-121922_lead_title&mb=BV9hlHMDfjVlJNmGRIb%40PxXFE73IOX1cnRFKG4M8oE4%3D
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0
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2
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Do you want to reduce exposure to NTM?
Do you want to learn more about reducing exposure to NTM? The video below offers some great recommendations: https://m.youtube.com/watch?v=bRyoYXthxH4
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1
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Do you understand pulmonary function test and its interpretation?
https://bronchiectasis.com.au/bronchiectasis/diagnosis-2/lung-function
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5
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Are you equipped to deal with the flu?
My chimney's immune system is weak due to smoking, and now it has the flue.
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9
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First message from a patient's husband in Australia
Hello from Australia. My wife has been to see her doctor, who has recommended a course of three antibiotics to treat her NTM. The doc says that the treatment might have to be for 6 months to a year or perhaps longer. She has been informed about possible …
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15
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How cautious must you be with water?
This whole disease is sooo frustrating. Different doctors recommend different things so it is hard to know what to do. I beat MAC after 10 years! I try to be careful but evidently not careful enough, because now I have M. massiliense. Same type of …
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3
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I just started inhaled colistin, using a nebulizer. Anyone else doing this?
Inhale colistin using a nebulizer
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4
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support groups
Can someone tell me about the local support groups that I have seen on this site.
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7
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Rasamsonia Argillacea
I am new to this site. Does anyone have information on the mold Rasamsonia Argillacea? I have just had that mold show up on a sputum sample and haven't been able to find much information on it. I understand that it's a really difficult, year long …
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3
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Airway clearance & sputum
I do airway clearance every day using 3% (just started using 7%) hypertonic saline….once in the morning and once late afternoon. I also use the Aerobika after I nebulize the saline. I also take the Big 3 antibiotics 3 days a week even though my last …
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0
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3
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If my bronchiectasis is under control, why do I need a Bronchoscopy?
I am 74. What would a bronschoscopy gain for me?
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4
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CPAP and humidification
Hi All. This question was placed in the activity feed by a community member, and I didn't want it to get missed. :) What affect does the moisture settings on CPAP device have on bronchiectasis? Does anyone use a certain type of water to fill their CPAP …
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1
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How can a Bronchoscopy help me?
The reason I had one a few years ago as kept getting sick so they decided to do one see what bugs where in my lungs. Came up as normal flora. They only grew the sample in the lab 3 days I wonder if that was long enough.
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7
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ARICAYCE side effects
I have only been on this drug for 7 days but have noticed after each treatment my oxygen goes down and my heart rate goes up. My physician said at this time he is not concerned. Has anyone else had these side effects this early in treatment?
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