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Hope someone out there can help. I’ve been on heavy doses of 3 antibiotics since Jan of 2017 for MAC. Sputum still showing positive and showing on CT 3 weeks ago.
My MAC doc prescribed Arikayce as an addition but the insurance company has denied coverage. I filed an appeal on Friday and found out the cost today.With insurance (Medicare part D through SilverScript a CVS partner) it will be over $6,000 a month.Without insurance it will be over $13,000 a month!!!Has someone else out there been through this? I also have 2nd hand smoke COPD, had upper left lung lobe removed in 2005 for aspergillosis and upper right lung lobe removed in 2016 for 2nd hand smoke lung cancer. My cancer Doctor is monitoring 3 lesions and says they should shrink on Arikayce if they are MAC. If they don’t shrink then probable cancer. So I need the Arikayce for this too.I have multiple sclerosis and don’t heal well so he doesn’t want to do a biopsy on hard to reach lung lesions that may be MAC. I need advice.Thanks for reading.