BronchandNTM360social welcomes new member SRLabMD who joins 3,838 current members of our community. We’re glad you're here!


ChristinaH

ChristinaHDo you have bronchiectasis? We are hosting a webinar on April 11th at 4 pm EDT, with Dr. Tim Aksamit, Medical Director of Bronchiectasis and NTM 360. This webinar will be Q & A based. If you are interested in attending, sign up at the link below. Looking forward to seeing everyone there!
https://www.surveymonkey.com/r/M9YK6YP


2 years ago

marsrocket

marsrocket

For those who might be interested, here's a study comparing acupuncture and chinese herbs vs. pharmaceutical treatment of bronchiectasis. Both treatments were effective, but herbs + acupuncture fared better in this particular study involving 60 patients. Hopefully similar studies are underway. While holistic therapies generally have fewer side effects, they might not be right for everyone.
https://www.healthcmi.com/Acupuncture-Continuing-Education-News/2025-acupuncture-herbs-beat-drugs-for-bronchiectasis-relief

2 years ago

Ksmiles123

Ksmiles123Hello! Today is National Doctors Day. We must express gratitude to all of the wonderful physicians who assist us on our journeys:https://nationaltoday.com/doctors-day/

2 years ago

Ksmiles123

Ksmiles123

2 years ago

Ksmiles123

Ksmiles123

Hello! An excellent video below on upper body exercises, featuring Christina Hunt and Stephanie Williams: https://m.youtube.com/watch?v=F09vXG7wckQ

2 years ago

Kara

Karaasked the question: Low Dose Naltrexone (LDN) and MAI

Hi, I'm new to the Community. I have a family member diagnosed with MAI, who is taking multiple antibiotics. I'd like to know if anyone here take Low Dose Naltrexone (LDN) as an adjunct therapy and what your experience has been. I take LDN myself for an …

2 years ago

Kara

Kara

Hi, New to the Community and I have a family member, who has MAI.  I'm curious to know if anyone has experience taking LDN (Low Dose Naltrexone) as an adjunct therapy for MAI.  I have been taking LDN for an AI disease myself, so understand what it is and what it does.  Appreciate your input!

2 years ago

Ksmiles123

Ksmiles123answered the question Inhaler

Ruth, Glad that you are getting it to work. I would recommend using water that has been boils for 10 minutes, let it cool a little. Regular water is not recommended for any device that may enter our lungs. I hope that you feel better soon
ChristinaHKandy also answered the question ChristinaHand 1 other also answered the question

2 years ago

Ksmiles123

Ksmiles123answered the question Eliquis

Hello! It is of upmost importance to be very cautious when taking any blood thinners. I just recently went through a similar situation with a family member on Eliquis.
ChristinaH also answered the question ChristinaH also answered the question

2 years ago

ChristinaH

ChristinaHanswered the question Bronchiectasis

Yes! We are here and willing to answer any questions that you may have Ruth!
Ksmiles123 also answered the question Ksmiles123 also answered the question

2 years ago

Rush

Rushasked the question: Eliquis

I was recently diagnosed with a fib and was placed on Eliquis. Today I noticed that the mucis I cough up is bloody, I am wondering if this is a temporary problem that I have to work through or do I need to see if I need to change my medications.

2 years ago

Ksmiles123

Ksmiles123Hello! Are you in in pulmonary rehab? The article below discusses how to select a suitable program:https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/How-to-Select-a-Program.aspx

2 years ago

Ksmiles123

Ksmiles123

2 years ago

Ruth

Ruthasked the question: Inhaler

I use a ProAir inhaler and Advair. My question is, how do you clean the actuator when it is plugged? Do you use clorox or vinegar to get it to work? Mine seems to be plugged and I have used hot water to get it unplugged. Also do you find yourself very …

2 years ago

Ruth

Ruthasked the question: Bronchiectasis

Is this site active as of 3/26/2022?

2 years ago

Jean1

Jean1

I feel silly. I cannot stop the hiccups since yesterday. I managed to sleep until 3am when they started back up again. Has anyone had this as an issue? If so what did you do to resolve it? I hope and pray this will stop. 

2 years ago

Ksmiles123

Ksmiles123

Hello! Are you practicing mindfulness? The article below offers some suggestions on how to practice mindfulness: https://health.clevelandclinic.org/what-is-mindfulness/

2 years ago

CHtun

CHtun

Found this and would like to share with you all. 
https://connect.mayoclinic.org/discussion
Lung Mucus Clearance .. Reducing The Breeding Ground For Mycobacterium | Mayo Clinic Connect

Lung Mucus Clearance .. Reducing The Breeding Ground For Mycobacterium | Mayo Clinic Connect

2 years ago

marsrocket

marsrocket

Not sure how recent this data is, but according to the ntmfacts website, half of diagnosed NTM lung disease patients reside within 7 states: Florida, New York, Texas, California, Pennsylvania, New Jersey, and Ohio. 1 in 7 NTM lung disease patients resides in Florida. This might not necessarily mean that those states have more NTM bugs than other states. They might just have more doctors looking for NTM when symptoms line up with that possible diagnosis. 

2 years ago

Ruth

Ruth

I am basically fine.  I have a lot of health issues, one being Bronchiectasis and asthma. My question is, is there anyone that has stated the best place to live with Bronchiectasis? My husband and I feel that the Mayo Clinic would be the best resource for both his and my illnesses.

2 years ago

Ksmiles123

Ksmiles123answered the question Thoracotomy

Mollybean, Hello! I am so sorry to hear about the need for a love removal due to location. However, as bad as it is , it is not a form of malignant cancer. It is extremely challenging going through the big 3, the side effects, tge fatigue, etc. However …
mollybeanJohnT also answered the question mollybeanand 1 other also answered the question

2 years ago

Ksmiles123

Ksmiles123

2 years ago

ChristinaH

ChristinaHBronchiectasis and NTM 360 of the COPD Foundation will be hosting a “Bronchiectasis Q & A webinar” on April 11, 2022, at 4 pm EDT, with Dr. Timothy Aksamit, Medical Director of Bronchiectasis and NTM 360 and Co-chair of World Bronchiectasis Day. 
Click on the link below to register for the event!
https://www.surveymonkey.com/r/M9YK6YP


2 years ago

Ksmiles123

Ksmiles123

2 years ago

Kandy

Kandy

2 years ago

TjFlier

TjFlier

Ok

2 years ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.



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