BronchandNTM360social welcomes new member Joyfitz who joins 3,895 current members of our community. Weโ€™re glad you're here!

Storyteller

Storyteller

Just found pseudomonas in my sputum culture. never had this one before. It said 2 + . What have people taken for this ? So nervous. 

43 minutes ago

  • StorytellerAlso said the culture was not great , because of greater than 25 squamous cells.20 minutes ago
Ksmiles123

Ksmiles123

Hello! Do you have a nutritional plan/ goals in place? It is of upmost importance to maintain weight when you are dealing with respiratory infections. Below is a blog article that may offer some tips to assist you with your nutritional goals. I highly recommend seeking a registered dietitian to assist you on the journey. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/108/NTMBronchiectasis-Patients-and-Carbohydrates

10 hours ago

Adi Mendes

Adi Mendes

Bom dia, hoje consegui fazer minha caminhada sem muito cansaรงo.

1 day ago

Ksmiles123

Ksmiles123Hello! We are focusing on goal setting throughout the month of April. What goals to you have regarding coping with a respiratory illness? The blog article below discusses coping with chronic illness: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/162/Coping-with-NTMBronchiectasis-Your-Chronic-Illness

Coping with NTM/Bronchiectasis โ€“ Your Chronic Illness

This blog post was written by Katie Keating, RN, MS, patient advocate and reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee I have learned that most people have never heard of NTM lung disease or bronchiectasis let alone understand what it is like living with such …

1 day ago

Ksmiles123

Ksmiles123

Are you watching the NTMIR patient conference virtually?

1 day ago

Adi Mendes

Adi MendesJUNTOS NA LUTA !!

2 days ago

baileymccrary

baileymccraryHello all! For too many individuals who use supplemental oxygen, the shocking lack of access to appropriate and effective medical oxygen prevents them from leading active and productive lives. The Supplemental Oxygen Access Reform (SOAR) Act is a critical bill that would help restore access to medical oxygen. Please join us with our partners from our legislative oxygen coalition for a webinar on June 4 to learn more about the SOAR Act and how you can take action to call upon your legislators to pass this important bill. Register here: https://events.teams.microsoft.com/event/504db63d-097a-4283-a70d-8a6e83ecb457@81c0c692-d438-4e69-90f3-c0f2c88a4ec7

Microsoft Virtual Events Powered by Teams

Microsoft Virtual Events Powered by Teams

2 days ago

Ksmiles123

Ksmiles123

Hello! Coming to the last hour to register for the virtual BNTM patient conference: https://na.eventscloud.com/website/69272/

3 days ago

Ksmiles123

Ksmiles123

Hello! Below are โ€œ Hopeful Quotes โ€œ on mental health. Please let me know which quote is your favorite quote? https://www.inspiringquotes.com/14-hopeful-quotes-about-mental-health/YIG7VrQR2wAGlBlj?liu=679101a10d878ea8d173d494520017c0&utm_source=blog&utm_medium=email&utm_campaign=2161162464

3 days ago

Ksmiles123

Ksmiles123Hello! May is Mental Health Awareness Month. Below is a link to building a toolkit to improve oneโ€™s mental health :https://mhanational.org/sites/default/files/MHM/2024/toolkit/Coping-toolbox-fact-sheet.pdf

3 days ago

Brittany Irish COPDF

Brittany Irish COPDF created the event 2024 World Bronchiectasis Day Virtual Round Table Event: Expert Opinions on Clinical Research

The 2024 World Bronchiectasis Day Virtual Round Table Event: Expert Opinions on Clinical Research is a presentation focusing on bronchiectasis research. The event features top physicians in bronchiectasis care and individuals living with the condition. …

3 days ago

baileymccrary

baileymccraryHello all! We are pleased to share that the COPD Foundation's priority virtual pulmonary rehabilitation bill, H. R. 1406, has been included on the Subcommittee on Health's agenda for bill markups this Thursday. This is an exciting advancement for H. R. 1406, a bill which our advocates discussed with their elected officials and legislative staff during our 92 IMPACT Lung Health 2024 meetings.

A special thank-you to our IMPACT 2024 advocates for their hard work and focused efforts to spread the word about this critical bill, and a thank-you to all of you for your continued support of our advocacy efforts! You can encourage your legislators to support this bill by visiting our Advocacy Action Center: https://www.votervoice.net/COPD/campaigns/104240/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

3 days ago

JohnT

JohnTvoted on Talking to Your Child About Bronchiectasis and NTM Lung Disease

Gave a thumbs up for a blog post!

3 days ago

PSacco

PSaccovoted on Talking to Your Child About Bronchiectasis and NTM Lung Disease

Gave a thumbs up for a blog post!

4 days ago

PSacco

PSaccocommented onTalking to Your Child About Bronchiectasis and NTM Lung Disease

 Thank you for sharing your experience and wisdom! Patient reported information is critical for clinicians to take into consideration when making treatment decisions. I am a researcher and pharmacistโ€ฆYour experience is so valuable! ...

4 days ago

Brittany Irish COPDF

Brittany Irish COPDF created the event World Bronchiectasis Day X (Twitter) Chat

Join us and other global World Bronchiectasis Day partners for a live X Chat to help spread awareness and share important educational content about bronchiectasis. The chat is hosted on the COPD Foundation's X account: https://twitter.com/COPDFoundation

4 days ago

Storyteller

Storyteller

So discouraged ..another set of PFTs that havenโ€™t improved after ones in October and January. I become really nervous during the tests , but the pulmo didnโ€™t think it would throw them off that much.
He has suggested inhaled azithromycin instead of the oral regimen, as all antibiotics make me feel sick and I am already so underweight.
What regimens have people undertaken to improve PFTs ? I already do airway clearance twice a day with nebulized sodium chloride and vest for 30 minutes twice a day .i also walk for exercise.

4 days ago

Brittany Irish COPDF

Brittany Irish COPDF created the event Airway Clearance and Exercise for Bronchiectasis - Presented by Lung Foundation Australia

In honour of World Bronchiectasis Day, we look forward to presenting this webinar on airway clearance and exercise. Our mixed panel of both consumers and health professionals will answer key questions from the Bronchiectasis community.โ€ฏOur consumers …

4 days ago

Brittany Irish COPDF

Brittany Irish COPDF created the event WBD Webinar: Engaging Patients in Global Bronchiectasis Research Presented by GAAPP

Join Global Allergy & Airways Patient Platform (GAAPP) Chief Scientific Officer Ruth Tal-Singer, PhD, and expert speakers to learn more about research being done in bronchiectasis and how you as a patient or researcher can engage in this work. …

4 days ago

Brittany Irish COPDF

Brittany Irish COPDF created the event Webinar on Airway Clearance

United in World Bronchiectasis Day, NTM Info & Research, Running On Air, and Bronchiectasis and NTM 360 are happy to present this webinar on Airway Clearance featuring expert presenter Pamela McShane, M.D., of the University of Texas-Tyler.

4 days ago

Ksmiles123

Ksmiles123added a new article Talking to Your Child About Bronchiectasis and NTM Lung Disease

This blog post was authored by Katie Keating, RN, MS, and reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee

Bronchiectasis and NTM lung disease can impact every aspect of our daily lives and the lives of our children. Parenting while dealing with a chronic lung disorder can be very challenging at times, to...

4 days ago

Ksmiles123

Ksmiles123answered the question 2024 NTM & Bronchiectasis Patient Conference

Thank you Bren, We had posted it previously. I just posted it again before I read your post. I am attending virtually. Katie

4 days ago

Ksmiles123

Ksmiles123

Hello! Tomorrow is the last day to sign up for the virtual NTMIR Patient Conference, see link below to register: https://na.eventscloud.com/website/69272/

4 days ago

BrenB

BrenBasked the question: 2024 NTM & Bronchiectasis Patient Conference

Hi! Not sure how to post this, so hopefully it works. I did not know if anyone was aware that there is a conference in San Diego this week - the 2024 NTM & Bronchiectasis Patient Conference. It is May 16-17, & they are still accepting …

5 days ago

Ksmiles123

Ksmiles123asked the question: Do you have exercise goals for the spring?

The blog article below reviews the benefits of exercise: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/51/NTM-Lung-Disease-Exercise

5 days ago

Ksmiles123

Ksmiles123Happy Motherโ€™s Day, Grandmotherโ€™s , Godmotherโ€™s Day to be all the members in this group. Happy Day to all who act in a nurturing motherโ€™s role, to all who dream of being a mother. Enjoy this special day! 

6 days ago

Adi Mendes

Adi Mendes

gratidรฃo pelas informaรงรตes , tem ajudado muito !

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


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