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Is pulmonary rehab for you?

Posted on May 26, 2016   |   
Author: Delia   |   
0 Comments   |   
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The Value of Pulmonary Rehabilitation

Do you have questions about the benefits of pulmonary rehab? Interested in learning who should actually seek this structured exercise program? Click here to read a blog post about the value of pulmonary rehab.

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Tags: Pulmonary rehab
Categories: Pulmonary Rehab

Living with Bronchiectasis

Posted on May 06, 2016   |   
Author: Gretchen   |   
14 Comments   |   
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This blog post was written by Mary Kitlowski, founder of Running On Air, who is living with Bronchiectasis.

After years of searching for answers to my health problems, my first real answer came from the diagnosis of bronchiectasis when I was 17 years old. Back in the 70’s and early 80’s the convention was to stay away from too many x-rays. My first chest x-ray revealed a piece to the puzzle that would eventually become my diagnosis of Primary Ciliary Dyskinesia

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Categories: Quality of Life

Identifying Patient-Centered Bronchiectasis Research Priorities: PCORI Engagement Award

Posted on May 06, 2016   |   
Author: Gretchen   |   
10 Comments   |   
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This blog post was written by Dr. Emily Henkle, researcher at Oregon Health & Sciences University.

In January of this year, a team led by Dr. Kevin Winthrop at Oregon Health and Science University (OHSU) began working on a Patient-Centered Outcomes Research Institute (PCORI)-funded project designed to identify priorities and create

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Categories: Research

Key points from NYU NTM Patient Education Seminar, QOL Segment presented by Betsy Glaeser

Posted on April 27, 2016   |   
Author: Delia   |   
9 Comments   |   
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This blog post was written by Katie Keating, RN, MS (patient advocate).

The impact of a chronic illness affects each and every aspect of your life on a daily basis. More research is now being done on how NTM affects the quality of our lives. NYU Medical Center recently held a patient conference and I would like to summarize the key points of a patient speaker, Betsy Glaeser, Leader, NY NTM Support Group.

  • "She always looked good"- most people look at us and feel

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Categories: Quality of Life

Getting Started on BronchandNTM360social

Posted on April 27, 2016   |   
Author: Delia   |   
5 Comments   |   
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This blog post was written by Bill Clark, Senior Director of Outreach Programs at COPD Foundation and Community Manager of COPD360social.

Welcome to BronchandNTM360social! Long ago, we learned that knowledge is power, and we hope you will become a contributing and passionate member of the forum! In order to get the most from the forum, here are some tips to help you learn to navigate the site.

Registration is easy but it is also very important. To utilize some of the

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Categories: BronchandNTM360social Tips

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